Living with a Brain Aneurysm Diagnosis: Struggles of Watching and Waiting | BAF Webinar

  Рет қаралды 8,208

Brain Aneurysm Foundation

Brain Aneurysm Foundation

Жыл бұрын

BAF co-founders Dr. Christopher Ogilvy and Deidre Buckley, NP, along with BAF Board Chairman and survivor Tom Tinlin discuss what to do when you have been diagnosed with a brain aneurysm. Conversations include the watch-and-wait approach, how new imaging is helping doctors decide when to treat, and also concerns they see from patients and families during this stressful time.
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Пікірлер: 26
@DeeRoblesLewis
@DeeRoblesLewis Жыл бұрын
I was diagnosed with 2 unruptured aneurysms. This webinar has been so good for me. It encouraged me and gave me hope to move on and probably make a better choice for treatment.
@lorihorton6218
@lorihorton6218 Жыл бұрын
No shame in this game for survivors ! Spread awareness SURVIVOR STRONG 💪 help to deal with the process of the unknown and survivors need to also when their world is turned upside down and they lose their jobs and are working their way back on their feet! I am a five year SAH survivor and I’m truly thankful grateful and blessed to everyone for sharing! Thank you
@jamespaul4731
@jamespaul4731
3 years ago wife found me dead from a ruptured aneurysm on the garage floor. I am making a full recovery. I will not quit I won't give up.
@lorihorton6218
@lorihorton6218 Жыл бұрын
There are doctors out there who are not related to the Nuro surgeon field who you have to deal with on during your recovery and getting back to work who also need educated some of them try and keep you in a bubble and limit your growth. That’s how I felt on getting back to work and by the grace of God after two years, I am back driving When you have someone limit your growth based on their experience and their on education of your health diagnosis.
@user-dr3vf7ec4d
@user-dr3vf7ec4d Жыл бұрын
Great Webinar!! Thank you.
@carlacourtney-tuck7252
@carlacourtney-tuck7252
I was diagnosed with 4 brain aneurysms. 4. They were found ‘accidentally.’ The past two years they’ve been monitored but my last scan confirmed one has grown significantly so now awaiting surgery date. It’s nice to hear from someone who’s gone thru this.
@susandhargrove9184
@susandhargrove9184
I am an aneurysm rupture survivor. Happened Sept 2023 middle of the night! Careflight to Tx Health FW to the neurosurgeon for immediate repair coils and stent. He identified 2 additional unruptured aneurysm. Latest angiogram shows ruptured anueryms healed and other 2 unruptured have grown a bit. Discussed options, and will see him again in 12 months. This answered some questions, but I am concerned about surgery or not.
@user-dx2wx3fy3j
@user-dx2wx3fy3j Жыл бұрын
Excellent Webinar. Many thanks.
@suzzannesimmons6013
@suzzannesimmons6013 Жыл бұрын
Thank you! Very informative! Be your own advocate!
@lellyfreeman4220
@lellyfreeman4220 Жыл бұрын
I had an Aneurysm 20y ago and it was cliped.
@galerichards493
@galerichards493
My name gale richards for years I suffer with migraines in 2014 I found out I have two brain aneurysm s had surgery remove one still have another brain aneurysm my nerosurgeon was amir dedashi at long island Jewish hospital he did my surgery my girl friend had one never knew 25 m aneurysm behind her eye. Right now I been having pains in my head for days walking around with brain aneurysm is like night mare not knowing if you go bed not waking if today your last day is like Russian roulette very scary
@teresaczajka4930
@teresaczajka4930 Жыл бұрын
Thank you for this. Im in the UK and we have little in the way of support. Very informative
@amberwysocki6202
@amberwysocki6202
Wow, I just found out I have an aneurysm and they spent no time telling me about it and only spent time talking about my vertebral arterial dissection not associated to the aneurysm. I’m literally having to watch videos to learn about it. Ridiculous!
@ourlove8104
@ourlove8104
Had an SAH 2017 and endovascular coiling. As a nurse who taught ACLS, BLS and more, I had no idea what was happening to me. I was back and fourth to Urgent Care with weird headaches for 6 months. No one suggested a simple CT scan. My B/P was elevated of course due to the pain... I was sent home on B/P meds. The classic, African American 40 something year old diagnosis. Until it ruptured, I had no idea I was walking around with an aneurysm. I was told I'd be on a laundry list of meds for the rest of my life. Then the classic grand mal seizure! My insurance company refused to pay my hospital bill. I'm so thankful for the knowledge of diet and herbs. I have no deficits today and am resolving to teach as many as I can the signs and symptoms and most of all prevention if possible! I want to be more active. I no longer work as a nurse. I have a very successful health and wellness business and nutritional supplements line and I advocate for anyone I can help. We need to push harder for legislation for protections, and provisions for brain aneurysm sufferers and survivors. Let's go!
@waynevanrensburg8037
@waynevanrensburg8037
Thank you for your time. Had clipping done 5 years ago and new 3mm has been detected beside clip recently. Been called in for a chat with neurologist next week. Little worried. If given the option I will ask for care ❤
@trudilund6310
@trudilund6310
Hi just been told I have a unraptured aynersum 8mm , by my doctor who sent my info to a specialist and that was it, I'm so scared, listening on here I have faith...
@marywessels9794
@marywessels9794 Жыл бұрын
My Dr. Called me and said younhave a 2mm aneurysm, but don't worry about it. Have a nice Thansgiving. He pent 2 minutes on the b phone. Then my next neurologist said obe day " I want to Stent it" then called me back 2 weeks later and said " due to Covid we can't do your surgery". Will need to have ro reschedule. That was 2 years ago and I haven't been told by my nuero that he wants to reschedule. And per my yearly scan it hasn't gotten any bigger.
@user-rx2ow2nk7r
@user-rx2ow2nk7r
I was diagnosed with 3 incidental Anurisms after I had a full body scan for a previous operation.
@patriciareilly4000
@patriciareilly4000
I had one ruptured aneurysm and have 2 unruptured. One is flat, i can't remember the name of it. The other is very tiny. I go every year for MRA's. My neurologist and his partner were excellent. But i hear what is being talked about is fear of future. Trying.
@maxi20041
@maxi20041 Жыл бұрын
I simply can not afford the tier 2 co payments to get a endovascular surgery
Feel more confident and educated about brain aneurysms after watching this webinar!
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