Hopes seizures,head drops,spasms,brain switch off, always finish happy & smiling

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Hopes Journey with epilepsy and ACC

Hopes Journey with epilepsy and ACC

11 ай бұрын

short cluster of seizures, brain switch offs,eyes roll arms spasm back, if sat up it would be full head drops as her brain switches off for a second but hope always finishes smiling and happy, like water off a ducks back sometimes, nap will follow for sure although she's happy they exhaust her bless her, around 5-8 of these ones a day around 5 really light and absent ones a day followed by 2 really bad ones a day, epidyolex has been upped to 2.2ml twice a day then to go up to 2.8ml later thus week twice a day see if it makes a difference x fingers crossed but no chance so far?

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