So nice to spend time listening to a smart doctor who is not rushed by a clinic schedule! Thanks for your pioneering work helping people to both understand and also live better with fibromyalgia.

thank you for your informative talk . I could write a book about my experience. I've had fibromyalgia for 37 yrs. after seeing several doctors I went to Northwestern pain clinic Chicago in 93. They were the first to tell me I was not crazy and they told me I had Myofacia pain syndrom. Several yrs later A ortho dr diagnosed me with Fibromyalgia. After being on serveral meds which made me worse And one time almost killed me I got off the script wagon. I cannot tell you how frustrating it is. I was in a horrible flare this week. I do crofit and infra red therapy and hot tub. those things work but insurance don't cover anything and its expensive. I am so much at my wits end.. my dr knows I don't do well on meds so she can only offer me physical therapy. I 've had many discussions with her about insurance etc.. I have even called my senator to change things in ins for chronic pain sufferers. the struggle is real. I am sorry to complain . It's been rough week. So sorry you have Fibro, Thank you for all the work and talking on your videos. I really appreciate it.

I am so happy i found you i wish all the doctors would learn from you ❤

I SO appreciate you and your research. I started getting symptoms in my late teens - I got diagnosed at 54 so approx 35 years of suffering and my symptoms not taken seriously. Always diagnosed with depression/anxiety. So frustrating - I gave up and suffered in silence. Your channel gave me the confidence and knowledge to self diagnose and advocate for myself to finally receive a medical diagnosis. Awareness has helped a lot, myotherapy has changed my life. Thank you so much for sharing your knowledge, it has changed my life. 😊

It's been really validating watching this video. It took me 3yrs to be diagnosed and I saw multiple specialist and had 3 exploratory surgeries. I went through more than I should have to get an answer. I agree that it would be most appropriate if you had a primary doctor to help manage the disease and to also bring in additional specialists into your team of health care providers when needed. I have always wondered why it was so difficult to find a doctor who was willing to take the illness seriously even after diagnosis. How Dr. Ginevra talks about diagnostics clears that up along with mention of the 'hysterical woman' mindset I have unfortunately been on the end of that an overwhelming amount. When you look at the timeline of how much progress has been made in regards to studies, diagnostics and treatment of Fibromyalgia, I agree with Dr. Ginevra, it's just sad. *A request if I may.... It would be great if the studies spoken about in your videos are listed in the description ideally with links so we can have the opportunity to see the data ourselves. Thank you.

It definitely took ovwr five years for my dx, but possibly over ten. I was not believed because blood work said nothing was wrong and i suffer from depression. Also, pressure point dx was used for me in 2019. Ohio is way behind the times.

Thank you, thank you, thank you!!! Appreciate these more than you will ever know!! 🫶

Thank you for doing these videos. Although my diagnosis took about 6to 9 months in the early 2000’s. I was a military spouse and we were stationed in Okinawa Japan. We were blessed because we were assigned a primary care doc and my doc stayed with me thru the testing and scans etc and she did at one point mention exploring psychological causes but she wanted to do one more test… the tender point test. She diagnosed me and confirmed with an internal medicine doc and I started with the basic medicine prescribed at the time and found I could function at about 75-80% which was a vast improvement over the 25% on my good days prior to my diagnosis. That lasted for 5 years and eventually everything went to hell in a hand basket. I’m completely useless again and the symptoms are out of control and my doc recently told me that my symptoms must be in my head cuz he can’t figure out what’s wrong with me. He has been my doc for 10 years. I am currently looking for a new primary care doc. And to make matters worse my 31 year old son just got the fibro diagnosis. I’m so sad for him.

My 25yr old son has a complex medical history. Since age 4 1/2 his symptoms have progressed and shown more of a pattern that we finally took him to UCSF Osher Center for Integrative Medicine. Symptoms included: Intractable post-surgical pain, central pain symptoms, whole body pain during a flare up, epilepsy, sleep disturbances, night sweats, low neutrophils, incomplete sedation during ear tube surgery, amplified pain …… It’s been frustrating to see him suffer all these years. We are going through the process to get him SSI disability. Anyone have experience with this?

I was DX 1990

Dear Doctor, How can we differentiate between MS and Fibromyalgia ? both diseases have same symptoms.

How about adhd? Fibro fog feels like adhd , also there high correlation between the 2 , what is yuor opinion, i would like yo know.

Maybe a myofacial specialist needs to be created

Fibro and AI diseases should not be with Rheumys. There should be sn AI specialty. Its almost impossible to find a good rheumy who can properly dx an AI disease in a timely manner. My fibro is definitely progressive. I finally went on disability 4 1/2 years.