Getting Through Diagnosis, Surgery & Treatment - Ashley | Brain Cancer

Getting Through Diagnosis, Surgery & Treatment - Ashley | Brain Cancer | The Patient Story

Рет қаралды 29,992

Күн бұрын

Ashley had recently graduated college and moved to Arizona to start her career as a teacher. About a month after moving, she had a grand mal seizure out of nowhere. She was taken to the hospital where they ran tests including MRIs and CT scans. Doctors then discovered a large mass in her left temporal lobe which was later determined via biopsy to be a brain tumor.
Prior to the seizure, Ashley did not have any other symptoms or health issues. Since her diagnosis, she's had two recurrences and 3 brain surgeries to try and remove the tumor.
In this story, she shares how she experienced memory deficits, how she's had to adjust to a new way of life and how despite the obstacles she's faced, she's strived to stay positive and hopeful!
Full story & transcript → www.thepatientstory.com/patie...
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Contents of this video:
00:00 Introduction
01:23 My first symptoms
07:26 Recovering from brain surgery
09:34 Getting the diagnosis
12:31 Processing the diagnosis
16:30 Undergoing treatment
23:12 My cancer recurrence
30:28 My current treatment
32:06 Words of advice
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Пікірлер: 89

@AnaGonzalez-eb5oq 8 ай бұрын

Hey Ashley I just finished watching this video and it hit me. I, too, was diagnosed this august 2023 with a stage 3 oligodendroglioma. It all started in July when I had a seizure, and we ended up in the hospital and they took a CT scan and they found a mass growing in my left frontal lobe. This past few months have been the scariest of my life 😢. I will start temodar this week and I’m so scared of taking that pill. I wouldn’t wish brain cancer on anyone. Its nice to hear a story of a person being through the same journey. I wish the best on you, and your gorgeous son 🤗.

@Bluekingsllc 7 ай бұрын

are you okay now ... pls respond if u are

@amandag7777 7 ай бұрын

I just lost my mama seven days ago to glioblastoma. I’m going to keep you in my prayers girl. Kick its butt 🙌🏼🙏🏼♥️

@jmr9735 10 ай бұрын

She seems so sweet and like someone who would've been a wonderful teacher. I'm sorry that didn't happen for her. I'm glad to see she's doing well under the circumstances and keeping a great perspective on all of it.

@ashley2bell 10 ай бұрын

Thank you so much! ❤ That truly means a lot.

@powerofloveism 10 ай бұрын

I agree, I was happy in my job for six years despite mornings being rough and lots of nausea and afternoon vomiting issues , I was given an MRI looking for possible MS but incidentally found a tumor , I have had no biopsy , they won't do one because they said that because of the shape and size of my tumor they think it's benign so I am on watch and wait program for a year. The tumor was found in December but no one called me with results so I assumed everything was ok with respect to MS so then two months later while at my doctors office I just decided to ask him " hey I had an MRI in December before Xmas ordered by an online doctor service they never called me back would you mind telling me how that MRI went cause I am having so many short term memory issues and accidents falling down and losing balance and still so sick to my stomach as if I were pregnant mornings are hell", My doctor looked to see if he received a copy of that report and he said to me " omg you have a brain tumor, but don't worry they are saying it's not to large and it's likely benign maybe a harmless Meningioma or Schwannoma is what their report says. He then said we will repeat the MRI in December or January 2024. I forgot my point so I had to come back to edit my comment. I was fired from my six year position as soon as I disclosed about my tumor, even though people say to me they can't legally do that to you, well they can and they did because it's not like they are ever going to admit that is why they let me go.

@DQ45 8 ай бұрын

God bless 🙏🏼 I had the same type of seizure and found I had a brain tumor on my left frontal lobe August 2021. I had brain surgery to remove what they could it was a grade II oligodendroglioma. I opted for radiation & chemotherapy since it was so large and could grow back without it. I finished chemotherapy this April. I do have memory issues and especially short term. Especially switching my words and I’m stuck with a right hand tremor. Your story reminds me so much of myself I’m literally crying. 😔 my symptoms were years of sharp shooting headaches and I brushed it off. I’ve just gone back to work in the medical field and finding it so hard 😢. Keep going never give up. Your story is inspiring ❤️🙏🏼

@karenanderson717 10 ай бұрын

You are a very positive person. Your love for your son is boundless. Sending love and prayers.

@SThompson953 5 ай бұрын

My husband had his first surgery done by Dr. Spetzler at Barrow in 1996. Years later he did his 35 radiation treatments there. It is an amazing place!

@carolbraswell4488 10 ай бұрын

Ashley, thank you so much for doing this video!! I am fighting a different kind of cancer, and seeing how strong and brave you are is so inspiring!! ❤

@ashley2bell 10 ай бұрын

Aww thank you! That is so sweet! Despite what you’re going through being positive and having a good overall mindset can truly be helpful!

@IBGECKO 6 ай бұрын

Hey, tumor sister! I'm grade 2 astrocytoma IDH1 mutation, too! I had surgery at UCLA on 2/27/23, four hours awake, and 85%-90% resected. If you ever want to talk, let me know. I truly understand you! Mine was left temporal lobe, too, btw.

@holliebenji3049 Ай бұрын

You radiate positivity and optimism. May you live a long and full life.

@joshcoyle3804 6 ай бұрын

Oh I’m so sorry I hope you get better soon you’ve got this your so brave

@sassijay Күн бұрын

I got diagnosed a month ago with 3. I’m getting 1 operated on in 2 days. I’m absolutely terrified 😢

@johnwinston1499 7 ай бұрын

She’s awesome ! Wishing her the best

@besh6377 7 ай бұрын

My 8yr old got diagnosed with high grade glioma in June 2023 ,he went through craniotomy surgery successfully but developed Hydrocephalus after the surgery and was taken back to theatre for a shunt,we went through radiation and chemotherapy but it’s stressful he doesn’t eat well makes everything hard just taking it one day at a time..

@kandiceblu1 16 күн бұрын

I have the same mindset like I was never going to die and I have lived 30 years plus non-Hodgkin's lymphoma and lung cancer and I feel the exact same way that you feel I've never met anyone like me or thinks like us

@karynfox2138 10 ай бұрын

Just home from having stereotactic radiosurgery for my second brain tumour. I feel amazing but am on steroids which tend to make me feel invincible. Last tumour surgically resected 3 years ago. It is surely amazing modern medicine can do and in the UK it is all free more or less!

@Macy-hg2or 10 ай бұрын

God bless and protect you ❤

@karynfox2138 10 ай бұрын

@@Macy-hg2or thank you

@ashley2bell 10 ай бұрын

I’m sorry you’re going through this too! If you ever want to talk just know I’m here 🤗

@karynfox2138 10 ай бұрын

@@ashley2bell thanks Ashley and same here if you want to offload. My focus now is to be in the best health to enjoy my grandchildren. In fact my grandson lives in Sisters Oregon and we try to go as often as possible.

@reginasaiz6765 3 ай бұрын

Hi there please watch my childs rare brain cancer story on my channel azmarel molina etmr survivor ❤

@user-fu5iq5gp5j 7 ай бұрын

I’m praying for you Ashley 🙏🏿🙏🏿

@battybethc8061 10 ай бұрын

What a Sweetheart you are! Hope you beat the Heck out of this Beast! Prayers going up for you! 🙏🫶🙏🫶🥰❤️💙💛

@ashley2bell 10 ай бұрын

Thank you so much ❤🤗💪🏽

@Kapplerartbloomingdale 6 ай бұрын

Blessings to you you're amazing person❤

@stvnjmz 5 ай бұрын

Thank you for sharing your story and spreading a positive view and mindset. I was diagnosed with a glioma in December 2020 and have been stable since the surgery. Being positive and living life in the moment is the best strategy for us physically and mentally and your smile definitely portrays that.

@maudeboggins9834 10 ай бұрын

Ma'am you are such a positive person with such good energy. I truly wish you well & hope you keep on thriving. Thank you for sharing your story.

@ashley2bell 10 ай бұрын

Thank You! 😊 I truly believe my positive outlook has helped me get where I am and where I’ll be in the future!

@hannah5245 10 ай бұрын

You are young Ashley. Hearing you speak, I feel you are a humble fighter. I hope you will incorporate creative prayer as part of your daily regimen of self support. In fact, could you visualize the whole video you did here could in itself be a prayer. ? Like having your greatest audience as God. Even as you keep your human supporters updated, keep God ahead of your trials/tribulations. 🌷❤️

@ashley2bell 10 ай бұрын

Thank you so much! God is always with me and helping me along the way ❤

@truthprevails7085 9 ай бұрын

@@ashley2bell🙌🙏❤️!

@asyyazaffar8227 10 ай бұрын

my both sisters 16y(1995 died) and 30y(2018 died) died of glioblastom brain cancer.. and a nephew just died(July 2023) due to same brain tumour cancer at age 13..

@jmr9735 10 ай бұрын

Oh my gosh, that is awful! Is there a test other family members can do that would show if they're at risk, similar to the test they have for breast cancer? And is there anything that can be done to possibly prevent it?

@Macy-hg2or 10 ай бұрын

Im very sorry. How sad to have lost so many family members to this aggressive cancer.

@maudeboggins9834 10 ай бұрын

My Goodness all so young with such aggressive cancer. That is truly very very tragic.

@battybethc8061 10 ай бұрын

😢😢😭😭😭😔😔🙏🙏🫶🫶🙏🙏🫶🫶🙏

@ashley2bell 10 ай бұрын

I’m so sorry that happened 😢 I hope you are doing okay ❤

@tracysmith9965 10 ай бұрын

Ashley, I admire positivity. I also had a grand mal seizure in 2016, which led me to having stage two brain cancer as well. I also did on my steroids I was in the hospital a week. And had my whole body scan so they can make sure it started in the brain and didn’t come from somewhere else so I did steroids and I also did chemotherapy with radiation the same procedure you went then I had my brain surgery in July 2016. My neurologist feels I can go every year now for my MRI but I choose to have one every six months because of the fear of the brain cancer coming back so far it’s staying stable but I also had to have him three years of maintenance Chemo where I would take. The timid are the first day of the month for a week right now it’s just monitoring that but if it wasn’t for that grand mal seizure I don’t know what would’ve happened? Your story sounds just like mine. I had to learn how to walk, hold a spoon feed myself. I did rehab in the hospital for a month. I had to learn how to speak. I still have memory loss to this day. Want to say I hate it when you want to say Coke but it but the word won’t come out you know what you want to say, but it’s just not gonna happen so and I still have neuropathy, but I’m still here, and beating the odds I just pray to God that it never comes back a horrible thing to go through. I mean any cancer and then right after that in 2021. I was diagnosed with melanoma skin cancer so I had to have three nose surgeries. I definitely do not want to have to have another brain surgery and where is I was cut my hair has never grown back and I just hate it. I hate having a spa spot on the right side of my head and it’s a big bald spot in my incision is huge, but anyways I’m just rattling on. I will keep you in my prayers and God be with you.🙏🏻🙏🏻❤️😊

@tracysmith9965 10 ай бұрын

I forgot to mention I also had to do three years of maintenance Chemo

@ashley2bell 10 ай бұрын

Wow, Thank you for sharing! I feel like the many people fighting brain cancer are hard to find. I know it doesn’t have the best overall outlook but I do believe having a strong mindset can overcome it. Prayers, positively and believing in yourself ❤

@ashley2bell 10 ай бұрын

Ps. If you ever want to talk more please let me know! 🤗

@HWolfe 10 ай бұрын

I will send love and light you way right now. 🤗🎉❤

@josianejojo2605 10 ай бұрын

Prayers n healing 🙏

@ashley2bell 10 ай бұрын

❤❤❤

@purpleviolet2058 10 ай бұрын

Ashley, I admire your strength!💜 Prayers for your healing!🙏🙏🙏🙏

@ashley2bell 9 ай бұрын

Thank you so much 🤍

@Ceerads 10 ай бұрын

I admire your attitude. And your son is adorable! I wish you all the good in the world.

@ashley2bell 10 ай бұрын

Thank you so much!🤗🤍

@quetidelapuente9524 10 ай бұрын

You are an absolutely amazing young girl. Best, best wishes, my dear, from Lima Peru 💕💕🇵🇪

@ashley2bell 9 ай бұрын

Thank you 🤗 that means a lot!

@dukegroovy5162 7 ай бұрын

Best of Luck Ashley. Your Positive attitude is working!

@charlesmauritz 10 ай бұрын

Admire your strength Ashley

@ashley2bell 10 ай бұрын

Thank you ❤

@courtneymarycrain7008 10 ай бұрын

you are so strong and I always admire your strength to stay positive! I love you!!

@ashley2bell 10 ай бұрын

Love you so much ❤❤❤

@djieofh 10 ай бұрын

It is easy to stay positive, when treatment and family is going well. Most people stay positive with their cancer as long as the can live witout much pain and having a strong family in the back.

@ashley2bell 9 ай бұрын

I wouldn’t say it’s “easy” for me. I’ve just learned over the years that being positive can help my day to day life. Right now my chemo isn’t going how we thought… It is slowing the tumor growth but unfortunately it hasn’t stopped it. I’ve also been struggling with reading, writing and speech yet doing my best to work on it and make changes in my life to cope with it. I do feel blessed having my son and parents by my side. Although I am a single mom and went through a lot of issues with that (my ex husband is not in our lives). Then just 2 years ago I lost my little brother. I’m just telling you this because social media only has a little bit to share. I hope you are doing okay and I’m here if you would like to talk more. Life is short for every, some more than others… We all need to embrace it while we can.

@reviewman5050 2 ай бұрын

So positive! There is 3rd surgery

@spidamanvenom21 10 ай бұрын

So so happy your doin better kiddo keep growin fighting and livin ur best life! God bless you and your family! -DG aka Spiidey lol

@ashley2bell 10 ай бұрын

Aww thanks spiidey! 🤗 I miss you! We need to FaceTime and catch up!

@spidamanvenom21 10 ай бұрын

Most def 🤞🏾🤙🏾

@Macy-hg2or 10 ай бұрын

@SilverSeeker232 What a strange question you ask!

@nithiyajothysockalingam6846 6 ай бұрын

Thanks for sharing your story. Is it possible to talk to you

@lisamccormick8151 9 ай бұрын

Take care Ashley and thank you so much for sharing your story , you are an inspiration to me and a beautiful young lady inside and out , take care xxxx

@ashley2bell 8 ай бұрын

Thank you so much 🥰 xxx

@jaycarver4886 2 ай бұрын

Wondering if anyone has heard of Dr. Thomas Seyfried and his work on glioblastoma. Press-pulse: a novel therapeutic strategy for the metabolic management of cancer

@MugenNeuspeed 9 ай бұрын

Sweet and gorgeous girl best wishes

@ashley2bell 8 ай бұрын

Thank you 😊

@RachelHannan 5 ай бұрын

I am curious for anyone that have had a brain tumor that had a CT that the tumor was missed on the CT??

@Prayers_and_Perspective 5 ай бұрын

Just was diagnosed with. They did not see it on CT they saw it with MRI W/ contrast

@RachelHannan 5 ай бұрын

@@Prayers_and_Perspective did you have a ct first?

@Prayers_and_Perspective 5 ай бұрын

@@RachelHannanyes

@Prayers_and_Perspective 5 ай бұрын

@@RachelHannanI had to push for a MRI

@RachelHannan 5 ай бұрын

@@Prayers_and_Perspective I’m really sorry you had to go through all of that. I am going through something similar, I have no idea what is going on but so far they have done a CT and a CT with contrast and those have showed nothing.

@getamazed5315 10 ай бұрын

🙏♥️♥️♥️🌸

@protagonistlife1864 9 ай бұрын

God Is holding your hand.

@alicedixon6742 10 ай бұрын

I’m

@reviewman5050 2 ай бұрын

I hard read and text

@outback7092 10 ай бұрын

Was this diagnosed, Pre or Post... trial injection program ?

@ashley2bell 10 ай бұрын

I talk about each stage on this video! But here is a small look: In 2011 I was taken to the hospital after having a seizure, followed by surgery #1 to find out what it was. I did chemo/radiation in 2015 and I’m currently on a different type of chemo now. (Both types of chemo are oral and taken by mouth)

@ashley2bell 10 ай бұрын

I do struggle with reading/written which is why it might make more sense on the KZfaq video. I’m also planning to make another video on my page for any questions or anyone that what’s to hear more 🤗