Myelodysplastic syndromes - causes, symptoms, diagnosis, treatment, pathology

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Osmosis from Elsevier

Osmosis from Elsevier

Күн бұрын

What are myelodysplastic syndromes? Myelodysplastic syndromes, or MDS, are a group of rare blood disorders associated with faulty development of blood cells in the bone marrow. Find our full video library only on Osmosis: osms.it/more.
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Пікірлер: 121
@LittleCobra
@LittleCobra 2 жыл бұрын
This year has been so hard on my family. My 27 year old twin sister was recently diagnosed with ovarian cancer and now my mother has just been diagnosed with myelodysplastic syndrome multilineage dysplasia. My heart is completely broken, please keep my family in your prayers 🙏
@osmosis
@osmosis 2 жыл бұрын
We will! Thanks for sharing! ❤️
@salmawani1456
@salmawani1456 2 жыл бұрын
🙏🙏
@sherri.
@sherri. 4 жыл бұрын
My mother had MDS and lived with all the symptoms and blood transfusions for about 10 years. She was a trooper.
@m14monroe
@m14monroe 4 жыл бұрын
your comment gives me hope. my mom just got diagnosed over thanksgiving. it sounds bad from what the doctors told her, her platelets are the worst followed by red blood cell. white blood cell seems ok. not sure what the future holds but i'm hoping to have her around a bit longer.
@sherin7498
@sherin7498 3 жыл бұрын
Even my mom is diagnosed with MDS
@scott5107
@scott5107 3 жыл бұрын
Wow she was a true bad ass. I had to have several months of transfusions and it was rough! Didn't know how long I could keep living on other people's blood. Doing way better now....incredible caring Dr's and loving friends & family saved me.
@sherri.
@sherri. 3 жыл бұрын
@@scott5107 Wonderful that you're feeling so much better now. Hope it continues!
@scott5107
@scott5107 3 жыл бұрын
Sherri thank you!🙏
@wem3121
@wem3121 4 жыл бұрын
I just shared your videos with my classmates in Facebook since we recently started hematology and now you're sharing these syndromes with us. I can't even begin to thank you for all of your effort.
@paulfrost6901
@paulfrost6901 26 күн бұрын
This helps me understand better, my son passed on from having this condition which could not be cured, he was 27 going on 28 this year
@muhammadrabiumusa8390
@muhammadrabiumusa8390 4 жыл бұрын
Another high quality content, kudos to osmosis team!
@TiagonYoutub
@TiagonYoutub 2 жыл бұрын
Best presentation I've ever seen on this topic. Thank you so much!! :) It helped me immensely to get the studying on MDS started.
@osmosis
@osmosis 2 жыл бұрын
Glad it was helpful, Tiago! Best of luck with your studies! 😊
@anvayajadhav9766
@anvayajadhav9766 4 жыл бұрын
Amazing videos! I really love osmosis videos ,they are really helpful!
@sahandsoltani6094
@sahandsoltani6094 Жыл бұрын
It explains the topic in the most general way
@MeshaL_Alharbi_9x9
@MeshaL_Alharbi_9x9 4 жыл бұрын
Wow this is an awesome summarize
@marksimpson5767
@marksimpson5767 2 жыл бұрын
Very informative. Thank you.
@olamideoludoju
@olamideoludoju 6 ай бұрын
I love her voice. She sounds very assertive.
@Holistic.hormones.pharmacist
@Holistic.hormones.pharmacist 3 жыл бұрын
great video thank you so much for explaining it so well and making it easy to follow and understand!
@osmosis
@osmosis 3 жыл бұрын
Thanks for sharing! We're glad you found it easy to follow and understand!
@sunayanak5438
@sunayanak5438 13 күн бұрын
Excellent video, can you make video on treatment as well. It would be really helpful
@bhaskarbhattacharjee4018
@bhaskarbhattacharjee4018 3 жыл бұрын
Very nice presentation
@maeve1787
@maeve1787 3 жыл бұрын
thanks a lot!
@johnny.3693
@johnny.3693 3 ай бұрын
This is one of the best videos I have seen regarding MDS. Thank you very much.
@osmosis
@osmosis 3 ай бұрын
You're very welcome! 🥰
@hemantibhosale2227
@hemantibhosale2227 4 жыл бұрын
Please make a video on severe combined immunodeficiencies
@raynancy1
@raynancy1 3 жыл бұрын
Wow. Thanks for sharing
@howphancy
@howphancy 11 ай бұрын
This is a great video! Well presented information and narrator! Well done 👍👍
@osmosis
@osmosis 11 ай бұрын
Thank you so much! 😀
@sadeeprajapaksha7278
@sadeeprajapaksha7278 3 жыл бұрын
Short and sweet
@asifnoshiniyana
@asifnoshiniyana 4 жыл бұрын
Excellent
@gojosatoru805
@gojosatoru805 2 жыл бұрын
My grandpa has been diagnosed with MDS-EB1, I would like to know more about it.
@johnny.3693
@johnny.3693 4 ай бұрын
Thank you so much for explaining in easy to follow and in simple terms.
@osmosis
@osmosis 4 ай бұрын
We appreciate the feedback 💕
@tafusmurielle298
@tafusmurielle298 2 жыл бұрын
This was so great, thanks.
@osmosis
@osmosis 2 жыл бұрын
Glad you enjoyed it!
@SantyBoyMX
@SantyBoyMX 2 жыл бұрын
I've been diagnosed with unclassified mds 2 years ago, i've had 21 blood transfusions with no iron build-up and 6 bone marrow aspirates, i'm now on list for a bone marrow transplant in mexico
@britishlonghorn6815
@britishlonghorn6815 Жыл бұрын
How are you doing now, Champ?
@SantyBoyMX
@SantyBoyMX Жыл бұрын
@@britishlonghorn6815 i am now at 70 blood bags and massive iron overload, but i'm fighting like hell, and according to my blood tests and other medicines i'm taking, i'm apparently winning c:
@fayhaalmutairi6486
@fayhaalmutairi6486 3 ай бұрын
@@SantyBoyMXcan I ask you what the medication you were starting .? My father has Secondary MSD I am really scared if the medication that he take is enough or not / give me the medical plan for your treatment thank you I hope you will be fine ❤
@SantyBoyMX
@SantyBoyMX 3 ай бұрын
@@fayhaalmutairi6486 see that's the thing, i'm in no meds since my blood counts are highly variable, one time i can be really fine and next thing you know my hemoglobin, platelets and leukocytes drop to lethal levels, i've had 7 bone marrow aspirates and my doctors agree it's mds, but can't give me any medication yet because of the high variability rates of my stem cells
@donkuparroymawsor2404
@donkuparroymawsor2404 3 жыл бұрын
My father diagnosed with MDS last year and been given blood transfusion every month...
@JaywinSoh
@JaywinSoh 3 жыл бұрын
Thank you very much to simplify this complicated topic
@osmosis
@osmosis 3 жыл бұрын
Glad to help! 😊
@osmosis
@osmosis 3 жыл бұрын
Glad to help! 😊
@osmosis
@osmosis 3 жыл бұрын
Glad to help! 😊
@jamesbon1
@jamesbon1 2 жыл бұрын
Thank you for this video. Although I thought at first I was intermediate risk (5-10% blast), it turns out that I was high risk. Like your video explains the "Clinical Risk Status" is determined by several factors. My bone marrow biopsy indicates that all 3 cells are affected (trilineage) and there are 2 chromosomes missing in my genetic code. I begin Azacitidine next week and then hope for a perfect bone marrow match down the road. I signed up for a clinical study introducing Magrolimab in combo w/ Azacitidine. I pray I respond well.
@osmosis
@osmosis 2 жыл бұрын
Hi James! Thanks for sharing! Glad you like our video. Keeping you in our thoughts. 🙏🏼
@abdelwadoudstelzer8863
@abdelwadoudstelzer8863 2 жыл бұрын
Hey, how's it going so far? I pray it goes well for you.
@jamesbon1
@jamesbon1 2 жыл бұрын
@@abdelwadoudstelzer8863 Thank you. It has gone well. I've been receiving the combination of the 2 chemos to keep the MDS at bay. I've done 4 cycles. Of course, a few bumps in the road, but hey we found 3 matches in Europe. I hope to be hospitalized by mid March for the transplant. God willing.
@musicsymphony1461
@musicsymphony1461 Жыл бұрын
@@jamesbon1 hey !How are you doing ?
@jamesbon1
@jamesbon1 Жыл бұрын
@@musicsymphony1461 I'm still kickin'. Sadly, none of my siblings were a good match. So, I received the bone marrow from a non related 9/10 match. She is a 19yo in Europe. Woohoo! I won't have her details until a year past the transplant...May 2023. I'd like to somehow thank her in person. My numbers are great. So far, no rejection. Thank God. My next bone marrow biopsy will be in April. We'll see..
@sreejithmg9101
@sreejithmg9101 3 жыл бұрын
thank u
@emanmohammed1326
@emanmohammed1326 2 ай бұрын
Thank you very much for this great video
@osmosis
@osmosis 2 ай бұрын
Most welcome! 🙏🏼
@hamdimohamed5025
@hamdimohamed5025 Жыл бұрын
thanks alot best explanition dear i really understood thanks more
@osmosis
@osmosis Жыл бұрын
Our pleasure! 🤓⚡️ 🙌🏼
@Anti-leftist7777
@Anti-leftist7777 8 ай бұрын
I was just diagnosed with MDS, my portal has the results but I don’t see my doctor for another 10 days. I am currently 15% blasts. Do the blasts increase over time and if so is there a way to stop the progression and what’s the treatment for doing so? Thanks so much!
@user-me1fd8gm1c
@user-me1fd8gm1c 4 ай бұрын
Great explain ...thank you....🎉
@osmosis
@osmosis 4 ай бұрын
You are welcome! 🙏🏼
@caesarahad7706
@caesarahad7706 4 жыл бұрын
Great
@dryasmin2540
@dryasmin2540 2 жыл бұрын
good
@waqasawan4771
@waqasawan4771 Жыл бұрын
Thanks osmosis
@osmosis
@osmosis Жыл бұрын
Any time, Waqas! 💫
@KYESTV
@KYESTV Жыл бұрын
As a youngster growing up in St. Louis, Missouri, my home was dusted with Utah atomic test radioactive fallout. I collected some. "What" I thought, "this powder doesn't hurt me." I felt nothing, so I thought it couldn't be harmful. WRONG. Decades can pass from exposure to radioactivity and radiation exposure health effects. In my case? Most of my life. I had no clue. In fact long delayed response to exposure to radioactivity has just been recognised by a few medical experts.
@howphancy
@howphancy 11 ай бұрын
Can MDS cause severe Bone Pain??
@Sh3lbz
@Sh3lbz 3 жыл бұрын
My sister has this. She is 20!!
@scott5107
@scott5107 3 жыл бұрын
Much love to your sister. Tell her to STAY strong! She can beat it!
@a01223772
@a01223772 3 жыл бұрын
I'm 26 and was diagnosed with this about a year ago. Been doing good :D Do you think that it would be helpful if we somehow create a community where we can share our treatment or progress? Stay strong, this is nothing we can't beat :)
@helemganteng9560
@helemganteng9560 2 жыл бұрын
@@a01223772 are u ok rn? I hope u will be okay...
@rajeshwarpaulgaming3338
@rajeshwarpaulgaming3338 Жыл бұрын
​@@a01223772 i am also diagnosed with mds recently... Now depended on blood transfusion... I am 28. Can you please suggest me the best treatment for this diaease
@amandaburger3312
@amandaburger3312 3 жыл бұрын
My dad has this cancer. Cancer in the bone marrow. His cancer can could form in liekuma..
@Billguz978
@Billguz978 2 жыл бұрын
The best treatment is imetelstat (Remissions )
@rajeshwarpaulgaming3338
@rajeshwarpaulgaming3338 Жыл бұрын
Can you please elaborate...
@marksimpson5767
@marksimpson5767 2 жыл бұрын
I have MDS with, my platelets are extremely low, virtually no white blood cells. And half of my Red Blood cell count. Mine was caused by pill form chemotherapy for my ulcerative colitis.
@helemganteng9560
@helemganteng9560 2 жыл бұрын
I hope you'll be okay, cheer up! ❤
@sonyafly
@sonyafly 2 жыл бұрын
Wow so sorry to hear that.
@jackbartlett5460
@jackbartlett5460 Жыл бұрын
The same thing happened to me. I've been in treatment since Feb. 2019. Still up and about! Hang in there!
@tonyaquilina7709
@tonyaquilina7709 2 жыл бұрын
Can you get shoulder pain in the joint With mds
@davidgleeson1716
@davidgleeson1716 6 ай бұрын
I was diagnosed with high grade MDS 3 months ago. I struggle with shoulder pain. I take Tylenol daily. It helps a little.
@hamdimohamed5025
@hamdimohamed5025 Жыл бұрын
thanks alot dear
@osmosis
@osmosis Жыл бұрын
Most welcome, Hamdi! 😊
@afahud7
@afahud7 4 жыл бұрын
Just a couple of hours ago we lost an 80 year old DNAR patient with MDS and AKI on CKD due to Pulmonary edema in the ER :/
@tonyaquilina7709
@tonyaquilina7709 6 ай бұрын
With myloplastic does anyone get pains in there feet .knees .going dizzy.
@sargonofakkad860
@sargonofakkad860 Жыл бұрын
My mother passed away yesterday due to chemo induced MDS, she had cancer thrice before this
@osmosis
@osmosis Жыл бұрын
We're sorry for your loss 🙏🏼
@howphancy
@howphancy 11 ай бұрын
Is there any evidence that MDS is hereditary/genetic?? My paternal grandfather had MDS (supposedly from radiation). And now i have severe bone pain, rapid weight loss (15lbs in a month), night sweats for 3 months, low appetite, etc. My dr is now ordering more tests. Im female , 45 yrs old
@hd-is5ru
@hd-is5ru 11 ай бұрын
Guys pls let me know if mds progresses in 2 weeks? My husband had his bone marrow biopsy done twice but it nothing was found, but his symptoms were related to mds is what doctors are saying. Pls help me guys pls pls plss
@ronoconnor8971
@ronoconnor8971 7 ай бұрын
Ive had it for about six years. I get cbc blood tests weekly and procrit injections. The blood draws let the mds clinic know my dosage of procrit which changes every few months, sometimes I skip injections when told to. Im weak and dizzy but alive
@Downintheforest319
@Downintheforest319 3 жыл бұрын
My dad passed away from this year
@helemganteng9560
@helemganteng9560 2 жыл бұрын
My bf also passed away 5 days ago because of this 😭
@frank34450
@frank34450 3 жыл бұрын
40%-50% chance it turns in leukemia.. I was told you have a 4% chance over your life time it could turn into leukemia???? Someone help me on this bc I just got diagnosed with PV
@_captainmagic
@_captainmagic 3 жыл бұрын
My dad died from this earlier this year. I'm still trying to understand what this cancer is.
@helemganteng9560
@helemganteng9560 2 жыл бұрын
My bf passed away from this too 😞😢
@_captainmagic
@_captainmagic 2 жыл бұрын
@@helemganteng9560 my condolences
@helemganteng9560
@helemganteng9560 2 жыл бұрын
@@_captainmagic yeah it happened on 03 september 2021 😢 a week a go 😭... Thank you.. 😭 Can i ask u question?
@_captainmagic
@_captainmagic 2 жыл бұрын
@@helemganteng9560 Go ahead and best of luck with your grief journey, the beginning is tough
@helemganteng9560
@helemganteng9560 2 жыл бұрын
@@_captainmagic First of all, im sorry if my english so bad and perhaps u cant understand what im saying 😞🙏 Since he passed away, i always have desire to kill my self... Its like i keep hurting my self i know its wrong, but i cant hold it anymore and i still cant believe that he passed away 😭😭😭 i keep talking to his photo tell all of my daily activities. Before he passed away, we always telling each other about our daily activities, so me and him always knowing what our daily activities in every single day. And if i remember that hes already gone, suddenly i crying again all day all night long 😭 thats make my tears wont come out anymore just because i always crying 😭😭😭 i really wanna suicide coz i think he will feel alone there and if im with him he wont feel lonely anymore. And also i have no reason to life again. I live with my family but they just suck and not helping me through this 🙂 My question is how do you heal your self from this? Its hard for me i mean really really hard help me 😭😭😭
@livingyourbestlife711
@livingyourbestlife711 Жыл бұрын
my older brother recently died due to MDS!
@howphancy
@howphancy 11 ай бұрын
So sorry for your loss. How old was your brother? 😢
@livingyourbestlife711
@livingyourbestlife711 11 ай бұрын
@@howphancy 72 years with no previous medical history. Within 3 month of diagnosis died. Actually went to the hospital in the DFW area for a blood transfusion,and was planning on firing his oncologist on Monday was admitted to hospital for an infection and by Friday afternoon was dead! Never got to fire the oncologist.
@howphancy
@howphancy 11 ай бұрын
@@livingyourbestlife711 😢🫂 I lost my brother too (motorcycle accident) I can feel your pain. So sorry.
@evansibeh7268
@evansibeh7268 4 жыл бұрын
Second!
@thelegendtl
@thelegendtl 4 жыл бұрын
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