I inherited this from my mother, grandmother, uncles, aunt, mother first cousins. In the past I was afraid of this disease, but today I go about my day, take my meds say my prayers and leave the rest to God. I know I will leave this world one day therefore I plan on enjoying every moment that God gives me with my one and only child. My child makes me smile. I love you Justin❤️🥰🥳😇🙏

My Best friend died from this, a month ago. He was only 31 :(. I will miss you my Brother. RIP. Idk why Im learning about it. Just had to know. :/

Came here for information after undergoing an ECG and I found much more.

Today my dad got diagnosed with it and I just figured out that the worst that could happen is that he could die. Many people have tried to tell him how to manage it but he’s not listening. Im really worried about him. Praying for him rn

Thank you for making me understand more my illness. I am from the Philippines and sadly they don't do myectomy surgery here and even if they do, I can't pay for my surgery. I was diagnosed 2015, HoCM with severe MR. I am very worried because I can even feel skipping of my heartbeat.

Thank You Dr. Smedira!

Technology and science has come along ways. HCM has taken so many of my family members and now passed on down to me from my mother to her mother to my great grandmother…aunt uncles cousins. It has devastated my family, but thank God with new inventions it will help me and many more in my family…😊♥️

My dad passed away of HCM when I was four months old and im the only child of his out of 4 that has the same condition is him but my is called hypertrophic obstructive cardiomyopathy, I found out when I was 14 and I’m almost 16, last year February I had an ICD implanted in me and ever since it’s been rough. And in a way I feel special because the gene chromosome that caused my hypertrophic obstructive cardiomyopathy I’ve been told that me and only one other person in the entire world have that same gene.

Doing good work Doc

Wonderful imformation

Very informative video, thanks for uploading it 🙂 I had my 1st stemi heart attack at 30 & again this year at 34 , they reckon I have this genetic condition Factor 5 Leiden. When I had a stress/ultrasound test the other day they said hypertrophic during the test, but they didn't tell me what that meant. They want me to wait until the 9/1/20 to see the cardiologist for the results 😕I just want to know what's going on because my dad died of a heart attack when I was 3 weeks old. I'm trying avoid that fate at this age & learn about my heart issues, so I can better manage it. This was video was very helpful in explaining it 🙂

My fiancé was 24 with no symptoms, was never sick, didn’t drink or smoke. Was very active and healthy, my father made it to his 50’s

My simptoms Are: Fatigue Lightheadedness when standing up or during physical activity sometimes even when im just being still Dizzyness same as the lightheadedness part Insomnia Unintentional weight loss Random nausea Not being hungry Pressure and discomfort in my heart area/chest Feeling Like my heart is skipping beats I think i might heart palpitations but they sometimes hurt My heart rate is higher than it should be exsample when i go from sitting to standing my heart rate jumps between 30-100bmp depends on the day just in general my heart is beating too fast Im allways out of breath allways i can’t walk up two sets of stairs and i start breathing Like i ran a maraton and whenever i do PE and we have to run two laps around the Court it feels Like a elephant is on my chest and i feel Like im going to faint any second and i fainted once a few months back during a violin lesson I Had a EEG Done but it was Like 10-30-60 seconds of a EEG and back then a few months ago i didnt have these heart simptoms also i read somewhere that sometimes these episodes Are almost impossible to see on a EEG Because theyre just not happening in that moment i Had a Brain mri scan everything is Okay i Had a blood check everything is fine im NOT anemic and im NOT lacking anything that Would cause these simptoms Im not too worried but i just want to get these tests over with and get diagnosed so that i can get some kind of treatment to help me be normal again im waiting for my dad to schedule all of the appointments i have left such as a tilt table test and a 3 minute test where i run on a treadmill and they check my heart under stress i guess idk i think i might have cardiomyopathy i dont know What kind but i do know that i cannot deal with the heart discomfort any longer its Like being on the verge of a heart attack every once in a while and the palpitations Are Like stronger every time it feels Like so Yea im not letting myself get too worried

Really wish my doctors would listen and find out what’s wrong with my heart for real they said I have Cardiomyopathy, Afib, heart failure, & heart murmurs and as it explained in the video if I was to walk to my garage I’m very out of breath. I’m very irritated that saint peters hospital isn’t helping much and just giving me lasix for fluid build up yes they work but it’s not everything I need at this point. I feel like it’s the heart issues they explained maybe I gotta show my doctor this

أه ، الله يعافيك يا رزان

Thank you, this is great information I believe I have that. I am 28 and don’t have any symptoms but my heart pumps blood at 35 percent and my doctor did confirm that this is what I have.

When I had my septal myectomy at 24, they told me I was about 3x the normal thickness!

How do you know if you inherit HCM?

I have it---Would need to go to your clinic.

Whos here to see how did Caleb from bratayley caused him a heart attack

My sister in law has been diagnosed with HOCM 2 months ago. She had the feet edema 45 days after her delivery. We have become shuttle cock between doctors. Hardly find two surgeons here at Lahore Pakistan who has an experience on this but they are still in a fix stating surgery might be life threatening. Here both ventricles are hypertrophic with fibrosis starting

Im not diagnosed but im hoping to get answers to why im suddenly dizzy lightheaded naouseous faint weak etc. All the simptoms line up to cardiomiopathy i Had a tilt table test Done im still waiting for the results if it ends up being nothing or pots syndrome i will go get a echocardiogram just in case as i do tend to have quite intense chest pain and pressure and when im doing harder physical activity Like running it feels Like There’s a elephant on my chest

My heart muscle thickness is 21.6 mm do i need to worry now?

I've HCM and had a septal myectomy performed by Dr Per Wierup in january 2017 in Lund Sweden. 1 of my 3 sons inherited the sickness. Joakim died only 31 years old of sudden cardiac arrest 2 month ago. Why him and not me. I'm devastated 😭

I'm suffering hcm since 2015, now I'm 29 year's old i can't move anywhere because of this disease. It’s really painful. How can i recovered???

I suffer from hypertrophic cardiomyopathy and l will so anything in my power to be able to have this surgery. Does anybody know approximately the cost of this procedure?

I'm going to talk to the cardiologist I already have a heart murmur. Congestive heart faluire and now my heart is enlarged. I do have a werid chest pain getting winded like someone poked me with a needle a a little extra tired after work and if I get up to fast sometimes lite headed

I would love to know if I can be treated, iv been in Atrial fibrillation and an MRI showed Hypertrophic cardiomyopathy. I used to play a high standard of football but always felt like I couldn't breathe and go on like the other guys, the doctor's linked asthma? I know it's ruining my life for sure I'm only 26

My shortness of breath is random i went hiking at didnt have it at all. I do a small jug and its takes me minutes to get back my breath

I have obstructed HCM and am on a type of Beta Blocker that actually lowers my heart rate. Doc says if the heart beats at 180 bpm and something lets go, I won’t be happy. So by restricting the beating to a lower rate, when I have my heart attack, he figures they can save my life more readily. In the meantime, he told me to start working on my bucket list. I have lost my career because of this, so I have time to do just that. And I am. Live every day as if it is going to be your last.

I'm suffering and have been in hospital for 3 days . Let's see what they say .

I was diagnosed with HCM in 2014. Im have to wonder that after undergoing this surgery if the muscle wall grows back? Does anyone know?

i inherited hcm now i am taking care of this my doctors gave me madications

Mine is at the Apex.

Calcium channel blockers are enough for HCM.?

What I don't understand is that this condition seems to be the major cause of death among athlets . why they don't get tested with the eco-cardiogram ? Shouldn't it be made mandatory?

Couldn't we increase efficiency by trying many other type s?

I hope Asher from all American won’t die from this

I have hypotrophic cardiomyopathy aswell and I’m grateful that I’m alive I’m only 15 years old and I have this condition,I’m sorry for anyone who died to this

Who remembers of him?

treatment only propranolol and myomectomy

Septal thickness normal range???

We can!

If my LV obstruction HCM causes sudden cardiac arrest, can I be resuscitated? I know resuscitation is rarely successful but is there evidence that resuscitation can restart my heart and save my life or is there no chance I will survive arrest?

I have HCM too. It’s getting worse.

I have HCM and with an Autistic son. The daily challenge is unthinkable. I wish death come to me soon but then looking at my innocent sweetest boy and my dearest wife I gather all my strength to continue living. Life is wonderful yet so cruel.

how is this treatment called? anyone? :)

How do I get in touch with these Doctors?

Caleb died this way 😭😭😭😭😭😭

I' m from India ,i don't understand enough what u said in whole video but understand 1 thing that u have enough experience in cardiomyopathy surgery, actually my 3year old child suffering from cardiomyopathy and myocardiatis, any 'suggestion' that u want to give me

In 2008 my ivss and ivssd was 20 mm and 17 mm In 2020 it was 12 mm and 8 mm Am I normal now??

My echo test results shows 12mm ivsd and 12mm lvpwd.. Is it normal??? Normal value shown in that result report is 06mm to 11mm...but some reports shows less than 13 is normal... Pls rply anyone.. Pls...

Stupid heart, I exercise vigorously few time a week, this condition is causing me to have to slow down.

I have this

*I was diagnosed with HCM in late 2017 and got implanted with S-ICD in Feb 2018. My heart muscle thickness is 33mm which is bigger than I have ever seen in any HCM folk I met but my cardiologist says there is no need of myectomy yet :/ Can someone tell me what can I do? 33mm is quite a big size.*

Oh, I’ll be 65 in two months. You can do it.

This scares the crap out me. I have LVH. I think this is the last video I will watch.

We real can

yeah but … if causation is via high, blood pressure and sedentary lifestyle. illicit drugs,medication,statins,beta blockers were never in the equation. You have a good chance of fixing it yourself? I have dropped 80 pounds (250 down to 170). all salt, sugar and processed meats have been eliminated from my diet … Cycling will be my tool of choice to bring my resting heart beat down to 55 or lower. Expand lung capacity (rowing) and you’ve created an athlete’s heart. You now have a chance

How hypertrophic cardiomyopathy differs from left ventricular hypertrophy??

We're forgetting about what kind of creature is worth it. I guess God says it. So both bots and girls So we need to stop them before they're ready.

1 in 500? 😱

you are not getting older you are getting sicker. Change your diet ASAP.