What made my GASTROPARESIS better?!

Рет қаралды 116,059

Күн бұрын

What made my Gastroparesis (delayed gastric emptying) get better??!! From 18 to around 22 I was dealing with gastroparesis as a result of hEDS. While I still deal with minor symptoms, my gastroparesis is basically gone. In this video, I give you the timeline of my symptoms, explain when they got worse, and also explain what I was doing while my gastroparesis got better. While I can't confirm that these things definitely impacted my gastroparesis, I still hope that this video can be relatable and informational for those dealing with or curious about gastroparesis.
Betaine HCL for protein digestion: amzn.to/3v0sFso
Mixed Enzymes for Vegetables: amzn.to/3rn0bXM
SUBSCRIBE TO MY CHANNEL ▶ bit.ly/2M4Ko0c
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The views expressed in this video are my own and do not reflect the views of Mount Sinai Hospital.
✩ ✩ ✩ ✩ ✩ ✩
WHAT’S EHLERS-DANLOS SYNDROME?
The Ehlers-Danlos Syndromes (EDS) are a group of more than 13 genetic connective tissue disorders that affect the joints and ligaments, blood vessels, gastrointestinal tract, and autonomic nervous system, among others. The most common type of EDS is hypermobile EDS (hEDS), which used to be known at type III. Some of the most common symptoms and co-morbidities of hEDS include chronic joint pain, joint instability and dislocations, dysautonomia, and GI tract dysmotility.
MORE INFO ABOUT EDS:
🧬 www.ehlers-danlos.com/eds-types/
🧬 bit.ly/2N95xTE
MORE INFO ABOUT POTS:
💓 www.potsuk.org/what_is_pots2
❤️ cle.clinic/2p1lByR
MORE INFO ABOUT GASTROPARESIS:
💚 mayocl.in/2BRQTuR
MORE INFO ABOUT MUSCLE TENSION DYSPHONIA:
🤍 bit.ly/2MLUYXI
FTC Disclaimer: This is not a sponsored video.
As an Amazon Associate, I earn from qualifying purchases.
#gastroparesis #delayedgastricemptying #gp

Пікірлер: 736

@tiggerandpoohi202 Жыл бұрын

This video officially made me not feel alone. My life is horrible because of this crap. Thank you for making this video and reaching out to others.

@JP-pn4yv 11 ай бұрын

Big hug to you. You are not alone. We’re in this together I totally feel your pain. Stay positive and it WILL get better ❤️‍🩹

@Debbie-Savings 3 ай бұрын

@tiggerandpoohi202 Have you got any better? (((Big Hugs)))❤️

@lauriejordan2716 2 ай бұрын

I am literally crying right now. I can’t believe so many others understand what I am dealing with. The bloating is so annoying. I’m quit tiny, so my distention is noticeable. I completely stopped leaving my house other than work. I consistently get asked when I’m due, do I know what I’m having, etc. That said, I would still take that over the pain any day. I have had every test you can think of. I not only deal with gastroparesis, I just won’t have bowel movements at all. I once went 28 days. I’m constantly in the hospital. I just want a normal G.I. system like everyone else. Nobody can find a reason for any of this.

@denisemartin3603 Ай бұрын

Are you on probiotics? What meds are you on ?

@tennisislove1 14 күн бұрын

Hey have you tried getting a stool test for parasites? For me, a salmonella infection that was in my body for a year at least caused gastroparesis :(

@Jesusismyshepherd4ever 3 күн бұрын

I'm so sorry I know the feeling.. did you suffer also from shortness of breath

@denisemartin3603 2 күн бұрын

@@tennisislove1 dang!! Were you better after treatment?

@myOpinionDoesntMatterDoesIt 11 ай бұрын

I am experiencing similar problems for 3 years now, I have literally gone from doctor to doctor without getting a proper diagnosis. When I tell people about my issues they always blame stress and underestimate the impact of symptoms on my day to day life. It is so nice to connect with a community that is able to relate to this. Big thanks for sharing!

@Jerry-zx7rf 10 ай бұрын

because the medical people are corrupt i hear this so many times

@alisonbamford6723 9 ай бұрын

Investigate gastrointestinal Beriberi - acute Thiamine deficiency. Thiamine (B1) is crucial for Nervous System functioning, & it is the Nervous System that controls the digestion. Many of us are extremely deficient. Elliot Overton (EONutrition on here) has lots of videos on Thiamine deficiency & all the issues it can trigger, including digestive. It’s helped me. I prefer it as Benfotiamine. I also take ginger & artichoke extracts. Thiamine deficiency is a big driver of Dysautonomia, POTS, & other Nervous System Disfunction.

@Washington_boys 5 ай бұрын

Same

@saeedali3598 4 ай бұрын

That's me last 4 years now.. My family not believing me was the worst part More fluid in between meals and smaller food plus running helped alot I hope no one experience what i have been going through

@S1LV3R_11 4 ай бұрын

Same for over 2 years now. Due to methadone & I’m trying so hard to get off . Drs DGAF

@erinmarie99 Жыл бұрын

I literally feel your pain, girlfriend! hEDS, POTS, and Gastroparesis here! 41 years old and just finding out now what the heck is wrong with me! Thank you for sharing. The best part of getting a diagnosis is being able to connect with others who "feel your pain" because it is such an isolating condition. God bless ya sister!

@stefs3460 Жыл бұрын

Have you gotten checked for mitochondrial disease by any chance? POTS,HEDS and Gastroparesis is very common in Mito patients.

@chunkyyy Жыл бұрын

@Penny are you okay 💖

@chunkyyy Жыл бұрын

@Penny God bless you Penny you are loved :)💛💛💛

@Rob__James Жыл бұрын

How are you doing now? Any improvements?

@beatz3279 5 ай бұрын

Same here PoTs/Dys and gastoparies along with a host of other issies and 41yrs old to. I think the gastoparies causes SIBo as good sits too long. Feel beter if fast but being severely underweight and looking disgustinly thin makes it difficult to fast.

@kristieoliver6750 Жыл бұрын

I've had gastroparesis go over 21 years and no one unless they've been through it for that length of time I truly understand how it affects every aspect of your life in a negative way not even close

@PatroliHoax 4 ай бұрын

How do you manage it? What works for you?

@majauntamckean7355 4 ай бұрын

I totally understand what you are saying.i have suffered for years...no one really knows how it effects every decision you make unless you are struggling with this.i have tried so many things I have lost count.

@iam007derf9 9 ай бұрын

Thank you so much for this information. My wife suffers from gastroparesis and we came across this video a couple months ago and got some Betaine HCI the next day. She hasn't had a problem in 2 months now so thank you so much.

@deekap8387 4 ай бұрын

How is your wife doing now? How many tablets was she taking? Reply is appreciated.

@iam007derf9 4 ай бұрын

@@deekap8387 she's doing a lot better, she only takes it once or twice a week. She's a little frustrated at that fact that she's went so long not being regular now that she is she always grossed out🤣🤣🤣🤣🤣

@deekap8387 4 ай бұрын

@@iam007derf9 thanks for the reply. Yes I have been suffering a lot for the past 50 plus years as well. Drs told me it’s idiopathic just no cause- and due to that probably I just got diagnosed as type 2 diabetes. I am very thin with no meat on my body from Gastroparesis. I can’t even lose any weight from my body to reduce the sugar. I might try Betain HCL before starting metformin. Bec I could see that the day my sugar is high are the days my gut has issues. I have been reading a lot abt HCL for the past couple of years but my drs scared me saying I will end up getting ulcers and was so scared to start. Now I feel a little better reading your comment. Thank so much for sharing that. God bless!

@Debbie-Savings 4 ай бұрын

@@iam007derf9how was your wife diagnosed with this and how do you get Betaine HCI? Is it a supplement that you buy? How much does she take? What were her symptoms? How long did she suffer before getting better? Sorry for so many questions but I’ve suffered for a year now and have asked ppl many questions on this subject and other stomach disorders but no one will hardly write me back. Thank you for reading this. I’m desperately looking for help. I’ve had a colonoscopy/endoscopy and all they said was I have GERD but it’s more than GERD! I’ve lost over 40 lbs bc of barely eating for so long and PPI’s prescribed for GERD do not work and just make me feel sicker to take. 🤦🏼‍♀️

@iam007derf9 4 ай бұрын

@@Debbie-Savings not really sure about the details of her diagnosis but we buy that stuff off Amazon and the price ranges from 15-50 per bottle depending on the brand.

@jasminenicole9758 3 жыл бұрын

I totally relate to the bloating thing! I hate looking pregnant :(

@IzzyKDNA 3 жыл бұрын

yeah it really is not the best look sometimes hahaha

@meaganlaplant3363 3 жыл бұрын

Me too ! I'm so self conscious of it that I wear x large shirts to hide it . I have a gj feeding tube. If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it

@kodokunaokami5747 2 жыл бұрын

@@IzzyKDNA / hey sweety ! How you doing ? I m very glad for you that you got over your illness ! I ve few things that i wanna to tell you about my health ! Recently like a week ago ? I got constipated and my stomach felt bloated , i couldn t digest what was inside my stomach nor vommit it ! So i had to go to hospital asap for an emergency . I remember that day i lost my apetite , felt dizzy , bloated as if i m pregnant ! Doctor examined my blood pressure and it was fine , my heard rate also was fine too so he took me for an X Ray and this was the worst part for me cause i got so scared fore the result ! Lots of negative thought came to my mind untill he came back to me and told me that i have constipation therefore he recommended me to take some of the laxative and fiber pills ! And now there is a slight a tiny bit of improvement but i still have stomach bloating when i eat so i can eat regularly anymore ! I focus mainly on fruits and veggies as doc told me and i try tp drink lots of water i even skipped my favorite almond milk and decided to go for tea for my breakfast instead ! What do you think of my condition ?

@kodokunaokami5747 2 жыл бұрын

@@meaganlaplant3363 / oh my God its so hard i can tell how hard and miserable it is ! I hope you get well soon and be back to your normal life i wish it to you from the bottom of my heart cause i know how it feels like

@tamcan8612 2 жыл бұрын

Ya I’m really uncomfortable and I guess gasx in the am bc stores are all closed right now. Thank you for sharing.!

@lenarudat3327 2 жыл бұрын

I have had gastroparesis for about 3 years now. What really helps me is regulargly doing cardio exercise (I now run 6 days a week). I don't know if it psychological but I can totally say that it helps me with creating appetite and reduce the nausea. And coffee after food also helped because it sped up the digestion.

@mmalavecab Жыл бұрын

My doctor saying that the damage come from when I had a C-section and caused some type of problem which cut off my pH balance in the stomach. And there was a doctor. She knew what I had and she said she just have to control your pH balance by eating certain foods.

@mr.devil9577 Жыл бұрын

That makes me SO HAPPY to hear about the coffee thing lol

@mmalavecab Жыл бұрын

I agreed with you. As you know, the exercise increase the digestive system and every meal that I have or in between I make sure I drink at least 6 to 8 glasses of water a day.When a person has gastroparesis, they don’t have a proper pH level, I massaged my stomach in a circular way about 27 times and stated it helps to digest and wakes up the stomach. And he told me to stay away from greasy food.

@whatsup3581 Жыл бұрын

Regular coffee with cream or what?

@whatsup3581 Жыл бұрын

What caused your gastroperis

@elizabethlapointe6982 3 жыл бұрын

Happy birthday Izzy! Hope you have an awesome year, love learning from you.

@AgentxIndigo 3 жыл бұрын

WOW! 22, confirmed HSD'er, suspected hEDS'er, literally have been in and out of the doctor for gastro issues. Shocked to see this come up!! Thanks for the video x

@andsoitgoes1142 5 ай бұрын

I’m an older lady and a former nurse. I just wanted to tell you that this video helped me a lot. You are adorable. I hope you are doing better. Thank you for sharing this information.

@sarahfatule9149 2 жыл бұрын

This is so helpful, I thank so much for putting this video out ❤️

@caitcampbell7057 3 жыл бұрын

Happy birthday!!!🎈🎉🎁 And thank you so so much for this video! I'm currently going through a lot with my Gastroparesis and it's honestly so hard, but watching this was honestly so comforting. Thank you so much! Sending you so much love! 💕💕💕

@vdubzzz006 2 ай бұрын

this makes me feel sm better, I’m in sm pain and it feels like nobody cares abt what i’m going through and nobody can help me, so thank uu very much :)

@ThrivexStrive 3 жыл бұрын

I really like how you draw out the timeline for your symptoms! That's really helpful. I noticed my gastroparesis got better since my doctor increased my Midodrine. It is so weird! :-) But whatever, as long as it's getting better, it works for me

@devonmannarino6565 3 жыл бұрын

my bloat looks just like that i swear you can see my actual stomach pushing out

@kristiericson1365 3 жыл бұрын

You can see my belly blow up too, just like watching a balloon 🎈.

@abbigailcarr2725 2 жыл бұрын

Me too!

@b0g_dyke 2 жыл бұрын

YES DEFINITELY you can see fhe definition of the organ

@ashleymichelle6061 2 жыл бұрын

Yep me too

@shamsunder9386 Жыл бұрын

Mee too what I do now

@marylynmiller1572 3 жыл бұрын

OMG you just helped me so much. I have every single symptom you did and I just dont talk about it...well until I cant hide it anymore. I am going to make a doctors appointment. Thank you so much!

@xaniaks 3 жыл бұрын

Just commenting to help get this video recommended to people, it's SO helpful and even though I don't have gastroparesis but other stomach and bowel illnesses, I'm definitely going to try and get some of the things (let's just pray that they're available in my country or that there's similar stuff). I've been trying to find something that helps my nausea for so long but nothing's helped so far

@elliechewny6924 2 жыл бұрын

Have you tried medical marijuana? If that’s legal where you are?

@leannajakobsmith6649 3 жыл бұрын

Thank you so much for sharing your experience!! My mom was diagnosed with EDS in her fifties, and it is quite a learning curve trying to find information related to it. The best info I've found is through the experiences of other people, most doctors don't seem to be educated on this.

@naa4874 2 жыл бұрын

Most doctors don't seem to be educated on a lot of things. This includes EDS, gastroparesis, etc. It's quite sad, disturbing, frustrating, etc., but I guess we've got to just deal with the lack of info/knowledge that plagues many in the healthcare industry. :(

@barbaragonzalez7187 2 жыл бұрын

Omg thank you so much for this video! 😩🙏🏼💖 I’ve had Gastroparesis and neuropathy due to my diabetes since 2018, but I’m barely researching more about my new conditions, it helps a lot to know I’m not alone in this, and all the help and advice you’re sharing, so thank you! I’m definitely going to try all these. 🙏🏼😊

@makemoneywithkiesha Жыл бұрын

Hello, I know I am super late, but did you find anything to work? Also I am so sorry, my husband deals with this everyday and it kills me 😞

@Sandro-qq4xb Жыл бұрын

Hi! What's your age when you contracted diabetes? And did you also encounter other digestive issues such as constipation?

@charlie4810 3 жыл бұрын

Happy birthday!! I'm in the process of diagnosis right now and your videos have helped me feel way less alone:)

@charlie4810 2 жыл бұрын

@Tara King it's a process and it sucks, but we survive and grow and learn so much:)

@kaitlyngraney2428 3 жыл бұрын

I got diagnosed with Gastroparesis in Summer 2017, and am so thankful that you make such informative health videos!!! Great for raising awareness to this condition, thank you thank you! 🙏🏼 Also SO thankful to hear you’re feeling so much better!!

@bennym1326 Жыл бұрын

How are you now? I am currently dealing with slow gastric emptying

@kikrobinson1971 3 жыл бұрын

Happy Birthday! Hope you have a great day! We all love you

@IzzyKDNA 3 жыл бұрын

Thank you so much!!!!!

@JTHICKS15 2 жыл бұрын

This was so helpful. Thank you Izzy!

@breannacrozier7552 2 жыл бұрын

I had covid. Then mono, then lost 30 lbs. and it was 6 months until I had any improvements. Then caught covid again after sinus surgery and it triggered the gastro and every single thing you said was my entire life. My jaw dropped when hearing this. I sent your video to so many people close to me just to say like hey! I’m not alone! I’m not the only one. I’ve felt so lost the past year while dealing with that flare without knowing and now am battling pots in full force and I am so ready to get through this. Thank you so much for putting my thoughts into words and speaking about it on a platform. Your videos are awesome you’re awesome. Keep being you! Thank you. ❤️🤍

@mallarieluvsgirls Жыл бұрын

i truly hope your gastropareisis improves !! it’s really difficult to live a normal life with it 😢 i hope you’re better maam. sending you love and healing energy

@mothlepidoptera859 3 жыл бұрын

as someone diagnosed with celiac disease in 2009 it's really good to see videos about people talking about their experiences with stomachs and intestinal issues and the things that come along with it.

@PatroliHoax 4 ай бұрын

Do you also struggle with GP?

@MillsSkits 3 жыл бұрын

Happy birthday, Izzy! 🎈🎈🎈 I'm glad to hear that you're doing better with one of your symptoms/comorbidities!

@IzzyKDNA 3 жыл бұрын

Thank you!! 😊

@maxlexy1947 3 жыл бұрын

Great info, Happy Birthday 🎂🥳 Thanks for sharing

@golondriz3 2 жыл бұрын

Wow, this is an amazing video. I will keep this video for a friend who is in the hospital and he has a PEG. Thanks.

@mclaincrawford2896 2 ай бұрын

My syptoms are so so bad and I don’t have a doctor that wants to help, I am so glad I was able to see this!!!

@katiehoraczek399 3 жыл бұрын

Happy belated birthday!! I hope your day was wonderful!

@kelso18ful 3 жыл бұрын

the end of this video- this is why i love your channel!🥺 hearing from you and all these other people that it IS real, it’s not just in my head. other people have these problems. connecting with other people who relate can make the worst days feel a little better i’m so glad you do this, thank you from the bottom of my heart. i hope you start to get even more recognition for all that you do

@IzzyKDNA 3 жыл бұрын

Thank you so much!! It means so much to me that others can relate to me and that we can all connect online

@rajbest8638 2 ай бұрын

What are your symptoms?

@medicalstories7324 2 ай бұрын

You are more informative than some physicians, thank you so much

@meaganlaplant3363 3 жыл бұрын

Me too ! I'm so self conscious of bloating that I wear x large shirts to hide it . I have a gj feeding tube If I don't vent my G port I look 8 months preggo ! Thanks for posting this video I needed the positivity of it. I have EDS Mito MCAS and gastreoparisis GI DYSMOTILITY and PSEUDO obstruction. Love your vids . Happy late Birthday

@annatope1031 3 жыл бұрын

Happy birthday! Thank you so much for this video! :)

@IzzyKDNA 3 жыл бұрын

Thank you!! 😊

@darlarohde1010 3 жыл бұрын

Happy Belated birthday Izzy❣️🎂🎈🎁 God bless gas-x that’s for sure, it’s the gift that keeps on giving! Lol so glad to hear you are feeling better with your Gastroparesis and hope it stays that way! 👏🏼👏🏼 stay well xoxo💜💟

@vernelldrechsel4449 2 жыл бұрын

I use gaviscon and pantaprosole, they work pretty good

@vernelldrechsel4449 2 жыл бұрын

I have lost about 40 pounds so far, any idea for help

@zenmariac7956 10 ай бұрын

This was very helpful, thanks for posting! It’s crazy reading the comments and seeing how many people have the same combination of issues: boating and gastroparesis, POTS and EDS, but if you talk to doctors they act like they’ve never heard of any thing like it… and yet I keep finding more people with the same symptoms as me! What the heck!

@phoebebuffay1566 3 жыл бұрын

Just wanted to comment that although I don't have gastroparesis or any of your medical issues I still love watching your channel because I relate so much on a general chronic illness level. Like sometimes just knowing that someone else is dealing with the major BS that chronic illness brings into your life makes me feel less crazy and alone. Also, HAPPY BIRTHDAY fellow pisces queen!

@ShatteredSoul2 4 ай бұрын

I've had gastroparesis for 9 years. It's been a lot of trial and error. Betain HCL burned soooo bad when I tried it, never again. Tums was my saving grace for so long but then my calcium levels were high. My doc put me on Creon (digestive enzymes) and that made a world of difference.

@louisekiraly7505 18 күн бұрын

Thank you so much for your comment just wondering if you are based in the US or Canada I’m thinking about asking my doctor for the Creon digestive enzymes that you mentione, can you buy it over-the-counter or you need a prescription? Thank you, and God bless you.

@chastitycopeland9156 3 жыл бұрын

Thank you so much for posting this!! I was recently diagnosed with gastroparesis and gastritis. I felt as if no one understood. I was so sick all the time. The doctor prescribed the meds that you mentioned in ur video. I have seen a little improvement. You have made feel like I'm not alone. Thanks again! God bless you. I pray that you continue to feel better. Happy belated birthday 🎉🧁

@landagreen Жыл бұрын

Any updates? How are you feeling now ?

@delightfulja Ай бұрын

Have been dealing with both for 33 years. I have my good and bad days.

@iammellbell 3 жыл бұрын

HAPPY BIRTHDAY IZZY!!! This video was really interesting! I am so glad you have improved, I remember watching videos when your GP was a lot worse, and I am so glad you are seeing improvements!

@IzzyKDNA 3 жыл бұрын

Thank you so much!!

@maryann8288 2 жыл бұрын

I just happen to have some HCL on hand. I will start with this. I am happy you mentioned the Dr told you to increase your dosage of the HCL. I never would have taken 6 or 8 xapsules per meal. Already my stomach muscle are relaxing within just ten .minutes of taking it. . I will get the enzymes next. Thank you so much for making this video. Your story has helped me tremendously already.

@jeremiahsmith8405 6 ай бұрын

Did the retained help or cure you? Or the enzymes since the have the Betaine included? If so what dose did it take you and are you still having to take anything for the Gastroperesis? Thanks so much

@MsBrat1967 3 жыл бұрын

Happy Birthday Izzy. Have a wonderful weekend.

@IzzyKDNA 3 жыл бұрын

Thank you! 🤗

@lizsedgwick359 3 жыл бұрын

Wow. I am in the process of being diagnosed (meet all diagnostic criteria for h-EDS... and waiting for genetic testing results), but my daughter (7) is showing signs of gastroparesis and I swear that the main reason I was led to figuring out my own diagnosis was so that I could better help my children. She won’t eat any protein, she says it hurts her stomach. Lately she eats very little and just had a two day episode of nausea and stomach pain with vomiting... and I don’t think it is a stomach bug. She eats fruit and carbs and nothing else. It breaks my heart, but I am so grateful to come across this so I can at least have some knowledge and not delay helping her any way I can. Thank you so much for sharing. I really appreciate your videos and insight. I am 42 and finally figuring out what is wrong with me and my siblings and my mom and my aunts... it is a wild journey.

@willames363 3 жыл бұрын

Love this video Izzy, yeah my gastroparesis started mild and has gone crazy in the last few years in part thanks to having my gallbladder removed (according to my doctors). The bloating is annoying, but the nausea and pain just bug me sometimes until I quit food for a bit and just do fluids for a while. Thank you so much for all you do.

@user-ho5dx7dq1c Жыл бұрын

Hello, I had intestinal paralysis when the gallbladder was removed. I visited more than one doctor and did not find a solution

@sarahosborne7477 Жыл бұрын

I find drinking slim fast helps me.

@Sandro-qq4xb Жыл бұрын

Hi! I hope you have kinder days ahead. What were the initial symptoms you exhibited that led you to consult a doctor?

@Poppies__ 9 ай бұрын

@@user-ho5dx7dq1chow are you doing now? Have you improved yet?

@jeremiahsmith8405 6 ай бұрын

What fluids work for you friend? Shakes? Juices? Thank you very much

@ceciliaescobedo5624 8 ай бұрын

You're so young. God bless your little heart. Well my condition just developed. I'm 64 and its so terrible. However, thank you so much for your educational video. You're such a sweetheart. God bless you †

@vampirebottom 3 жыл бұрын

This is incredibly relatable. I was dx'd with collagen gastritis related to celiac (and I'm also an EDSer, so, fun) after several long-term flareups where I'd lose a significant amount of weight in a short amount of time and only subsist on liquids, dietary changes, enzymes and stomach meds and managing my autonomic symptoms has been doing wonders. (I'm back to cramming 2 - 3K calories and being sporty, again!)--really neat to see that I'm not alone in conquering severe GI symptoms.

@Rls_0523 2 жыл бұрын

How were you able to fix it? I've been having it for 2 years and my doctors haven't been able to figure out anything to help. It's very painful.

@vampirebottom 2 жыл бұрын

@@Rls_0523 starting totally from scratch with drinking liquids with supplements, then eating eggs, then working up slowly to light but nutrient-packed foods until I can eat "normally"--I still have bad days/weeks and relapses/flare-ups, but I have much longer stretches of being able to eat comfortably.

@Rls_0523 2 жыл бұрын

@@vampirebottom thank you! I did that for a year, with liquids only for the first few months. That was before this swelling started though, so guess I'll have to try it again. I barely eat as is bc of the pain and swelling plus I can't taste anything, so it won't bother me doing just liquids. My Dr won't like the weight loss this time though.

@jeremiahsmith8405 6 ай бұрын

Hello can I speak with you about this. What kind of juices and liquids for example? Can I give my phone number on here? I am getting desperate and severe low weight. Please and thank you

@nexttomia 3 жыл бұрын

I just got diagnosed with gastroparesis and am def in my symptoms today. Big needed this. 🖤

@jannmacdougall1448 3 жыл бұрын

Crystal Saltrelli has great information and books as well

@bennym1326 Жыл бұрын

How are you feeling now?

@hrishikeshkulat1637 Жыл бұрын

Gastroparesis is caused by thiamine deficiency

@patriciosandoval Жыл бұрын

@@hrishikeshkulat1637 sorry sir where did you get this information from?

@ifranksultan 3 ай бұрын

Thiamine b1

@allisonrowe5778 11 ай бұрын

Thank you. I needed to hear this today.

@blackphoenix3249 Жыл бұрын

Thank you so much❤❤❤ my boyfriend is suffering I hope this will help him. Peace, love and blessings to you.

@charlottewood2102 3 жыл бұрын

This was so good, thank you! I think I have gastroparesis but I can’t get to see my doctor face to face right now to show him that my bloating is upper GI and he’s just not getting it. It’s really useful to be able to see how someone else has suffered with this, what helped etc, as I can’t get a referral to a gastrologist yet. I do have my tilt table test on Wednesday though so one step closer to getting there :-) Also loved the extra drama today haha it made me laugh 😁👍🏻

@penelopepolinsneemeyer4757 3 жыл бұрын

This I s such a well thought out video, Izzy. Thank you xxxxxxxx

@IzzyKDNA 3 жыл бұрын

thank you!!

@melissahourihan2344 2 жыл бұрын

I’ve been dealing with stomach issues for at least 10 years now and have seen a few GI doctors and they just can’t diagnose me with anything but the symptoms you described I definitely relate to big time (especially the nausea and vomiting and lack of appetite and even how it gradually got worse and worse over the years) so this might def be something I want to talk to my doc about so thank you for informing me!

@debiagungte2091 Жыл бұрын

Use this medicine pantreprazole gastro resistence and Domperidone DSR capsule

@melissahourihan2344 Жыл бұрын

@@debiagungte2091 thank u! I’ll definitely look into it

@myyoutubechannel3161 9 ай бұрын

Any update? How are you.

@mssaunders6108 3 жыл бұрын

YES such a similar story of slowly getting better with small actions. NO doctor did anything for my delayed emptying yet i was living on ensure and still throwing even that up with extreme bloating. Treating POTS helped. Treating MCAS helped more. Removing my low-functioning gallbladder made ALL the difference. I am so much better now. My bloat was just like yours and I was checked for cdiff multiple times

@IzzyKDNA 3 жыл бұрын

I’m so happy to hear these small actions and treating your mcas and pots helped!!!

@Trippy_Space_Bunny 2 жыл бұрын

Getting the ball rolling on a hEDS diagnosis but I know I also have POTS and gastroparesis, thanks for this video it will definitely help in the meantime :)

@linaksini7012 3 жыл бұрын

I am diagnosed with functional dyspepsia since i cant get the gastric emptying study where I live. Currently in a flare up. this video came at the right time

@loislaine2762 3 жыл бұрын

Happy Birthday! Have a wonderful day!

@IzzyKDNA 3 жыл бұрын

Thank you!!

@athenacaputo 3 жыл бұрын

Happy Birthday Izzy!

@IzzyKDNA 3 жыл бұрын

Thank you!!!

@Kikidevo1966 9 ай бұрын

I’m glad KZfaq recommended your channel. I guessed you might be a fellow EDSer from your description of your gastroparesis! Zebra 🦓 power. ❤

@TheMoneyParadox 2 жыл бұрын

Love what you do Izzy. It's great to see someone providing a relatable, engaging, yet helpful channel on the topic of EDS. I recommend your channel to all those that have EDS or know someone that does. Thank you for the content and please keep it up

@IzzyKDNA 2 жыл бұрын

Thank you so much!!!

@andsoitgoes1142 Жыл бұрын

Izzy, you are such a doll. Thank you so much for being so candid about your struggles with gastroparesis 14:09 . I am a nurse but I learned so much from you. You gave me hope that I can deal with this minster of a condition. I’m at the point where I can only have liquids. Can you recommend a meal replacement. So many of them have horrible and unhealthy ingredients, or they cause more bloat. Doctors have been useless in helping me.

@lenavoyles526 7 ай бұрын

I’m currently working on creating a DIY elemental diet. One of the first things I would suggest (which no one mentions) is start taking an amino acid supplement. If you’re not digesting food properly it stands to reason that could lead to protein deficiency. Without protein, the body can’t repair tissues. Amino acids will give the body the building blocks it needs to create tissues without the digestive challenge of breaking down proteins in the diet.

@user-ox6rw2gl3z 6 ай бұрын

هل خزل المعده يسبب خروج طعام غير مهضوم مع البراز

@kimmiesassman5458 3 жыл бұрын

Just diagnosed February 1. Between your channel and another about gastroparesis i have learned alot! Thank you so much for posting this. Im new to this and didn't know what to do and you have helped. I couldn't take it today and ate what i wanted. Well still in the easy to digest range BUT i have bloating. Heating pads are my friend now zofran. I feel like ill never have pizza or a cheeseburger again. Or starbucks caffeine makes me sick so so does meat anymore this is a tricky ailment.

@IzzyKDNA 3 жыл бұрын

it can be so hard to follow such a strict diet, and i too have eaten things I KNOW i definitely shouldn't and then feel sick.

@mvdhaak 3 жыл бұрын

Thanks! It's so cool to know it CAN get better. Most helpful for me was taking low dose naltrexone.

@abigaillewis3887 2 жыл бұрын

You are a lifesaver! Thank you

@nicolelauderdale3919 3 жыл бұрын

So helpful as always

@kinzi-jayne8643 3 жыл бұрын

I got my holo badge today! Thank you so much it's amazing! And I love the packaging xx

@IzzyKDNA 3 жыл бұрын

Yay so glad you got it!!!!

@Cheeky__Chops 3 жыл бұрын

Happy Birthday Izzy 🎂🥳🎉🎈🎁

@IzzyKDNA 3 жыл бұрын

Thank you!!

@asathora1819 2 жыл бұрын

I look pregnant with protein or grains. Betain HCL is great, but even greater is organic apple cider vinegar 1/2 teaspoon in warm water first thing in the morning.

@user-ij5rq8hx1c 2 ай бұрын

be careful not to get gastritis because of the acids in vinegar

@keithjay4944 2 ай бұрын

@@user-ij5rq8hx1cdrink slippery elm or aloe Vera to counter the inflammation, it kills and coat that stomach wall and helps heals ulcers. It is coated and slime that acts like your stomach lining. Look it and do research how magical this slippery elms and aloe Vera.

@bees.3140 Ай бұрын

Vinegar slows the emptying process so be careful I took some and was in pain for days

@keithjay4944 Ай бұрын

@@bees.3140 your stomach is just weak, you need to coat it with slippery elm to heal it. You probably have gastritis, apple cider vinegar helps acidify your stomach which helps digest foods faster and boost your metabolism. Breaks down proteins and fats.

@bees.3140 Ай бұрын

@@keithjay4944 I have gastroperisis and take a vinegar supplement but it’s hard to tell what works and doesn’t when you have a flare up just started taking Betain hcl with pepsin 🙏

@geoffreyrosenberg8070 3 жыл бұрын

Very informational, unfortunately my 2nd cousin at age 3 was diagnosed and my aunt. However I knew nothing about this until now watching your videos. Idk but it seems jewish decent are more prone to stomach issues. Positive vibes!

@gloriawalker-bornman7322 3 жыл бұрын

Happy birthday Izzy

@melissavilla7737 2 жыл бұрын

Omg! I have all these symptoms and havent been diagnosed. I was diagnosed with IBS and chronic constipation. Thank you for sharing. I cried because I feel like someone out there can relate! 🙏😩

@paintedwolf8394 2 жыл бұрын

Chronic constipation is definitely a symptom. My daughter is struggling with gastroparesis and it's breaking my heart. Her nausea and constant vomiting is so hard for her and hard to see. I hope that you find relief and are diagnosed properly for whatever your ailments are. Good luck!!!!

@aprilinaugust99 2 жыл бұрын

I was also diagnosed with IBS and chronic constipation 3 years ago. Last week I was officially diagnosed with gastroparesis.

@bennym1326 Жыл бұрын

How are you now? I have similar symptoms.. it's horrible

@loridonmyer854 Жыл бұрын

I was tested for gastropsresis but I think the lady didn't do the test right. I have all these symptoms.

@brunoandthebee9587 Жыл бұрын

I want to try digestive enzymes again but years ago I tried them and it caused pain. Like something was eating my stomach pain. I can't find anything on why this may be. It's good to learn about protein. I ate a lot last night and woke at 5 am vomiting. This is a terrible disease so thank you for the ideas.

@lauraash6687 3 жыл бұрын

Its so weird how you talked about protien hurting you. It hurts me too! Im almost vegetarian because of it and i didnt realize it until you said something. Zebra here. 💙

@penelopepolinsneemeyer4757 3 жыл бұрын

Happy birthday Izzy cariad! 🥳 xxxxxxxxxxxxxx

@noodlesoopersoop 3 жыл бұрын

I’ve been dealing with symptoms of what is likely gastroparesis for a year now. I was also diagnosed with POTS about six months ago. I’ve got my gastric emptying study coming up soon and I’m not looking forward to stopping the medication that’s finally allowed me to have some quality of life and maintain my weight after losing 70lbs. Things have been slow cause of the pandemic, but hopefully it gets sorted out. Thanks for spreading hope and helpful tips!!

@karengomez4182 2 жыл бұрын

How are you now?

@noodlesoopersoop 2 жыл бұрын

@@karengomez4182 not the best, I’ve lost more weight since my last comment, but have generally been maintaining around where I am now (which is still very underweight) for a while. I got my GES done and was confirmed to have gastroparesis. I’ve tried and failed many medications, and am on an up to two year wait list to see a motility specialist. My POTS is slightly improved with a medication I recently started, which is encouraging. Trying my best to not let things keep me down though and to have the most fun and productive life as possible despite everything :)

@Amanda-kx9st Жыл бұрын

@@noodlesoopersoop Hi! I know this is an old comment but what medications helped you to gain weight? Dealing with that rn

@kristyhilt7317 3 жыл бұрын

Happy Birthday, birthday buddy!!!! I was just diagnosed with gastroparesis. Thank you for doing this video.

@TheChronicExplorer 3 жыл бұрын

THIS IS SO HELPFUL. Also feel you on the clothing thing.... some lady literally asked me if I was pregnant because of my bloat.... its a funny joke between friends but holy when someone you've never met says it it sure hits different.

@IzzyKDNA 3 жыл бұрын

yes omg it hits SO differently if someone you don't know says something like it.

@dm5129 2 жыл бұрын

Yes, it makes shopping for clothing extremely uncomfortable.

@dm5129 2 жыл бұрын

And then I think, oh gosh this bloating makes me like two sizes bigger.

@tanyatschirpig 3 жыл бұрын

Happy Birthday 🎂 Very helpful and informative video, good job Izzy! I have gastroparesis that has just now gotten to a point where it's bad enough to be impacting me on the hourly. I was put in Domperidone as a prokinetic.... And develop galactorhoea (milk production while not nursing 😂😂) - weirdest side effect ever and now my favorite medicine I've used so far is off the table. The emotional aspect of everything is so tough

@sunninailsx Жыл бұрын

How effective was Domperidone? I see that it is not available in the US But it is in canada now. Trying to get this for a family member.

@truthhunter4270 Жыл бұрын

Sounds like all the symptoms I’m experiencing except for the nausea and vomiting. If I eat red meat or a lot of protein I’m absolutely done. Worst stomach pain ever. I’m just now in the process of getting it diagnosed. Thanks for the video!

@adamrobertson2048 Жыл бұрын

I think I have this. I just discovered that this was literally today. Very helpful video! So many of the things you said apply to me exactly. Had a upper GI scope done and nothing. By biggest think is absolutely zero alcohol. Even one night can screw me up for a week

@GLGC688 3 жыл бұрын

Hi Izzy, glad to see you're doing better. I'm having more and more GI issues and what I've found is it (for me) is related to MCAS issues. I just got my results back last week for Hereditary alpha-tryptasemia and it matches all the symptoms I have including EDS and POTS. Have you heard of HaTs?

@alibyebaby2064 3 жыл бұрын

Yep, I’ve been dealing with this since I was a child. It’s so uncomfortable all around but really sucks when it comes to clothes because you feel so much bigger than you actually are.

@karleejames3717 3 жыл бұрын

Legit! When I was at my lowest weight it never felt like it because I was so bloated the entire time lol

@dm5129 2 жыл бұрын

Exactly, in the early morning when the bloating subsides before eating I have a regular stomach circumference but as soon as I eat anything it starts ballooning. I have endured this long enough now to find better ways of eating. I already noticed foods in the slow cooker are much easier for me to digest and I know now why. I guess I will have to stop eating large meals too, because the bloating is literally painful.

@andreafarland9680 Жыл бұрын

Thank you so much for your video. I really appreciate it and my Gastro paresis is not going away. I’m gonna try those things. I really am excited because I have never tried them but I’ve heard good things.

@meghan3306 10 ай бұрын

❤You were extremely helpful! Thank you for taking the time to explain your experience. I have gastroparesis and I was shocked that almost all the foods you listed were on my no-no list too! Why does garlic equal death?! Its mindboggling. Also, I'm still trying to find a fruit other than applesauce that doesn't betray me. I have to conduct my own experiments to find what works for me to feel better because my local medical providers are so stretched thin each official step in my medical journey is spaced many months apart so I am left trying to find my way because I can't go 6 months without eating lol though my stomach seems to be ready to try and take that challenge. I appreciate your insight and advice ❤

@sarahb.6475 3 жыл бұрын

Happy birthday!! My bloating looks just like that too and I can gain 5 inches around my waist when I'm bloated. It even seems to extend up into my ribs..I mostly deal with it by avoiding the foods that seem to cause it. Which does leave me on a limited diet, but I do believe it has improved a lot too. Each time I was eating, especially with protein, I would drink the juice of a half lemon in water. Did that for many months and now I don't need the lemon juice. I also take a digestive enzymes called Ultra Digest from Gluten Free Society. I'm avoiding all grains and eat only fresh whole foods. Oh and my Pots symptoms seemed to have gone away once I stopped eating eggs and all dairy. It took a few months though. Both were skyhigh on the IgG test, along with flax and a bunch of other things. From what I read food sensitivities can go away but it can take years... Before I couldn't eat beef without getting severely bloated and now I can. Airborne reactions are a much bigger issue for me these days. And I've seen to have gotten more sensitive since the shutdown. I think I have MCAS but no idea how to get that diagnosed! Believe it's linked to my autism and hypermobility. Even my toes are hypermobile! And here I had thought that was normal.

@ElizabethDohertyThomas 3 жыл бұрын

I've had gastroparesis my whole life. I used to be insanely skinny, like ribs show easily when I lifted my shirt. But the bloat i'd have reminded me of the National Geographic photos of distended bellies.

@mike0133 2 жыл бұрын

Sorry for to many questions Elizabeth, but i am suffering of gastroparesis and you experience could help me. Has your gastroparesis ended? And if yes you have done something like surgery etc... or it solved by it's one. P. S.: how many years did I you had gastroparesis?

@ronwilliams7728 2 ай бұрын

How did u put weight on?

@JennyCole1988 3 жыл бұрын

Really interesting video. I find gastroparesis so hard to deal with. The pain, bloating and nausea can just be so overwhelming and having to eat just makes it worse. Was interested to hear you talk about your POTS getting worse around the time you started taking Duloxetine. I’m on Duloxetine at the moment, but my POTS specialist wants me off it as he says it’s like POTS in a pill (in that it makes POTS symptoms so much worse!) I had no idea when I started taking it, so now need to gradually come off it. It’s really good to hear your gastroparesis has improved. Mine seems to be manageable for a while, then it gets really bad for a while and then becomes more manageable again, so it’s always a bit unpredictable xx

@IzzyKDNA 3 жыл бұрын

oh wait I might not have been super clear lol. My gp started getting better around the time I took my duloxetine. but it's interesting to hear that your doc said it could make it worse! I hope going off the duloxetine can give you some relief

@mallarieluvsgirls Жыл бұрын

OH LAWD. i have severe depression and anxiety from chronic illness. i also have POTS and was recently put on duloxotine to help my anxiety 😭😭 i was wondering why i couldn’t get out of bed as easily anymore. thank you for sharing

@jeremiahsmith8405 6 ай бұрын

@@IzzyKDNAso what do you think actually made your GP better then? Thanks so much

@sabianova4304 Жыл бұрын

BETAIN IS amazing !!! Lots and lots of videos on it to help with many stomach issues. Very worth researching and taking

@susanhenke8441 2 жыл бұрын

This was so helpful thank you. Just found out i have this . Some of meds i been on already.

@dottyd76 Жыл бұрын

Thank you so much for sharing your experience! I just had a gastric emptying test this morning that revealed "delayed digestive emptying."

@aprilmartian5837 Жыл бұрын

Did the doctor prescribe you something for that? Are you feeling any better or about the same?

@dottyd76 Жыл бұрын

@@aprilmartian5837 Yes, Fibercon tablets, Zofran, Bentyl. I also take Omeprezole and Align Probiotic for other digestive issues. A special diet. I had a procedure for my bladder as a result I had to stop taking Oxybutynin for overactive bladder. As a result my symptoms improved significantly. An unintended benefit to my overall health, wellness and quality of life especially gastroparesis.

@aprilmartian5837 Жыл бұрын

@@dottyd76 Oh that's awesome. I wrote the medicines down to see if I can research it and benefit from it. I love to hear that someone's doing better, it gives me hope because sometimes it can be horrible to live with. Thanks for taking the time to respond back. Hope you have an amazing weekend! 💕

@elhpasu Жыл бұрын

Please let me know if the medicine is helping. Are you taking the supplements mentioned here?

@kittenthemitten718 3 жыл бұрын

Happy birthday!

@Ninja-er5pp 3 жыл бұрын

HAPPY BIRTHDAY!!!

@IzzyKDNA 3 жыл бұрын

Thank you!

@jordynoleymom 3 жыл бұрын

I have EDS and although I’ve never been diagnosed with gastroparesis, I do know my stomach acid is low and my naturopathic doctor did prescribe a digestive enzyme that also has HCL in it. However I’ve stopped taking it because I I’ve had strange symptoms since using it. I feel like maybe it’s an ulcer but to get into see a doctor during Covid is impossible. I’m hoping by not taking the enzyme it will eventually subside, this weird pain in my back that’s gone on a long time Tums will decrease your stomach acid so not good to take them even though it’s nice to have the instant relief with heartburn! Enjoyed your video!

@elizabethconroy7665 3 жыл бұрын

I’m a real bloater Have to eat tiny meals Thank you for all your help Hugs

@dianesmith7849 3 жыл бұрын

Me too! I am going for a pop procedure may 11th. It widens the opening to your intestines. Hope you feel better

@brittanyjackman103 8 ай бұрын

I just got diagnosed and this is helpful so thank you

@dominiqueosorio6906 2 ай бұрын

You are a life saver, thank God for sharing. I took a chance on the products you tried and it was a miracle cure !!!! I was sooooo sick for years and in a few days I felt soooooo much better . I lost weight and now can eat almost anything. Thank you soooooooooooo much.

@denisemartin3603 Ай бұрын

Which med worked?

@a_n_n_a5755 3 жыл бұрын

I am not sure if I have this but I think I might have Gastroparesis but I’m to scared to go get tested for anything because I just finally finished getting tested for pots My bloating hurt so bad that I starved myself and thank god I stopped because I did this when I was 4 or 5 apparently and I ended up with a eating disorder so thank god I stopped thank you so much for making these vids on EDS and POTS it helps me so much 💖 Also tubs ALWAYS seem to help when I run out of gas x

@VeronicaV70 Жыл бұрын

Compazine is really old medication, I didn't know they were still available, ty for letting us know. I've had same issues my entire life. Nexium 24 and Tums help a bit as far as GERD and vomit issue due to the gastroparesis/ibs-c and the only thing that kicks my severe nausea is Zofran 8mg, 2 to 3 times per day. The 4mg Zofran do absolutely nothing nor does Phenergan help at all. Meclizine, over the counter, surprisingly helped the nausea sometimes although it's for motion sickness, not nausea caused by other issues, still, one may try it since it's OTC. It's odd, I had Mono/nucleosis in the 7th grade, 40 years ago, constant digestive and exhausted and asthma ever since. This little tidbit, regarding Mono you spoke of was extremely helpful to me, thanks very much. Be safe with side effects with all the meds. I am allergic to many meds so I wish you the best with it all. God bless.

@adamguymon7096 3 жыл бұрын

Happy Birthday! I hope that your dreams and wishes come true? My entire life has had a very hard time eating lots of foods and as a kid, I use to have family and friends who use to tell me that I was a picky eater. I have never really been able to eat things like salads many different types of vegetables and fruits. I am very limited when it comes to things like mayo mustard and many different types of spreads etc. When I ate things like this I would get sick to my stomach very easily and sometimes things like smell of these things can get me sick. I can't eat things like a fresh-cut tomato or many different sauces. I can't drink tomato juice but I have had very stripped down smiled spaghetti sauce and I can handle that but if there are things like onion peppers celery cucumbers etc in it I can't eat it. When I go to a restaurant and the waitstaff ask me what I can't eat it is much harder to give them a list than them tell me what is in the food and I would have to let them know if I can or can't eat it. I thought that gastroparesis was something that couldn't go away?