VLOG: My Morning With Multiple Sclerosis

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Sara’s Living With MS

Sara’s Living With MS

Жыл бұрын

Thank you for watching @SaraslivingwithMS.
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MS morning routines, getting over the grumpiness.
My videos do not provide medical advice and are for informational purposes only. The videos are not a substitute for professional medical advice, diagnosis or treatment. Please do not disregard professional medical advice or delay in seeking it because of something you have read or seen in any of my videos

Пікірлер: 22
@roywatson927
@roywatson927 Жыл бұрын
Hello Sara, your sense of frustration is palpable but you need to remember that you are doing amazing with the cruel hand MS has dealt you!! ❤ The rubble of what once were dreams that you may feel yourself stumbling through is where your courage and strength shines the most Sara!! The nature of the beast is that yesterday you could have been able to do quite a few activities but today you may find ourselves sinking in what feels like quicksand. It doesn't take much for MS to sap the strength out of us and that is something we have all to acknowledge and work around with time management. It's by no means a sign of weakness to rest rather it shows that you are taking control of your body. Please don't be harsh on yourself and feel that you are burdening those closest and dearest to you.. you have family and friends who love you dearly and will always be by your side. They see beyond those tears of frustration and see a beautiful soul who lights up this world!! Never forget how far you have come and never forget that you will always triumph over adversity.. Take care of yourself Sara ❤
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you so much. Your messages mean so much to me. I really don’t want to seem like a complainer. Life can just be rough sometimes and I want to share how hard it can be to have a chronic illness like we do. I do have great family support and I am so thankful, but can’t help but feel bad that they have to deal with me. I can be such a grump. Lol. I hope you are having a great week and it stays that way ❤️
@laurab4833
@laurab4833 Жыл бұрын
Thank you for vlogging. It's not easy, but you are so brave to vocalize what many people are feeling, including me, and I have Epilepsy. Most days are really tough.
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you so much!!! It means so much to me for you to say that!
@andrews3347
@andrews3347 Жыл бұрын
I'm glad you have a plan for the Keppra.
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Yes me too ❤️❤️
@human-pm2kv
@human-pm2kv Жыл бұрын
Thank you for making this video.
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you for the support ❤️
@raineynight
@raineynight 10 ай бұрын
You're human. I was just diagnosed 4 months ago, at 63 y.o.!! My attitude this morning was terrible. Just tired of being tired. I'm having a hard time dealing with people, in general. Do you mind if I ask what type of work you do? Thank you for sharing.
@SaraslivingwithMS
@SaraslivingwithMS 7 ай бұрын
I worked from home. It was great! Now I have cancer and not able to work. Not sure if you have seen my latest video.
@danielmcinerney9949
@danielmcinerney9949 Жыл бұрын
Thank you for being real and candid about your condition ❤️🙌
@SaraslivingwithMS
@SaraslivingwithMS 11 ай бұрын
Thank you so much. I don’t like putting myself out there, but think it helps with showing what it is really like for a lot of us I want more research and support done for these type of horrible diseases.
@danielmcinerney9949
@danielmcinerney9949 11 ай бұрын
I couldn’t agree more I don’t want to be a customer so to speak. I suppose in a perfect world I would be treated as an individual MS patient. What I mean is if the disease is lol different for everyone; don’t just treat the symptoms find me as a puzzle where a cure is always possible!!! You got my MS love out the gate with this video 🙌🙏😇💪🏽 #Real
@LiiBorossy
@LiiBorossy Жыл бұрын
It really sucks sometimes and you should absolutely not feel guilty for having a bad morning or complaining. We are here for you. We know how hard it can be sometimes. And I’m sorry for everything you have had to go through. Sending you all the love and strength. ❤️
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you so much!! I really appreciate it. You don’t know how much ❤️❤️ I don’t want to seem like a complainer and just want to share what life can be like when you have a chronic illness.
@LiiBorossy
@LiiBorossy Жыл бұрын
@@SaraslivingwithMS I’ve been wanting to find somebody that do just that so thank you for sharing your story with us. 🧡
@lisak2575
@lisak2575 Жыл бұрын
We all have some hard days. I walked today with my husband for 15 minutes! That is the most I have walked in years. My foot swells due to an injury and the other has foot drop. I am sure I am a sight as I struggle. But it feels good to keep at this. I just started walking again this month. Keep at it and let the people stare. Eventually they will be used to seeing your apparatus or whatever helps you keep moving.😊Today I hurt. No walking outside. It is a bit too warm for my taste, but that is July.
@SaraslivingwithMS
@SaraslivingwithMS Жыл бұрын
Thank you so much!! I really appreciate the support and yes I need to work on the annoyance I have with people staring, I should not let it get to me! I am so glad to hear you did 15 minutes!!! Keep it up ❤️
@jimmcconnell7328
@jimmcconnell7328 11 ай бұрын
If I may ask, we’re you taking seizure medication for seizures or for pain management? I’m on two such medications for tremor control and these meds can leave you feeling like your unsteady and not connected with your body. I don’t like that drugged feeling since I have balance issues as well.
@SaraslivingwithMS
@SaraslivingwithMS 11 ай бұрын
I am taking seizure medication, soon I will be down to one, right now two, with one I am slowing getting off, can't wait!
@bobbis.172
@bobbis.172 Жыл бұрын
Do you think some of your fatigue/sleepiness throughout the day is actually from side effects of the seizure meds you're taking in addition to your MS fatigue/symptoms? I was on seizure meds for a period of time in my life and it made me feel quite sleepy/foggy.
@SaraslivingwithMS
@SaraslivingwithMS 11 ай бұрын
Yes definitely. I am getting off one of them soon and will just be on one seizure med and I hope that helps. Thanks for watching and commenting!!
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