Living with Multiple Sclerosis - How are you doing?

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Lauren Parrott

Lauren Parrott

3 жыл бұрын

I want to hear from you!

Пікірлер: 84
@desmur36
@desmur36 3 жыл бұрын
Great to see you, Lauren! We have a 12-year-old who is doing online learning and doing well. Yesterday we started our annual cookie baking which has been great! And of course searching for the elf on the shelf. Stay safe, stay healthy, and we will get through this together! Happy Holidays!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Mike! I'm so glad your 12 year old is doing well with online learning! I am going to bake cookies today!! I hope your family stays safe and has very happy holidays!!
@AJHR77
@AJHR77 3 жыл бұрын
Hi Lauren! It's always a joy to see you. I have not been out since March and doing well. Treatment is definitely needed but I'm not chancing it. Hope to get approval for home treatment soon. I love the sweatshirt and yoga pants - bingo! Keep smiling!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hello! I really hope you get approval for home treatment. Thanks for encouraging the sweatshirt and yoga pants! I hope you have safe and happy holidays!!
@kellimagana1480
@kellimagana1480 3 жыл бұрын
Well since you asked girl, I've been taking Tysabri since 2014, and in November I was positive for the JC virus (at least it wasn't Covid). I now have to change my treatment and go for another one. I wanna talk to an MS specialist(zoom) so I have to wait until February. My neurologist said a few weeks without meds will be fine. And I am feeling fine :D "normal" lol I'm trying to still keep myself from seeing the news. I do go out just to buy things for myself or walk my dogs, or when my parents take me out to take a break from the house. Of course, my mask is with him and a bottle of hand sanitizer) In August I said started classes online(CSUCI) from my school and today is the last final :D. I'm still hoping and praying my boyfriend who is in the army is doing ok during all this mess.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Kelli! I'm positive for the JC virus too. Definitely talk to an MS specialist. I switched to Ocrevus 4 years ago and it feels just like Tysabri. Yes, not watching the news is really helpful. I'm glad you get out of the house to get things for yourself and walk the dogs! Masks and hand sanitizers are so important! I think it's awesome that you started classes online! How was your last final?? Oh my gosh, I pray your boyfriend is doing well!! I wish you both the very best and I hope you have healthy and happy holidays!!
@terrysmith5868
@terrysmith5868 3 жыл бұрын
I was diagnosed with RRMS 11 years ago. I am 56 yrs old. I am on Glatopa ( copaxone) and feel pretty good on it. I used to take tecfidera and felt even better but my WBC count was too low, so had to go off of it. I feel very lucky because my husband has a job that supports us and has not ended due to the pandemic. Honestly, the pandemic has not changed my daily life at all. I am a housewife...not that I have a choice. I would be a terrible employee probably having to call in sick all the time. I am happy and content 99% of the time. I have my 5 min pity party’s but they are few and far between. I focus on the positive. My favorite mantra is things could always be worse! Living in VT is tough for me in the winter, I count on not feeling great from Nov.-March. I just don’t know what it is about the winter but my body just doesn’t like it. Summer, and the warm weather are my friend. Most people with MS don’t like the heat, but not me! Love it. I do get out and walk 2 miles when I am able. I try to do it at least a couple times a week. I also do yoga every day, or in the very least, a couple times a week. When my body is not feeling well, I play games on my tablet too because I figure the least I could do is use my mind. I have been out of the house 3 times since March, except for taking walks with my parents. We live in the country so at least it is beautiful and quiet here in VT and even just looking out the window is very calming. I am very careful with my diet keeping it healthy! I am petite and make sure I stay that way! The less I move, the less I eat! Pretty simple. I do eat a low fat diet and awhile back had to loose 50 lbs. I had never been over a size 5 and Idk what happened, but it crept up on me and found myself a size 12 and 160 lbs. I run about 117 now and if I gain even a pound, I buckle down and in a couple days can lose a lb or two! One thing I always do is get out of my pj’s, even if it is into lounge wear. I do something with my hair, spray a little body spray on and at least look somewhat put together. My husbands sure doesn’t need to look at a hag and neither do I!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Terry! It sounds like you have a great attitude! It love your mantra...things could always be worse. I feel the same way. I'm sorry you don't like the cooler weather. I am a patient that does better in the cooler weather. I hope things get better for you when it warms up!! Yoga is so beneficial, and I'm glad you're using your brain by playing games on your tablet! I think it's so nice that you live in the country!! Keeping your diet in tact is so important! Getting out of your pjs is important. I'm sure your husband appreciates that! I live with my Mom, and she doesn't care what I look like, however, I have to get out of my pjs for my own sanity. I hope you have very safe, happy and healthy holidays!!
@shannakinser1975
@shannakinser1975 3 жыл бұрын
It's great to hear from you. I ended up in the hospital from a combination of pretty severe stress, depression, anxiety, and seizures. I've been home almost three weeks and I did go out of town to Los Angeles to see an old friend I hadn't seen in 30 years. We served in the Peace Corps together. We sat out on the back patio of a downtown restaurant. We socially distanced and spent several hours together. She returned to her home and I spent the night at a Los Angeles hotel that was COVID ready. My service dog and the little pet dog keep me more or less sane. I play music constantly and decided I need to keep myself better focused on something that gives me joy. So I ordered an electric keyboard that I'm going to teach myself over the winter. That will make me a better singer and will be therapeutic. The good news with the MS is that it's in remission and I'm looking to go on Mayzent pretty soon. I have to have EEGs first. Pet your pups and be safe, Lauren. You're a breath of fresh air. ☺️
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Shanna! So nice to hear from you! Oh gosh, I'm sorry you were in the hospital, but it sounds like you are doing much better! I'm glad you saw your friend! It's awesome that you ordered an electric keyboard!! Music is so therapeutic!! I wish you the best with everything and I hope you have safe and happy holidays!!
@jasoncarr1764
@jasoncarr1764 3 жыл бұрын
I am doing well. Since the virus I started going out once a week and panning for gold , when my sons school is not shut down . I find my new hobby quite soothing , I doubt I will ever make enough in gold to compete with the equipment I have bought those . I hope you continue to do well .
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Jason! I'm so glad your hobby keeps you busy! Most importantly, I'm glad you are safe! I hope you have Happy Holidays!!
@richardwilliams4689
@richardwilliams4689 3 жыл бұрын
So good to hear from you. Doing well, just trying to stay out of harms way like you. A lot of binge watching and puzzles for me. Pleased to see your doing well. God bless you.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Richard! I'm glad you are doing well! I hope you have very safe and happy holidays!! God Bless You!
@TomDobyMowerRepair
@TomDobyMowerRepair 3 жыл бұрын
working for the school system for 20 years... i left work in march and had to go back in july.during that time i was saved by reopening my mower repair business and became very successful because people were doing their own work... the stress of being back at work is totally too much stress. i've been installin ionization units on hundreds of HVAC units at our schools for killing germs and today my tremors returned, i burned out 3 units because i was shaking and causing shorts in the wiring, i called it quits and went home cause these are 480 volts, i have had more that a dozen close friends aquire to virus and lost several, i havent even decorated for christmas because of depression from it all
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Tom! Wow, I'm so glad you were able to reopen your mower repair business...what perfect timing!! I can only imagine the stress of being back at work. I'm so sorry your tremors returned. I have tremors, so I understand the frustration. I would be shaking as well. I'm so sorry to hear about your friends. This whole thing is traumatic. We didn't really decorate for Christmas either...it's just sad :( I wish you safe holidays and I hope you can enjoy some time off!
@musicbydanny6925
@musicbydanny6925 3 жыл бұрын
I hope you have a safe new year. 🙏
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you so much! You too!
@silviatxr
@silviatxr 3 жыл бұрын
Great to hear from you, Lauren!!! Like you, I have been staying home since March. I'm on SS Disability and my husband is retired, so we just keep company to each other. He usually goes grocery shopping for us, but lately we have ordered groceries online so to avoid crowded grocery stores. I also enjoy doing puzzles, especially Sudoku. This way I keep my sanity and work my brain. My husband has a beautiful garden in the backyard. I've been learning and helping him do and keep his garden pretty. I also enjoy watching films and series on Netflix ("The Crown" is my favorite!) Stay safe and take care of yourself and your dogs! God bless you!!!🙏🌷🎄Merry Christmas and a Happy New Year!!!!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Silvia! I'm glad you are staying home! It's nice that you have your husband with you! I think ordering groceries online makes things a bit easier. I love puzzles and Sudoku!! I bet your husband's garden is beautiful! My Mom gardens too. Oh my gosh I LOVE the Crown! I think the actress who plays princess Diana looks JUST like her! I can't wait for the new season to come out. I hope you have a very Merry Christmas and Happy New Year! God Bless you!!
@Mj-dc7lu
@Mj-dc7lu 3 жыл бұрын
Hi Lauren 👋.. It's always nice to see your beautiful smile 😊 . Stay safe beautiful 🌹🌹🌹
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! Thanks for saying that! I hope you are staying safe!!
@tonymiller225
@tonymiller225 3 жыл бұрын
Lauren I watched some of your videos ohh maybe a decade ago and I recently recalled your name and banged it in the youtube search and there you were So glad you look as able as I recall from a decade ago. Thanks goodness they finally have some effective treatments for this nasty illness. God knows why you're not married
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Tony! Wow, thank you so very much! Yes, the treatments are incredibly effective!! Haha I just haven't met the right person...one day!
@jabold
@jabold 3 жыл бұрын
Hi Lauren, glad to see you are still doing well! Sorry about your friend. :( I'm doing well also, just going out to the grocery store. Always wearing a mask. I love to play chess on my computer. It kicks my butt pretty quickly, lol! So that's how I've been spending my time, plus awaiting a new video from you! Take care, Joe
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Joe!! Aww thanks, yeah it's been a hard year :( I'm so glad you are doing well, and that you are being safe! I want to learn how to play chess! Have you seen "The Queen's Gambit?" It's on Netflix. I bet you would like it! I hope you have very happy holidays!!
@danasmith5378
@danasmith5378 3 жыл бұрын
Great to see a video from you! We mostly stay home, just a few trips to the farmer’s market when it was warmer and occasional late night pharmacy trips when it’s empty. We have groceries delivered and occasional meals. We have three generations in our house and some high risk family members so we try to be very safe. We wear masks when out and sometimes gloves. We lost a member of the family in March to the virus so the house doesn’t feel the same, but we are managing. I had a few months of very high anxiety, and it was definitely making my MS symptoms worse! I’ve been taking online classes, learning to knit, making bread, etc. to keep busy, as well as working from home. I’m with you on the bra, or lack of one. 🤣 Stay well!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Dana! It sounds like you are doing everything right! I'm so sorry you lost a member of your family. I've also had very high anxiety at times. I'm so glad you are taking online classes and working from home! I truly appreciate your comment about the lack of a bra! I hope you have very safe and happy holidays!!
@BornAgainFarmGirl
@BornAgainFarmGirl 3 жыл бұрын
Doing awesome Lauren , staying home on the farm and virus free !
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! I'm so glad you are doing awesome! Staying home on the farm and being virus free is a blessing! I hope you have very happy holidays!!
@BornAgainFarmGirl
@BornAgainFarmGirl 3 жыл бұрын
You Also Sweetie @@LaurenParrott !
@maddyf1985
@maddyf1985 3 жыл бұрын
Good to see you lauren, I only go to work and the physical therapy on tuesdays. I have a weird Feeling when I think on the christmas days because it's so different this year but I'm trying to stay positive. Take care of you lauren 🥰
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Maddy! I'm glad you are working and going to physical therapy! Yeah, it's definitely a weird feeling...it certainly doesn't feel like Christmas, but nothing feels normal. I'm trying to stay positive too. I wish you the very best!! Stay safe!
@jeffkeith637
@jeffkeith637 3 жыл бұрын
Hi Lauren, great to hear from you. Glad you are being cautious, it is certainly warranted. We are doing ok here in Australia, but social distancing, isolation and masks are part of the response. I've been cautious over winter, limiting my encounters in public, wearing masks and avoiding restaurants. Making sure I get out for exercise though and going to work has been helpful for my head (I am a primary school teacher). Be well, be careful.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Jeff! I'm glad you are being safe and doing well in Australia! I'm so glad you are going to work...your job is so incredibly important, especially at this time. I hope you have safe and happy holidays!!
@jeffkeith637
@jeffkeith637 3 жыл бұрын
@@LaurenParrott Thanks Lauren. Have a great holiday yourself - celebrate Him and Life.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@jeffkeith637 Thanks so much Jeff!
@rickcorgiat3485
@rickcorgiat3485 3 жыл бұрын
Hello Lauren, I was diagnosed with Remitting MS about five years ago. I'm so glad you are doing so good. I live a pretty normal life. I still work and do my best as I can. I am not on any meds. I began vegan and that seem to help a lot. I just can't wait until life get back to normal. Talk soon have a great day.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Rick! I'm glad you're doing well! Do you have a neurologist? I just want to make sure that your disease doesn't progress since you are not taking medicine. I'm glad that being vegan helps a lot. I can't wait for things to get back to normal as well! I hope you have happy holidays!!
@rickcorgiat3485
@rickcorgiat3485 3 жыл бұрын
@@LaurenParrott Hello Lauren happy Sunday. Yes I do. I visit him once a year. I have my yearly brain scan. No changes. He is always trying to get me on meds. I do not want to take them. They would cause more problems then what I deal with now. I run two to three miles a day. I don't want to lose that.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@rickcorgiat3485 Hey! I'm glad you wrote back. I'm happy that you see a neurologist. I wouldn't ever tell anyone to do something if they didn't want to do it. I just personally know people that don't take medication and their MS gradually gets worse. I'm just looking out for your best interest!! I truly wish the best for you!!
@jon-kl9mk
@jon-kl9mk 3 жыл бұрын
Hi Lauren. I seen one of your videos about you having leg stiffness, how has that been going for you? I also been having stiffness in my legs & it sucks. I've been staying home & doing some stretches & other things around the house. You stay safe. You are one gorgeous women ; )
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Jon! Yes, I do get leg stiffness if I stand for too long. Depending on my environment, I can stand for different lengths of time. If it is cool, I can stand for about 45 minutes. If it's hot and humid, I can only stand for about 25 minutes. It really depends on a lot of things. Yes, I'm doing that at home too. Oh my gosh, you are so sweet! Thank you very much!! Happy holidays!!
@KCOMSUPPORT
@KCOMSUPPORT 3 жыл бұрын
It's easy; you 've got that special thing. Keep on. Btw- I am not a fan of the FDA. For my drop foot I just play my drum set. Bass drum and hihat cymbals are incredible as drop foot theropy... Guitar is beautiful for finger agility... But yeah_ covid killed my opportunity to just go and live a simple goal...grrr... So I work on my bowflex and I am now trying to combine Karate with Chinese styles... I just don't complaine... Is your last name French? To add that mental factor; Iam learning Latin and of course Japanese [Karate].... So be well and Rise.... K.S.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you! I'm glad playing your drum set helps with your drop foot! I'm so sorry you got Covid. It sounds like you are very strong, both physically and mentally! My last name is French. Good luck with learning new languages!
@goodolboy5228
@goodolboy5228 3 жыл бұрын
I've learned to play chess while wearing a bra.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Good for you! I give you so much credit learning while wearing a bra!! Haha!!
@michellewoodrum8718
@michellewoodrum8718 3 жыл бұрын
I'm doing fine. Trying to stay healthy. I work 3 mornings a week in a country church. I know several people that got the virus and 2 that have died. Stay safe my friends.💗
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Michelle! I'm glad you are trying to stay healthy. I pray for those who have gotten this awful virus. I hope you stay safe and can enjoy the holidays!
@kelseyparker7737
@kelseyparker7737 3 жыл бұрын
I'm doing great, Lauren! I'm hanging in there! You know what I've been doing? Checking on Squeaky the rat & Peanut Butter the mouse! They are doing great too! I want to show you a picture of them!!!!!!!!!!!!!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Yes! Please show me a picture!!
@kelseyparker7737
@kelseyparker7737 3 жыл бұрын
@@LaurenParrott I tried right here. But it would let me.....I'm having a blast being in touch with you!
@angeloddrd
@angeloddrd 3 жыл бұрын
I know we'll all get through these current turbulent times together. Have gaith, Happy Holidays Merry Christmas!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Angelo! Yes, we will get through this! I hope you also have very Happy Holidays and a Merry Christmas!!
@angeloddrd
@angeloddrd 3 жыл бұрын
@@LaurenParrott :) Thank you
@MSman77
@MSman77 3 жыл бұрын
Hi honey I spend most of my time lying on my bed watching KZfaq & some news and sometimes I set on my wheelchair spending some time with my parents , still on Tys & tomorrow morning [Jan. 2nd] I’ll get my first dose of Corona vaccine. Regards 🌷
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Mody!! It's so great to hear from you! I'm glad you're doing well! Please let me know how the vaccine process goes!! Good luck!! Take care, Lauren :)
@MSman77
@MSman77 3 жыл бұрын
@@LaurenParrott Hi dear Yesterday (2nd of Jan.) I got my first dose of COVID-19 vaccine & my next and last dos will be on 28th. I’m doing very well Lauren and the vaccine was amazing with me yesterday: no problems at all”thanks God”🙃 & Hope the next dose would be the same. Regards 🌺😘🌺
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@MSman77 I'm so happy you are doing well with the vaccine! I will pray for continued success for you! Please keep me posted!! 😘
@irie5scott91
@irie5scott91 3 жыл бұрын
Doing well I just stay home unless appointment or grocery store.. Not much just staying in trying to stay positive..
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! That's great! I'm glad you are staying safe and positive!
@frankclanton8876
@frankclanton8876 3 жыл бұрын
Iam doing great 👍🏿
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Frank! That's awesome!!
@tinahall2512
@tinahall2512 3 жыл бұрын
I wanted to ask, and I don’t mean to be rude, but do you Have speech issues due to MS? I do, and the way you talk is how I’ve started to talk. I was just diagnosed in nov 2020.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
I do have speech issues, if I talk for too long, my voice gets fatigued. What are your issues?
@FintaruS
@FintaruS 3 жыл бұрын
I'm doing quite well. wears a mask when I am out shopping, and washes my hands or uses hand sanitizers when I have been out. but otherwise quite normal. I am at work and like to walk 2x5km with the dog :)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Kim! Wow, you are doing great...that's wonderful! I'm so happy you are staying safe and can walk the dog! I hope you have happy holidays!!
@FintaruS
@FintaruS 3 жыл бұрын
@@LaurenParrott happy holidays to you to. 🤗
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@FintaruS Thank you so much!!
@human-pm2kv
@human-pm2kv 3 жыл бұрын
Lauren 🦜 you rock! 7/23/15 dx. I only leave to get my mmj. I play wordscapes. I'm on level 3488. 😬. Stay safe. 💪🤘🏻🖤
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! Aww, thanks for saying that! I play wordscapes too! Wow, level 3488?!?! That's awesome! I hope you stay safe as well!!
@human-pm2kv
@human-pm2kv 3 жыл бұрын
@@LaurenParrott just stay strong 🖤🤘🏻
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@human-pm2kv Thank you! You too!!
@emmeerre5801
@emmeerre5801 3 жыл бұрын
The Sun of the divine Will (Piccarreta)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you for sending this!
@paprikafafaron57
@paprikafafaron57 3 жыл бұрын
How are you with ms now?I also have ms for 12 years.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
I'm doing great!! I hope you are doing well!!
@paprikafafaron57
@paprikafafaron57 3 жыл бұрын
@@LaurenParrott yes..its ok..☺
@tmaze7487
@tmaze7487 3 жыл бұрын
Yep, just Dr. appts
@LaurenParrott
@LaurenParrott 3 жыл бұрын
That's good!!
@soon1429
@soon1429 3 жыл бұрын
Do you have like a Instagram or Twitter (social media) ? I think you could reach more MS people that way if you wanted to 😄
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you so much for the recommendation!! That is something I will try!!
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