Thank you for sharing. I've lost friendships becuase they told me to just "take a Tylenol." Nothing has worked for me, including prescription meds, which caused severe depression and suicidal ideation. I'm visiting my Doc next month and am going to mention Emgality:)))

I get all of that with intense nausea and vomiting too. There is no pain quite like having a migraine and heaving. It feels like your whole body will explode…Sorry for the graphic description 😊.

I have night sweats alot as well. Over heat really quickly or can't warm up. So regulating my body temperature is hard

Hi, i can relate to a lot of what your saying regards having to live with Fibromyalgia. For many years it's been part of my life, & to a point part of many others lives who know me or are are aquainted with me. For a long time in the late '90's i just tried my best to deni my poor health, but being married, having children, coping with juggling working, & so much more... finally took it's toll on me, to the point where i feel totally "broken" both emotionally, physically, & mentally. But all i can do is take one day at a time & pace myself, accept help (which i find extreemely hard to do still, after over 40yrs of living with Fibromyalgia). 😊

I’ve crisscrossed my legs my whole life and always lying down with my feet up… didn’t get symptoms until I was 27…crazy!!

42 years for me. The most mysterious debilitating medical illness on earth. We are as sick as one can be without dying. To be honest and without sugar coating anything for FM, CFS, ME patients we are no closer to a cure nor adequate effective treatment then we were 42 years ago. Note to all: If you do not have the following 3 symptoms then you do not have Fibromyalgia. Many doctor's have misdiagnosed this condition. There are no proven medical test to confirm Fibromyalgia. Thus the reason it may take years before a proper medical diagnosis can be made. There are many other symptoms however these following 3 conditions will let you know you have been accurately diagnosed. 1. Wide spread pain throughout the body, EVERYDAY! 2. Fatigue - A sever and overwhelming exaustion at any time of the day. Not necessarily every day. 3. Profound & intense non restorative Sleep Disorder. FM patients cannot fall into what is know as Slow Wave Delta Sleep. We have a constant inability to get deep sleep REM. Our brains are constantly awaken by what is called Alpha Wave Intrusion. A sleep study or what is medically known as a polysomography will identify this. There are 4 know stages of FM ranging from 1 to 4. Stage 4 being the most severe. I have spent the better part of my last 42 years researching and studying FM. Fibromyalgia is like an alarm system in the body that continues to ring although there is no reason the alarm continues to sound off. FM is not a new condition despite what people beleive as it has been well documented in excess of 100 years. Hello from beautiful Canada 🇨🇦

What about puking😢

It’s relatable but I’ve been going to a therapist for my POTS and it’s becoming manageable😆😆

Thank you for sharing this God Bless you 🙏 I think I have this 😢

Thank you, love the migraine cap. I have headaches daily but migraines not as much.

I HAVE HAD FIBROMYALGIA FOR MORE THAN 40 YEARS. I HAVE TRIED EVERYTHING. STILL DON’’T UNDERSTANDIT MY DOCTORS DON’t know anything.

You don't need a cordless mop. You need a ROBOT mop! I have 2 floor cleaning robots and one is a mop as well and they are LIFE CHANGING when you have fibromyalgia. I can have a lie down while the robot cleans the floor. You still need a cordless vacuum sometimes for getting into corners etc. But it means a cleaner house with way less effort. Pro tip: Look for a robot vacuum/mop that you can send to a specific area to clean so you can spot clean without having to lift the robot as they can be quite heavy. That way you can quickly clean up a mess without having to vacuum or mop an entire room. Hope this helps.

Hi there! I am from India. U can put 4-5 drops of lukewarm cow ghee in each nostril before bed. Try this, here many people have benefited.

It must be the fibro fog, but I first heard "enjoy breakfast with someone" as "enjoy breakfast with some wine" 🤣 🤣

I had that during my separations physical when I got out of the Marines. They said it was severe anxiety, lol. As crazy as it sounds what helps the most is exercise, especially elliptical machine at the gym or just going for a jog. It's like it burns all the adrenaline off. The downside is you feel horrific and dizzy during the first few minutes of a workout.

❤ This video wasn't boring at all. I'm a new subscriber and have been binge watching all your videos in the last week. I'm so sorry you're going through so much, but you're such a fighter and such an inspiration. I've recently been diagnosed with Fibromyalgia and your videos have helped me in so many ways. From understanding what Fibro is, to advice and tips on how to manage on a daily basis and even flare ups. I can't thank you enough and I no longer feel alone in this battle. Sending you all the love, support and gentle hugs from the UK!

I have fibromyalgia and lately I’m not as strong as I was the pain the memory and the stomach problems and the sleep problem is killing me and I find I can push through anything anymore I’m just giving into the pain as it’s beat me.

This is me ,waiting on tilt table test ,only recently discovered i should raise my legs ,thanks for this 😊

Read the book "Super Gut" by William Davis. He shows by his research that fibromyalgia, restless leg syndrome, chronic fatigue and many other chronic illnesses are the result of an overgrowth of negative bacteria and fungus. This situation can be reversed by diet and avoidance of certain foods and food additives. I personally know three people who have transformed their lives with this information and protocol. Well worth reading his book it may transform your life.

This is a very comprehensive list of coping skills with fibromyalgia, but I like your spin on it of "living"! I've learned some new things from this, and you've reinforced some findings I've had in my long fibromyalgia journey as being what other people come up with as well. Thanks for all the effort you do to make such quality content, Daniela! You are much appreciated. One insight I might share is with regard to doctor specialties. When I was diagnosed in 1994, I felt like rheumatologists were really engaged as the go-to specialty for our condition. But now, they seem the quickest to dismiss us. I did have a great relationship last year with a rheumatologist, but unfortunately his practice does not take my new insurance, so I had to go elsewhere. If I change back to an insurance he takes, I'll be sure to return to him.

Dr. Joel Kahn has great info about POTS.

This is amazingly on point with what I've been considering and the many life changes I've made to both cope with and find success with fibromyalgia. Thank you for this, and the many other topics you have posted to date! BTW Daniela, I'm on a social media site called Mastodon. I just put out a big post to try and draw traffic to your channel from like-minded people like me. Hope it raises visibility for you! ❤

I have watched them all I like wedding crashers it is so funny! my list is long Blended ,Grownups 1 &2,Joe dirt, license to drive, the burbs, urban cowboy, grease ,lost boys ,pretty in pink, breakfast club, baby momma. I am a hug movie fan .I have hundreds of DVD blue rays, a lot of brattish shows also .thank you for sharing your list with us. blessing!

Hi Daniela, thank you for the movie suggestions. Even though I've seen them all at least once, your praise for these movies makes me really want to watch them again. I can't pick a favorite. At the moment I'm most looking forward to a comedy. One of my favorite movies is "Due Date" it is a Comedy-Drama. I think you will also really like it. I've also been struggling with all the weather changes lately. It's hard on the body. Two days ago I was under my electric blanket and today it is 30C - 86F. And fight a migraine today. Sometimes it feels like a never-ending story... of struggle and pain. So, yes...time for some humor😁 Lots of love, strength and health to you and to everyone here in this company❣

❤💙🧡❤‍🩹

OMG!! I hate to say I know how you feel, only because I don't want to diminish your pain in any way. But what you you just read was so similar to my MRI reading I received at the end of April of this year for my cervical spine and the CT-scan from my lumbar spine last fall before the last fall. I have 4 levels of bilateral stenosis (compression) in the cervical spine and 2 levels of central stenosis in the cervical spine with new bone growth that was not there in March of 2023 when they did a bony fusion at C6/7 and removed 3 spikey osteophytes as well as a ton of scar tissue from the 2006 fusion where the scar tissue became adhesions and didn't stop growing causing twice the amount of time to do the surgery. I am now waiting for the surgical scheduler to call for the 3rd fusion and this time they are going to put stabilizing cables in from the back after they complete the fusion from the front. I am so extremely sorry you are facing this pain! I would not want anyone to feel this! Last night I laid in bed for about three hours with fiery hot nerve pain in the right side of my face unable to do anything but try to hold still so the pain would not increase. I want to be able to live a life that does not require me to stay alone in this bed. I really hope you get the meds you need to help you. I don't know what is next after this surgery for me, But I hope I will be able to laugh more with out trying to hold back out of fear of pain.

I watched the Whole thing. ❤

💯

I can so relate. I haven’t been comfortable sitting in a regular chair for years. I have ddd but a previous g.p. thought I had a.s.. My spine has never fused so rheumatologists pretty much laughed me out of their office. I am hla B27 positive , I have eye trouble and have had 4 back surgeries. Crazy pain and wide spread neuropathy . I’ve been referred for Ketamine but cannot afford it. I am not far from Toronto but haven’t found a clinic tha doesn’t charge 750 dollars per infusion. Your back sounds terrible. Similar to mine. There is new research that fibro myalgia can be seen in brain imaging. So it likely originates in the brain. It’s on you tube.

I can so relate. I haven’t been comfortable sitting in a regular chair for years. I have ddd but a previous g.p. thought I had a.s.. My spine has never fused so rheumatologists pretty much laughed me out of their office. I am hla B27 positive , I have eye trouble and have had 4 back surgeries. Crazy pain and wide spread neuropathy . I’ve been referred for Ketamine but cannot afford it. I am not far from Toronto but haven’t found a clinic tha doesn’t charge 750 dollars per infusion. Your back sounds terrible. Similar to mine.

Thank you Daniela for the movie suggestions. I’m going to try to get them at the library. We too are having such erratic weather and my fibro is flaring up in my left foot - bad. Once in awhile that ankle hurts due to the weather changes but not as bad as the last two days. I can barely walk and therefore cry a lot.

Just found your blogs. Awesome. I’m going to Kingston pain clinic and the Keyptamine is really expensive, not covered. May I ask where you go to get your infusions. I am in dire need .

I love the movie “It’s Complicated”!! I’ve probably watched it at least 4 times. 😂 Watching movies is very comforting to me when I’m in pain. These are great suggestions. Take care ❤

Great suggestions! I LOVE wedding crashers 😂😂😂!!! We watched it yesterday on TV, but I believe we own it. Pulp fiction is one of my all time favorites! My suggestions will all be lighthearted snd/or comedy: Soul Surfer (true story), The Way Way Back, Blended, Role Models, and Wanderlust.

For me the following movies make me relax/smile/go to lalaland; The Shawshank Redemption (just saying that out loud 3 times is fun!), Grease (for some singalong), Big & Forrest Gump (because Tom Hanks) and Pretty Woman (no list is done without Julia!) Your suggestions are great too, I'm going to rewatch Big Lebowski this week! 👍

I love these suggestions! Thank you 🌼

Finally someone who can put words to my life. Thank you for being a voice to this very loud invisible illness.

Wow! 😮

Damn. Three shades? That’s genius

<3 oh sweetie I am so sorry :( Saying that it sucks is just not enough. It just baffles me that the healthcare system can be so calloused and yet ...not surprised which is sad. Sending you so many thoughts and prayers that things work out and can move faster with the other dr. Coming to terms with a new diagnoses, medications and possibly going on biologics is a looooot to deal with. But I really hope you get the help you need and finally something that can lighten the load at least a little <3

Wait you can feel em comming? Mine just RKO me out of nowhere

You are good ❤ i hope 🤞 for you

I cannot even think of using ice. I have a heating cap. Heat works better for me.

You're right, it is definitely a full time job trying to look after your health. I think it's a good idea to write everything down like who you are speaking with and what they say.

Please help me. I am also suffering from 3 years of pain in the upper area of neck (head) right side 🙏🙏🙏

Those curtains though... gave me an idea for my windows.

I do not comment to anything but i must to you....thank you thank you for speaking so openly i cried after watching as it validated everything i am going through ❤

I really enjoy your videos! I am on a similar journey. It is so frustrating! I wish you lots of luck and healing. Will keep following!

❤

Now test your BP lying down vs standing. I never noticed my blood pressure dropping as my pulse increases. It makes me want to vomit.I never noticed until I had stent surgery what wide swings were occuring