Diet and Haemochromatosis | What to eat with iron overload

Diet and Haemochromatosis | What to eat with iron overload - Explained by a DIETITIAN

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Maria Lucey-Dietitian & Nutrition Educator

Күн бұрын

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⏰TIMESTAMPS
00:00 Introduction
00:46 What is haemochromatosis
01:24 Signs & Symptoms of Haemochromatosis
01:46 Causes of Haemochromatosis
02:34 Treatment of Haemochromatosis
03:09 The role of diet in the treatment of harmochromatosis
04:45 Foods High in iron
05:05 Iron Absorption
05:22 Haem Iron and Non-haem iron
05:48 Iron Inhibitors
06:52 Iron Enhancers
07:41 Alcohol and haemochromatosis
08:28 Pregnancy and haemochromatosis
09:19 Iron Supplements - Haemochromatosis
09:49 Raw Shellfish and Haemochromatosis
10:28 Fortified Foods and Haemochromatosis
10:57 Tips for Venesection
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This content is for educational and entertainment purposes only. Always speak to a healthcare provider about your unique health needs. Please use this video (as with all of my videos) as educational, not as unique recommendations.
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If you are new here, I'm Maria, a Registered Dietitian in Ireland and Bermuda. I aim to educate people on evidence-based nutrition and inspire others to lead healthier, happier lives. I provide nutrition education through my social media platforms and deliver online healthy eating courses. I also provide virtual dietitian appointments and in-person dietitian services in Cork, Kerry, and Dublin seasonally.
Thank you for watching my video!
Haemochromatosis is an inherited disorder that causes the body to absorb excess iron from the diet. It can lead to severe health problems when the excess iron accumulates in vital organs such as the liver, pancreas, joints, and heart.
SYMPTOMS typically start between ages 30-40 and include tiredness, weakness, headaches, joint pain, and sometimes weight loss. Some may have no symptoms for a long time.
Haemochromatosis is a genetic condition that affects how your body absorbs iron from the food you eat.
Hemochromatosis has no cure, but regular venesection or blood removal can reduce iron levels and the risk of damage.
Hemochromatosis can't be treated by diet alone. Blood removal or venesections are the primary treatment. However, some dietary changes can help:
1. The amount of iron in your food
2. How easy or difficult is it for your body to absorb that iron
3. Adding in foods that reduce iron absorption
4. Avoiding or limiting foods that increase iron absorption.
Iron is an essential nutrient, so you don't need to eliminate all iron-rich foods if you have haemochromatosis. However, it's best to limit your consumption of high-iron foods.
Iron in meat is easily absorbed, whereas iron in plant-based foods is tougher for the body to absorb. People with haemochromatosis should eat more foods with non-haem iron.
Inhibitors are foods that reduce iron absorption. They work by binding to or competing with iron. Common inhibitors are phytates (found in nuts, seeds, beans, lentils, and whole grains), polyphenols (found in tea and coffee), calcium-rich foods, dietary fibre and oxalates (in green leafy veggies, almonds, beetroot, berries, soy foods, and rhubarb).
Enhancers increase the amount of iron your body absorbs. It is best to avoid eating these foods or nutrients when you are eating foods high in iron. Enhancers include fructose (found mainly in fruit juices), alcohol, vitamin C and supplements.
Alcohol is a concern for those with hemochromatosis as it's an enhancer that increases iron absorption. It's worth noting that alcohol is a source of iron. Cider, in particular, is very high in iron.
If you have hemochromatosis and become pregnant, inform your medical staff. Pregnancy changes how your body handles iron, so consult your doctor for individual advice.
Don't take iron supplements; if you are taking a multivitamin, check that it doesn't contain iron; this can actually be quite difficult if you are a female, as most will have iron in them.

Пікірлер: 144

@psycshane 7 күн бұрын

Diagnosed last year. Great video. 🇮🇪

@MariauceyRD_Dietitian 7 күн бұрын

The strong Irish genes 😅Thanks Shane! I’m glad it was helpful.

@JulietMorley 9 күн бұрын

I am 79 and have only been diagnosed with this in April of this year. My only symptoms have been my liver readings in blood tests, and they kept asking if I was a heavy drinker, which I have never been as it has never agreed with me. I was a blood doner for a few years in my thirties and forties, so that is interesting, as it may have helped! My blood is being tested again in September and the specialist who rang to tell me that I had it, wanted to know if I had been well, and whether I had fatigue, but being 79 I do occasionally as I am a busy person, so wouldn’t have thought that it maybe connected and also hot sweats at night. The other thing is too I have been a vegetarian for the past 40 years, which I think maybe why I have got to my age without too much damage, but I do have a cyst on my,liver which I read about as it can be connected. All very interesting! Thank hyou for this video. 😊

@MariauceyRD_Dietitian 8 күн бұрын

Hi Juliet, thank you for watching the video and sharing your story. I definitely think the blood donations in your 30s and 40s were a huge help in combination with being a vegetarian. Fatigue is often one of the first complaints people have, that’s how I realised I was unwell, but thankfully it improved very quickly after I started treatment. I wish you all the best with the specialist in September 🤍

@user-nq9gz4xf7f 4 ай бұрын

I have high ferritin 650 nmols/l, i then told mybdoctor i had a moderate drinkinp problem. He told me the tests told him i had a stressed liver and fatty liver. So i quit. My ferritin went down to about 320but has stayed borderline high. He wont test me for haemochromatosis or iron overload. I would be afraid to ask him for phlebotomy. Im caucasion in Canada irish ancestors. I cant give blood because im on blood thinners. A lot of doctors go by straight and narrow criteria and dont deali with iron overload properly. As you say diet alone is not enough. Doctors wake up.

@MariauceyRD_Dietitian 4 ай бұрын

Hello, thank you for watching my video! I hope it was helpful for you. Yes diet alone is not enough. Always keep advocating for your health!

@Renofirefly30 3 ай бұрын

23andme DNA tests for it. That's how I found out. my ferritin is over 2000.

@Renofirefly30 3 ай бұрын

Out of all the videos I've watched, yours is the only one that explains why we need to avoid shellfish with hemochromatosis.

@MariauceyRD_Dietitian 3 ай бұрын

Thank you Ren! I am quite detail oriented, also having the condition myself helps! I hope you enjoyed the video and the information was helpful.

@Cruchyplum 24 күн бұрын

Last time I checked my ferritin went up to 1119 from 888 in a week I’m waiting now to see a specialist and to get my results back for haemochromatosis

@MariauceyRD_Dietitian 24 күн бұрын

Hi Benjamin, oh wow that is a big jump! Make sure to keep checked in with your specialist to monitor!

@Cruchyplum 24 күн бұрын

@@MariauceyRD_Dietitian I'm waiting to see the specialist but i am seeing my doc this week. I could ask to retest

@PatrickMF777 13 күн бұрын

Thank you!

@MariauceyRD_Dietitian 13 күн бұрын

Your welcome! I’m glad you enjoyed

@user-es8gu3dx6g 5 ай бұрын

Thanks that was informative.

@MariauceyRD_Dietitian 5 ай бұрын

Glad it was helpful! Thank you for watching.

@stephenjones6500 4 ай бұрын

I was diagnosed with the viking curse in 1996 .Have bad arthritis in my knees need replacing thumbs,elbows i was the first patient in my drs care at the time before he retired he told me he'd now got 6 ! I've had over a thousand venesections from then till now .My first three years i was drained weekly ,now 4 times a year . So as long as you keep up your treatment its not a death sentence.

@MariauceyRD_Dietitian 4 ай бұрын

Hi Stephen, thank you for sharing! Wow that is a lot of venesections. I've only had 8 or 9 so far but I was only diagnosed a few months ago. Doctors seem to thankfully be diagnosing it a lot more now as there is more awareness of the condition. Thanks for watching my video and being part of our community here 💫

@stephenjones6500 4 ай бұрын

@@MariauceyRD_Dietitian your welcome .

@ellenl861 6 ай бұрын

Great advice and awareness!! Love your videos 🥰🩷

@MariauceyRD_Dietitian 6 ай бұрын

Thank you, I am so glad you find them helpful

@Marthajamjam 4 ай бұрын

Just got diagnosed with it! I had 2 copies of the gene. Hopefully I’d was caught early on. And it hasn’t affected my liver 🤞🙏

@MariauceyRD_Dietitian 4 ай бұрын

Hi Martha, thanks for watching my video 💚 You're right getting a diagnosis is a great first step. Now you can be really pro-active from here on out. Wishing you all the best!

@dianagervais5457 4 ай бұрын

Got diagnosed at the beginning of Covid. I am fine after phlebotomies and am a chapter lead for a Hemochromatosis non profit awareness group :-)

@MariauceyRD_Dietitian 4 ай бұрын

I hope everything has being going well for you since your diagnosis and that you have started to feel better with treatment. 💛

@stevenhart9004 16 күн бұрын

How fascinating. I enjoyed the information.

@MariauceyRD_Dietitian 16 күн бұрын

Thanks Steven. Glad you enjoyed!

@camcurv-a-match2769 4 ай бұрын

Thank you, very informative. Short and straight to the point.

@MariauceyRD_Dietitian 4 ай бұрын

I am very glad it was helpful! Happy New Year 💛

@camcurv-a-match2769 4 ай бұрын

New subcriber here. Keep up the good work. Happy New Year!

@SH3190 6 ай бұрын

Very easy to understand - thank you for making this, it is very helpful for people with the condition.

@MariauceyRD_Dietitian 6 ай бұрын

Glad it was helpful!

@annemariebevan-edwards4351 3 ай бұрын

This is really helpful, straightforward informative video - thank you.

@MariauceyRD_Dietitian 3 ай бұрын

Hi Annemarie, thank you so much for watching my video! I am so glad it was helpful!

@marwanshamali4638 3 ай бұрын

Yes I have

@MariauceyRD_Dietitian 3 ай бұрын

Hi Marwan, Me too! Welcome to the community.

@caoimheguinnane6821 6 ай бұрын

Thanks a million for putting this video together. it was badly needed as I haven't found many simply and direct videos explaining HH especially with direction around food intake etc. I was diagnosed at 24 years old luckily.

@MariauceyRD_Dietitian 6 ай бұрын

Hi Caoimhe, thank you very much for watching the video! I'm so glad you found it helpful. Diet is often a confusing space with haemochromatosis, and I agree, it can be very difficult to find straight forward reliable information. Also, it is fantastic you were diagnosed so young!! Hopefully this will become more common as awareness of the condition grows.

@joeygallagher7954 5 ай бұрын

I was diagnosed yesterday and because my iron levels were very high had my first blood taken this evening! No member of my family has this diagnosis so it came as a surprise and by accident through a random blood test! I found your video very helpful and will be interested in any new information on this condition.

@jameswoods3207 17 күн бұрын

I have it and levels got up and down all the time sometimes go for treatment every 3 month the can change to every month and always eat roughly same foods

@MariauceyRD_Dietitian 16 күн бұрын

Hi James, that’s very interesting! I don’t imagine it has much to do with your diet then if it is always consistent. Let me know if you pinpoint what it is. Do they always remove the same amount of blood. I know sometimes I only have a small amount removed if my blood pressure is also low but other times they can take more.

@jameswoods3207 15 күн бұрын

They always take same amount sometimes I can go 6 month without taking blood and this time was there last week and next month again.

@johnandrews6414 4 ай бұрын

Very informative video thank you,I have this problem for 20 years now and the venesection is the only way to go. It’s nice to see that you are talking about it too help others keep up the good work

@MariauceyRD_Dietitian 4 ай бұрын

Thank you for your lovely comment John. I'm glad you enjoyed the video!

@lauramclaine504 Ай бұрын

This is a good explanation. I have hemochromatosis, but I also have anemia so it’s finding a fine line. I’m definitely going to monitor my diet better.

@MariauceyRD_Dietitian Ай бұрын

Hi Laura, Thank you for watching the video and sharing your story. Glad it was helpful!

@paulgeary5761 6 ай бұрын

Great information thank you Maria, I am a compound heterozygous. There is a small chance that I could iron overload, its great to know what to eat and what not too eat thanks.

@MariauceyRD_Dietitian 6 ай бұрын

Hi Paul, thank you for watching, and I am glad the video has been helpful. ☺️

@panickingrabbit5936 5 ай бұрын

Thank you very much for information. I have Ferritin high. I had my first time blood donation last much. I am with you who have Iron overloaded. ❤ Turmeric+black pepper add to your meal is good for liver and also cottage cheese.

@MariauceyRD_Dietitian 5 ай бұрын

Yes, those of us with iron overload can stick together 💚 Thank you for watching my video and I'm glad you enjoyed it! The tumeric and black pepper sounds great - I'll have to try that tomorrow!

@pattieperham5434 3 ай бұрын

I was just diagnosed this week.

@MariauceyRD_Dietitian 3 ай бұрын

Good luck on your treatment journey. I hope you start to feel better soon. I'm almost a year diagnosed and have had quite a few phlebotomies and my energy levels have much improved 😊

@pattieperham5434 3 ай бұрын

@@MariauceyRD_Dietitian Good to hear. The way I found out was very unusual. Last April, we found out that my two brothers & I have an older brother we did not know about that had been adopted out, same parents. His son, my nephew found out about this testing through an organization he belongs to. It is not tested in the states in normal blood work. H was tested and found out he has

@MariauceyRD_Dietitian 3 ай бұрын

@@pattieperham5434 oh wow, that is very unusual! Well, I'm very glad it was found out! It would be great if there was more routine testing for it! In Ireland, we have a very high rate of the condition, so the testing is starting to improve, but it's still not at a routine level. My father was diagnosed with it, and that's how I knew to get tested.

@amosteg570 2 ай бұрын

Diagnosed in 2021. Did weekly venesection for months. We have high iron content in our water, so got a water filter. Also check for gout from calcium deposits if you think you have arthritis.. Great video..Thank you.

@MariauceyRD_Dietitian 2 ай бұрын

Thank you for watching, I am glad you found it useful! Good idea re checking the water too!

@chimonade 4 күн бұрын

Thank you. I really appreciate your succinct but thorough video. I was recently diagnosed with this disease and have a chronic fear of giving blood. Do you know if there are any other treatments?

@MariauceyRD_Dietitian 4 күн бұрын

Thank you so much for watching the video ✨I’m really glad it was helpful. The most effective treatment is the blood removal, I also didn’t like it at the start but I promise it does start to get easier. There is another treatment “Chelation Therapy” which involves taking a medication so I would definitely consider speaking to your doctor about this then too. Best of luck with your treatment and I’ll aim to make more videos on this topic/condition in the future ✨

@razedbywolves8505 3 ай бұрын

Thanks for all the great tips and a few I haven't heard before! I have a ridiculous overload count of 6000Ug/ml in my first test and am now down to 4800Ug/ml, still over 12 times the max allowable limit! I'll be starting phlebotomy in 2 weeks and looking forward to dropping that #. Thanks again and good luck to you!

@MariauceyRD_Dietitian 3 ай бұрын

Hello! And thank you so much for watching my video and taking the time to comment! I really appreciate it. I'm so glad it was helpful! Best of luck with all the treatments going forward. 💚

@muneezasays5417 2 ай бұрын

What is max normal limit?

@MariauceyRD_Dietitian 2 ай бұрын

Hi Munezza, usually you want to keep your ferritin under 3-400@@muneezasays5417

@joeygallagher7954 5 ай бұрын

Thank you for this informative video. I was just diagnosed yesterday and had my first venesection this evening as my iron levels were very high. I had been exhausted a lot and my joints were stiff and uncomfortable. I thought it was an age thing which my mother who is in 80’s disagreed with! Looking forward to feeling better as the iron is removed.

@MariauceyRD_Dietitian 5 ай бұрын

Hi Joey, Thank you for watching my video and I'm really glad you found it helpful. I can related to the feeling of exhaustion on diagnosis, i experienced the same! I hope you start to feel better soon now that your treatment has commenced.

@fatima-kd8dp 16 күн бұрын

Do I have to remove blood or can I just stop eating iron foods and drink more water

@vanlifebiker 4 ай бұрын

Thanks for the video just SUBBED & LIKED 👍 Everyone I talk to says its irreversible but I'm a very determined person. Was diagnosed this week & had my first blood draw yesterday. I was told the blood had to be disposed of & insurance usually doesn't cover it. Cost me $250 so I'm determined to find a cure & when I do I will share it here. Thanks again for the start of my research. ❤😎👍

@MariauceyRD_Dietitian 4 ай бұрын

Hello 👋 Welcome to the community! Thank you so much, I am glad the video has been helpful. 💚 Yes please do, as someone with the condition myself I am very interested to learn more!

@vanlifebiker 4 ай бұрын

@@MariauceyRD_Dietitian One thing I discovered this morning is hydroChlorothiazide a blood pressure pill they have me on raises RBC count. Medical industry in the U.S. is so corrupt & counter productive in one's health it seems more everyday. Big Pharma & insurance companies rule the world these days. I feel so sorry for the people that don't do any research for themselves & just listen to their doctors. It's hard to even schedule an appointment in the U.S. anymore because people are lined up out the door. Obviously they aren't fixing people or people wouldn't be lined up for months to get an appointment. I give credit when credit is due & the medical industry is great at saving people that got ran over by a Mack truck. Maintaining people's good health with the correct nutrition etc they are clueless. Most are 50+ pounds overweight themselves.

@sheilatepper446 6 ай бұрын

I am homozygus and so are both of my daughters . Thank you for the video

@MariauceyRD_Dietitian 6 ай бұрын

Hi Sheila, Thank you so much for watching. I am glad the video has been helpful. ☺️

@danlowe6923 3 ай бұрын

Very informative and clear to understand. I struggled for many years until I was diagnosed. It then all made sense. Loved your video

@MariauceyRD_Dietitian 3 ай бұрын

Hi Dan, thank you for your kind words 💚 I'm so glad the video has been helpful.

@010johnm 2 ай бұрын

Hi Maria. Many thanks for this very easy explanation into Hemochromatosis. I'm 54, just been diagnosed with generic Hemochromatosis. Waiting to see liver specialist with the hope of treatment, blood removal. But have been told it's 9 months Waiting list at least, with already 4 months past since diagnoses. I'm not a big drinker of alcohol but enjoy food. I found your video easy going with a good introduction on how this all works with your body. Have taken notes on foods mentioned that are lower in iron also with foods that help slow the absorption into the body that could help ease intake on my liver. Doctor told me, my iron level is 650, with 320 being normal.

@MariauceyRD_Dietitian 2 ай бұрын

Hi John, Many thanks for watching the video and taking the time to comment 😊 That is a long wait, but hopefully, the tips in this video will help a bit in the interim. Not being a big drinker is a big help, too. I wish you all the best in your health journey. Stay strong in the waiting period.💚

@010johnm 2 ай бұрын

@@MariauceyRD_Dietitian I've also been diagnosed with "early stages type 2 diabetes" around 12 months ago. As I've been doing a food plan to reduce red meats and sugars. I've added more fish, chicken, turkey. But I'm finding some of the food's I'm changing are high in iron. I'm finding myself confused on wats best.. this brain fog isn't helping matters as I'm more confused than ever. I'm searching for information with regards, looking after yourself with both. type 2 diabetes & Hemochromatosis.

@knash965 Ай бұрын

Thank you for this video! My iron has been high and I suspect that hemochromatosis is a possibility. I've been worried about what to eat and avoid. This video was helpful.

@MariauceyRD_Dietitian Ай бұрын

Hello, thank you for taking the time to watch the video and comment. I am so glad this video has been helpful. It makes me so happy to know that I am providing value for people!

@flourishwithwoods 4 ай бұрын

Thank you 🙏 I’m 56 and just been diagnosed, the first in our family. this video is very helpful. . Are there any recipes we can use to form a healthy diet. Im now having regular venesection and need to loose quite a bit of weight too.

@MariauceyRD_Dietitian 4 ай бұрын

Hi Flourish 💫 Thank you so much for watching my video! I am glad you found it helpful 🥰 I am very happy to hear you have started treatment, its all uphill from here 💫 I'm aiming to start adding many more recipes to my website over coming weeks. If there is a recipe that you would like in particular, please let me know and I can try to make a healthy version for you 💚

@flourishwithwoods 4 ай бұрын

@@MariauceyRD_Dietitian thank you, that’s so kind 💗 I would like something that I can prepare for after a venesection, warming and sweet that feels like a real treat and is healthy…and anything that’s quick and easy to prepare on the days I’m soooooo tired - like a healthy takeaway? Thank you 🙏

@cynthiathompson7873 4 ай бұрын

Thank you for this video as I just received blood work last week that revealed a high iron saturation %. The rest of my values were in the normal range, so I am seeing my PCP here in the United States next week to get more clarification. I am 53 and am post menopausal as of Nov. 2023. My previous two lab values from Dec.2022 and Dec. 2021 did not show a high iron saturation %, so I think that because I have not had a menstrual cycle since Nov. 2022, that is why my saturation percentage was high in Dec. 2023. I have been dealing with hip pain and a stiff lower back for the last 6-8 months which I thought was due to the drop in estrogen due to menopause. I am now thinking otherwise. I have been checking my supplements as I weight train 2-3 times a week. I started using a pea protein (Sunwarrior Protein) about 1 1/2 years ago and noticed it has 5.9mg of iron. My question is, since this is not animal based, can I continue to use or should I remove from my diet. I use this pea protein almost daily. Also, does matcha green tea help mitigate absorption or is it only certain types of tea? Thank you and please continue to make videos like this!

@MariauceyRD_Dietitian 4 ай бұрын

Thank you so much for your lovely comment, Cynthia! I'm thrilled to hear that you enjoyed my video. I plan to continue making videos like this, especially when I receive such positive feedback like yours. You are correct, the iron in the pea protein powder is non-heme so it should be ok to continue using this. And if you do get a diagnosis, the most important treatment will always be the venesections/phlebotomies. And yes matcha green tea contains tannins so that will also help mitigate the absorption. Happy New Year Cynthia and I hope all goes well on your health journey. 💚

@lifesworthliving9434 Ай бұрын

Thank you for this knowledgeable video... I didn't know about this blood condition until my 30 old son had to donate blood after being advised by a doctor that his blood was thickening. During donating blood he was advised of iron over load. I am going to seek the advise from a blood specialist.. Im appalled that neither of the dermatologist ;gastronologist or the blood bank advised me to see a doctor I had to figure out a solution to this problem whilst searching for a diet plan for the iron over load.

@MariauceyRD_Dietitian Ай бұрын

Thank you very much for watching my video and taking the time to share your experience. I hope everything works out for your son and he gets the advice and support that he needs. He is lucky to have someone like you advocating for him 💚

@greekphilosophy 4 ай бұрын

After finding out my father had it, I my brother and I got tested...he's negative, but I was positive.

@MariauceyRD_Dietitian 4 ай бұрын

Hello, thank you very much for watching my video. That is very interesting! My father has it and I have 5 siblings. 4 out of 5 of us have the condition. My older brother got lucky and he's negative!

@aussteigen 3 ай бұрын

Hi, I thought I'd post here because I have hemochromatosis, but I guess my diet has stopped affecting it. In my case, it only became very strong through many vegan products such as lentils, chickpeas and tofu. Since I started eating a lot of dairy products again, I no longer have to do any bloodletting.

@MariauceyRD_Dietitian 3 ай бұрын

Hello Aussteigen! Thanks for sharing! That is very interesting. I am glad it has all worked out for you 💫

@aussteigen 3 ай бұрын

@@MariauceyRD_Dietitian Still can't believe it. Got yesterday my blood results after the change in diet 3 month ago.

@Carolanne1926 5 ай бұрын

I got diagnosed yesterday with hireditry hemochromatosis but I don't get it when I always had low iron U just felt tired so I started taking iron tablets and centrum then I find out my iron levels are usually low and suggestions of natural heard remedies to help reduce the iron absorption as well as the foods you have mentioned

@MariauceyRD_Dietitian 5 ай бұрын

Thanks for sharing Carol!! I can relate, I had been taking a multivitamin with iron also prior to my diagnosis and was really shocked when i was diagnosed. Similarly I also felt extremely tired. With iron if its very low or very high it can really impact your energy levels. Thank you for watching my video 🥰

@donnae9566 Ай бұрын

I had it, my doctors didn't know about it.

@MariauceyRD_Dietitian Ай бұрын

Thanks for sharing Donna, unfortunately there is a lack of awareness around the condition. I’m glad you got diagnosed now.

@lescoates4543 2 ай бұрын

Thanks for such an informative video on Hemochromatosis. I was diagnosed in 2022, and my levels were 4200mg I did 6 venesections over a 6 week period and brought it down to 1700mg, I have changed my diet drastically and thought everything was fine until I did my check up again to find it's back up to 3000 mark. My question to you is, can you share a diet with me, please, as I have been between becoming a vegan or a vlexiterrian. I'm not sure what direction, but I would appreciate your help. Thanks again

@MariauceyRD_Dietitian 2 ай бұрын

Hi les, thank you for watching the video and I am so glad it has been helpful to you 💚 Were you continuing to get regular venesections during that time? They really are the most effective strategy for keeping your levels in check. Yes I am planning future videos that are more practical and I will incorporate eatign with haemochromatosis into these for sure 💚

@tomhiggins4584 11 күн бұрын

Hi there, I was diagnosed with haemochromatosis via genetic test, and my doctor recommended not having blood taken but going on a full vegetarian diet. My bloods showed ug/l 325 ferritin. I understand that is only slightly over the normal range. Do you think the diet change is drastic?

@MariauceyRD_Dietitian 10 күн бұрын

Hi Tom. Thank you for watching the video ✨ I do think it is quite drastic as diet only plays a very small role and becoming a strict vegetarian isn’t for everyone. I wouldn’t imagine becoming a vegetarian will drastically improve your numbers. I’d recommend closely staying linked in with your doctor to monitor the situation.

@rula7792 22 күн бұрын

Thank you for the info. I just diagnosed with Hemochromatosis. No genetics Having my appointment with the dr soon to discuss my treatment My question is fatty liver is the result of high iron? Also diagnosed with fatty liver

@MariauceyRD_Dietitian 22 күн бұрын

Hi Rula, thank you for watching the video. I am glad you found it helpful. Yes, high iron can damage the liver leading to fatty liver.

@rula7792 22 күн бұрын

Is the fatty liver will reverse after iron overload taking care of ? Thank you for your response ❤️

@MariauceyRD_Dietitian 21 күн бұрын

@@rula7792 You are very welcome; I am more than happy to help. Yes your liver function will definitely start to improve once your iron levels are under control. Also, all healthy eating and lifestyle changes will help improve. fatty liver 💚

@thetruthserum2816 19 күн бұрын

My Ferritin 347.67 ng/mL HIGH (normal 21.81 - 274.66), and Iron 214 ug/dL HIGH (normal 50 - 175), but the Dr. was suggesting that diet could help. I've cut out red meat entirely, but after watching this video, I think I need a genetic test. I have Scottish clan Lyle blood on one side... Hmm, I guess if I have it, I better get used to being a blood donor...

@MariauceyRD_Dietitian 19 күн бұрын

Yes always good to get a genetic test for a definitive diagnosis. Honestly you will get used to being a blood donor and if it makes you feel better after you might even start to look forward to them. Thank you for watching my video ✨ I wish you all the best with your treatment

@user-pt5jo8qx6i 6 ай бұрын

Thanks for the great informative video. I'm 70 and wasn't diagnosed till I was 65 with HC. My physical therapist suspected it, for years nurses were lecturing me about drinking because my liver emsymes where high. I now have the iron under control after 2.5 years of blood removal. It's looking like my maintenance will be every 9 mo which I credit to my diet and life style. My big problem is joint damage, that's why I was getting physical therapy.. It seems even though my iron is under control my joints are still suffering. Is there anything I can do or take to relief joint damage? Also it's very disappointing that they dispose of the blood and do not use it. I figure I have given 12 gallons! I live in Wisconsin and the medical industry is very ignorant about HC. I am the only patient my family dr. has had to deal with. I learned alot about the disease from a great book I found on the web.

@MariauceyRD_Dietitian 6 ай бұрын

Hello! Thank you so much for watching the video - I'm glad you enjoyed it and found it helpful. It sounds like you have had quite a long road with your HC journey. It's so important to raise awareness of the condition to help people get diagnosed earlier. It's a pity they have been throwing away the blood, it often depends on the country's own regulations on what they can/can't do with the blood. Where I am in Bermuda, they are able to donate my blood but that only changed recently. The best diet to help with joint pain would be a Mediterranean style diet as it is anti-inflammatory in nature. This would include lots of fruit and veg, wholegrains and unsaturated fats like olive oil and oily fish. I will be doing a full video on this over the next few months which will hopefully be helpful. Thank you again for watching - the support is very much appreciated.

@pattieperham5434 3 ай бұрын

I agree, I am disappointed that they throw the blood away. With blood shortages, I wish there was a way to use the bood given in clinics. Thank you for your info. Was just diagnosed 3 days ago at age 71. The Dr. told me that there is a possibility that my type 1 diabetes could have been caused by hereditary Hemocromotosis. I was diagnosed 2 years ago. @MariauceyRD_Dietitian

@MariauceyRD_Dietitian 3 ай бұрын

@@pattieperham5434 Hi Pattie, thank you for watching the video; I'm delighted to hear it has been helpful. 💚That is extremely interesting about type one diabetes, and it could make sense! Look after yourself, and best wishes. I'll hopefully make more videos on this topic again in the future.

@pattieperham5434 3 ай бұрын

@@MariauceyRD_Dietitian How do I subscribe to your channel?

@MariauceyRD_Dietitian 3 ай бұрын

@@pattieperham5434 Hi Pattie, If you look for a red "Subscribe" button, it usually appears just under the video 😊

@suzannemorris2036 5 ай бұрын

I just got diagnosed with hereditary hemochromatosis, two weeks ago, In addition to having CML ( Chronic MyeloidLeukemia.) Discovering this channel has been a game-changer for me. The content is not only informative but also super relatable. Knowing there's a community here going through similar experiences is like finding a virtual support system. 🤝 If you have any tips or insights on managing both conditions, I'm all ears! 🙌 Looking forward to more great content and being a part of this amazing community. 💙 Keep shining bright! ✨

@MariauceyRD_Dietitian 5 ай бұрын

Hi Suzanne, I'm so glad you found the channel too and that the videos have been helpful! 😀 Thank you for your kind words, I look forward to providing you with more great content 💚💫

@danvining2186 4 ай бұрын

There are no diet requirements HH and trying to avoid iron or inhibit absorption puts you at risk of becoming deficient in other essential nutrients and minerals like magnesium which is required for over 300 enzymatic functions like vitamin D3 metabolism which you aren't being tested for so it's safest to just let venesections control your iron.

@MariauceyRD_Dietitian 4 ай бұрын

Hi Dan, Happy New year and thank you for watching my video. Yes my main point is that venessections is the main treatment for HH.

@williamroberts6294 3 ай бұрын

I am 67 now and have just been diagnosed with this 2 weeks ago. I have had lots of problems starting in my 40s and never knowing what caused any of it. I was diagnosed and medicated for sleep apnea in 2003. I was already on high blood pressure tablets. In March 2021 I had a heart attack at work and was taken to hospital. The very next day I had another heart attack in the hospital. I was then rushed to another hospital. where I had angioplasty and stayed in hospital for another 2 weeks. I came home and was still having problems. I was admitted back into hospital and in May of 21 I had a triple heart bypass. I never really recovered and I am now in a wheelchair. I sleep for hours everyday and I can potter around in the kitchen that is my limit. I also have heart failure. I am now waiting to see a blood specialist and my doctor said my liver seems alright for now. I would like to know if too much iron is in my heart which I now know left untreated this can go into your organs. Nobody ever knew and the doctor reckons my parents would never have known about them having this condition haemochromatosis. I am trying to learn everything I can about this but, It is very difficult and especially trying to learn about what to eat and what not to eat. I am so very glad I found this channel because at least I can learn about nutrition. They say you are never to old to learn and I am trying to find out as much as I can because now 2 out of the 3 of my adult children who are 40 plus are now having problems. One is under a cardiologist and the other one is having liver problems. They now have both been tested and are waiting to see the results.Thank you.

@MariauceyRD_Dietitian 3 ай бұрын

Hi William, Thank you so much for watching the video and taking the time to comment and share your story 💚 I am so glad the video has been helpful in some way for you! You have had a really long journey to your diagnosis, but at least now knowing you have the condition will help with your health going forward. Definitely make sure your children get checked and if you have any siblings its best they are tested too. Look after yourself and I'll hopefully have mor heelpful videos on this condition again soon.

@larrycarmenvasey9013 5 ай бұрын

Is high iron saturation levels the same thing?

@MariauceyRD_Dietitian 5 ай бұрын

Hi Larry & Carmen. A transferrin saturation level test checks how much iron in the blood is bound to the protein transferrin, so yes this does show if you have a high iron level in the blood and it is used when making a diagnosis. A serum ferritin level tests to check the amount of iron stored in your body. Hopefully that is helpful. Thank you for watching my video 💫

@caoimheguinnane6821 Ай бұрын

What do you mean by fruit juices in this video

@MariauceyRD_Dietitian Ай бұрын

Hi Caoimhe, Orange juice and grapefruit juice in particular as they have high amounts of vitamin C which can enhance iron absorption.

@caoimheguinnane6821 Ай бұрын

@@MariauceyRD_Dietitian ok perfect thanks. Have you ever heard of people with haemochromatosis using the supplement insitol?

@MariauceyRD_Dietitian Ай бұрын

@@caoimheguinnane6821 not for the purpose of haemochromatois but I have heard of people using it in other conditions e.g., pcos

@kellybrackin7294 3 ай бұрын

I was diagnosed last year with hemochromatosis. I was taking iron supplements because I also had uterine fibroids. After my hysterectomy, I started experiencing extreme fatigue. I went to my doctor and was then diagnosed with it. The pain in my hands is so bad. I’m now trying to eat vegetarian and also low carb. I’m overweight and I need help on what to eat. Can you help me with my diet?

@MariauceyRD_Dietitian 3 ай бұрын

Hi Kelly, I'm so sorry to hear of your struggles. Hopefully now that you have ben diagnosed you will be able to start treatment for the iron levels. That should help you feel a lot better and improve the fatigue. I dont take on 1:1 clients at the moment but I will be making many more future videos with tips on weight management and hopefully these will be helpful for you 💚 Wishing you all the best with your health and happiness.

@kellybrackin7294 3 ай бұрын

@@MariauceyRD_Dietitian thank you. It made me feel better that I’m not alone. Thanks again for responding to my message

@kathleenmastrogiacomo2747 2 ай бұрын

Where do I find list of foods to eat with 😊haemochromatosis

@MariauceyRD_Dietitian 2 ай бұрын

Hi Kathleen, you can find the booklet via this link 💚 I hope this is helpful. haemochromatosis.ie/wp-content/uploads/2023/04/Diet-Haemochromatosis-Guide-Feb-2023.pdf

@michellewilcox6838 3 ай бұрын

I have the trait. I also have high Ferritin and Iam anemic. Not iron deficient.

@MariauceyRD_Dietitian 3 ай бұрын

Hi Michelle, thank you for watching the video and taking the time to comment. I hope the information was helpful. Make sure to keep an eye on your levels in the future, your ferritin reflects your storage iron levels and that is important to keep within a normal level as much as possible.

@dorothynewhouse1160 4 ай бұрын

I have hemacomatosis, but I have small veins and they are deep and they can't get my blood out and my iron levels are now 750 and I am very worried because I was told I could have damaged organs and die.😮

@MariauceyRD_Dietitian 4 ай бұрын

Hi Dorothy, I'm so sorry to hear this! Please keep linked in with your medical team and hopefully they will be able to find a solution. Wishing you all the best 💚

@stephenjones6500 4 ай бұрын

Hi ya had the curse for a very long time ...the veins in my right arm dont deliver anymore ...luckily still got my left .before your venesection drink as much water as you can .helps with it believe me i know from experience. They can also take it out of your legs if needs be ...

@MariauceyRD_Dietitian 4 ай бұрын

Hi @@stephenjones6500 that is very helpful! Thank you for passing on your knowledge and experience.

@dorothynewhouse1160 4 ай бұрын

@@stephenjones6500 I do drink a lot of water and Gatorade I have found if I get iv fluids they get my blood first try in 15 minutes.

@terriwilson4984 4 ай бұрын

Our Grandfather had this, Our Fathers Father. Our youngest Brother has it. Uncles etc. On our Fathers side again. Is there any Herbalist is ways to control this? Terri

@MariauceyRD_Dietitian 4 ай бұрын

Hi Terri, many thanks for watching my video and I hope if was helpful. That is a very strong family history! My father and his father also had the condition. I'm not sure how much further it went back. Unfortunately there is no herbalist approach that would replace the need for regular blood venesections. The tannins from tea and coffee and the phytates in fruit and veg will help reduce absorption slightly but no where near as significantly as your regular blood removal treatments.

@kathleenmastrogiacomo2747 2 ай бұрын

Where is the list of foods to eat.

@MariauceyRD_Dietitian 2 ай бұрын

Hi Kathleen, thank you so much for watching the video 💚 I have linked the booklet above for you, let me know if you have any problems accessing it!

@elizabethrosenbaum4270 4 ай бұрын

I have signs of high iron and ferritin levels my Dr not doing anything.

@MariauceyRD_Dietitian 4 ай бұрын

Hi Elizabeth, Keep an eye on them and continue to advocate for yourself. Hope it all works out 💫

@corgi41958 2 ай бұрын

I found out last summer that I have hereditary hemochromatosis.

@MariauceyRD_Dietitian 2 ай бұрын

Great to get a diagnosis, that is the first step. thank you for watching the video, I hope it was helpful.

@mackm45 4 ай бұрын

I have it and most people online do not know what they are talking about including you???What you state in this video is wrong for what I have learned about this???

@MariauceyRD_Dietitian 4 ай бұрын

Hi Mackm, I'm sorry to hear this. I'm interested in where you believe I am wrong? Thank you.

@vanlifebiker 4 ай бұрын

Do tell 🤷‍♂️