DLBCL in 2023: Top Docs Discuss the LATEST in Diffuse Large B-Cell Lymphoma

DLBCL in 2023: Top Docs Discuss the LATEST in Diffuse Large B-Cell Lymphoma | Treatments & Research

Рет қаралды 14,093

Күн бұрын

The Patient Story founder Stephanie Chuang was diagnosed with Diffuse Large B-Cell Lymphoma at 31. Like many others, she was completely overwhelmed. After undergoing treatment she was able to reach remission. But throughout her cancer journey, she felt a great need for more options in treatment. She wanted to know, what are the treatments out there? What are the options? What should you be asking your doctor?
In this conversation, she speaks with Dr. Josh Brody, who leads the Lymphoma Immunotherapy Program at Mount Sinai and Dr. Lorenzo Falchi, an oncologist at Memorial Sloan Kettering Cancer Center with special research focus on immunotherapies for B-cell non-Hodgkin lymphoma. They discuss breakthrough therapies for DLBCL, immunotherapy and bispecific antibodies.
Special thanks to Genmab for its support of our patient education program!
Full story & transcript → www.thepatientstory.com/medic...
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Contents of this Video:
00:00 - Intro
03:19 - "Why me?" How did I get Diffuse Large B-Cell Lymphoma (DLBCL)?
07:17 - CAR T-cell therapy may become an earlier option?
08:38 - What are bispecific antibodies?
11:30 - Which bispecific antibodies in clinical trials are emerging as likeliest to get approvals sooner?
14:07 - What are the most common side effects seen with bispecifics so far?
19:58 - Different ways bispecifics could be used in treatment
24:39 - Importance of "Patient Reported Outcomes"
26:37 - What is the general takeaway for DLBCL patients and loved ones today?
#cancersurvivor #cancerstories #cancer #thepatientstory #dlbcl #lymsm #nonhodgkinlymphoma #lymphoma #lymphomasurvivor #lymphomaawareness #cancertreatments #cancerresearch

Пікірлер: 59

@izzatso3314 18 күн бұрын

Thank you for this. Very hopeful news discussed. I was fortunate to have the CAR-T treatment. It is amazing of the progress made in cancer research. I am very thankful for all involved. Side Effects After Treatment: Initially I had CRS (about 2 days); it took me over 2 years to feel the brain fog dissipate; now it's only low clouds sometimes; not 100% energy as before cancer, but it is adaptable; immune system is on the low side, but precautions are taken. I am a retiree.

@sandradalessandro2935 Жыл бұрын

Wow. Extremely Encouraging!!! Diagnosed aug 2022 diffused large B cell. Just completed full six treatments RCHOP. Trying to just catch my breath no hair no eyebrows no eye lashes out work almost six months. So weak. Fighting thru this praying that my follow up pet scan is clean. That will be late FEB. Watching this gives me such hope!! Many DR have used the term : this cancer you have this tripe of lymphoma. While fast moving n aggressive. Is TREATABLE!!! I say believe in miracles!!! N I have gratitude for this channel!!!🙏🏻🙏🏻❤️💙💙🦋🦋

@anjuninamaninama6239 Жыл бұрын

I also have completed six cycle and waiting for pet scan ,,hope with free from the disease,,,it's dlbcl

@anjuninamaninama6239 Жыл бұрын

First chemo cycle on 7 September 2022

@sandradalessandro2935 Жыл бұрын

Sending. Prayers. To u. As well

@anjuninamaninama6239 Жыл бұрын

@@sandradalessandro2935 prayer for you too dear 🙏

@sauravsahu4338 Жыл бұрын

@@anjuninamaninama6239 same me on sep 2 2022

@polyrhythmia 7 ай бұрын

Just finished the fourth treatment of R-CHP-Pola. PET scan looked good after three treatments. Hopefully can stop after four. Have neuropathy in feet and other side effects. Have been wondering what could have caused this, as if one could find the cause, you could stop that. Immunotherapy, a big step beyond cut, poison, burn.

@andymac9594 Жыл бұрын

Thank you so much, Stephanie, Dr. Brody, Dr. Falchi, and The Patient Story........May God Bless all of You

@alohatvj 8 ай бұрын

Very informative video 📹. I think everyone with Lymphoma should be aware of the various treatment options. Look forward to hopefully finding a long term cure for the disease.

@user-kn4vi9mt7b 6 ай бұрын

Congrats 5 yrs!! Amazing thank you for doing these shows

@freewillietoday Жыл бұрын

Hi Stephanie, I received my first infusion today. My doctor, the nurses, and staff took great care with me, as well as other patients. The infusion lasted 5-1/2 hours. I am now 12 hours after. I have not experienced any side effects, except a mild fatigue, and that did not last. The nurses said that I did well. Thanks for your inspirational channel. Wilfred Wong

@ThePatientStory Жыл бұрын

Wilfred, what a wonderful update. So glad to hear you have experienced few side effects! Sending you virtual hugs. -Stephanie

@valerieannagnes 9 ай бұрын

Thank you for an informative, hopeful, and inspirational talk. I hope that everyone posting here has outstanding treatment treatment results.

@byronjaffe518 Жыл бұрын

Thank you for this very informative video about CAR-T and Bi specific immunotherapy

@tighthose 2 ай бұрын

Thank you for this Stephanie! It’s very comforting to know there are more options after R-CHOP. Appreciate it greatly!!

@lalela7 Жыл бұрын

Thank you so much Stephanie for all you do. ❤

@ThePatientStory Жыл бұрын

Thank you so much for taking the time to leave kind words :). -Stephanie

@giorassiccuriosity3179 4 ай бұрын

My father is going through the same thing now. He is on chemo now. Thank you for sharing your experience ❤

@viktoriiakotsiuba7063 Жыл бұрын

❤thank you so much for your help today!

@ThePatientStory Жыл бұрын

So glad it was helpful! Thank you for the comment - hugs. -Stephanie

@erdempekoz5164 Жыл бұрын

The world should pay more attention to new cancer research. We need more sophisticated theraphies. More resources, more scientists etc. I really apprrciate this channel, and hope you thrive and enjoy a healthy life.

@ThePatientStory Жыл бұрын

Thank you so much for sharing your kind words! Could not agree more. The more we know, the better we can do. So grateful for all those who've dedicated themselves to research, both the medical side and the patient/family side who take part in clinical trials. Wishing you a wonderful, healthful life! -Stephanie

@TheMoegig 8 ай бұрын

Really interesting. Am on Cycle 2 of same protocol you were on and looking forward to my first scan next week. Hoping to avoid having to deal with 2nd and 3rd line treatments down the road when I'm done at year end. Congrats to you on your successfull conclusion and thank you for your excellent presentation.

@peaceharmony7646 6 ай бұрын

Thank you sooo much.

@joelbernstein7563 9 ай бұрын

Thank you!

@MJHB1807 5 ай бұрын

Hi Stephanie! Looking for some info for my wife. Are you able to send any documents from the doctors regarding trials on success of car-t as a good second line of defence vs third? Thank you for this and thank you so much for everything you do! ❤

@talaya2858 Жыл бұрын

Thank you so Stephanie for sharing your story and sharing so many others Cancer stories. Thank you for the time and dedication you give to others. I truly appreciate what you do. This channel has helped to educate me, inspire me, and encourage me. God bless you!

@ThePatientStory Жыл бұрын

I am so sorry for this late reply - thank YOU for taking the time to leave such a kind message. I am so glad this has been helpful! Hugs to you -Stephanie

@tooneboone3869 10 ай бұрын

I had DLBCL in 1998 ; 6 cycles of CHOP {R-Chop not available} ;back in 2010; R-Chop 6cy back 2017 & 6cy R-Chop; & back 2020; back 2022; back2023; now on Ritux and 86 years old and still up and mowing my yard ect.

@AB-pb4ky 9 ай бұрын

Ive got DLBCL so thats promising news to hear

@apwmojack Жыл бұрын

i was diagnosed late march with non hogkins lymphoma ldbc.. only thing i noticed was a swollen lymphonode under my arm . no other symptoms. now its mid may all my results are in and i find out i am at stage 4 . but no cancer in my bone marrow and no bulk in my system except under my arm. im trying to learn what to expect with what kind of treatment ill be doing . right now we need to work on getting my tcells higher . ive come to terms with the worst i think its the waitting and not knowing how to scheduled the next 4-6 months of my life that's the issue with me . thanks for the information in this video im going to ask my doctore my next appointment which sounds like he wants me to come in real soon .

@ThePatientStory Жыл бұрын

I am sorry to hear about your diagnosis - I understand and can remember all the questions and emotions, especially in the beginning when there seem to be more questions than answers. I'm glad the video was helpful. If you want to get first notification/access to more of our LBCL/NHL programs and content, please sign up here (www.thepatientstory.com/newsletter/ )- we'll make sure you get notified. Sending you hugs. -Stephanie

@talkswithkimberly1623 Жыл бұрын

I was just diagnosed with DLBCL lymphoma, had first R Chop treatment

@ThePatientStory 11 ай бұрын

Kimberly, hoping treatment has been smooth for you - sending you hugs. -Stephanie

@nunoniyobenk256 10 ай бұрын

I was diagnosed with DLBCL Lymphoma, just come back from hospital and the hospital said there's some of medicine that the government didn't covered the medicine

@brucepinkerton2716 8 ай бұрын

Excellent. My wife was just diagnosed. I am a physician and this helped greatly!!

@talkswithkimberly1623 8 ай бұрын

Thank you all, I finished treatment and am in remission CR ! God is good!

@brucepinkerton2716 8 ай бұрын

@@talkswithkimberly1623 good for you!! That’s awesome!!!

@selvis3557 Күн бұрын

In 2023 i suffered DCBCL,i took 6 chemo, in jan2024 i took petscan,in that scan there was no evidence of DCBCL. In april 2024 i feel small pain in my abdoman ,i did colonoscop, the report was recurrence of lymphoma, my was broken, i don't know what to do,some doctors recommend surgery, some doctors recommend powerful chemo,please suggest is there any treatment in siddha.i need only medicines(oral suspension).please suggest idea.😂😂😂

@jaimemartinez8173 7 ай бұрын

Hi the back music is to low

@MrPYVideo 5 ай бұрын

Recently found a lump growing to about the size of the top half of my thumb on my right inner thigh. It was later diagnosed with early stage DLBCL. Right now, my lump is almost completely disappeared and I still haven't started my R-CHOP treatment yet. One interesting I observed is that every time I took Mucinex DM pill for my cough, I noticed that the lump shrank. I tried to stop and start at different occasions, the lump shrinkage also correlated with it. This is probably just my imagination. It may be something else and nothing related to Mucinex DM. I just could not find other possible link so far. I tried to search online to see if any other DLBCL patient had similar experience like mine but found none.

@IKSRTFO 3 ай бұрын

Man that's very interesting! Any update on how you doing now?

@MrPYVideo 3 ай бұрын

@@IKSRTFO My 2nd PET scan in fact showed that the lump indeed significantly shrank without any chemotherapy treatment. Right now, I can not even feel any lump on my thigh anymore. I'm on a monthly in person monitoring now in case there are any symptoms of the cancer coming back. I'm feeling normal and fine. No chemotherapy, no medications to take. I'm hoping that the cancer never comes back.

@crmbonnici 9 ай бұрын

My son have this cancer age of 24

@valerieannagnes 9 ай бұрын

I wish him the best, and most importantly a forever remission.

@crmbonnici 9 ай бұрын

@@valerieannagnes thank you

@politicalphilosophyclub 8 ай бұрын

R-chop is the medicine your Son is still young he will do good with chemotherapy.just make sure he freeze and bank his …. In case he want children in future

@crmbonnici 8 ай бұрын

@@politicalphilosophyclub yes freeze the sperm before treatment

@SteveAdams-yv2ss 2 ай бұрын

May the angels guide us an conform us during this journey we are about to endure.