Multiple Sclerosis Symptom Video: MS Fatigue Management

Рет қаралды 11,998

Күн бұрын

In this video, I discuss management of the most common and often most debilitating multiple sclerosis symptoms. Watch this Multiple Sclerosis Symptom video to up your game on MS fatigue management!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! MS Fatigue Management I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys! MS Fatigue Management

Пікірлер: 85

@philippaellis3253 Жыл бұрын

Thank you for your really helpful video. Fatigue is the main difficult issue with my MS, even more than being wobbly on my feet sometimes. Mostly because it's invisible to everyone, including me. Great guidance and advice from you helps me to look differently at my fatigue. Better than trying to 'sleep it off' ,which never works, simply generating more feelings of exhaustion

@AaronBosterMD Жыл бұрын

Glad it was helpful!

@rcassia Жыл бұрын

MS doctors should change the name of fatigue, because everybody think they have fatigue. MS fatigue is not feeling tired, it is way more serious and dificult than that. It's debilitating, it's the worst MS symptom to me too. 😒

@brendaanneckelsamgc5583 Жыл бұрын

I use fatigue for fibromyalgia I use lassitude for MS "I so need a nap" vs "Need Bed Now" I'd lived with fibro for over a decade when MS showed up. The two symptoms are not even close.

@rcassia Жыл бұрын

@@brendaanneckelsamgc5583 hi which one is worse? God bless us. 🙏

@brendaanneckelsamgc5583 Жыл бұрын

@Rita The fatigue of fibro is harder to emotionally overcome because it is relentless AND always accompanied by pain. Pain & fatigue exist in a symbiotic relationship, both feed each other, on your cognition, your emotions, and every single neuron, synapse, and nerve ending. Multiple Sclerosis lassitude is worse because of the severity and unpredictability, the sheer 911 level life threatening risk you will be unable to stay upright, to apply brakes & pull over, to even retain conciousness, AND the danger of falls, bruises, concussions as one loses the battle against it. With fibro, the only way I had a chance to survive, do build any kind of life worth living, was by accepting that save when I'm under anesthesia, multifocal whole body pain & varying levels of fatigue were going to be my lifelong closest companions - warning me of that papercut or failing pancreas - and lifelong demons causing the psychic volume of each to be obscenely amplified. But it has been MS lassitude attacks that have largely required me to often not just need my wheelchair, but to need the 5 point harness, the custom molded seat & back, the headrest. I've been incredibly lucky that I have had many periods since 2005 that my pain was controlled, my lesions grey & inactive, and the various supports, treatments, equipment, & thérapies available so I could get as strong as possible so the next "lost bank statement" at the #NHDHHS, episode of domestic violence related trauma, bacterial infection, or plague didn't hit me like a hurricane storm surge and obliterate me. I use an Android app, Manage My Pain, to chart the types of pain sensations, the location of those pain symptoms, and the individual & overall severity of my pain. It has a customizable drop down menu for "What else was going on?" where I indicate if I feel "abled" fatigue from too much work, fibro fatigue, the typical fatigue & heaviness from overuse, injury, fever, etc, and the MS lassitude that knocks me out. The company that makes the app has been helping me customize some of the data points. It's a project I have to squeeze in between work, family caregiving, doing 30-38hrs most weeks of my hubby's home care aide tasks, and at least an attempt to do my own self care, wheelchair repairs, etc. Check r/dataisbeautiful in Fall of 2024. By then I might have the data my providers, past nurses, and I have collected into an actual research study with 20 years of graphs on the varieties of acute and chronic fatigue & lassitude from my particular DX list! Thank you if you read this far. Please register for November's election, and support those candidates who believe that #paincontrol, #chronicfatigue, and severe lassitude treatment & supports are a #humanright! ComplexSpoonie

@berliancahyadi279 8 ай бұрын

It's more like neuro-fatigue than normal fatigue (work until late night, exercise too much). I know how you are feeling because i have it too from my TBI.

@tinksspixiedust 7 ай бұрын

@@brendaanneckelsamgc5583I use those two terms for those two diseases, too.

@ope4r540 Жыл бұрын

I was saddled with the most horrible fatigue when my MS became active. It felt like heavy wet towels were thrown on me in a matter of seconds. I would find myself wanting to “rest,” but that meant just falling asleep for a few hours. I tried two different medications, and the first was better than the second. But my fatigue would still present itself enough to affect my energy. When my medication was changed the 3rd time to Ocrevus, I definitely noticed a difference after my first night of full sleep. My get-up and go was back! I could function a whole day without feeling an iota of tiredness till early evening. I’m glad to report I’m back to work. My deficits are minimal so I can function without feeling inadequate over my output. Talk to your neurologist about your medication options so the one you pick is addressing this horrible symptom. My best to you all for better days.

@grinch4567 Жыл бұрын

Thank you again Dr Boster! Fatigue - and particularly cognitive fatigue - is my most troubling MS symptom, so videos like this one are especially valuable 👍🙂

@donnabolt5847 Жыл бұрын

Fatigue IS a monster!! It's what causes me to be on sideline of my own life. Great video Doc! I saw you mentioned sleep apnea- I had no idea ms can cause central sleep apnea. It's different than obstructive sleep apnea. Might be good video topic because no one in my support knew either when I told them I have a sleep test consult in September. My Dr thinks I might have it because of a huge lesion on my pons! Have a great week Dr B! 😀

@desiredecove5815 Жыл бұрын

Fatigue needs to go out the window- “ain’t nobody got time for that!” Great tips Doc- I’ve done these tips over the years with direction of my wonderful neurologist- I am less fatigued- more energy- tho n the end days of Mavenclad. I still see a large difference between prior to changing my lifestyle factors that you’ve mentioned. #Sharingiscaring - we have to fight for ourselves- to have the best quality of life we can have. 💪🏻🤘🏻❤️ glad you mentioned that - not everything is MS- other conditions can contribute. - ooooh very anti polypharmacy! Great video with awesome tips. Rock on 🤘🏻

@AaronBosterMD Жыл бұрын

#StrongerTogether #WeHaveMS BosterMS.com

@nicolerain3127 Жыл бұрын

These videos are always sooo very helpful. Thank you so much Dr. Boster, you are very appreciated!!!!

@lemonpeelangelfish Жыл бұрын

Thank you Dr Boster - awesome tips to help manage a really common and really impactful MS symptom. 🔥🔥🔥🔥🔥

@DrBrandonBeaber Жыл бұрын

Nice video. I would also consider a sleep study in someone with snoring, fatigue early in the morning, or other stigmata of sleep apnea.

@bradbowden4796 Жыл бұрын

Brilliant yet again Dr B!! Brad Collie, Western Australia

@greglivesey1734 Жыл бұрын

I suffer from brutal fatigue and depression. My ms neurologist asked if I was fatigued due to my depression or depressed because of my fatigue. I thought this was a great question. I had always been very active before ms and am really only good for about 1 hour in the morning then maybe an hour in the afternoon now and that was depressing me terribly. I prescribed Modafinil for fatigue it worked and ultimately has helped with the depression too. Not a fix all but really see improvement. Thanks for the timely video. I really appreciate the time you dedicate to your video program.

@henp99 Жыл бұрын

Doctor you are such a giant of multiple sclerosis that I have you as a mix in my KZfaq feed!!

@Martin72ism Жыл бұрын

Good morning Dr.. Thank you talking about this, I fight fatigue daily.

@EvenSoItIsWell Жыл бұрын

Thanks so much Dr. Boster! I love that you look at diet and lifestyle changes we can make to improve our symptoms along with pharmaceuticals.

@kitshrapnel8548 Жыл бұрын

Great info as always. 👋 & respect from the UK🇬🇧

@landracriswell437 11 ай бұрын

Thank you so much for these information videos 🙏

@AaronBosterMD 11 ай бұрын

You are so welcome!

@dishast Жыл бұрын

Really appreciate all you do for MS patients to understand this disease more, every topic you discuss is greatly simple to understand. Hugs from Panama 🇵🇦

@SmileyTheAxolotl Жыл бұрын

Thank you for the video! Lots of good info here! I'm glad you mentioned the roles other meds can play. I take Triptans for migraines and the following day my fatigue level is off the charts and my legs are TRASH. MS fatigue/migraines/Triptans = an unpleasant fatigue trio. Looking forward to your next video!

@xtrodinary3618 Жыл бұрын

Thank you! I have to "up my MS game" for sure.

@kylegarrett33 Жыл бұрын

Love the videos Dr. Boster. You're the best!

@AaronBosterMD Жыл бұрын

Wow, thanks!

@MrMattKingmonkey 6 ай бұрын

You are one of the best Doc Aaron. 💙 Thanks for all your videos and everything else you do. This journey would be a lot more confusing without you.

@blakelee9940 Жыл бұрын

I’m interested to know if you’ve ever seen someone with MS also be diagnosed with RA and or Lupus. I feel like my fatigue has always been hard to deal with but since my PPMS diagnosis it has been noticeably worse. Thank you for all the information you have answered so many questions for me that my numerologist couldn’t quite explain to me!

@emmabrooker166 Жыл бұрын

Great reminders 👍🏻

@AaronBosterMD Жыл бұрын

Thanks for watching!

@marktedsen1536 Жыл бұрын

Thank you Dr. Boster. Fatigue has been an issue for me and your videos have brought understanding to much of what I have been dealing with. Today is a big day for me, I have a follow up appointment with my neurologist to go over CSF results as well as my Thoracic spine MRI. I have a feeling I will finally have some answers as to what this is I have been dealing with for the past year. Thanks again

@verafreebourn9152 Жыл бұрын

Good Morning Dr. Boster. Thank you for this video in particular. Yesterday was the absolute worst day in regards to fatigue. Your video reminded me of the the thing (s) I may have gotten away from some good habits. However, upon rising this morning, I do feel much better. Maybe yesterday was a fluke? I will increase H2O especially today and continue on with it. Ok, I need to say, how put together your clothing is, on a Monday morning no less. I look forward to your next video. Have a productive week!

@sammikinney1601 Жыл бұрын

I am always so impressed with your input and your knowledge. You give excellent advice and you're always thinking about every detail of an aspect of MS and how to deal with it on every level. Most of the things that you mentioned in this video that need to be looked at addressed changed and so on in order to help with the massive amount of fatigue that a person with Ms has to deal with. And since I do totally follow this advice and have for a long time and have looked at every aspect of my life from the sleep to the diet to the whole thing got it all in order and as far as I'm concerned right this moment with MS this is the healthiest I could possibly be and yet. This is another kind of a situation in my head I think of it like childbirth. If you ain't been there and you ain't done that you seriously don't have any idea what this feels like. Even when you're promoting so much attention to trying to prevent it or help it. So I think my only real thought when I got done watching all this was the old adage until you've walked a mile in my shoes you can't possibly know what this feels like.

@dr.froghopper6711 Жыл бұрын

I was given Armodafinil for fatigue. I had a very rare reaction to it that caused sores in my mouth, a massive rash on my back and made me very sick. That ended that! Depression is a beast! I need a doctor that cares because I’m dealing with all of these.

@aluna_m888 Жыл бұрын

Amazing… thank you so much. You are such a blessing to guide us the way you do. I learn things every time I watch one of your videos and that prepares me to when I visit my neurologist. Somehow if I don’t ask, they don’t tell and if I don’t know, how can I ask for help.

@kaym9882 Жыл бұрын

Thankfully, exhaustion isnt much of an issue for me. Thanks for all the good advice 😎

@ctjmaughs 7 ай бұрын

Definitely need those attention and speed pills to stay awake.

@breeannsternberg131 Жыл бұрын

Always say my fatigue is like walking through quicksand everyday and then using your entire mental capacity to figure out how to get out of the quick sand and you can’t just sleep or you’ll drown in the quicksand. I take long term Ridalin as needed so I can complete work, I drink coffee, but I work a desk job, so I also run, cross train, and care for 3 children and 4 pets (dogs and cats). It’s so hard because I was injured and couldn’t run for a year and feel more tired then ever. I take no other meds other than ridilan (as needed only).

@courtneycarone Жыл бұрын

Thanks

@AaronBosterMD Жыл бұрын

Welcome

@ctjmaughs 7 ай бұрын

Definitely staying hydrated makes a diifference. Don't know about diet though. Already have a balanced diet. May need more protien.

@xtrodinary3618 Жыл бұрын

Thanks!

@AaronBosterMD Жыл бұрын

Thank YOU!

@hilarykerr8912 Жыл бұрын

👍👍👍👍👍thanks Aaron 👍👍👍👍👍

@RonaldBeirouti Жыл бұрын

I've been followed with a sleep specialist for several months to improve sleep, manage the sleep challenges I have. This is a psychologist armed with CBT-I or Cognitive Behavioral Therapy for Insomnia. Let's say that I now can sleep 80% of my nights and wake up rested. Fatigue is now managed because of this and a new DMT that is more effective. I also have other boxes checked like exercising regularily, very good nutrition with almost zero processed foods, bladder medication not to wake up too often at night for the bathroom. I've gone from not working to being back to work and feeling productive.

@t3dd18 Жыл бұрын

Hi Aaron, hope all is well. Didn't catch you in a live for some time :( Thank you for all your videos :D

@AaronBosterMD Жыл бұрын

hope to see you soon!

@cherylvl1036 Жыл бұрын

The next livestream is Wednesday, August 24th at 6:30pm EST

@lemonpeelangelfish Жыл бұрын

Hi there, Dr. Boster’s August MS KZfaq LIVE STREAM Wednesday, August 24th at 6:30pm EST. See you there 😁

@mpulnteeth Жыл бұрын

Just looking at my meds to see what I can get rid of.

@lindseymcmullen-vickers4257 Жыл бұрын

Dr B, what are you’ve views on autonomnic blood pressure problem s and the best way to treat it. I have this and my consultant is at a loss. UK.

@JC-qr6fc Жыл бұрын

Any advice for cleaning up your food intake on a very restricted budget? I pretty much scavenge my kids leftovers and I’m very anemic that I can’t seem to improve.

@GrandmaSally Жыл бұрын

It's true , when I stopped my Sodas and exercised a little more gave me a little more energy.

@athenasheffield2836 Жыл бұрын

Thank you for this video as I stay exhausted all day and yet I can't sleep at night. On another note, I've been dizzy for 170 days and was diagnosed with peripheral vertigo. I've had IV steroids twice (the second time was without my consent become I was in the hospital and apparently was really out of it. Once I came to, I immediately stopped the IV treatment because of a weird effect the first round had on me.) I've done vestibular therapy, had a VNG test, saw an ENT, switched neurologists, etc., etc. My current neuro prescribed Wellbutrin (sp?) and actually had 10 days where I wasn't dizzy, but I did feel like my head was stuffed full of cotton balls. Any suggestions???

@rosebenton1126 Жыл бұрын

I work as a bus driver and classroom assistant for a before and after school program. I take the time between runs to try and recharge so I can do the longer shift in the afternoon. Some days I can still barely make it through the day.

@waynesalvador9925 10 ай бұрын

I wish you covered the type of DMD /meds taken and their impact on fatigue. I took tecfidera and had normal levels of energy and was changed to Aubagio after minor skin cancer and it has done nothing or worsen my fatigue. My neurologist has no answers and to me this is unacceptable. I wish you would report tge list of DMD's and their patients reported impact positive or negative on fatigue.

@andrewreisinger6860 Жыл бұрын

My guess is that obstructive sleep apnea goes untreated many times in the setting of MS. Apnea occurs at a higher rate in MS patients. My CPAP is a godsend. I can't sleep without it, and take it with me on vacations as well.

@debbieolsen7399 21 күн бұрын

With fatigue I feel tired all the time when I sleep at my back play up plus I feel heavy nor stop

@visionsmagazineonlin 3 ай бұрын

My primary doc ignored my plea for help with fatigue. It enhances my bone on bone knee n flat arthritic foot pain n shin splints. Barely made it up my steps to my apt. 2 canes after working two 12 hr shifts.

@kelliebutler24th Жыл бұрын

Is it common for people with MS to get car sick easily

@theresau1070 Жыл бұрын

I get car sick all the time too! And my fatigue is brutal.

@nicholegrimes5358 Жыл бұрын

I was on concerta before I was dx with MS but my psychiatrist left the practice and I wasn't comfortable with the new Dr. I have recently stopped my concerta and it's kicking my butt 😵‍💫 my neurologist won't rx it because she wants me in behavioral medicine

@danielfoster4223 Жыл бұрын

I have ppms Ido not take any ms medication. Ocrevus has been described to me as a bandade. Iwish Icould get an appointment with you . Ifeel like I am disapearing.

@Veestar88 Жыл бұрын

I stumbled (ha) on your channel last week and I’ve been plowing through your vids! I have a question: I was recently diagnosed w RRMS and I’m waiting for my first appt w the MS clinic. What should I expect for my first visit? I’ve been putting together a timeline of my symptoms, would that be helpful to bring? Anything else I should prepare ahead of time?

@AaronBosterMD Жыл бұрын

kzfaq.info/get/bejne/hNWKh9V_prSlZnU.html

@mickikindley7821 24 күн бұрын

I was given modanifil I haven’t taken it yet . I’m afraid

@cardiomegaly5658 Жыл бұрын

In your previous video - a bad day vs. an attack - How can we tell the difference between the leaky pool syndrome vs an attack?

@kevincolwell3066 Жыл бұрын

I have had ms for about 6 years about 2 years ago things got a lot worse for me my fatigue went from have 6-9 hours of energy to about 1-3 hours. At the same time I started having cluster headaches (at the start less then 1 month now a little more then 1 a week). Also meany of my other symptoms got worse including balance. It truly sucks how all the symptoms are make each other worse (not trusting my walking makes it so I don’t walk as much, witch makes me not exercise as much witch makes me not sleep as-well). How do you do you break these kind of loops?

@narutokun9127 Жыл бұрын

On top I have an MS I have lymphedema. I am untreated with pain medicine but feel like I really need something to help me. I feel like if I had something to help with the pain I would be more active because I wouldn't be in pain.

@violentshemp7776 6 ай бұрын

very frustrating to those who do not have MS and say they are tired. They have not a clue what tired is.

@jeremiahwilliams3431 Жыл бұрын

I’m curious of how SeaMoss, Black Seed Oil, in addition to healthy eating and regular workouts, can affect my health and MS. I’ve been diagnosed, April 2021.

@user-kt4yb5gb7o 8 ай бұрын

I'm fulling disabled

@uzer-95 Жыл бұрын

Doctor, проверьте своих пациентов на усталость надпочечников. Когда они получали осложнения, надпочечники страдали от сумасшедшей выработки кортизола и устали, так же как при сахарном диабете организм сломался и не видит инсулин....Подумайте об этом. При MD часто бывает, что силы появляются вечером. А вот что делать, я пока незнаю. Удачи🙋

@2500gamma Жыл бұрын

My NHS neurologist told me that fatigue isn't a symptom of MS!

@ctjmaughs 7 ай бұрын

Don't want raise my pressure anymore

@komoonkh Жыл бұрын

Polypharmacy sucks. It is very contraproductive, some meds cancel each other. Doctors should take more attention to this. Thank god my neurologists actually care.

@rx6389 Жыл бұрын

🔥🔥🌄🔥🔥

@Florida-is-my-home Ай бұрын

I use medical marijuana for sleep. You must use the indica strains. I eat mostly organic food. When I eat junk, it definitely impacts how I feel. I can still walk, so that is the majority of my exercise. I have Hashimoto’s thyroiditis which I’m also treating.

@xtrodinary3618 Жыл бұрын

Thanks!

@AaronBosterMD Жыл бұрын

OMG Thank You! #wow!