I am surviving potts spine paralyzed 1 year 4 month now i am walking in room some time use ayurvedic medicine to neuro recovery

How are you holding up ?

She should have a walker. Falling wouldn't be good.

You are a Remarkable Young Brave WARRIOR🎀 I've had an Unfathomable catastrophic medical journey that I will share sometime. I'd love to connect with you. I'm so proud of you. Many blessings I pray for you. With warm and gentle thoughts 🎀🌸🎀

I am beyond proud of you. Take that next step!

Good job!!! So lucky to have people to rely on. What great progress!

Wel Done hun x

Damn, girl. I don't even know what to say. Thank you for sharing your story. I'm sure you've deal with a lot of skepticism by well meaning people and medical personnel who just don't understand. I hope your video educates people and opens their minds.

This is cool, you are managing averything !

Megan, thank you for sharing your journey. That is so much you endured! I hope now and in the future you continue to be an advocate for yourself and anyone else. I am watching some more of your videos right now and wanted to say thank you! You are remarkable and I have a lot of respect for how honest you are and open. Please be blessed and let us know how you are doing.

Amazing progress in your gait

pretty sure everyone can do this

Sounds like she's doing well relative to her injury. I always trusted the mayo clinic more than anywhere else. I think that's still on existence. Rochester Minnesota.

Did u ever have weak muscles in neck or any theraphy ?

She's such a pretty girl. She ought to be in movies

I will say this about you young lady, when they built you they forgot to put the Quit in. You are a freaking Warrior. 🙏👍👍

🙄 "Promosm"

The Lord is with you along this journey, as are we. Your strength gives us strength. ❤

Привет Мэган. Я тебя очень понимаю и от всей души желаю стать здоровой как можно скорее. (I'm not sure if I understood everything correctly.) I can assume that your problems with the shoulder blade could be the result of incorrect use of crutches. There are some basic laws of applying loads to our body. The main loads should fall on the muscles (after the bones). If you use crutches, then you should put the main load on the latissimus dorsi and pectoral muscles (something like that). If you do not tense these muscles enough, then your load will be distributed incorrectly to other parts of your body and lead to injury. Also, when you begin to constantly use crutches, then you need to definitely do gymnastics on your shoulder girdle and strengthen it with exercises to prevent injury from a sharply increased new type of load. Do you do reasonable gymnastics on all your main body parts related to your movement (legs, knees, shoulders, back, etc.) during this period?

God bless you

Lady, you are one of if not THE toughest cookie I know. Your story never ceases to amaze me! Watching this vídeo now, I was wondering… how would you feel about making a Red Flag Hindsight vídeo?Like who knew burping was a neuro symptom?!?!? The depth of knowledge you have acquired is mind boggling. And I so appreciate your generous heart in sharing it with us. You are loved more than you know!

Just saw the dates, my apologies. hows your progress going??

Keep going mate!!!! 💪 i broke my C1/C2 in 2001 playing rugby. Hangmans peg snapped and alomost pushed through spinal chord. You are doing EPIC!!!!!!!! Stay strong, you got this mate!! From Australia.

It infuriates me in 2023 that those of us with genuine understanding physical pain & proof of our injuries are still accused of drug seeking!

Megan you are so amazing and brave. You have been through so much and I pray that you keep going strong. Sending hugs from..Joanne...South Africa 🇿🇦

Who was the surgeon that did your skull to C-5 surgery? If you don’t mind me asking

Every time I hear your story Meg, it’s like you’re telling the story of my life as well. You were such a huge part of me getting answers and finding the root cause for so many things I was/am going through. Keep advocating and sharing…so many undiagnosed zebras are out there searching for answers like we were….You’re going to help so many of them. 🖤🤍🖤🤍🖤🦓

Hi Megan, so good to see you again and have an update! My goodness you’ve been through even more since your last video! I’m sorry your periods of relief are so short lived. You have become quite an expert on what can happen to someone with Ehlers Danlos Syndrome, a walking (at times, haha), talking encyclopedia! I’m glad you’re a person of faith. I can see how if has gotten you through the good and the bad. Sending positive thoughts and prayers your way. Take care! 😊🙏🏻🙏🏻

Your endurance is extraordinary, Megan. 💛💛💛

Were your joints always unstable/flexible and did you notice it before your first injury when you landed wrong?

You are so strong and beautiful keep going and enjoy life. I have a lot of injuries to my body also but not like have . I do know how you feel

I pray for you Megan and believe God will heal you.

I've been screwed back together, shattered pelvis lower spine. I was told I would never walk again, and even if I did walk, it wouldn't be for very long. It's been 10 years now, and I'm still walking. I've lost everything I've worked for. Life really sucks getting any treatment for pain is like I'm asking the doctor for heroin. I never gained any weight when people normally do gain weight, but I don't have enough money to gain weight! If these doctors had any compassion at all, they would have let me die. Doctors, nurses, and the whole medical system puts the bare minimum effort in. Meanwhile, if you're a alcoholic or drug addict the world is laid out at your feet, medical attention, and jobs. If you have an accident, if it's your fault or someone else's fault and you're screwed! I knew that night my life as I knew it was over whether I recovered or not. I'm really sick of the pain! I wish the DEA could be kicked out of the doctors office! I don't need pain medication every day just once in a while. Hurting physically inside makes life and socializing extremely difficult.

WHAT AN INCREDIBLE TESTIMONY 👏 & I CAN SEE HOW UR RELATIONSHIP DEEPENED WITH THE LORD " THANK YOU FOR SHARING YOUR AMAZING JOURNEY OF HEALING BOTH INSIDE & OUT " YOU ARE A GREAT EXAMPLE 🤗OF BEING A FIGHTER & PERSEVERING, THROUGH SO MUCH PAIN " GOD BLESS YOU🤲💜🀄 MARANATHA ✨️

Doctors are quacks. They’ve put you through a lot of unnecessary pain.

I just saw your channel. You're a very brave young lady. I to have had numerous spine surgeries. I have had 2 neck fusions and 4 lumbar spine surgeries. To hear you describing the struggles that you have gone through. Makes me realize that my struggles are nothing like you had gone through. Young lady you give me courage to continue to live. I'm 53 yrs old and I also struggle with depression and anxiety. You are my hero and very brave and continue to live your life.

Can't tell if this is a joke or not 🤷

Wow! 30 years ago an mri revealed a C1 fracture. The radiologist looked at me like I was a ghost. I can relate.

Meagan, I would love the chance to get to talk to you more. However, I can be a source of inspiration or if you just need someone to talk to. I’m here for you. If there’s a way you could message me feel free to do so.

I’ve jumped around some but your ankle was the beginning, right? Then what happened. I saw your halo being removed and you mentioned spinal fusion. What caused that?

Please keep sharing your story/life please

Remember God will not put more on you than you can handle and you are so strong

You are very talented with your drawings

The thing that really gets my goat is, there are times in life where it's NORMAL to be somewhat depressed. When you are a teenager and have had 5 surgeries in a year, have had to give up all the activities you love and had to battle every moment just to get basic treatment for injuries, who wouldn't be at least a little depressed?? Believe yourself, believe your body.

Can you tell me what you were diagnosed with? My sister is going through extreme leg tremors now and we are having trouble getting a diagnosis

I really wish that your experience was rare, but those of us with complex or multiple medical problems have to deal with gaslighting all the time. And as a Chronic Pain Patient with end-stage CRPS as well as being a below knee amputee due to the condition burning off my foot & lower leg, I still get the “med seeking” judgement. Undergoing 14 major surgeries over the last 5 years (several due to medical error) has been agonizing and frustrating. Desperate for independence, when I tried to use the bathroom instead of my bedside commode last month, I ended up on the floor screaming. I had broken my hip and femur. Adding insult to literal injury, they accidentally tested my TSH while I was in the ER, and further testing revealed that I had Graves’ Disease that would’ve killed me by the end of summer had this not been caught. I appreciate you sharing your story and experiences ❤️ When life keeps throwing you off a proverbial cliff, it’s hard to keep fighting, and I feel like I’m reaching the end of my rope

Megan i wonder if the doctor got it wrong about the ankle, and all this is a chain reaction due to that.

This is so incredibly relatable god. I have hEDS, POTS, and MALS and have just in the last 3ish years started figuring everything out. Two huge surgeries in and so many more small procedures. Doctors can be the cruelest people, and I’m so sorry you’ve had experience with them. I can certainly sympathize. I had one say “stop trying to be special” to me before I was diagnosed with anything and he straight ghosted me on an appointment that was scheduled three months in advance after he found out he was wrong about everything XD thanks for sharing your story, it makes being a zebra a little less lonely 🦓

Megan, you are my hero. I cannot remember when I have seen someone with such personal inner strength. Your story is sad yet valient. Keep Striving Onward with God's Ever Pesent Help. (Look up Joni Eareckson Tada's story.)

You completely left out how and when you got diagnosed with EDS. Did I miss something?