What treatments for fibromyalgia sleep difficulties (or ME/CFS/POTS sleep difficulties) have you personally tried and what did you find most helpful?

Sitting here at 0237 in the morning not being able to get back to sleep, and I find this video......the universe wants me to learn how to manage sleep with fibromyalgia

This is a great most practical and understandable approach and yes thinking about half-life of these medications and using layered doses is great advice....also, it should be mentioned that not everyone has the appropriate receptors for melatonin to work - I may be one of them but I will try again, perhaps at a higher dose.....thank you both!

I have dealt with insomnia. The more you fight it, the more you think about it, the more you look for remedies for it the worse it gets. We all now that it's part of nervous system issue and it comes down to calming it down by controlling our mind and thoughts. It doesn't happen overnight but a little but little it works.

the most useful, informative video on the topic i have seen in YEARS !!!! god job

Thanks Dan!🍀

Are you able to connect Sleep apnea with any connection with FM myologya and or CFS/POTS?

Uncovering the layers for restorative sleep... Video time 56 minutes... Ohhhhh 😪😴😴

Thank you!

Excellent podcast. I will watch many more of your informative and supportive videos. I have had thymus peptides combo injections that significantly helped. I have restless legs (I call creepy legs) and will double my magnesium intake. I have low ferritin and high B12. It doesn't help to eat copious amounts of liver, etc., or take supplements. What brought me up to the bottom of the acceptable range was spiralina.

I’m now into my 33rd year of ME. CFS, FIBROMYALGIA, and although It’s much better now than it was in the first 10 years. Back then there was very little known about why how, why and or if these were actually a real condition. It was my Gynaecologist who was the first one to think I may have it. He put this in his letter to my GP and recommended I see a Doctor who is actually treating it. I live in Perth Western Australia and my GP could only find 2 Doctor’s in Perth who treated it. The first one worked at Royal Perth Hospital and their was a 4 month waiting list,however the receptionist told me there was the other Doctor who was only 15 minutes away. So I rang his office and I was able too see him that week. He asked me a lot of questions, as he said there were no clinical ways, such as blood tests etc. Although after he ask me all these questions he was confident that I had ME CFS. I always been a great sleeper but for the 12 months before I was diagnosed I I was finding more and more I wasn’t sleeping hardly at all and then it was only for 20 minutes at a time. As I was leaving his Office he said to me was by the way, I’ve got a feeling you think you are going are a person who is going too think, your going to beat this it’s not going too beat you and he said this condition will beat you if you don’t get plenty of rest and never over do it. He was right I did go home thinking that very thing. We lived in a large home and I used to clean within an inch of it self but I found I was getting more severe pain too the point of having to walk around on the outside of my feet. Well my attitude did not help the only place it got me was 2 weeks in hospital where I was forced to rest this continued for the next 8 years and I know people thought because they they couldn’t see it and I looked alright, I was a hypochondriac. My relationship broke down and I for the first time in many years was living alone in a a much smaller home and I started to sleep better but I was still still in a great deal of pain and this is when I was diagnosed with Fibromyalgia, which I’d probably had all along. Fast. Forwarding to today and still live on my own by choice and I don’t say that if someone did come along that I’ve closed the door. I have my family and a few really good friends and I can please myself what when I get up and go to bed when I please I eat what I want. I haven’t cut myself off from the world but I think I have improved so much. I have have also found you’ve got to keep your brain active, all my life Music has been my Passion and know I can spend countless hours on UTube watching and listening to music, I make up playlists of my favourite songs. I also do a lot of research on things that interest me, however if I do have a day or two were I have to go out or go out socially, I’m reminded that I do have these conditions. The next day I’m sore and I’m also very tired, I do still have the odd night’s when I don’t sleep but I don’t let it get me down but it can take 5 or 6 days for the soreness and pain too subside but now this is the time that I do sleep both day and night. I’ve accepted the fact that I’m probably going too have this for life and my Doctor has told me that and he also think’s I may have been living with it for many years before I was diagnosed. I think he’s right because when I look back, I’d occasionally come down with Viruses, and I’d had test’s through the years which all come back normal.

Dr T is my Dr. awesome guy

Dr. Teitlebaum mentioned staying on a multivitamin regularly and even diphenhydramine. Aren’t there risks of taking diphenhydramine long term due to its anti-cholinergic properties??

very interesting, whats your veiws on melatonin long term? and how much per night

12:30 a,m, going crazy with the itching in my good ear and back of throat...after 4 weeks of meds still have candida and coated tounge phleghm choking up... exhausted eyes grainy head hurts... everything hurts. .after 35 yeats of this I still hope to stop having constant issues of fibro and cfs... but it is so exhausting.

Schade, keine Übersetzung mit Schrift in deutscher Sprache 😢 Bin oft nachts lange wach ( liege und lese auf KZfaq) , ob irgendwo Hilfe ist… 😢

Hi guys, I’m a bit late here but I have moved past the inability to sleep phase. I sleep now but it’s not restful or refreshing. It actually makes me feel worse!! I am horrid in the morning after a full night sleep. Is this common? Can anyone explain this and the best thing to do?

About zopiclone, can anyone direct me to a podcast that may answer this question, I have CFS, but already been on zopiclone for 12yrs - 5mg, how do I come off this, should I wait for significant recovery of CFS first??? I already have poor sleep with Z, so eager to get off it, but this may not be right time , thanks for all these podcasts

Please deal with the sound issues. I really want to enjoy these podcasts but struggle due to the poor sound quality.

What is the name of this medicine only available in Europe?

IT'S ME...cfs is ONLY ONE SYMPTOM.

Nothing helps