Ask Kate! Information for adults with neurofibromatosis.

Рет қаралды 1,944

Күн бұрын

Do you have a question about neurofibromatosis? Ask Kate! Kate Kelts, RN, BSN, is the Patient Support Coordinator for the Children's Tumor Foundation. Submit your question in the comments below, or email Kate at kkelts@ctf.org.
Click here to subscribe, and click the bell so that you receive alerts when new videos are posted: kzfaq.info?s...
To enable Closed Captioning, click the CC button. Note that CTF is not a medical center, and we cannot give direct medical advice. This video series is for informational purposes only, and is not a replacement for diagnostic or medical care.
What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
Visit our website at www.ctf.org/
Donate today at www.ctf.org/ways-to-give/
Follow us on our social media platforms:
Facebook - / childrenstumor
Instagram - / childrenstumor
Twitter - / childrenstumor
LinkedIn - / children's-tumor-found...
#endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor

Пікірлер: 15

@071949 5 жыл бұрын

Hi Kate, thank you for another informative video. (BTW, I sent a comment a couple of weeks or so ago about my daughter.) My mother-who was born in 1909-had NF1, as do I. My tumors are mostly on my chest and back, and while I have some itching around some of them now and then I have not had any pain. I have been very fortunate! My question is "What are the odds of a malignant tumor developing as I get older?"

@MyrmidonsProductions 4 жыл бұрын

most of time my lumps don't hurt, but there is pain some times, migraines and all. does make it hard to work. I have the spots to, like its brutal. it is sad that i can't seem to find a doctor for it. Mine Mutated but my PCP doesn't know about it. do you know where i can identify a neroufibroma?

@thelonelyelephant 4 жыл бұрын

Teralcraft a dermatologist or neurologist will be able to help

@MyrmidonsProductions 4 жыл бұрын

@@thelonelyelephant Thanks, unfortunately there is only one doctor in my state that specializes in my condition. He or she does not normally treat adults either

@hannetarfa7592 3 жыл бұрын

Hi Kate,I have NF and I had undergone 4 surgeries,I am soo tired with everything,when will it stop growing back😥😥

@jasondale1370 3 жыл бұрын

I have NF1 and I hate myself

@MegaKurtus 3 жыл бұрын

I have NF1 too. Please try not to think that way....

@jasondale1370 3 жыл бұрын

@@MegaKurtus thanks

@seemaarora1277 3 жыл бұрын

hlo kate...I am from India.My son has plexiform neurofibroma on his pelvis area size 8cm.approx.Any treatment for it?please reply.His age is 21 years.

@childrenstumor 2 жыл бұрын

Thanks for your comment. You can learn more at www.ctf.org/treatments

@marconf4852 5 жыл бұрын

Ciao, io sonoffro di NF1 e ne parlo anche nel mio canale

@arnabbiswas9461 2 жыл бұрын

My Newrofribama problem titmant please help me madicin name

@childrenstumor 2 жыл бұрын

Hi again - you can find out more at www.ctf.org, and learn more about treatments at www.ctf.org/mek You might also be interested in reaching out to our patient support coordinator with questions specific to you. Her email is kkelts@ctf.org