Thank you for sharing ❤️🥰

I hear you darling and as a 29 year with RRMSer relate so much to everything you say. I too “over react” physically to medication. I’ve tried and had to be taken off Copaxone, Avonex, Rebif, Tysabri and Tecfidera. I’m JCV+ high titre I was lucky enough to have a 7 year remission off treatment until recently. Now I am about to begin Kesimpta and the fear is there again. I’m very very lucky as I’m in the U.K. so my treatment is free Aubagio is a bit of an “Outlier” in the MS Treatment Armoury as it seems to work far more effectively than it should. Even chemistry experts don’t really 100% understand it’s mechanisms, and why it is so very effective at reducing relapses, slowing disability and stopping brain atrophy. It’s the Mystery card in the pack- but a very very good drug I’m surprised that you haven’t been offered Lemtrada (Alemtuzumab) tbh BTK inhibitors are nearly here which will be life changing for us Also I believe that research into the gut microbiome and the Gut-Brain connection is very interesting re diets as pwMS in studies have been found to have far less diversity in their gut flora which indicates that possibly fecal transplants could be a treatment in the future (it’s not as gross as it sounds) Much love Rae xxx

I was previously on Aubagio but I switched to Tysabri a few months ago. My experience with Aubagio was good and I tolerated the medicine. I hope the same for you! Look forward to your update about it in the future. I remember being scared to start taking Aubagio but it went better than I expected. I had some side effects but they were mild and I put up with it for the benefits. I had the following: pins and needles in my hands and feet that was not my MS for the first 3 days but it went away and I never felt it again, elevated liver enzymes, gastrointestinal issues, and hair loss. Generally speaking it didn't interfere with my day to day life. Starting a new treatment is stressful. You got this 👏🏻

Hi Sara- Thanks for the update. I am so happy you are with a great neurologist whom you trust. This disease has so many facets. I feel like you are on a good path now. Trust yourself and keep the faith. I look forward to hear about the new medicine. I'll keep you in my prayers as your body transitions to this new drug. I do believe these medicines will help us. Just finding the right one for our bodies to react favorably. I have been reading a fair bit about gut biome. Inflammation drives this for us. It stinks. Hope your liking the tonic. My son's/husband have had difficulty finding blood oranges lately. Regular ones are just fine. I do feel better upping my protein w/ eggs, low diary (except cheese I really love, just less of it) Ice coffee w/ Malk (non-dairy) I really am enjoying this summer. Unsweetened that is. Great to hear from you & stay cool. Summer has arrived in Colo!

Look up Pam Bartha

It appears everyone’s MS is different and there are no easy answers. I was diagnosed with MS 10 months ago. (Interested in your Gastro doctors solution for nausea.)

I've heard in many presentations that progression immediately after Dx is at the highest rate it will be so the most important time to be on an effective DMT. The fact that you were started on an old DMT like Rebif is frustrating. I was started on Copaxone in 2005 when that was about all there was and moved to Rebif after many years and always felt sick and could never move to the full dose. My skin was breaking down at the injection sites and I hated Rebif and my liver counts were impacted. I have been doing well on Ocrevus but as I approach 60 there are concerns about being on b-cell depleters long term as our natural immunity wanes. I will be moving to Aubagio early next year and another advantage is that the generic version is available for less than $20/month on Cost Plus Pharmacy so I can just pay cash for it if I have issues finding insurance if I decide to quit working...having to work because you have MS when you should avoid stress is so conflicting! ;-0 I should have some time to watch your start on Aubagio before mine. I was just watching a Dr Boster video and learning that there are varying dosage levels and I should definitely get on the higher one- good luck- I'll be watching