Much love and blessing to you, dear doctor!

Thank you doctor. I am a nurse and in school to become a nurse practitioner. I find what you say fascinating. I recently had a patient who was told by a neurosurgeon and neurologist that his psychiatric and neurologic symptoms had nothing to do with a large (7x8x5cm) posterior fossa arachnoid cyst. Symptoms began as subtle personality and mood changes progressing symptoms of cerebellar dysfunction and dysphagia. He was diagnosed with frontal lobe dysfunction followed by parkinson's disease. 50 pound weight loss ensued. None of the prescribed medical treatments improved his condition. After a recent fall he is now completely debilitated with grossly impaired cognition. I believe if the cyst would have been drained upon discovery and correlation with these symptoms the outcome could have been much different. Common sense tells me something so large at least has potential to cause symptoms and should be SERIOUSLY considered in a differential... frustrating.

A little girl in my daughter's 3rd grade had brain cysts. They found them because she just all of a sudden, couldn't learn and her heard hurt most of the time. The family ate pork almost ever night, so the doctors told them to stop. Here cysts were connected with a parasite so she was given some kind of parasite med. and recovered very well.

Dr. Daniel. I am beyond thankful for all the research and knowledge you have given to us. I have 3 children ages 8,7,5. All have had Traumatic brain injuries. I currently treating all 3 in your clinic of Orange County. My 7 year old was found with a 3.1 centimeter arachnoid cyst along the anterior aspect of the right middle cranial fossa with mild mass effect on the anterior right temporal lobe. No midline shift or herniation. 2. Nonenhancing subcentimeter region between the anterior and posterior pituitary gland, favored to represent a pars intermedia cyst, it hasn’t been evaluated. I’m very concerned for my son. Because when he has a jolt or hit to his head his behavior changes to defiant, aggressive, potty mouth, can’t focus, high energy, craves sugar and carbs, he get a cold, has a bowel dis regulation and gets anxiety to go in the car, go out of the house, refuses to go to school and refuses to do any school work. His memory is affected and seems to have a regression from his baseline overall. He has complain of headaches but not so much. I am very afraid that this extreme symptoms are cause in part of the cyst he has? I wish you could please guide me to the right professional experts on this cyst because I wish to understand this Cyst and the effects on my son as much as I can. I was told by a Kaiser neurosurgeon that is not benign, I’m very happy to know that but as you can imagine I don’t feel like I can feel worry free if I don’t truly understand what this cyst has for my son future. I don’t want to react to when things get bad I like to know if there is anything that can be done or nothing because is not going to affect him. I know you are very extremely busy man. I trust and believe in your work that only if you told me my son is fine. I would be happy to believe it. I’m listening to your book on how to heal ADD and ADD in intimate relationships and I so beyond grateful to have come across your amen clinic and BrainMD, my brain fit life. All this resources are immensely valuable and so grateful to have you and your wife help us with all your research, work, nutrition, to support the health of our brain. I know I’m asking for too but my children are being care for by Dr. Braun bello MD at your clinic in Orange County recently located to a different building within the same city. Please if you can let him know of a child neurosurgeon that won’t need Kaiser pediatrician referral to see him because this is why Im looking outside of Kaiser and she won’t refer me out because they have the neurosurgeon within Kaiser network but I already spoke to one of them and I know that he doesn’t get my son situation no one in there does except for A special women that no longer is with then that she did refer me to what I would ask and thanks to her I found my 8 year old had high spike waves 25/35 and is now on anti seizure medication. She is now working for UCSD and that’s where she belongs. 🎉 she had an open mind and was very supportive like a real care team should be do what’s best to help the health of the children. Please I don’t know if you read this comments but I will pray that you can help us out. Sincerely Joana.

I had a cyst above my pituitary gland which was removed at UCSF. I had no clue that I had this until one day it started leaking and caused severe pain, I feel completely different having since that was taken out.

I discovered mine in 2013 its 2.8 cm and I've had chronic brain fog since + as of this month my arms are now goin weak when raised above my shoulders and just found out it grew a tiny bit.

I have a left frontal lobe cyst and multiple others in my body. I can't get ANYONE to take me seriously. I work for drs is the ironic part lol. I'm a smart girl and I feel like an Alzheimers pt. I feel like "the Nothing" from the movie "The Neverending story" is coming for me bits at time, but rapid decline. This video was HIGHLY INFORMATIVE. THANK YOU SO VERY MUCH! Btw we call my cyst "BOB" benign on the brain. 😉

On my MRI report it noted that I had an enlarged retrocerebellar CSF space, probably a arachnoid cyst. I don't like the probably part as it seems like they don't know for sure. I see my neurologist soon hopefully he can clarify it a bit more.

I just found out this morning that my 16 year old daughter has a cyst the size of a baseball behind her eye. She had a major fall in January and we noticed her one eye was really bulging outward. The ophthalmologist said it was just her thyroid but sent her for a CT scan to humour me. He hasn’t called with the results but our family doctor received a copy of the results and called to tell me. I’m still in shock. She has had behavioural issues and aggression issues for years that were chalked up to other diagnoses she had but now I’m wondering what came from what. I’m glad I came across this video.

my son was diagnosed with schizoeffective disorder at 18 years old, and after an MRI they found a cyst on his pituitary gland and told me it is nothing to worry about....they said just keep an eye on it , but they never monitor it and we are 11 years into his diagnosis...he is doing okay these days, but i am one who believes in finding the cause and not just treating the symptoms. I would love for him to come to your clinic and get his brain checked and treated accordingly! Do you have one in the northeast??? Reply

I have one thats been diagnosed over 10 yrs ago that at the time was over 33 mm in size,supposed to be monitored regularly but only one scan in 4 yrs,,,seemed to be forgotten about ,,

I have an arachnoid cyst in my left anterior cavernous sinus. Not much information on this. I started getting severe headaches and pain behind my eyes that wakes me up. Now I’m waiting to get into a neurologist.

where can we find any statistics of what can be the reasons of these cysts?

I grew up with epilepsy and been on meds for over 30 years but how do you know it is the kind you say I after gallstone and gallbladder removal I had a scalp sebaceous cyst

Is there a way to tell if the depression is directly cause by the cyst or is it more of a guessing game. Can you tell by mri

than you sir

do you know much about Focal area volume loss and or cystic encephalomalacia involves a right parietal gyrus? is this serious?

I had a huge arachnoid cyst in my lumbar spine. It was removed. Do these come back frequently? I had a hard time with the surgery. As I'm a bilateral lower limb amputee. Ak on left and hip disarticulation on the right. I lost them in a train accident at age of 9 months old. My surgeon thinks it started from that traumatic event. I'm 45 now. It was removed 7 years ago. I'm worried bout it reoccurring.

I have a cavum septum but has symptoms so they may operate,has this been done before?

I had an arachnoid Hemorrhage about 13.5 years ago due to an arachnoid cyst. I looked like a stroke victim after and am still on disability due to it amongst other subsequent mental health diagnosis. I have to get regular MRIs just had one about four months ago and it seems to say I may have a new additional pineal cyst with a midline shift to the left, I'm thinking from the Initial rupture. I had brain surgery for the AC in 2016 but it proved to be to vascular to do anything. I see my neurologist on Oct 24 to get full details on the possibility of there being a new pineal cyst. Don't give up the fight everyone?! And if you can't or don't have an advocate call for help. God bless.

I had one behind my eyes three years ago, Found out I was born with it , I always had anger issues growing up especially with certain noises and an upmost dislike for standard old school flueresent lights like in schools and old buildings.i would get painful migraines. I only found out when I was at work and I couldn't look up without increasing the pain so I tried wearing sunglasses that seemed to bandage the pain but the migraines would get worse .and at this point I went to the emergency and found out from my scans (I had six scans just to find the little cyst that was causing all my trouble.

My MRI says that I have a probable right middle cranial fossa arachnoid cyst, measuring 4 cm maximally. The right temporal lobe demonstrates moderate atrophy and nonspecific white matter disease. The neurologist says that it would be too dangerous to operate, so I guess I'm stuck, I'm 54.

I have an Arachnoid Cyst. I started out with my brain hurting on and off for about 6 months. Then I was 33 when I got behavioral problems. I had involuntary body movements, Spasms, seizure like activity, I heard voices. MRI showed deformity of the part of the brain that controls movement. I lost my taste buds and my hearing was stronger than usual. They prescribed me medication and I got better but now my doctor took away my medication and i’m starting to get involuntary face twitches or movements

My identical twin sister was born with some head problems and from the extreme end of her neck at the back to between her eyebrows seemed that her skull wasn’t closed up .I’m from Nigeria we have a “traditional” way of fixing stuff like that. She complains of head ache every week every month. It gradually turned into migraines when we where in grade 10 .but doctors said it was just migraines ,she lost her sight drastically and claims she was seeing skeletons! now we have graduated from university at 19 and the stress of our finals made her migraines so bad she was unable to sleep for several days. She was rushed to the hospital and what started as a migraine turned into seizures (focal). I would honestly have to say that we are twins. And her attitude was odd I was slowly distancing my self away from her because. I felt she didn’t think a lot of things she did through and never saw the wrong in so many wrong things . We got an MRI and there it was a cyst she started getting medications for the seizures and other things. She woke up one day in the hospital and just looked at me and started crying. She said she hasn’t been her self. I’m a Nigerian we believe in People being possessed by evil spirits but that wasn’t the case😂.this was different ,she was different what ever this cyst thing is. It made her not fully psychologically present but she wasn’t psycho .she started apologising for things that she never saw as wrong. And it feels like for the first time in 19 years I actually have a twin sister .Her sight isn’t fully back and hallucinations haven’t stopped but I’m hopeful that if it needs surgery I’m God will make a way because we are broke lol. Hope you see this.

Hi doctor I have cyst 4.3 *3 cm , does this saize need medical treatment ? Regards

My niece has a cyst on the left front part of her brain. Doctors says its not affecting anything yet she walk due to have very little control over her movements. Her speech ability is 50% affected amongst other symptoms. Who can I contact for help and further diagnosis.

Same problem a little cyst in my left side of brain , what should i do, plz suggest🙏🙏🙏?

I have a subarachnoid cyst on my left brain migraine/cluster headaches .lots of different meds.

ive still had issues with vertigo etc leaky fluid on the side the cyst was

Greetings doctor amen, When I was born I had a traumatic birth the doctor pulled me out by my head with forceps I was born in may of 1995 and no one has ever thought to do an mri on my skull; that is until I fell in October of this year they found what they assumed to be an arachnoidal cyst which they then changed to a porencephalic cyst I’ve lived 25 years of my life with this and no one even thought to check my brains activity in that 25 years. Instead they labeled me as autistic and put me on pills that have ultimately ruined my psyche now at 25 I’m being told that I’m not actually autistic and that this cyst has been the root of my developmental delay since an uknown probably post birth trauma. And yet I was told by the neurologist who diagnosed it I shouldn’t have it removed: I have had a hard life already and these past months have made me not only regret my life but question if it’s worth living where I am now writing this is 3:46 am I lose sleep every night because I’m in pain I also have sleep apnea and insomnia and all my doctors are finally putting the pieces together all little too late: I just wish my circle of caretakers had taken the initiative you did with you child: because the medical field has failed me and only caused me more pain

My 40 year old son was diagnosed with more than 5 benign brain cysts about 5 years ago and they have grown, one of them considerably since then.. The Drs. say it is not in an area they can do surgery on, so they just keep an eye on it. He has very bad migraines. He also has times when it's difficult to swallow, could that be related in any way, or just coincidental?

any one help could medication or drugs ease my pineal cyst - 4cm

I got a cyst I got to see a Neurologist I feel nauseous aswell not sure what they going to do

Please help my 35 year old son. His arachnoid brain cyst measures 16.5 cm × 12.3 cm × 7.9 cm. He's on his 3rd shunt. He's so sick all the time throwing up constantly and dry heaving and lost so much weight not being able to eat. I took him to ER bcuz I thought he needed fluids. Nothing they sent him home. We live in Grand Rapids Michigan. He had 2 Medtronic Shunts both malfunctioned so I took him to Yale University in New Haven Connecticut and Dr. Kristopher Kahle put in a proGAV 2.0 shunt. His case is in The New England Journal of Medicine. Please help me help my son. Thank you...

How does it effect a person

I have one . Second MRI on the first

Dr. My girlfriend, who I love very much, has a history of mental health issues and drug abuse since adolescents. In her 20s she had an MRI/CAT? Was told 3 small peneal cysts. Now hospital says all 3 the size of half dollars. She still suffers from many personality disorders, has a tentative diagnoses of schizophrenia. When she uses drugs she becomes a dangerous lunatic. She didn't used to be violent.is it just the drugs or are the cysts playing a role as well.

I have a brain cyst and they say it can not be operated on, mom of 6 and extremely scared

I just got my second mri(this one with contrast) because the first one(was looking for injury from car wreck ). I was told I have pineal cyst.

I'm suicidal. Hate the pain. The fight for help from dr's and health insurance. My quality of life has gone. Had MRI, have arachnoid cyst at base of left side of brain. Dr's don't want to help because I have Lupus and relapsing polychonditis. Been in bed for months, gained 30 pounds. So discouraged.

I have a cyst in my brain but no removal for now but I do get very bad migraines and lately been really emotional wonder if the cyst has anything to do with it ???

I also have cyst in my brain normally are connected to migraines. Doctors want to monitor them to study more and plan next steps.

WOW

Yet another neurobiological basis for psychopathy! thanks doc

Hi guys! I see that the video was posted 10+ years ago, but I'd like to ask a question, maybe someone can answer. My son, almost 3y old, has been diagnosed with a brain cyst lately. We found out about it after he had a febrile convulsion. The cyst is large enough, about 5cm diameter, located in the left front side of the brain, and the main symptom is a convulsion. However, the EEG is calm, with no bad signals from the part where the cyst is located. I am very afraid of losing my son, because he is likely to have a brain surgery, and the main question is, what is the survival rate after this kind of surgery? Thank you!

What if I have a cyst on the right front side of my brain?

When you drain it is it like a cut on the head deep dwn to the brain?

Howvabout mega cysterna megna

I have been extremely nauseous lately so today I went to the emergency room got a cat scan and realized I had a cyst could this be causing it

I have what I believe is a cyst on the back of my brain and have hydrocephalus my doctor discharged me from his clinic because I put a complaint in about his rude bedside manner I have seen alot of doctors in my life and he has to be one of the rudest men I've ever met but now I am concerned about my brain condition as my balance is getting worse and my personality changes all the time

What the hell does someone do in Canada where the doctors just monitor and monitor and monitor without ANY proactive approach to considering these cysts in my head contributing (at the very least) to my symptoms…. ITS FAR BEYOND SOMATIZATION. Fuck sakes im tired of this country and their poor diagnostic ability. ONE TRIP TO MEXICO, and I have a neurosurgeon willing to help, asked me to go back to Canada and get covered by insurance as the procedure is expensive. WTF CANADA -- thanks for the help doc and all you others sharing your stories… they all are eerily similar. I used to be an MVP athlete and hard worker… now I can barely walk or see straight with major behaviour issues

have one in the back left side vision area of the brain and have constant eye flashes so annoying that the doctors dont want to do anything about he cyst and keep checking for epylepsy and other stuff that is non exsistant yet they are sure making the money off me. 40 years of this crap and no real help

Friday morning i had a seizure for the first time in my life. I have a huge cyst and I'm scared

Umm I just found out I have one should I be worried

This is always have symptoms to him you just don't realize it because hitting your head on the floor or against a window to stop the pain because it hurts so bad because your sympathetic nervous system can't come down. I didn't realize that not having my ovaries and going through menopause would make my body start to react normal so that it wasn't going anywhere very dangerous mine was so lonely it caused another one so now I have two when in the dead center and one on my cerebellum that's the size of a small plantain when I saw it was over 3 cm big and I knew I was splitting it after my husband took a shunt out of my spine when we were making love if you could call it making love like that so I had four more surgeries and went septic people need to be cognizant of what can happen to you when you having a rat noises they are so dangerous you have to be so cognizant of the drugs that you take because we're not drug addicts that's other people that like to put there slant on their own lives on to yours and you can't let them live your life you are the one that has you are the one that is no Divergent they are neurotypical neurodivergent that is us completely in a nutshell and if you guys aren't getting us the help that we need and educating women that we should not be having children it's child abuse to have a child born with a brain tumor that's going to cause all kinds of central nervous system diseases down the road even if you shunt it. It doesn't matter there's a pathology and your brain and the atoms are splitting and there's nothing you can do to stop it especially with an arachnoid cyst

Ummm thxy

I got cyst too lol