hopes seizures aged 5 months. infantile spasms? focal seizures? # absent corpus callosum

Рет қаралды 19,492

3 жыл бұрын

hopes seizures, started at 3 months old, usually 2 clusters a day of around 20-30 seizures only happen after falling asleep around 20-40 minutes later she wakes and seizures?
PLEASE SUBSCRIBE AND FOLLOW HOPES JOURNEY AND PROGRESS AND HELP BRING AWARENESS TO ACC AND EPILEPSY xx thanks guys its so much appreciated ❤💖

Пікірлер: 16

@nancyjones6428 3 жыл бұрын

Your comforting voice and touch helps.

@HopesSeizures 10 ай бұрын

Thank you so much 💓

@sarahfeefer 2 жыл бұрын

I am SO sorry, nothing hurts worse than seeing your child scared or hurting and you can't fix it. You are a trooper MaMa😇

@HopesSeizures 10 ай бұрын

Thank you so much x yes nothing is worse it makes you feel completely helpless but we try to make her happy anyway we can and besides the seizures she's such a happy child now ❤️ she's a fighter ❤️

@mannyamato247 3 жыл бұрын

What an Angel 👼 you have momma !! God bless🙏 your family

@HopesSeizures Жыл бұрын

Thank you! You too!

@user-ju2mt1kn1m 7 ай бұрын

สาเหตุคืออะไรแก้ไขหรือช่วยอะไรทารกได้บ้าง

@HopesSeizures 7 ай бұрын

She has brain malformations and is missing the middle part of her brain the corpus callosum she is now nearly 4 years old and on 4 types of medications but still seizures all day bless her x

@kellyhoover7750 2 жыл бұрын

I CANNOT IMAGINE THE HELPLESS FEELING THIS MOM HAD TO ENDURE WHILE WATCHING HER BABY GO THROUGH THIS... 😪 😔

@HopesSeizures 2 жыл бұрын

It was so hard at the start but gota stay strong for her, we try to normalise it and get on so she learns the same for her sake, after seizures she still so happy x

@marinapeache3113 2 жыл бұрын

Aw baby is a sweetheart♥️♥️

@HopesSeizures 10 ай бұрын

Thank you, yes she really is 🥰

@ntsakisobiancamkansi4954 2 жыл бұрын

No child should go through this....love and light to you mommy

@HopesSeizures 2 жыл бұрын

Agreed x much appreciated thank you 😊 🙏

@Jennydhyan 10 ай бұрын

Is it ok now she is

@HopesSeizures 10 ай бұрын

Hi there she is over 3 years old now and the seizures are worse and effect her in every way if development causing delays in progress and mobility x checknougvour other videos for recent seizure activity x