Chronic Illness: A Tale Of Two Faces

Рет қаралды 14,035

3 ай бұрын

#chronicillness #fibromyalgia #mentalhealth
Hey there, welcome to my little corner of the internet. You know, life's been throwing curveballs my way, especially with health stuff. I never expected to be this sick, this soon. Spending too much time in waiting rooms, battling for recognition, that's not how I pictured my life. But hey, I'm all about finding joy and fulfillment despite these challenges. I've learned to embrace curiosity, find strength in vulnerability, and celebrate those small victories. It's all about making every day count, finding adventures within my limits, and creating memories that go beyond my conditions.
I've often dodged the big question: "How do you want to live your life?" Honestly, I didn't have a clear vision. I just knew I wanted freedom from my symptoms and to live on my own terms. Facing setbacks is tough, but giving up? Not an option. My journey's taught me to tackle life head-on, to look for happiness beyond the conventional paths, and to embrace my uniqueness.
So, this space? It's not just for me. It's for you, for us. We're here to build hope, alter perceptions, and empower each other. Despite the struggles, I believe in the possibilities and in experiencing life in all its facets-embracing every high and low, laughing, crying, and allowing myself to be moved by it all.
Welcome to "Through the Looking Glass." Let's dive into this adventure together.
🔶s a y h e l l o
» INSTAGRAM tt_looking_glas...
» FACEBOOK / ttlookinglass
🔶a b o u t m e
I’m Daniela I have been diagnosed with several chronic illnesses. I look normal, I do things, have a job and go on vacations, but inside I'm sick. I live with several chronic illnesses and they affect my daily life. I am in constant pain and struggle with brain fog. Although I'm constantly looking for new doctors, new treatments and solutions I have also accepted my illnesses and do not let them define me. In this channel, I share a little bit of everything. Information about my conditions, my travels, my dreams, my journey, my life. This channel is about life through chronic illness lenses. Come and join me and see what I'm up to lately.
Check out those other videos about my chronic illness story:
👉🏻 MY FIBROMYALGIA STORY
www.youtube.com/watch?v=mWb_r...
👉🏻 IF YOU COULD SEE. MY ILLNESS
• IF YOU COULD SEE MY PA...

Пікірлер: 24

@jaeldekkers1 3 ай бұрын

❤❤

@maslina4567 3 ай бұрын

Absolutely spot on! What an encouraging video...videography is outstanding as well. "Seek more...". YES!!! We CAN find life, meaning and joy. In fact, dare I say we appreciate it even more than others as it's hard earned and comes with sacrifice? It does my heart good to see you in your happy place. I'm in mine, too. ❤ Thank you!

@tt_looking_glass 3 ай бұрын

Thank you so much for your encouraging words! I absolutely agree with you - the life, meaning, and joy we discover through our struggles do seem to hold a deeper significance. It's like the effort and sacrifice infuse every moment of joy and every achievement with extra richness. It's comforting and inspiring to know you're finding happiness in your happy place too. That connection, knowing we're not alone in our journeys is incredibly powerful. Thank you for being a part of this community, for sharing your light, and for reminding us all that, yes, we CAN find life, meaning, and joy, often in ways that are uniquely profound because of what we've endured. Let's keep seeking more, together. ❤

@debrairvin9776 3 ай бұрын

I’m glad you were well enough to get away! 💜

@tt_looking_glass 3 ай бұрын

This was back in January! So before I got sick. But I’m hoping to go for a short camping trip soon. 😍

@wendygraham7787 3 ай бұрын

Did you have to cancel your trip to Thailand 😢

@tt_looking_glass 3 ай бұрын

Yes I did. 😩Unfortunately. It’s all coming on the next vlog on Friday.

@healwithlaurennicole 3 ай бұрын

YOU ARE AN ARTIST. Daniela, you truly have a gift. This video is nothing short of INCREDIBLE. I admire your creative skills and talents so much! The message here is so pure and spot on. You're awesome. Keep going.

@tt_looking_glass 3 ай бұрын

Wow! Thank you so much! Your comment really moved me. I really appreciate your support and encouragement. ♥ I'm deeply grateful to have you as part of this community, you are always uplifting and supportive. Thank you for everything!"

@healwithlaurennicole 3 ай бұрын

@@tt_looking_glass right back atcha! ;)

@mahsamot8442 3 ай бұрын

We love and respect you and I hope one day we are able to fine a cure but we need to fight for our cure..

@tt_looking_glass 3 ай бұрын

Thank you so much! These are such kind and encouraging words. I really appreciate. ❤️

@user-dr6xn8fo9q 3 ай бұрын

Bravo bravo bravo … you are a source of inspiration and love. You’re making a difference. Today was the first time in five months since surgery to take a walk using a walking stick and saying to my hubby I’ve got this and my phone 😂just in case. I made it. Thank you for your support ❤. You are a blessing and so much more. Enjoy Thailand 🎉

@tt_looking_glass 3 ай бұрын

First, thank you so much for your incredibly kind words and for sharing such a significant milestone in your recovery journey with me. You embody the spirit of resilience and courage, and I'm so proud of you for saying 'I've got this.' You're making such inspiring progress, and your story is a testament to the strength and positivity that we all strive to have. I must share some news about my own journey-due to health setbacks, my trip to Thailand has been cancelled. It's a disappointment, of course, but health must always come first. I've shared all about this decision, the reasons behind it, and how I'm coping in a new vlog. It was important for me to be transparent about the ups and downs of living with chronic conditions, and I hope it can offer some comfort or insight to anyone facing similar challenges. Thank you for being a part of this journey, for your encouragement, and for being a source of inspiration yourself. Let's continue to support each other, share our stories, and find strength in our community. You are a blessing, and I'm grateful for your presence here.

@user-dr6xn8fo9q 3 ай бұрын

@@tt_looking_glass Thailand will be a very healing place for you. It was for me. Thank you for your many kindnesses and support. Of late, I’ve had to really prioritise what’s important. Guess what - not vacuuming lol. My daughter and son probably only remember me as sick. The accident happened when they were 7 and 4. My daughter is grown up now. Loves me to bits. Last week she wrote that I was the strongest person she knows and how proud of me she is. That meant a great deal. I’m sure you have similar support. But being on your own, isolated and feeling hopeless often leads to despair. Through your channel you have the ability to communicate, educate and advocate for positive outcomes for those feeling lost. You got me with that one word - unreliable. For years I found it difficult to articulate that feeling deep inside that hurts but in your own mind relationships with others - unreliable. How we prepare for medical appointments is critical. How we communicate. I often try to laugh with my partner - lighthearted ruse to let the dr know I’m more than just pain. One needs a plan every time. I’m not a martyr. I’m someone that wishes for others to never have to go through the discombobulating journey / never a straight shot ugh. One needs all the reserves they have. Every bit of your own research helps. Drs want to know your invested and will put in the work. Daniella do you have a headache journal - something that prompts you to record on some consistent measure. That would be helpful. Re migraines - I was 10 lost a parent in a car accident and had to play a tennis final later that week. I’d said to my mother I felt sick to my stomach. She said nerves - played first set and the second set - projectile vomiting whilst I was at the net. The ref said I could replay another day. I knew this was against the rules at Wimbledon etc lol and said no I don’t wish to be treated differently. Moral of the story. Don’t play tennis with a migraine lol.

@tt_looking_glass 2 ай бұрын

Thank you for sharing your heartfelt experiences and reflections. It's truly moving to hear how you've navigated your journey with such strength, and it's wonderful that your daughter sees and appreciates that strength in you. Your story reminds us all of the importance of prioritizing what truly matters, and definitely, vacuuming can wait! Thailand was indeed an amazing trip and everything I had hoped it would be. It provided a refreshing and healing environment that really helped me reconnect with myself and what’s important in life. Your tennis story ( I love your humour), also touches on an important point about not pushing ourselves too hard during tough times. It’s a valuable lesson in listening to our bodies and acknowledging our limits. Thank you again for your kind words and for being a part of this community. You’re not just supporting others; you’re inspiring and teaching us too.

@JessJessicaPetra 3 ай бұрын

❣

@tt_looking_glass 3 ай бұрын

Thank you. ♥️

@stacyjessup9577 3 ай бұрын

Did you ever get tested for the ankylosing spondylosis? Have you started on hormone therapy and is it working?

@tt_looking_glass 3 ай бұрын

I got officially diagnosed with Ankylosing Spondylitis or rather Non-radiographic axial spondyloarthritis which is a subdivision of AS. It’s all coming on a video soon. Also, I have started HRT and my symptoms have improved significantly but not the pain, just the hot flashes. However, it has made my migraines worse. I’m giving it a bit more time to see if it settles before making a decision if it’s worth continuing.

@stacyjessup9577 3 ай бұрын

@@tt_looking_glass that's not just arthritis? Can you do anything for that?

@tt_looking_glass 3 ай бұрын

Ankylosing spondylitis and arthritis are related but distinct conditions, and it's a common question to wonder about the differences. Arthritis is a general term that refers to inflammation of the joints, and there are many types, including osteoarthritis (caused by wear and tear on the joints) and rheumatoid arthritis (an autoimmune condition). Ankylosing spondylitis is a specific form of arthritis, but it primarily affects the spine, although other joints can also be involved. It's characterized by inflammation that can lead to the fusion of the spine, causing chronic pain and stiffness. Unlike more common forms of arthritis that might target the joints in the hands and knees, AS tends to start in the lower back and can progress up the spine. The cause of AS is related to the immune system, and it's thought to have a genetic component, especially linked to the HLA-B27 gene. This makes it different from other types of arthritis caused by wear and tear or different autoimmune mechanisms. As for treatment, while there's no cure for AS, a combination of medications, physical therapy and lifestyle adjustments can help.