My mom was diagnosed with TTP in 2003. She had epilepsy, seizures and at least once a week needed plasmapheresis. She fought going in and out of the hospital for 9 years. She died in 2013 just before her 36th birthday. It was very traumatic for me growing up having to watch my mom go through all of that. It’s almost been 8yrs that she’s been gone and it’s like I never had a mom cus all my memories of her are so blurry.

It is truly a blessing that more information is now available about TTP. I was diagnosed in 1988, very little was known then. It took 3 months for a diagnosis (I had migraine headaches, bruising, and multiple mini-strokes). I was given a 10% chance of survival. By the grace of God, it's 25 years later and I'm still here. There is still much to learn about this rare condition.

I was diagnosed with lupus at the age of 16 I am now 49 and suffer from TTP, as well as APLS which is another form of lupus. I'm on approximately 34 medications including blood thinners but once you have it managed you can have a good life. In the 32 years I've had these diseases it has come along way with the technology. I was in the guinea pig stages but I'm happy to say I got married and I have five beautiful daughters that are in their late and mid 20"s and still are negative for the disease. I have had them tested every year at their physicals since they were around 10. Good luck and have a happy happy life. One thing that helped me get through was the belief that I controlled the disease it did not control me. God Bless

I found out 19 days ago that I have TTP. My doctor found this video and told me to watch it. It was very informative. I like the animations. It is frustrating to me that they don't know the cause. Live each day to its fullest!!

This is what took Dilla. I pray for anyone who has to suffer with this and their families as well

Heartbreaking this is what my youngest sister had and passed in 2001 age 23 to find now there is more help, brilliant but wish it was this advanced for her, and she would still be here, back then her treatment was terrible she could be home but would have to return every other day sometimes every day to have treatment, she was an amazing person and lived with this for 18months till it took her, her body gave out with all the treatment and she had a heart attack

My son was just diagnosed with this last week at 21 and it was a shock as I have never heard of it even working in the medical field for 17yrs. My family and I are tremendously grateful to all the doctors and nurses at Mount Sinai Hospital in Toronto for seeing what the problem was in 2hrs. He was a normal healthy young guy no under lining health issues and all of a sudden one night he started feeling sick, tired, migraines, dizziness and couldn't even make a fist.

My mom was sick one day before she knew she had ttp at the age of 73 years old ...she died 2 days later....I have never heard of ttp before tell now and as soon as I get a chance I would want to be tested for ttp before its to late...R.I.P mom love you

Since I was diagnosed in 2013, I've watched and shared this video hundreds of times. I hope Jose is doing well.

I was diagnosed with systemic lupus in 1991. I also have rheumatoid arthritis, Sjogrens, and narcolepsy. And I found out I have Von Willebrands disease in 1994. Several months ago I got a strange non-itchy rash on my lower legs. I've never heard of TTP or Purpura until today. I stumbled on them while researching, trying to figure out what the rash could be. I'll be calling my hematologist on Monday. 😕

I have TTP too. Thank you for making this incredible film, it brought tears to my eyes. This disease is so rare and so you don't see publicity like this. I shared this with my friends. It is difficult to diagnose TTP so it's important to spread the word.

I wish id known about this illness before i lost my son to this two and a half years ago he was only thirty.His life may have been saved if people had known more about it.He died out of blue without warning leaving four children behind.I think this illness should be exposed to the general public worldwide as should sickle cell(my husband is hbss)which is full blown sickle cell.

I also have ITP.... bleeding can be such a pain to live with. So many nose bleeds and ER visits. I document my journey on KZfaq too.

Sadly my step daughter just passed away from this terrible disease brought

My father who is 70 recently got sick with gastrointestinal bleeding and now diagnosed with itp but because of poor medical treatment in nagaland India we need to go out but because covid 19 we are stuck here n his condition is becoming worse... Pray for him...

Hopefully he gets well ... My cousin passed away with this kind of sickeness

Thank you doctor

I just got of the hospital spent over 2 week found out I had ttp my count was at 9 and went in a coma my count is at 240 now and hopefully it stays that way

Lost my best friend to TTP in 2007. Not much was known about it back then.

My dad was diagnosed with this last summer so heartbreaking thought I was going to loose him so sad that he’s going through this