How do you know if your lupus is controlled? 5 signs it's not as controlled as you think

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Күн бұрын

Is your lupus silently stirring? Discover the subtle indicators of active inflammation in this insightful episode. From elevated blood markers to medication dependence, find out how to gauge your lupus control effectively.
🔗 Links:
Your Appointment Home Run Handbook - connectedrheumatology.com/app...
The guide you need to be able to tell your doc your story -and find get answers once and for all!
💡Video Key Takeaways
✅ Regular monitoring of blood work is crucial for assessing lupus activity, particularly checking anti-dsDNA antibody and complement C3/C4 levels. High dsDNA antibody levels and low C3/C4 levels can indicate active lupus.
✅ Dependence on prednisone or NSAIDs for symptom management may indicate inadequate control of lupus and the need for adjustments in treatment.
✅ Difficulty in missing even a single dose of medication or experiencing symptoms when taking the medication late suggests ongoing disease activity.
✅ High blood pressure could be a sign of active lupus or related complications, necessitating careful monitoring, especially at home.
✅ Social withdrawal or reluctance to engage in usual activities may indicate ongoing health challenges and the importance of holistic well-being in lupus management.
⏱️Time Stamps:
0:00 Intro
0:42 Blood work still shows “active lupus”
2:23 Still needing anti-inflammatory meds
3:57 Too reliant on medications
5:16 Blood pressure is high
6:44 You are isolating
8:10 Convo Starters (Q’s for you & your Doc)
🎥 watch more:
5 facts about your +dsDNA antibody: • 5 Facts about your +ds...
A Rheumatologist Explains: What are complements?: • A Rheumatologist expla...
Learn about common lupus symptoms: • Learn about Common Lup...
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👩🏻‍⚕️ About me:
Hello! I am Dr. Elizabeth Ortiz and I’m so happy you are here. I am a double board certified Rheumatologist with over 15 years experience practicing Rheumatology and am passionate about teaching & empowering patients to partner with their doctor.
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* The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, including text, graphics, images, and information, contained in this video is for general information purposes only and does not replace a consultation with your own doctor/health professional. Any comments and/or recommendations made in the comment section by anyone other than Connected Rheumatology does not reflect the opinion or recommendation of Connected Rheumatology.*

Пікірлер: 13

@swaziswimmer Ай бұрын

This is one of your BEST videos ever! Ty

@kellialexander2408 Ай бұрын

I’m 56 and think that I might have lupus. I have a butterfly rash and it gets really bad if I get too hot. My knees hurt constantly and it’s moving to my right hip. I am fatigued. What would be the best tests and the best questions to ask my primary care doctor? I can’t take anti inflammatory because I donated my kidney to my sister. How should I start to get a diagnosis whether yay or nay?

@lynnmac6494 Ай бұрын

They start with an ANA. However, a negative ANA test doesn't rule out Lupus!

@lynnmac6494 Ай бұрын

For your knees- try taking ginger & tumeric!

@sdd123 Ай бұрын

I have had lupus for 35 years. I am 62 and I am simply exhausted! On benlysta and switching to saphnello. Have you had success with your patients with that? I am praying that it works as well as the benlysta did at the beginning.😊On plaquenal,steroids, crestor, and other usual suspects. I have horrible eye issues with inflammation. That is really troubling and I am pain. Yes, positive thinking is important but it is not practical on a daily basis when you were feeling awful and have UTIs and Covid and flu and sinus infections, etc. Anyway, I’m not trying to be a Debbie downer but I really like this channel. It made me feel like somebody really understands me. Have a wonderful day.

@user-uy2uv2gj6s Ай бұрын

@@sdd123my mom used to do massages, acupressure etc that used to help her

@robertguy6570 Ай бұрын

@@sdd123I

@robinmoore4994 Ай бұрын

My ANTI-DS DNA is always above normal and positive. Historically, I've never had abnormal levels on the following: CRP, SED RATE, COMPLEMENTS.

@mariahvigil9850 4 сағат бұрын

@connectedrheumatology can you speak about this. Seems to be somewhat common.

@DJ-nk4dq Ай бұрын

I’ve been diagnosed with SLE 6 years ago, and I do blood tests every 3 months. They don’t Measure my dsDNA because my Chromatin is elevated, not dsDNA but they don’t Measure my Chromatin either. They do look at my C3 and C4, metabolic panel, cbc w/diff, vitamin D in which I am very deficient, CRP, ESR, urinalysis, and….not sure if I am forgetting anything. Several vials of blood each time.