Wow I’m so glad I found this video. She hit a lot of my experience and feelings during my diagnosis journey. I’m recently diagnosed as type 1 (lada). It’s been rough. I’m looking forward to learning more. Thanks for this!

I was misdiagnosed for over a year. I presented as an active, fit 46 YO with an a1c of 6.9. I could still pass a fasting glucose test at the time, but was diagnosed Type 2 and put on Metformin. That helped but soon the numbers started rising again even when I went to max dose. I think the next line was Juniva and then Victroza(?), both T2 drugs, with similar effects-short term improvement but soon back to rising BG, a1c. At that point I dug into the medical journals and learned about LADA. The next endo appt I mentioned it and said I wanted the antibody test. The endo doc wasn’t too keen on it, but I insisted. When I returned on follow up a NP came in with the report which was positive for antibodies and immediate Type 1 diagnosis. That endo never showed his face and I never went there again. I was actually relieved and was ready to go to insulin. I was on Dexcom and Omnipod after a short time of finger sticks and MDI. With todays therapies and technologies I would prefer to be T1 than T2. I did have the insulin honeymoon period where management was easier but it’s not bad now-occasional sweaty lows if I take my off off the ball. I tell people the difference between me and a child diagnosed with T1 is that the child will almost be diagnosed in hospital with DKA within a week or so of the autoimmune attack where LADA is much more gradual but still an autoimmune condition. Coincidentally I became acquainted with two men from my tennis club, one around 30 and the other in his 40’s who imo were going through the same thing-diagnosed with T2 but I was confident were LADA. Both fit, not typical Type 2 and their stories were similar to mine. I did my best to counsel them on getting the antibody test. For some reason both were reluctant to accept they may be T1 (which I prefer to T2 and explained why) but I would bet both of them are on insulin now-I left that club 5 years ago so don’t know. Lastly, I was seeing an endo not a GP. My BMI was 22 and I was an active 46 YO lifelong tennis player on the court 3-4 x week. I had told him that my grandmother was T1, diagnosed in 1927 at age 26. She had two siblings that died in childhood from T1 prior to insulin being invented. Despite all of this and a specialist in endocrinology didn’t even consider LADA or running a simple antibody test until I forced it. Shameful for a specialist to be that out of touch and ignorant but I think it’s pretty common.

I just got diagnosed. Misdiagnosed for over a decade.

Thanks for the video. I was misdiagnosed for three years.I just got LADA last August

Misdiagnosed for 5 years

How is type 1.5 diabetes diagnosed?

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