Don’t worry about standing/sitting/kneeling! Or mom guilt of “not doing enough,” while you rest. Your kids can learn about how to love and how to serve as your arms and legs around the house. And you can give them the motherly care and affection that only you can give, even as you’re sitting down. Listening to Relevant Radio helps to keep your mind occupied! Prayers

I developed a chronic pain about 15 months ago. A myriad of med trials, later, still trying to figure it out. It’s destroyed my mood stability and I’m trying to climb back out of it. My husband has been amazing. I get so sick of hurting that there are days when I would cry all day. I feel for you. I’m amazed that you can pull off a podcast. Thanks for the honesty. It’s so hard. So hard. My priest just anointed me a few days ago. He read me psalm 22. I said, “Yes, that’s how I feel.” Then he reminded me it was one of Christ’s words from the cross. It was so beautiful. I homeschooled my now grown kids. I used to hike my late Siberian Huskies all over the woods of Roswell, Ga (where I live) and now I can only walk, on my own, slowly, around my block. God bless you, Cameron. You will be in my prayers.

Rosary and Divine Mercy Chaplet for you beautiful lady! Hope you feel better. 🙏🏼🙏🏼

Cameron I have lived with chronic pain for years. My Mom would yell at me saying you are so slow. I am twice your age put a little spunk in your step. I would feel so bad. I keep saying I can’t my joints are hurting,! I feel like I am a hundred years old. The medical field at the time did not know what they know now. The best solace I have is the old Cliché , offer it up for conversions. When I began to read about all the children of Fatima were shown. I beg God to help me to accept it but I still pray for healing . You must be a highly favored daughter. God bless you. Read also about the Carmelites. God give you hope and joy and peace. Who cares what people think. Care what God thinks and your beautiful family. Thank you for speaking so candidly. Also if you have not read it yet “ 33 days to morning glory” . It is full of healing and spiritual insight.💗

Oh, Cameron, I’m so sorry. I have an “invisible” disability too. I am deaf, so in Mass, I will often pull out my phone and look up the readings on USCCB site (whenever I forget my Sunday missal) because I cannot hear every word of the reading. I know the fear of being judged. Thank you for sharing! 🙏🙏 🙏 I will keep you in my prayers

"O God, thou art my God; early will I seek thee: my soul thirsteth for thee, my flesh longeth for thee in a dry and thirsty land, where no water is; To see thy power and thy glory, so as I have seen thee in the sanctuary. Because thy lovingkindness is better than life, my lips shall praise thee. Thus will I bless thee while I live: I will lift up my hands in thy name."

Cameron, you are the real deal…between you and Matt and all the souls you carry to Christ …prayers for you and thank you for your wisdom and honesty …God is so close to those in their suffering 🙏🏻💕

Oh boy! This is tough… thanks for being honest - that’s what I love about your and your husband’s channel! I am a cancer survivor - had Hodgkins Lymphoma when I was 22. Endured 6 months of chemo - not easy. But here I am and I’m 43 years old with a wonderful husband of 23 years and three boys! God always brings good out of suffering! I will keep YOU in my prayers! Also, I recommend a Catholic spiritual book, “My Daily Bread” by Anthony J. Phone, S. J. Confraternity of the Precious Blood. It will lift you up to God and help you through your entire life!

Thank you for your honesty and compassion. I usually don't agree with your politics, but this was really nice to meet the personal you. I live with an autoimmune disorder, and I get how hard living with a chronic illness is. You have reminded me that we are all on similar journeys, and have a lot in common. It was good to be reminded that we are not so different after all. Thank you!

Cameron. I can totally relate to your story. I have Sjogrens and Lupus. I had so many gastrointestinal issues growing up. I’m sure there’s a clear connection between gut health and autoimmune issues. The thing is that we don’t look sick. We also have to give Grace to those around us because it’s so hard for them to understand why one is to fatigued all the time. My inflammation shows up in the blood markers and my joins hurt, yet they don’t look swollen. The “crumple and fold” feeling plus the brain fog that comes with it it’s just so real. I’ve come to accept that’s God’s Will for me at this stage and whenever I feel bad, is Jesus himself sharing his pains I just go into Getsemani with him, or to his Passion. I’m sure he can do great things with our pains and struggles, offered up with Love for the Glory of the Father and the Salvation of Souls. Hang in there my dear!

I suffered from chronic back pain for years due to injury. I had to quit taking ibuprofen because of stomach and blood pressure issues. I started drinking tart cherry juice, and it helped tremendously with inflammation and pain. If anyone out there sees this, I pray it helps you. And always offer your suffering up to God. I'll pray for you all. If you don't mind, pray for me as well, as I'm struggling with some other health issues at the moment.

I can’t thank you enough for this video.

Hello Cameron 😊 I have rheumatoid arthritis and feel exactly the same way you do when it comes to the inflammation and pain. I also have times of feeling like I am really sick when I'm not alone with fevers sometimes. I have been and will be praying for you.

Dear Cameron, Very sorry to hear of your struggles. Can see the pain and frustration in your eyes, but also your trust in God. Definitely relate to the pain and how invisible chronic health problems can be....many years with Lyme. May God keep you and your family close to His heart.

Golly, I’m always so impressed and refreshed by how real and raw you are💕 I have fibromyalgia myself (I’m in my 30s), so I appreciate this topic of discussion. It’s so cool how you can be in so much pain, yet your eyes never lose their sparkle!!

I’m so sorry for all of the suffering you are going through, Cameron! Your perseverance is so inspiring! I will pray for you.

You’re so beautiful Cameron! And you look sooo beautiful!! May God continue giving you the strength you need to go through this difficult moment in your life. I will pray for total healing for you, if it’s God’s Will.

Omg! I’m in tears. I know exactly what you are feeling and hearing you talk makes me feel so sad to know you are going through this but also relieved that I’m not the only one experiencing these pains and struggles. I have migraines, allergies, ibs, gerd, fibromyalgia, chronic fatigue, anxiety and heart disease. Prayer is how I get through. My Love of Divine Mercy and spreading Gods Mercy and Love is what energizes me. I’ve lost a lot because of my conditions but God has blessed me with many graces and gifts and I devote myself to learning His word, reading spiritual books, praying and being involved in my ministries at Church. While I can’t always be 100% anymore God knows my heart and I get through with His help and the people he puts in my life. My prayers are with you. Thank you for doing this video. Please do more of these when you can as so many more need to hear this message. I struggle with brain fog and I know how hard it is to grasp for words. You did a great job. Know that you are not identified by your ailments.Your amazing in Gods eyes! God bless you and your family. You will be in my prayers. 🙏🏼❤️🤗

You are a beautiful daughter of God. Thank you for inspiring me and many others. So refreshing to see a real woman willing to be vulnerable about her struggles...you are a blessing. 💝

I'm so sorry for all the suffering you are going through, and thank you for being real with us. I would love if you had a podcast about miscarriage. I just lost a baby at 20 weeks, and it hurts that nobody likes to talk about it- even though it affects so many women. Just a suggestion. God bless!

I’m going to check back. Ave Maria Kathy

Hi Cameron! I know I'm a little bit late to the game of responding here, but I wanted to take a brief moment to sincerely thank you for sharing and posting this episode. I am 23 years old and recently got AS added to the end of my name. Ankylosing Spondylitis. An autoimmune disease that attacks your back, hip and shoulder joints. It made me cry listening to your story and to know that I am not suffering one bit of these humiliations alone-looking fine and (maybe?) healthy on the outside, but hardly being able to move, the inconsistency of pain (never knowing what day is going to be hard to even get out of bed), and feeling so useless and hopeless compared to the 'me' that loves to do, do, do. My heart goes out to you, and you are in my constant prayers. You are right-the cross is the only way to love. Thank you for words of encouragement and inspiration. Thank you for making me not feel so alone.

Hope you feel better soon! I will pray for you!

Ms. Fraud thank you for this talk. I humbly feel our lady’s push to comment in thanks (I rarely do as I am scared to; social anxiety is great right) I have had anxiety since I was a teenager but more recently my chronic pain over the last 10 years has finally been tentatively diagnosed as Endometriosis. Still awaiting a specialist. This has come in the first 6 months of my marriage to my wonderful husband whom suffers from watching me go through the pain. Like you this last Saturday evening I was in mass and had to leave to take pain medication with food. When I returned to the pew I began to cry during the Eucharist as I asked God why why is this happening. I did not have an answer until I sat with my husband and we began to laugh as we both agreed when we asked Jesus to help us suffer meaningfully this is not what we had in mind. Thank you so much to you and your husband for all you do. I hope in my wish to become a saint I can strive to be my authentic self more and not fear this condition.

Matt sent me here (patron of Pints). Oh, my gosh! My wife and sister-in-law have EDS too! It's a really tough one to live with. I would love to share some of the remedies they use to help with the effects, if you would allow me. I'll have to ask about them since I'm not recalling them offhand.

I have an immune disease and lung disease. I pray for you Keep living, don’t give up. God loves you. People will advise you on diets, exercise, vitamins, etc. but you know your body better than anyone including doctors. Listen to your body. Hardest thing is giving yourself permission to rest.

Cameron, you are an inspiration to me. When I start to complain about my minor pains, I remember you and your cross. My heart aches for you & your family. Cameron you have a beautiful soul. I know there is not anything I can say that will take your pain away. Like the doctor said you need to take care of you. Know that I am keeping you in my daily prayers.

Thank you Cameron for sharing As you well said we need to embrace our cross and when we can’t we need to ask the Lord to be our Cyrene Praying for you 🙏 God bless you

I was 38 when I found out I had breast cancer. I was lucky enough to be able to remove my breast and be done with it...considering my biopsy said 'high grade and very aggressive'! My problem was with reconstruction of the breast. It fell at the time when there was a recall on implants (my surgery was Feb. 1999) I could have gotten an implant, but I would have had to follow-up with the FDA for 10 years! I heard that and said "no way!" So the Dr. told me about a surgery where they take one of your stomach muscles and make a breast out of it. Its all natural, though the recovery is longer. Its called a Tram flap. Sounded like the right thing for me. After all, I had already gone through 2 ectopic pregnancies, I can do this! So I did. All at the same time, they removed my breast, then cut me from hip to hip (literally) the stomach muscle remains connected at one end for blood flow. They then feed it under your rib cage somehow, then to the breast area. So I woke up with a breast,. What they didnt tell me is that I was going to have 3 breast. Its known as a bulge..or that I wouldnt be able to stand straight up. It was because the muscle was pulled too tight. The bulge was in the center just below my breast. The real problem was that you couldnt touch the area, it felt like I was being electrocuted. They called it nerve damage! When I showered it was like being shot with bullets..so I didnt face the water. I also couldnt hug anyone without putting my arm up between us. I also found that I couldn't lift much more then a gal. of milk, or open the doors at a convenience store, or dance, or walk my dog because he might pull me, or have normal relations with my husband, or hold a baby, grocery shopping, vacuum my house, the list goes on! This surgery destroyed my life! I couldnt even sue the Dr. because lawyers didnt understand the surgery. I couldnt even find a Dr. that understood it. I do remember the panic button going off inside of me when I realized they couldn't fix this! After 8 years, I found a Dr. that specialized in this surgery. He was able to sever the muscle at the breast because it now had its own blood supply. That allowed me to stand properly, though the nerve damage is still there..and I am now 61. My husband was always there for me, but my family..5 brothers, 1 sister, our parents died early...not so much. I live with it, because I have to, with the help of medications that I hate! I am so sorry this was so long!!

Thank you for this. I don't have chronic pain but I needed your Ending messages about embracing your own cross.

Thank you for your candor and sharing your vulnerability Cameron. My adult son and my grandsons have autoimmune diseases and as men, they are especially judged for their limited mobility issues. My 15 year old grandson has JA and kneeling in church is difficult for him when he has a flare. I notice the sidelong glances from some even at Mass. Chronic pain is difficult enough let alone the pain of being judged by others. God Bless you greatly especially during your suffering and may He give you necessary relief and comfort. 🙏🏻💖

Thank you for your honesty, your video made me cry, thank you💕 you are not alone!

Thank you for your video and message. This is the first time meeting you. I have been living with relatively new onset of pain that seems like it is becoming chronic and day to day. I am persevering and offering it up but some days it gets overwhelming. Thank you, I needed to hear your message this morning giving me consolation that I am not alone. God Bless You!

I have been worried about you, thank you for updating us. You and your family are in my prayers. It is very hard having an “invisible” disease. May you feel comforted and strengthened by the Lord, dear one.

Prayers 🙏 for you! I'm sorry your going through this! THANK YOU for sharing!

Thank you for this video. I’ve been chronically ill w a couple of autoimmune diseases for over 30 years. I’ve been trying to take it easy on myself this Lent, but sometimes fall into beating myself up about it too. Praying for you! 🙏

Praying for you, Cameron. Thanks for making the video.

Thank you! I literally woke up in pain and tiredness praying to God, how to you want me to handle this Lord. I go between the “push through” old me to the you gotta rest me. Mine is Fibromyalgia. Reading all these comment halos me remember, I’m not alone and that is important. My prayers for all of us and I type this I’m reminded of the Serenity prayer “God, grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference. Living one day at a time, Enjoying one moment at a time, Accepting hardship as a pathway to peace, Taking, as Jesus did, This sinful world as it is, Not as I would have it, Trusting that You will make all things right, If I surrender to Your will, So that I may be reasonably happy in this life, And supremely happy with You forever in the next. Amen” God Bless you all!

Praying for you, Cameron 🙏 Thanks for keeping it real, and inviting others to as well!

Thank you so much for sharing. You're story and example to others will help so many people. Praying for you ❤

Dude! I also have EDS. Sometimes it is the worst. And it's so hard to explain that my body is falling apart and I'm exhausted from just trying to hold myself together. Praying for you.

Thanks, I've been with Crohn's Disease since the age of 12 for about 13 years now. I am currently hospitalized due to a bowel obstruction. It's good to hear Chronic pain stated in grace, for too many times I fall into the devil's "woe is me" trap. Physical Chronic Disease is a weird thing where the stories should be shared, and yet it also takes a real son of God to not spread that disease metaphysically in describing their valuable life experience. I will be praying for all of you 🙏❤️ ❌

Thank you for posting this Cameron. It’s really hard to deal with chronic conditions. I’ve had multiple conditions for a couple of decades now and it’s so misunderstood. It’s a constant draining full time job just to do the basics of things that we take for granted when we have good health. Just getting up and dressed feels like a full day’s work. And like you say, not looking as ill as you feel makes you really self-conscious and like you’re “faking”. You’re not, it’s really, really hard to cope with. God bless you. Edited to add: you asked about topics to cover and I wonder if you could talk about the desire to be understood and not judged because of chronic illness? I’m just converting to Catholicism and I’m already getting anxious about not being able to attend mass weekly and not being able to do the kneeling and standing… x

This is really inspiring, I relate to your openness and sensitivity! Maybe there are days when you don’t “feel beautiful” but you really are :) If only more people were as authentic and real!

I understand a little. I have an autoimmune disease as well. I have multiple sclerosis. I hate it. I get random pain in my limbs. I can barely walk. I'm 41 and I have to use a walker and I should really have a wheelchair. I can't right now because of where I live. I have the opposite issue as you do with regards to heat. Heat and humidity are my kryptonite. It drains me of life. The extreme cold makes me lose dexterity in my hands. I haven't been able to genuflect in over three years. I hope you can find relief in someway. And I'm glad you have Matt at your side.

Thank you so much for sharing! I love how you talked about people possibly being more understanding if they could see what you're going through... it's so true. I'm so grateful you have a loving and supportive husband and that you are offering your pain up to God. Trust in his mercy. Saint Mother Theresa said, "Suffering, pain, sorrow, humiliation, feelings of loneliness, are nothing but the kiss of Jesus, a sign that you have come so close that he can kiss you. " You are so relatable and are a gift to me and so many others. God bless

Oh dear Cameron ! You have just described everything I am going through now ! Even my thoughts about people judging me while in mass ! I pray for you as well as myself to have pain free days and to accept and embrace our cross with gratitude and humbleness. May the Lord be with you +

Thank you, Cameron, for this honest and raw talk. I too have been struggling so much with chronic inflammation and pain since I was in my teens and I’m 48 now. I converted to Catholicism 8 years ago and it saved my life. Catholicism gave me so many new tools of prayer to manage the bad days. Your testimony reminds me that it is a blessing to be able to relate to others who are also experiencing a similar Cross. And that we must also embrace the one we have been given. God Bless you Cameron. Praying for you🙏

This video was so very helpful to me! You put into words what I have been experiencing for years, especially the fact that you may look perfectly fine to others, but suffering and in pain, feeling like your body is bruised all over.

Since you felt better when you came to Florida, why don't you move here? You could live near Ave Maria University. Or come to live in Miami. I think you would feel much better. Please consider it. Ohio is too cold and not good for everything you have. God bless you and your family.

God bless you Cameron. Your vulnerability is beautiful. Praying for you

So sorry to hear you’re suffering . Thanks for the update. Sit still and let God love you. All shall be well! You are beautiful!

My niece also has severe chronic pain from Ehlers-Danlos, POTS, GERD, and other illnesses. She has been suffering since age 16, or before, and is now in her 30s. Thank you for sharing. I will send her this video. I’m sure it will help her feel not so alone.

I’ll be praying for you to get through all your pain. I know with having children myself, it wears on you when you want to so bad be more involved but illnesses have other plans. I pray for full healing of your health.

God bless Cameron. Will keep you in my prayers. Take care🌷🌷🌷

Thank you so much for sharing!!! This really resonated with me bc of current personal struggles & for so many other reasons. Thank you for being real!!! I will pray for you! Please pray for me!

I’m a young mum myself, 7 week old and a toddler, we’ve just moved and my husband has had massive commutes every day to and from work and is working a second job. Our new bubba is a good sleeper, but not great at putting on weight well, I feel like he cluster feeds every day. It’s been such a crazy time of our lives, and listening to you talking about your struggles with pain really reminds me to not push myself so hard, but just slow down, contemplate more and try to hand it all over to Our Lord. You sound like a real suffering soul! It must be so awful to live through it, but goodness what an opportunity for holiness you have 💙 you’re an amazing woman, shooting up prayers for you x

Saddened to hear you suffer from these conditions. May God bless you with strength and perseverance always.

You are so beautiful! This is the first time I watched your video…thank you for sharing your faith…May God heal you and give you the grace to carry your cross.

I'm so sorry about your pain. My sister has eds or one of the other disorders on the spectrum. She used to dislocate shoulders as a child now in late forties she feels the wear and tear in her body. She even looks a little like yo in face shape... Will remember you in prayer. Please remember my sister - she has no faith.

Pole sana Cameron, Mungu akujalie nguvu na wepesi.

Hi Cameron.. I can relate, though my issues occurred after menopause. All my joints/ back feel inflamed all the time. Im glad you have physicians that seem on top of things. There are so many who aren't, sadly. I used to take like a quarter or hall of prescribed pain med, but as I didn't want to take every day, would feel what I call 'rebound pain' next day. Pain that is much worse than it normally is daily, but accentuated after pain med out if my system. I only use tylenol and excedrin now. Like you, the warmer weather helps..You look fantastic. I think that facial lady was just trying to sell you a bag of goods, lol. God is blessing us through this suffering in ways only known in Paradise.

This was seriously needed, I have POTS, lyme, IBS and they’re all horrid. Thank God I saw this video..

Will be praying for you (from Luxembourg 🇱🇺).

❤️ you are in my prayers. Thanking God for you. 🙏

Feel better God Bless praying for you and the family. 🙏

Wow, I have EDS too. I'm sitting in my chair doing nothing, even though I have so much to do. But my neck is so unstable that every time I get up and move around my head throbs so intensely. My mom, sisters, niece and daughter have it as well. Prayers to you, I understand how unbelievably hard it can be.

Hey Cameron, I can relate to you sooo much!! I am 40 and have been struggling with several health problems for the last several years, and I always think to myself that I am too young to have all these things! Like you, I am hypermobile, but it took several doctors and years to figure out that it was the cause of the pain in my hands from typing and texting. I also have GERD and it was misdiagnosed as a heart problem originally so finding relief took awhile. I had a very bad bout of it recently and so I sympathize with you. I am so blessed that God gave me a husband who is a doctor because He knew I would need it! I struggled with infertility for awhile and then after I had two kids, I experienced uterine prolapse, which means my uterus is falling down! It is extremely painful during my cycle every month. But when I have that pain, I offer it up for all women who are struggling with infertility. I was blessed to see the fruit of that when a friend of mine finally got pregnant after going through infertility for many years...praise God! And you're right, when we go through our own suffering we are much more able to empathize with others who struggle with it, too. I had my first panic attack when I was 15 and so I sympathize with those who have anxiety, like you do, too. I have many other health issues I won't get into, but just know that you are not alone, and like you said, the point is to carry our cross and unite our sufferings to Christ, while offering up our sufferings for others as well! God bless you and Matt. P.S.- Omg! I just saw that you did a video about healing your pelvic floor... crazy timing! So, uterine prolapse occurs when pelvic floor muscles and ligaments stretch and weaken and no longer provide enough support for the uterus. As a result, the uterus slips down into or protrudes out of the vagina. (It hurts!!) I don't think the doctor mentioned kegal exercices but that is what my OB recommended, along with pelvic floor therapy in the office.

That is certainly a lot to be dealing with. I hope you feel better🙂 And so does this kitten😺

Hi Cameron, my first time seeing one of your videos! My cousin shared it with me because we could be acronym twins! 🤣 I've lived with most of your symptoms all my life but healed a good portion of them in the past 7 years. But after recently having covid, most of them came back! I've lived with very little pain these days, thanks be to God, but I tried eating peppers for the first time since covid and I was slammed with massive pain. Was truly shocking! My POTS symptoms came back really bad too and have been in and out of the ER. I was having to sit down during mass again! Ugh, boy do I know how awful that feels. But as I healed myself before, I'm healing again! As you spoke about vacation, and how you felt better, my first thought was.... What's different about your home. Many of us with many acronyms have a history of mold poisoning and/or may have an active exposure... Mold is really good at hiding... But then a lot of people don't realize that just a little bit of mold to a susceptible person could be detrimental to their health. Maybe something to look into! I'm praying for your healing if it be the Lord's will. ❤️ You and anyone are welcome to email me any time to pick my acronym brain as well! Jsweeney8427@gmail.com

Great points at the end. God bless you.

Dear Cameron ❤️. I m also stuggling with chronic pain and other delightful symptoms because of ms, and I feel for you so much, with my whole body and heart. Still, I often wonder , how can we be so sure, that this suffering is meant for us by our Father. He says so many times on the Bible that he is our healer. He introduced himself as RaFa ,the one who heals. I have got this urge in my heart to tell you to seek His healing . There is this amazing nun living in Florida, Sr Briege MacKenna, listen to what she has to say for a while. Maybe try to contact her. In the meantime we offer it all up, because it of God not to waste it. I'm cuddling you to my heart and praying. Ola from Poland ❤️. I recommend a prayer for healing by Padre Pio. May Lord bless you. Viva Christo Rey!

The biggest gift of having a chronic condition is the gift of empathy. You will have a lot more understanding of people with health issues who cannot do normal things, you will realize that friends you have with chronic conditions need support from loneliness and feel too ashamed to ask for help because they always need help, you will begin to think differently when you see people who are suffering in silence from chronic conditions when they are missing work or events and begin to wonder if they are ok instead of assuming they are blowing off work and too lazy to go out. As for losing babies … if you have a child yourself imagine losing them tonight and you would understand that thinking your kid is in heaven is no comfort. It’s especially painful for those who miscarry or have still borne because many of their friends write off the loss like it didn’t count since the child never breathed air. Dreams of what you want to do with those unborn are real and losing the chance of holding them is devastating. Even Robert Munsch wrote one of the most famous childrens books (Love You Forever) as a result of having still born babies and the pain and gaping wounds the loss caused. To parents who lose … they would rather suffer arthritis or chronic pain and have their babies in their arms. Life is very precious, I hope you are able to provide more comfort to those friends of yours who have had miscarriages the next time you think of everything you would have missed of yours had died the day before they were born … all those dreams you have lived with them gone … and having someone say to you that they are in heaven now you should be happy … even though you will never hear the child say I love you or to have them bury you instead of the other way around.

I’m so proud of you and Matt, Cameron. You’re a blessing, and I’m praying for your family. I don’t care what that lady said about your skin, you’re still a beautiful young lady, and from what I can tell, you have the personality to back it up too. 😊I’m proud of you for carrying your cross with a joyful attitude. I’ve still got you and Matt on my prayer list. Every day I take my family to Jesus, I’m taking your’s too. I know even through this trial, you’re giving others hope. Keep letting your light shine bright for Jesus. I know somehow God’s grace will be sufficient to get you through even on those days that feel like way it’s just to much. Sending hugs your way. 😊

My mother had Trigeminal Neuralgia [affects facial nerves]. Eating would set off pain. Would get her coffee, gently touch her, and bring a 2nd cup 1/2 hour later. She was very emotionally reactive [Dad didn't help, doctors & everyone told her 'its all in your head]. So I determined that I would not make others pay for my pain. So now, at 75 in chronic pain, I tell people if I get a stupid smile, vacant look, and slow speech - I'm probably hurting. Especially if eyes are at 'half mast'. When I first went to RCIA a lady asked Fr Mark about praying when in pain, that she wanted it to go away. He taught about offering up our pain for holy souls and joining our pain with Christ's suffering on the cross. I became excited - my pain can be used to help others! It wasn't just useless suffering! I don't totally understand it, but when I pray to Mary and Jesus about my pain when it gets bad [Pn is constant 2 to 4 with periods or spikes to 7-8] and offer it up then somehow the edge is taken off and it becomes bearable. Yoke is easy, burden is light?? We each have our own paths to walk, my pain is not your pain, but Jesus and Mary are there helping and guiding each of us. I think the 2 worst pieces of advice for those of us in chronic pain are 1. Just do it - yeah, no. Pushing thru an hour grocery shopping means an extra 2 to 3 days of non-functionality recovering. 2. Work up to it gradually -- yeah, no. Did that in 2007 just before I was diagnosed with Fibromyalgia. Had a good job, could afford gym membership and a trainer - went from 45 minute sessions, including warm-up and cool down- 3 times a week - to 15 minute sessions, working on maybe one area, within 3 months. Had to quit because I was barely making it home before body shut down. Had to quit working because I couldn't maintain even a 10-hr/wk work schedule with 'fibro fog'. BTW these are not complaints, they are observations. I accept this illness as God's way of controlling my impulsive self-centered nature and to get me to spend more time with Him. I have had a good, adventurous life. I have done things and been places that kings and princes 500 years ago couldn't not have bought - flying a plane, scuba diving 100' down, driving a car and a motorcycle over 100 mph. Whenever God has taken something from me it is to give me something better. At 75 I am looking forward to the great adventure of eternity, and mindful of what He wants from me while I am still here.

When I was in my 20s & 30s I could fight it. As I get older, the less I can fight it and the worse it gets. That doesn’t mean that the guilt doesn’t haunt me. But when I’m good, I get things done. When I’m bad it’s just not happening. All I know is that it makes me feel like a failure. The inconsistency in my life I have due to the pain is a bit ridiculous. But this is where the good Lord wants me and one day I’ll fully accept it. It just hurts like a mother….I also struggle with knowing if I’m in that much pain or if I just give up too easily. I get exactly like you when I have pain, I can’t talk. It’s fun! Lord have mercy on me a sinner. If this gets me to heaven, I’ll ride this train all day long but I really love feeling well and not in pain. 😂

I am sorry for your suffering, I am on a similar road. I prefer being on to go but my body says no no no. In my mid-20s I was in a car accident from that I developed TMJ fibromyalgia chronic fatigue syndrome and myofascial pain disorder. I’m 57 now and still have all of these illnesses. Life change Dramatically for me but I still enjoy life it was a rough road to get there. I offer all my pain up for sinners and the conversation of their souls God is in charge. No worries about Not being able to pronounce words, I so understand brain fog, sometimes I think my knowledge is being sucked right out of me 🤷🏻‍♀️ it is all good. Stay well my new friend! ♥️

I'm also very sorry about the pain and all these diseases, it must be very hard for you and your family... I wish you were ok! Have you ever considered trying a carnivore diet? I've just looked up the EDS and carnivore diet and there is this lady, Dawn, who managed to have the symptoms into remission. I'm not sure if it's true, I know nothing about it, but I know Mikhaila Peterson story, although she had different issues with her joints than you. I know you are already on a strict diet, but maybe all meat would do better? I don't know.... Anyway, I will also pray for your recovery! Take care and stay real! 🙂🙏💗

Oh Cameron. I am so sorry you are going through this . Maybe the Lord is calling you and Matt to make another move to a warmer climate. Maybe he has big plans for your ministry. Thank you for your honesty

Oh, Cameron. I hate to hear this. I've been living in that world for 16 years through my son. He started with gastroparesis and GERD, and then developed a chronic migraine at age 13. He is now 28 and hasn't had a pain free day since then. He was also diagnosed with POTS and dysautonomia. He looks good, too. I've met 2 EDS sufferers through this journey. I will add you to my fervent prayers. God bless you, and your family. It's awfully hard to watch someone you love suffer like this.

Thank you so much for sharing, Cameron. Sending up prayers for your healing. A couple ideas for topics if you have the time and energy: I’ve had a couple friends miscarry recently and they are struggling with the Church’s teaching on unbaptized souls. These are devout Catholic mothers who are heartbroken, thinking their child will never be in heaven. Clarity on the Churches teaching and a real conversation on how our society dehumanizes the process of miscarriage/how women can heal emotionally would be amazing. I don’t know if you know of strong, Catholic, single mothers out there to interview who are living true to the Catholic faith after, perhaps, their husband died or left them, etc. I am curious to know how they are guiding their children to heaven through the faith and making it through day to day. Looking for support and encouragement and tips on how to continue to follow Christ, teach the babies the faith, while doing everything alone would be helpful. Thank you so much!

You should get prayer from Sr Briege McKenna 💙🙏

Also the book, How to Improve Your Marriage Without Talking About It helped me understand men so I no longer say to my husband, “We need to talk!” which drove him away. It is an audiobook at the library. You may be not understanding men like I was. Now we have peace! God bless and keep you and your life on earth. May it be sweet and may you heal. The book Lets Get Well by Adele Davis is great for any illness.

Hello Cameron, I am so sorry to hear you are dealing with chronic pain. I have been a follower on your husband's channel for some time, it is such a great source of information and inspiration. I just had to pass on, hopefully, some helpful information to you and to others that are suffering from chronic pain. Have you tried the Keto diet? You mentioned cutting out a lot of foods, I would suggest cutting out all carbs. If that doesn't work, I would also suggest trying the carnivore diet. I have suffered from IBS and bloating for many years now and am moving closer and closer to the carnivore diet and can finally see some improvements. Hope you find this helpful. You and your husband are wonderful people and I hate to see anyone in pain. God Bless. I will keep you and your family in my prayers.

Hola Cameron! Greetings from Fort Worth Texas 😊 I do not know what chronic pain feels like but my mother in law suffers from various things. Thank you for reminding me that I have to be more loving towards her, one of the things I'm working on this lent. I aslo fell into bad post-partum depression after my daughter and have felt anxious afterwards ever since, thank you for sharing your life with us. Also, I recently saw a film about grounding/earthing, have you heard about this and what is your opinion on it?

Dear Cameron, I have 2 girls with POTS and various other "lettered" syndromes. So I have some understanding of your struggles. Please know I will keep you in my prayers! 🙏💖

I’m so sorry you’re dealing with all of this, Cameron. Truly, I understand what you are dealing with. Have had some chronic pain for the past 1.5 years and it’s slowly but surely improving. I don’t want to undermine anything of what your doctor is saying, but I will ask: does rest seem to help? I ask because the medical field and how chronic pain is handled seems to be a bit dated. I went through all of the medical staff-surgeons, spine docs, general practitioner, etc. some suggest rest, some don’t know what to suggest and others completely contradict the others. What I’ve learned is that I have got to start moving-even if bit by bit. While joints can go bad, can inflame, etc. the muscles around them can be strengthened in a way to help support. Once we’re in pain for longer than 6 months, the pain becomes chronic and our mind adjusts to feeling that pain. Even if it’s not really there. Our body learns these patterns. Find ways to help with the pain, not Get rid of the pain but ease it. When you find those ways, write it down! Show your body you are able to move and you can get it out of pain. You’re gonna kick this and be stronger because of it. Praying for you!! A great source that has helped me get out of pain: upright health. Search them on KZfaq. Their healthy hips program 1 has really helped my hip joints and because of this, my knee joints as well. You got this Cameron!!! Good luck and God bless you ❤️

God bless you sister in Christ!🙏.. Thank you for your suffering🙏...

CP is a discouraging thing to live with. I am the opposite with weather. Heat and humidity is my enemy. Praying you find some relief Cameron.

Dear Cameron! I have hEDS too and I've grown up with symptoms as soon as 6 years old... Saint Raphael is my best friends in the hard times... When I converted God healed me from so much of that pain but it still sucks sometimes! I would love some tips on pregnancy and childrearing because that scares me a little... God bless you

Hey Cameron, I want to let you know that I'm praying for you and I wanted to recommend Dr. Sherry Rogers, she is incredible and can help your health problems! Her saying is " The only two reasons for disease, because nutrient levels go down and toxicity levels go up." God bless you Cameron

It can be hard for you to see it in yourself, but the grace God has given you to bear this shines through. My husband has had a five year battle with a painful "mystery illness" and he is more full of God's grace every day. I would like to strongly encourage you to consider chronic Lyme disease as a possibility for the various descriptions you gave. Several words throughout really triggered my thoughts: brain fog, inflammation, joint pain, the mention of what seems to be pain that moves around and a cyclical pattern. If you haven't, please consider reading Ross Douthat's memoir about his battle with chronic Lyme - The Deep Places. Unfortunately, the mainstream medical community is (mostly) woefully ignorant and dismissive of it. I'm sort of a born "researcher" so I've spent several years reading and reading about Lyme and the co-infections that can come with it, so your story really set off a lot of bells:) To say it's very stealthy is an understatement! But no matter what, blessed be the name of the LORD!

You are such a strong beautiful woman even as you share your struggles it’s impressive!! I pray Jesus will help you extra towards healing & coping, hugs too, it is so hard but thanks for sharing!! My background is in medical science, so ya I want to encourage you to seek some natural remedies such as red and blue light heat therapy, short of moving to FL, the heat seemed to give you relief. Maybe try an experiment to go to a warm climate again for a week and see how you feel. Try the Cleveland Clinic or Mayo, or a look at non trad medical ideas like acupuncture and herbs. You have so much love and life to share just wish you the best!! 💕🙏🏼🙏🏼🙏🏼‼️Don’t give up researching for a remedy!! You take care of you first before you try and push to take care of us out here🤗

My daughter has chronic pain, we took her to a local Naturopathic clinic in NH and come to find out she has Lyme disease (tick bourne bacteria). After several rounds of antibiotics she's on herbals and have been very effective killing off the bacteria that has plagued her. Thank you for sharing your chronic pain story. Will keep you in our prayers, have you gone to a Neuropathic doctor? It's possible they may be able to help. I'm praying for you too this Lent! 🙏🏼⚜️

Sorry for the unsolicited advice, but here it is anyway. I wonder if you might check out knees over toes guy on KZfaq. He had really bad knees and worked through it. It's a long haul, but perhaps something to give you a bit of control.

Cameron are you familiar with the EDS society ? They have presented studies / papers on long term management (since I guess there’s no treatment). I am so sorry you are feeling so poor. Still your beauty and joy shines through. As always keeping it real. I’ll pray for you. Last thought … brain fog is real. Are you taking any supplements ? See acupuncturist or integrative medicine doctor ?

Matt says you all aren’t moving but smart money says another winter in Ohio 2 too many St Margaret’s, Oceanside Ca. More traffic but warmer and just down the road from multiple beautiful Franciscan missions- and no humidity!

Maybe your Lenten sacrifice is surrendering that you can't do what you used to or what other people can do. I say this from a place of experience. Almost daily I need to bring myself back to a place where I have to choose to recognize that there are things I can't control and to do the best with what I CAN do. Not trying to preach. Just saying I get it. It is VERY hard when the suffering isn't obvious to others. It can be very lonely. Lifting you up in prayer sister. 🙏

Chronic pain that nobody can see and doctors can't treat is very hard. What I do is try to remember to offer up my sufferings daily, and reflect that when I am misjudged that Jesus was also misjudged. Pray for those that misjudge you and offer it all up.

You mentioned endometriosis… how do you manage it? For me it’s lots of tylenol extra strength and heating pad but I am still hoping for a better answer to it. Thanks for sharing all this Cameron.