Thanks so much! I appreciate it :)

Hey Megan! I hope things get better for you!! Hang in there :)

Thank you very much :)

I don't have a halo, but I know you have to wash your hair around them in a sink, usually, since you can't get the halo itself wet. You clean your body around it, too, so sponge baths, and the oh so amazing bath that doesn't really go up that high. (That I am familiar with due to IV placements, having needles in my port, etc. You can't get any of that wet either, though it's far more of a challenge when you have a brace on for an extended period of time.)

Thank you very much :)

Karen Rodriguez thanks, it's appreciated 😊

It's not rude; many ask. The halo feels heavy at first. I got used to it within a few days. It weighs about 8 pounds. You don't feel the weight on your head. You feel the weight more in your legs and on your core muscles. For dressing I would either wear stretchy shirts that I could slip under the brace (like stepping into a pair of pants), or I would wear large shirts that fit over the brace. Showering, I would lay on a kitchen counter with my head over the kitchen sink, or I'd lay on this thing my dad built so my head was over the bathtub. Then we'd wrap my neck & brace in a bunch of towels since the lining can't get wet. From there my mom or sister would wash my hair, & usually braid it. For sleeping, I used a lot of pillows. Since the head suspends in the halo I would roll a small blanket up and put it between the bars so it felt like my head was laying on something. I'd lay in a reclined position or on my side. Sometimes I would sleep in a chair that went back.

haha yep it's Regina. Day before I had the halo removed family and I dressed me up as her :) Thank you for the well wishes!

Haha that sounds awesome and your welcome!

Justice no worries. It didn't come across rude or anything. So I have a connective tissue disorder called Ehlers-Danlos Syndrome. It's genetic. I wasn't diagnosed until 2015. EDS causes the body to produce faulty collagen which is like the glue that holds your body together. It typically causes joint dislocations, subluxations, prone to muscle/tendon/ligament tears & host of many other issues that can cause problems with the entire body. No 2 cases are alike. My joints are affected the most. I started having spine issues in 2012. I was then diagnosed with severe neck instability so that's all fused. Then I became unstable below my fusion & developed scoliosis as well. Last fall I was fused down to middle of my low back. That's the really vague, short condensed version :)

Megan King , I, too, was curious about your situation. You are incredibly strong young woman. My prayers are with you. Peace.

Having issues with my spine so there's a lot of pain but I'm plugging along. Trying to get as strong as possible before a revision surgery.

Megan King One day at a time, right? Take care and keep staying positive! XX

Chronic Butterfly nope, not good at all. Saw a surgeon Monday. My skull is moving over the hardware 😕

Hi how much range of motion do u have