Living with Multiple Sclerosis - Coronavirus

  Рет қаралды 1,273

Lauren Parrott

Lauren Parrott

4 жыл бұрын

This is a very scary time for everyone. I hope you all are doing well! What do you do to pass the time?

Пікірлер: 84
@dmphax
@dmphax 4 жыл бұрын
Love seeing you Lauren. It is a scary time for us all. Let's take the time to count our blessings. Stay safe and keep smiling. ❤ To pass the time, video games lol! Mostly Pokémon.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Laura! Yes, we absolutely need to count on our blessings! I'm so glad video games are helping you pass the time! Stay well!
@kimberlywilliams5769
@kimberlywilliams5769 4 жыл бұрын
Lauren you inspire me every time I watch your videos! Thank you so much for doing these! I love the story about your puzzle and how Trixie, can’t remember the spelling. When this virus started I was watching the news every day and soon discovered that my anxiety and depression were getting the best of me! I took a week off from reading/watching the news and started a puzzle, I love them too! I also started making cloth grocery bags so I can throw them in the washer after shopping. I am now working on making tank tops for myself. I would not call myself a seamstress by any means. I taught myself after my husband bought me a machine a couple years ago. I also started an “essential” cleaning out of my clothes, kitchen drawers and my sewing/crafting room! It’s amazing how much these grow after years of adding new finds! LOL! I post things on Facebook frequently about staying positive, activities to pass the time productively, all while bringing joy into your life! Anyway thanks again! Stay safe and I look forward to your next video!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Kimberly! Thank you so much for your comment! Haha yes Trixie definitely ate some of our puzzle! Watching the news too much can absolutely increase our anxiety and depression. I'm so glad you like puzzles too! Wow, you are so creative and crafty! I know it's amazing how things pile up and grow in the house!! Posting positive things on Facebook is a wonderful thing to do! Thanks again for writing! Take care!
@meganhenry5795
@meganhenry5795 4 жыл бұрын
Yes! Thank you to all the doctors and nurses putting their lives on the line. You all are just incredible. Bless you. 🙏
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Megan! Yes! Absolutely! The healthcare workers are amazing!! I am so grateful for them! Bless you! Stay safe!! :)
@jacih1034
@jacih1034 4 жыл бұрын
Stay safe..... it is a trying time but we will get through this . I don’t go out much . Staying safe and home bound for now. My hubby made sure we had masks before we did go out for groceries. Health care workers are so amazing. I have been binging on audiobooks and podcasts. I have been watching a free subscription to Acorn TV. The weather is turning warmer and I enjoy my morning coffee out there. Prayers, virtual hugs to you,
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Staci! Yes, we will get through this. My brother also got masks for my Mom and I. Healthcare workers are amazing!! Audiobooks and podcasts are great!! I like them too! I'm also sending you prayers and virtual hugs!!
@alrightwithms845
@alrightwithms845 4 жыл бұрын
Thanks to the health care workers and essential workers. Take care 🤗
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Yes absolutely!! I hope you are well!
@GreenSaverVal
@GreenSaverVal 4 жыл бұрын
I have Parkinson's so I feel you... It is so very scary with having a underlying condition and weakened immune system! I have gone to the National Forest behind my house here in Arizona with my Family a few times to get into nature and ground myself and just to enjoy the great outdoors... Amazing Therapy. I still go to the Grocery store with my daughter but use extreme caution, which we should all do . Baking, Making Bread and over all just spending some good quality family time. So healing. Glad to see you are doing well during this time and continue to stay safe, get some fresh air, and stay Healthy !
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! Yes it is so very scary. I'm so happy that you were able to go into the National Forest behind your house. Baking, making bread and spending quality time with your family are excellent ways to spend your time! I wish you the very best!! Take care!
@abehl
@abehl 4 жыл бұрын
Lovely seeing you Laura after about soooo many years and seeing you are well. I am doing ok but have just started my new youtube channel yesterday. I am so happy to have found you on youtube and now have subscribed. Stay happy and safe xx
@DaKillmonger
@DaKillmonger 4 жыл бұрын
Just saw your video from 7 years ago about testing positive for Jc Virus. It took me 3 days to click on your channel praying you were alive. I was diagnosed with ms 2 weeks ago and I’m so glad you are alive and still in the fight. God bless you.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Aww thank you! You will be fine. Stay well! God Bless You!
@welshwomble4343
@welshwomble4343 4 жыл бұрын
Hi from the uk. Hope you stay well . I watch so much Netflix its mad. Managed to get some paint when I went food shopping, so tomorrow my wife and myself going to paint pourch. It's only small so should not take long. I cant do big tasks any more. I dont no if you remember me I have pancreatitis and RRMS ,we did exchange messages a few times. Still follow you. You still make me smile . You have a infectious smile and laugh. You take care. Xx
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Howard! Netflix can definitely keep you watching for hours!! That's so cool you and your wife are painting your porch! I do remember that you have pancreatitis and RRMS. I really hope you continue doing well!! You are so kind! Take care!! xoxo
@richardwilliams4689
@richardwilliams4689 4 жыл бұрын
So good to see you🤗. These are indeed scary times for us. I seldom go out only if I have to and when I do I wear my mask and my gloves. How I pass the time is by watching KZfaq and watching tv series. Currently in the middle of watching the latest season of Ozark. Glad you posted and your doing well. We'll get through this. Praying for ya!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Richard! Yes, same here. I don't go out, but if I have to, I wear a mask and gloves!! Watching KZfaq and TV series definitely helps pass the time. God Bless You! Stay safe!! :)
@Kookoocachu
@Kookoocachu 4 жыл бұрын
Great to see you! I originally had a lot of plans to keep myself busy but to be honest I've not really got around to doing any of it. My mental health hasn't been great so I've been spending my time playing an online game with friends and my son joins in too which is nice. These are really strange times, sending everyone a massive hug xx
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey!! I'm the same way. I had plans to do so much, but mentally, it's really hard. I'm so glad that your son joins in your games!! These are really strange times. I'm sending you a massive hug!! Take care!
@mellymoo1828
@mellymoo1828 4 жыл бұрын
Hey sweetie, stay very safe 💕 I was ordered to isolate for 12 weeks because I have had Lemtrada! My nanny is in a nursing home now at the age of nearly 90, she was diagnosed with coronavirus/pneumonia/dementia and she lives a far way from us 😔 Harvey (who’s 16 by the way!!!) and I are ok, big hugs from a very safe distance! Lol! Oh and Netflix/Amazon video etc are my new best friends! As well as the antibacterial hand wash and hand cream! 😁 take care of you my lovely xoxo
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Mel!! I'm so sorry to hear about your nanny :( Oh my gosh!! I can't believe Harvey is 16!! Where has the time gone?? I'm so glad you both are doing well! Yes, Netflix and Amazon have definitely been good friends to me during this pandemic, too! I hope for continued success with you and Harvey!! I'm sending my love!! :) 💕
@mikec4957
@mikec4957 4 жыл бұрын
Lauren, You have done what they have done for years. Thank you for helping people with MS!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Mike! Oh my gosh thank you so much!!
@numbr6
@numbr6 4 жыл бұрын
Working From Home. Our entire company, 600+, are all now on WFH orders, indefinitely. Watching way too much TV for sure. I do have time for yard work (when not raining, because Seattle) and other projects I've let set fallow for way too long. Keeping up with DMT (no scheduling issues there); last infusion was end of March, so COVID-19 was definitely a thing then. Keeping sane is much easier if you take a news break for a few days/week. Say safe and healthy.
@jabold
@jabold 4 жыл бұрын
Hi Lauren, good to see you are doing well! The National MS Society put our support group meetings on hold, we are not allowed to meet in person until after July (today is June 14) so we are meeting via Zoom. We already met this way for our May meeting and it went well. A new experience, it was a lot of fun! Our June meeting is this coming Thur. and we'll be using Zoom again. Take care! ~ Joe
@myMSsince2004
@myMSsince2004 4 жыл бұрын
Great to see you. Play some piano in next videos. We all need some music in our lives. Be well!! :-)
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Gene! Oh my gosh, I wish I could...my piano is not in my living room right now. We are having work done! I will once the piano is back!! I hope you are well!
@gabbyfranks78
@gabbyfranks78 4 жыл бұрын
Greetings from Kansas. Hope all is well. Exercising, Amazon prime, Netflix, cooking new recipes playing w/ Lily Dog in back yard some deep cleaning, & reading. U & FAM stay safe.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Gabby! It sounds like you are being very productive! I hope you are staying safe!! Take care!
@imaneomar5512
@imaneomar5512 4 жыл бұрын
Love seeing you dear Lauren , stay healthy and safe , I spend my time cooking , learning some new cuisines GOD bless you 🙏 ❤️
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Imane! It's so good to hear fro you! I'm so glad you are cooking and learning new cuisines! That will help in the future! God Bless You! Stay safe!!
@OlgaMesh
@OlgaMesh 4 жыл бұрын
Hi Lauren nice to hear from you. I live Toronto, everything that is not essential closed, I still get out almost everyday for a walk and to buy a coffee (black). I watch Outlander on Netflix; I have seen it at least 3 times and I love it! Stay safe.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Olga! I'm glad you are getting out and watching Outlander. Stay safe and take care!
@blak4001
@blak4001 4 жыл бұрын
Lauren.... I talked with some of the people who are at the highest risk (The grandparent generation 70+ years old). They all say that if this has to be dangerous for someone, its the correct choice. All we can do, is to do our best to not infect them.... meaning being careful and not be infected our selves.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! Yes, you are 100% correct! I'm staying at home and being safe!! I wish you the best!
@ladyatlarge3844
@ladyatlarge3844 4 жыл бұрын
So glad to see you are well and keeping safe! :) I had a dose of ocrevus on the 27th of february, which was right when things started to ramp up where I live in washington state. So I have been home since. My sister does a grocery store porch drop every 10-12 days, which is always an adventure because you never know what you will actually get, since it depends on what stores have in stock. Sometimes we use messenger and our sims games and have a sims house building challenge, we also do a family zoom meeting once a week with all of us. Netflix is pretty much everyday. It's hard mentally some days, but I know I'm lucky to have a nice little house and a nice little cat.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! Thank you so much!!! Oh my gosh, I had my Ocrevus infusion on February 27 too! I'm really glad you have been home since...me too. My brother gets our groceries and it's the same thing! We never know what's going to be available at the store. I've also been doing Zoom meetings with family and friends. And Netflix is really helpful during this time! It is very hard mentally. I thank God that my family is healthy and my dogs are doing well! I wish you the very best with everything!!
@adamdelarozza1985
@adamdelarozza1985 4 жыл бұрын
Hi Lauren Parrott! I am doing well and hello from Nevada! Just before this crazy epidemic started, i bought two acoustic guitars; Martin custom D and a Gibson HummingBird Studio. They are both new and with a new acoustic its important to play the guitar so it 'opens uP'. That's what I've been doing, its really boring for my dog, Lol😀 Stay safe Lauren, you don't want to risk fighting this microbe and i'll do the same with mask wearing and hand wash! I hear Detroit is bad with corona, I just left Las Vegas last year (March) to a small town a little North of the city, so glad i made that move as its not great there. Thanks for the video and stay safe.😍!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Adam! I think it's awesome that you got acoustic guitars! Haha I bet your dog loves being with you! Yes, I'm staying safe! Detroit is very bad...luckily I'm not that close to where it is spreading like wildfire. I'm just wearing a mask, washing hands and staying home. I'm glad you moved! Stay safe and I hope you the very best!!
@karyvandevoorde404
@karyvandevoorde404 4 жыл бұрын
Lauren, have you ever looked up Dr. Terry Wahls, in Iowa City, IA? She wrote The Wahls Protocol... has an amazing story of how she's reversed her MS symptoms. I thought her journey might be encouraging and possibly helpful for you. Please, continue to stay positive and safe. You are an amazing young lady.. Thank you for sharing your journey! Blessings, always ~💗
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Kay! I have looked up Dr. Terry Wahls! Thanks for the recommendation! You are so kind! Please stay safe! I'm wishing you the best!! Blessings to you!
@goodolboy5228
@goodolboy5228 4 жыл бұрын
Reading activates the imagination more than Netflix. Find what Interest you and read.. I like to go on ebay and shop for really old books
@MSVlogSupport
@MSVlogSupport 4 жыл бұрын
Hi there 😊 for me this hasn't been that hard since I stay home most of the time. I miss going out to dinner with hubby. I watch Netflix, Hulu and Prime. I also go down the KZfaq rabbit hole! Have been to the grocery store and and just being safe.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Andrea! Yes I also miss getting out of the house!! Netflix, Hulu, Prime and KZfaq are certainly helpful during this time. Being safe is crucial! I wish you the very best!! :)
@maddyf1985
@maddyf1985 4 жыл бұрын
Hey Lauren,i'm very happy to see you. You look very exhausted but please stay positive. I know it's very hard for us all around the world. I only get to work and drive home. Streaming some movies or play online with some people playstation games after the work helps, not to think so much about the Virus. My thoughts are with you all 🥰 greetings from germany
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hi Maddy! Yes, I've been exhausted. It's hard for everyone! Where do you work? Streaming movies and playing online games helps keep your mind distracted! My thoughts and prayers are with you in Germany!! Stay safe!
@maddyf1985
@maddyf1985 4 жыл бұрын
Hi lauren,In germany it goes slowly better with the Virus. But we always have to be carefully. I work since last year as a secretary for the Major in a town hall. I hope the translator give me the right names ;) Stay positiv helps me in this time. My thoughts are with you and take care of you. I'm looking forward to see you in the next video
@kellymulherron7819
@kellymulherron7819 4 жыл бұрын
Lauren, thank you for your video. I saw an older video where you talk about how well Nuedexta was working for you. Are you still taking it? Im cinsidering it, but haven't seen anyone personally speaking about long term affects. I wish you well. Best, ~Kelly
@joshirvin7220
@joshirvin7220 4 жыл бұрын
Lauren my name is Joshua i’m 32 years old In late march I was diagnosed with MS remitting and relapsing I had a massive flare it was so bad I couldn’t even walk or move my left side of my body the doctors in the ER once they did some MRI’s on my brain and neck and figured out it was MS got me on steroids to bring down the swelling I’m up and walking now my lesions are very small on my brain they didn’t even know it was MS at first.. i’m now on Tysabri (today was my first infusion I feel fine) I am currently JCV negative (on the first blood test they did) in 6 months I go in and I think she said she wants to do a blood test and another MRI of my brain i’m thinking if I come up with a JCV positive I want to switch off Tysabri with my luck i’d end up with PML I haven’t had any problems today after getting my infusion of tysabri (First month) I watched your videos and I gotta say your really brave it sounds like your ms is more advanced than what i’m facing the immune system is not something people wish to screw up and for years when people got MS they just had it there was no medicine like this today.. I’m very healthy other than MS I was very surprised by this it really knocked me off my feet i’m the first person in my family ever to have MS i’m pretty scared just glad this wasn’t a stroke like many had feared when I ended up in the hospital because of the side of my body being dead couldn’t move anything.. Your very brave I don’t even want to know people must live with the more serious cases of MS.. I had no idea no signs of MS before my flare that put my in the hospital I had my left hand go dead for a few weeks when I was around 25 to 26 (it came back on its own still not sure how) but I never thought it would’ve been MS i’ve been really scared thank you for your videos.. I had zero clue I had MS till this flare happened and it was a bad one..
@marccoppins6968
@marccoppins6968 4 жыл бұрын
My family lives in Mt.Clemens, I’m on the other side of the state (we have actually met a couple times when you did some presentations in Kalamazoo) :-) Long story, but I’ll shorten it as much as possible: My M.S. hasn’t progressed since 2011 but since having the stem cell transplant, I discovered I also have Menier’s Disease (basically fluid in the inner ear) that also causes vertigo. I had surgery on February 14 (after trying many things to resolve this inner ear problem) to remove everything from my left ear. Unfortunately it didn’t work and I have vertigo non-stop. I fell 3 times using a walker and am now in a wheelchair. The good news for me, I can’t drive anymore so I can’t just take off and go anywhere. It’s good news since we’re all quarantined anyway ;-) My closest neighbor is about 300 yards away. I’ll always be a “city boy” living in the country haha! It makes me kind of jealous because I hear a lot of people complaining about being quarantined and I think “at least there is an end to this for most people”. For myself (and a lot of other people), not much as changed. Maybe washing hands more and wearing a mask etc. My wife works for the Sheriffs Office which is connected to the County jail. She is afraid that she may bring something back, from working there, to me with a compromised immune system. Scary times we are in! Stay safe!!!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Marc! I totally remember you! I feel terrible hearing about Menier’s Disease. I think you are making the best of it, and it sounds like your wife is being supportive. I wish you the very best!!
@myMSsince2004
@myMSsince2004 4 жыл бұрын
I'm working from home so that's keeping me busy. Not much changed with my schedule.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Gene!! I'm so happy that you're able to work from home!! I wish you and your family the very best! Take care!!
@juliaantranick2988
@juliaantranick2988 4 жыл бұрын
Hello I saw couple of your videos and I was wondering how long did you take Tysabri since you tested positive for the JC Virus?
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! I was on Tysabri for 10 years. I started getting tested around the the time I had been on it for about 8 or 9 years. Eventually, I decided to switch to Ocrevus when my titre was around 2.0.
@juliaantranick2988
@juliaantranick2988 4 жыл бұрын
Lauren Parrott wow!! Thanks for answering! ❤️ I tested positive for the JC virus back in 2014 took Tysabri for 2 years then I stopped because my titre was around 4 but now I’m gonna take it again because I was allergic to everything else and my doctor wouldn’t start me on Lemtrada because of Coronavirus so I’m just worried because of the PML I’m just hoping for the best! Thanks for sharing your experience
@LaurenParrott
@LaurenParrott 4 жыл бұрын
@@juliaantranick2988 Oh my gosh I can't imagine! If I were you, I would listen to my doctor. You always have the possibility of getting a second opinion if you're unsure or not satisfied. I wish you the very best!!
@syndigriner-owens4351
@syndigriner-owens4351 4 жыл бұрын
I have been playing a LOT of Animal Crossing, and staying home. If I have to go out I have a Mask I wear and gloves.
@deborahphillips1271
@deborahphillips1271 4 жыл бұрын
Hi I have been inside with my sister and have not gone anywhere in 4 weeks. Watching TV reading Instagram and you tube. Trying to handle the anxiety. Glad your well.
@lifeiskitsch
@lifeiskitsch 4 жыл бұрын
Love ya, girl! We should do a vlog chat via Zoom or something!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Molly! We should totally do that! Love you too!
@37Raffaella
@37Raffaella 4 жыл бұрын
Hello Lauren...MSer here from España.....orig. From NY...😘
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Wendy! I hope you're doing well!!
@gerdogstenc2534
@gerdogstenc2534 4 жыл бұрын
Try magnesium supplements for spacticity. Works for me. 2 before bed. Just joined your channel.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Thanks for your advice!
@kelseyparker7737
@kelseyparker7737 4 жыл бұрын
I'm glad you're staying safe!!!!!! Your question is being answered: To past the time, I draw some pictures of Squeaky & Peanut Butter the mouse! Speaking of Squeaky & Peanut Butter, Squeaky plays video games to past the time! You can't play video games with a rat, unless it's Squeaky the rat! Sometimes he turns it up at full volume! He better turn that down! Or get better taste in video games! LOL!!! Peanut Butter the mouse loves to take bubble baths at night to past the time! He has a rubber duckie! Did I mention Peanut Butter is a bubble bath kind of mouse? 🛁 When this virus goes away, I can show you some pictures of Squeaky the rat & Peanut Butter the mouse! I can show you what they look like! How about that????
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Kelsey! I'm glad Squeaky & Peanut Butter are staying busy! I would love to see a picture! I hope you're doing well!
@Gabriellabonanno
@Gabriellabonanno 3 жыл бұрын
Oh, I watch hallmark movies ...yep you heard right...🤣🤣🤣
@FintaruS
@FintaruS 4 жыл бұрын
Hey, sweetie. I stay at home a lot and I don't see the elderly in the family, my grandfather is 95, and my mother cleans at him, we do talk on the phone.. But it was weird to pick up my rebif at the hospital. I still work We are not that many at work and Denmark has okay handle😶 I am a computer geek so staying inside/at home is fine by me.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey Kim! Yeah I'm staying inside too. What do you do for work?
@FintaruS
@FintaruS 4 жыл бұрын
@@LaurenParrott I work at a manor. where we rent out rooms to people who want to hold parties (weddings, round birthdays, confirmations, etc.). I make sure there are tables and chairs for their party and fix the little things that break. but since it is not allowed to have the congregation of more than 10 people in Denmark, there is not much to do. so I do most janitor work
@goodolboy5228
@goodolboy5228 4 жыл бұрын
Wear wrap-around safety glasses as well as a mask. I noticed a lot of people wearing masks but no eye protection.
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Thanks for the recommendation! I hope you are well!
@human-pm2kv
@human-pm2kv 4 жыл бұрын
I dràw @human7880 and I play a game called wordscapes. Addicted. 😬🤘🏻
@LaurenParrott
@LaurenParrott 4 жыл бұрын
I play wordscapes too!
@redpsycho36
@redpsycho36 4 жыл бұрын
Watch Will Tennyson on KZfaq he is fun and funny. You will enjoy. Keep your stress down gal. Always laugh. You have an amazing smile! Seems like you really need to take your mind away from things. Start a garden then send me some of your wonderful salsa! Play the card game Cards Against Humanity. You will laugh!
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! Thanks for the recommendations! I hope you are doing well and staying safe!!
@Damian6Robin
@Damian6Robin 4 жыл бұрын
Watching a lot of Hulu my playing PlayStation a lot my wife doing tie dye shirts on top of usual feeding the dogs feeding the snakes laundry takes a lot of time 🐱 washing and cleaning the cars
@LaurenParrott
@LaurenParrott 4 жыл бұрын
Hey! I'm sorry for the delayed response! Wow, tie dye shirts sounds fun! It sounds like you are being very productive! Stay safe!!
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