Hi there, I'm taking Tecfidera. I was exposed and had Covid in December. I'm a part-time secretary at a Church that has a Preschool. I'm lucky enough to have taken both vaccines. The last one was Wednesday. My reaction to the first was headache, extreme fatigue and sore arm. The second was tender arm and fever 99.9 lasted 18 hours. Much better today. I'm glad I did it. Oh I Live in Iowa.

God bless you sweetheart you like myself or positive minds are our best recovery! I have had MS for 23 years and I’m taking my second infusion of Ocrevus at the end of this month February 2021 may God bless us both and we continue to get healthier and healthier stay safe and well!

thanks for talking about this

Hey Lauren, it's good to see you :)

Nice to see you Lauren

I’m not on anything at the moment and I qualify in our state under certain health conditions. I live in a multigenerational household and 4 of us are considered high risk so I’ll get it as soon as I can get an appointment. My mother-in-law is getting it today, the first in our house. I admit I’m nervous about getting it but I’m more nervous about getting the virus. It was great to see a video from you!

hi lauren..last friday i received my first moderna shot..my parents had an apt. i didn't but they told me since your already here let us also give you one.

Thanks for the update Lauren you look well. I think your decision to wait is a smart one and I'm following the same path. I don't know when I will get vaccinated but I imagine sometime by the end of summer? I've read enough to feel confident and safe that even with MS I'll be fine getting any of the vaccines developed for covid and getting vaccinated sounds a lot smarter than not. Take care, stay healthy and I'll see you in your next video.

I now qualify to have it. So maybe I’ll be having it in a few weeks. I’m in Perth Western Australia 🇦🇺 Wishing every one good luck in these mad times. 🤗

Hi Lauren, my wife and I are receiving our 2nd shot tomorrow. I hope the supply in Michigan improves like it has done in Ohio, so that younger people like yourself can be vaccinated. I just lost a friend with MS who was only 57, which is still too young to receive the vaccine. But it would have made a difference to him, his wife, and two daughters. You're right, get it as soon as it is available. -Joe

I've gotten both shots, so I'm fully vaccinated. I'm a first responder so I became eligible last month. Initially I wasn't going to get the shot and honestly if the vaccine was a live virus I probably wouldn't have been as eager. Since it is a RNA (protein) based vaccine I was ok with the decision to get vaccinated. I had multiple conversations with with my neuro both about the nature of the shot (I got the Moderna) and how it would affect my MS. My side effects from the second shot were pretty tough, mostly achiness and shortness of breath. I felt like my bones were on fire and I could barely finish a sentence without gulping for air. The worst was the day after the shot, with the symptoms lingering for 3 days afterwards. My fatigue (which is already a big part of my life) seemed to be aggravated for the entire time, but again it was only for a few days. I also had an elevated temperature. I don't call it a fever because normal body temp is 98.6. My normal temp is usually 97.2 (who knows why) but for the entire time I had side effects it was 98.6. For me even 1/2 a degree of a higher temp makes my MS symptoms go crazy (balance issues, fatigue, cogfog) so that was also uncomfortable. Ultimately the whole experience made me wonder if people with MS deal with the side effects for more than the 24 hours that they tell you to be ready for. Ironically, simultaneously, I had to make a decision about changing MS meds. I had been taking Tecfidera for years, but when the generic came out my insurance wouldn't approve the name brand and the copay for the generic was really high. My neuro has been trying to get me on Ocrevus for a long time, so I finally took the plunge and decided to switch. I had to time my first infusion for two weeks after my second vaccine shot which ends up being March 8th. I think that it is so important for people to get vaccinated, but as someone with MS I understand the reluctance which is why I wanted to give a little detail about my experience for anyone reading. I am glad that I got shot, and I would tell anyone just be mindful of how the normal course of your MS may (or honestly may not) be impacted by the side effects.

My neurologist gave me the same timing for the vaccine. I have my next ocrevus on march 2 so I missed the timing window, and will be waiting for another almost six months so that it can work the best it can for we depleted b cell people. I too can stay home and just wait it out. Hope you stay safe!

i'm finally signed up for my vaccine in a couple weeks, our governor finally decided to give to educators in Georgia.

Stopped Tecfadera a few years ago. Not on MS meds. Got vaccine as I am a health care worker. Best wishes all.

I am still not sure about it. My neurologist has not said anything either. I have a random question Are you going out to get your hair done (Lauren)?

I kid you not. I am very anti FDA... I did hit the like button because of simple support. I think you are doing something great. Q: Do you do any exercise for MS ? If so what? Curious_hmmm... Keep on and enjoy your "nows". . K.S. smile

I received my letter from the NHS today. I’m 36 and on Tysabri. Due my next infusion on 4th March. My appointment was for 3rd March but when I called my MS nurse, I was told I had to get the vaccine at least a week before my infusion. I’ve had to change the vaccine until 11th March

Hi Lauren. Good to see you again. :) I'm in Ohio and on Gilenya but I'm like you, I'm in no rush to get the vaccine. Cleveland Clinic has an online notification thing called 'mychart' where you can see all of your upcoming appointments; blood work test results; and send a message to your neurologist if needed. It will send me a message when it's my turn. Take Care! ~Joe~

I hope all of you have a great weekend!!!!!!!

I’m on Fingolimod and had the phizer vaccine with no problems.

Hi Lauren, my name is Howard. Do you have a way that my wife and I could chat with you for your opinion on some things? She has MS. Her Doctor wants her to switch medications.

Your looking great . I was offered the vacine but said no for now , I'm scared , I've been on Tysabri for 4 years and I'm jc positive .xx

This didn’t age well

Squeaky & Peanut Butter didn't like their vaccines! They got shots before! Squeaky was so irritated, he screamed at the top of his lungs! It hurts my ears a bit! Peanut Butter didn't scream. His little eyes fill with tears! He was crying softly! They do have band aids on!

I'm from California, and only 65+ can get the vaccine. Because my mom is my sister's caregiver, and my dad works in the fields they have both had their shots my dad got it yesterday and my mom 1/28. they feel find

NOPE NOPE NOPE

Hey Lauren, I had my first dose August 20th, 2021. I had my second vaccine September 10th, 2021. I reeeeeally did not want to get the vaccine lol. I ended up getting it because my Mom kept begging me too and secondly because the risks of not getting it...outweighed the unsubstantiated "rewards". I'm not sure if you got vaccinated by now. After my first dose of Phizer I had no IMMEDIATE side effects. I did develop a body rash like 9-10 days later. It spread on my trunk, arms, lower extremities lol...I was terrified. It went away no problem though. I didn't even take an antihistamine or anything. I got an EpiPen prescribed before I got my second dose as a precaution...I never needed it. I got a positive rapid test last Wednesday. I actually thought maybe I had a rare hangover, but when I got a headache I went n got tested. I got a lab test Thursday, positive Covid last Friday. I now reeeeeally think the Vaccine stopped me from getting too sick. Great seeing you! God Bless whatever you decide :-)

I have MS, I've been living with it for more than half of my life... and I'm scared to take the vaccine... I live in Va and I pre-register 4/02 and they schedule an appointment next week ,I pick the 4/16...