Рет қаралды 13,873
short cluster of seizures, brain switch offs,eyes roll arms spasm back, if sat up it would be full head drops as her brain switches off for a second but hope always finishes smiling and happy, like water off a ducks back sometimes, nap will follow for sure although she's happy they exhaust her bless her, around 5-8 of these ones a day around 5 really light and absent ones a day followed by 2 really bad ones a day, epidyolex has been upped to 2.2ml twice a day then to go up to 2.8ml later thus week twice a day see if it makes a difference x fingers crossed but no chance so far?