Nicole Ferguson- A Trigeminal Neuralgia Story

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Nicole Ferguson- A Trigeminal Neuralgia Story

Рет қаралды 8,203

Facial Pain Research Foundation

Жыл бұрын

Meet Nicole Ferguson and her wonderful family, as they explain what life is like for them as Nicole fights TN.

Пікірлер: 83

@ronaldkrikorian4712 9 ай бұрын

Believe it or not I was suicidal because when a normal person wakes up in the morning they say what am I going to do today! When you have glossophyngeal or trigemenial neuralgia you wake up and say how much pain will I endure today! I never believed that the Lord answers prayers! How can he? He’s up there and I’m down here! A miracle happened in my life that saved me from death ! My glossophyngeal neuralgia is gone because I prayed with 3 prayer lines on my phone and within 2 hrs GOD answered my prayers again! I now believe that the Lord answers prayers because he answered mine! I’m no longer suicidal! PRAISE GOD!

@fallout2104 Жыл бұрын

I cry every day. It is so tiring. And I pray. Why is this happening to me?

@ronaldkrikorian4712 9 ай бұрын

How are you doing today?

@user-bs1wg9dt1y 9 ай бұрын

I understand what you’re going through and I’m so so sorry for your pain 💔 I’m sitting in my bed crying right now, feeling so alone. Suffering like this is a very lonely place to be, even if you’re surrounded by people that love you. I want to tell you, do not give up. Hang in there with me.

@ronaldkrikorian4712 9 ай бұрын

@@user-bs1wg9dt1y Where are you from?

@nicolefergusonU2 5 ай бұрын

@@user-bs1wg9dt1y I am here.

@bem6344 2 ай бұрын

I'm sorry for your pain.I will pray for you After constant cries and referrals to neurologists, God healed my pain.Prayer is powerful

@skwarz2422 4 ай бұрын

The pain is so big that nobody cant even imagine how it feels like...Cant put it into words..

@briannahansen7680 8 ай бұрын

I have this horrible disorder too and have for over 20 years. I understand everything she talked about it here and often feel so alone in this.

@hustlemami8732 Жыл бұрын

I'm so sorry Nicole. I completely understand I'm 34 and I want out. I AM GOING TO FIND A CURE. WE DONT DESERVE THIS. WE DESERVE TO LIVE and not just existing. I WILL find a cure for us. I'll never stop

@jamesdickson7515 Жыл бұрын

Dr. Spencer/ KZfaq capsaicin treatment worked for me! Godsend

@kiransagar8557 11 ай бұрын

You are great, i am suffering from the same. We do deserve to live. Thanks

@sksksmsksk3714 6 ай бұрын

There is no hope for this

@user-bs1wg9dt1y 9 ай бұрын

One thing that is a silver lining to us struggling with TN, it makes you empathetic towards others. One only needs to read down to the comments on this video to see kindness, gentleness, and empathy. Please, God touch all in this comment section with healing 💔

@shonna79 3 ай бұрын

THIS RIGHT HERE 😢❤

@user-bs1wg9dt1y 3 ай бұрын

@@shonna79 ❤️🤗

@charleneg9016 Жыл бұрын

I was 23 when I was diagnosed I’m 37 now I’m having a massive flare up at the moment it’s so draining. I live alone so life is hard

@ronaldkrikorian4712 9 ай бұрын

How are you doing today?

@marshapigott1445 7 ай бұрын

I'm so sorry about your pain. I've had it since 2015 and now cluster headaches too. I've been having a few rough months but thankfully it's starting to ease off a small bit

@ronaldkrikorian4712 7 ай бұрын

@@marshapigott1445 Did she take her life 6 months ago? Greetings from Australia 🇦🇺

@user-pm1zq1bb6x 4 ай бұрын

I know how hard life is with TR.

@elizondo7693 3 ай бұрын

I was just diagnosed this left side of face a week ago. I got lucky with my doctor first try on diagnosis. I watched these videos and I’m horrified but grateful because the nerve medicine does help at least for now and I pray continues to do so so it makes no sense. I hurt a lot sometimes it sharp electric shock pain sometimes does intense pain, you feel like you’re losing your mind. My jaw half of my tongue, my tooth up by my ear and makes no sense.

@ShiverZZZ666 Жыл бұрын

I'm 20 y.o and I got diagnosed with it today. It started 6 years ago since I was 14 y.o. Nobody was able to know my problem until today. The pain is fatal. Been living with it for 6 years now.

@ronaldkrikorian4712 9 ай бұрын

How are you doing today?

@user-bs1wg9dt1y 9 ай бұрын

From a fellow , I’m so sorry. I don’t know you, but I’m praying for you.

@ShiverZZZ666 9 ай бұрын

@@user-bs1wg9dt1y thx alot ! Let's hang in there 🙏💕

@chelseaobereroberer16 Жыл бұрын

I have had this since I was about 18. I didn’t get a diagnosis until April 2022….I’m 31. I’ve been in the emergency room too many times to count, they probably think I’m a drug addict. Loud noises trigger me too. I got diagnosed with migraines, tmj, and cluster headaches, but nothing ever worked…I got a new neurologist who recognized my symptoms right away, and started me on anticonvulsants….it still has not taken away my pain, but it has lessened it. I haven’t been in the ER since May. I still have like, a baseline of pain every single day but the shocks are less than they were. I hate this f*cking disease

@ronaldkrikorian4712 9 ай бұрын

How are you doing today?

@mindybrenno4429 2 ай бұрын

I live in Platte city just north of Overland Park. Hi! I just got diagnosed by a neurologist at Truman. Thank you for sharing your story. ❤️

@3lfruler Жыл бұрын

That part of saving every medication of one needed a way out. I lost it. I think about it. I don't have fam support or kids. Its so much harder without support. I was diagnosed in Nov 2019.

@ShaleyJean Жыл бұрын

@aubreysnyder338 I just want you to know that I'm thinking of you and you're welcome to drop me a note. I'm so very sorry you have this hideous disease. No one should have zero support trying to deal with it.

@leeeeonie 3 ай бұрын

Hi! If you read this, you are always welcome to message me, we can text or whatever would help ❤

@user-bs1wg9dt1y 9 ай бұрын

Oh God please help the woman in this video! I struggle with this also and I was just diagnosed after 33 years of suffering. It’s so bad that I hit myself in my leg with a hammer to divert my attention away from the pain in my head and neck.

@TheLISANICOLE 2 ай бұрын

I've had this since I was 13 yrs old and have had two surgeries. To this day I have yet let anyone that's been though all I have

@alrightwithms845 3 ай бұрын

Thanks for sharing I have TN due to MS and I’ve just discovered if I walk around or any movement helps me with the lightning pain in my jaw 😢

@jeantootell2670 Жыл бұрын

I understand your pain, I'm sad you have this, I also have it, and like you when it gets really bad I have thought about ending it all, but like you I have people and family who love me, and I think of them and don't want to let them down, but the pain gets soooo bad, thankyou for sharing your story, much love to you all xxx

@helga8736 Жыл бұрын

Lass deinen Kiefer auf Entzündungen untersuchen wurzeltote Zähne könnten das auslösen oder die Weisheitszähne! Lass dein Blut auf Rantes Mercaptan und Thioether untersuchen !

@ronaldkrikorian4712 9 ай бұрын

How are you doing today?

@jeantootell2670 7 ай бұрын

@ronaldkrikorian4712 Hi Ron I am well today thanks, and hope and pray I stay that way, but tn is unpredictable, so who knows what's ahead, but I'm positive, so hope I will stay well, thanks for asking, how are you keeping?

@ronaldkrikorian4712 7 ай бұрын

@@jeantootell2670 I had the sister to trigemenial neuralgia called glossophyngeal neuralgia ! It’s still the suicide disease as well as the worst pain known to mankind! I had it over 2 years ago for 3 months! I told both doctors that I was going to kill myself if it continued! Thank god it gradually went away! 1 month ago it was coming back and I remember over a year ago when I almost died because the surgeon burned my pancreas during surgery I called these prayer lines and within 2 hours the pain completely went away! I never believed God answers prayers but a miracle happened to me a month before my surgery when God actually intervened to save me! My doctor and friends couldn’t believe what happened but the lord definitely knew and saved me from death! I now believe the lord does answer prayers because he answered mine!!!!!

@shonna79 3 ай бұрын

Oh Nicole, oh how I understand. I am 44 and I have 99 conditions. It took way too long to fix me that it's what caused my TN. What I would do to sit down with you, just for awhile. No one understands 😢

@yaraviera4444 Жыл бұрын

My prayers to you Nicole

@rubiassimplelife Жыл бұрын

I have been suffering tn for five years.I take gabapentin,pregabalin.but now its so much painful I cant tolerate.I felt irritation ,pain, swealling left side of my face,head. It’s just like a hell for me. I cant talk,cant talk.nowadays I forget everything.

@alexmolina6948 Жыл бұрын

Bless you I hope you find a permanent cure .

@kikithecrocheter74 Жыл бұрын

I understand your "safety blanket". Fellow TN sufferer.

@cliffpomedli9427 4 ай бұрын

You are not alone I have lived with TN for 38 years, it really robs you and your family of a normal life. Having a bag of meds as a backup is fine, if it helps to get you through the day. Take care

@parishah3551 Жыл бұрын

Hi, thank you, Nicole, for telling your story. My name is Pari Shah, and I'm writing a paper on trigeminal neuralgia. I was wondering if I could include a quotation about TN affecting your family dynamic in my paper. Thank you!

@nicolefergusonU2 5 ай бұрын

Absolutely--take whatever you need.

@acedrylining8607 Ай бұрын

Pulsed Radiofrequency of TN with CT guided imaging… Cure

@deevine1529 9 ай бұрын

Trigeminal neuralgia 5 years. Just had Gamma Knife Oct 26, 2023 at Wake Forest Atrium Health and would love to share my 5 year journey. I also suffered a CSF leak out my nostril and had surgery.

@jeantootell2670 Жыл бұрын

If it helps anyone of you I take amitriptyline, which takes about 3 months sometimes just a few weeks to kick in, but it does work, I've had tn for 15 years and been soo lucky to only have 3 flare ups bad ones, but the last flare up was only due to my doc trying to take me off amitriptyline, please give it a try it might just work for you, xxxx

@christinabrown5499 7 ай бұрын

I also take Amitriptyline for TN. I only take it until it helps it to go away and then I stop. It definitely helps.

@RealmePad-wo3ul 10 күн бұрын

Are your symptoms same 15 years before too?? Like on pain scale 1-10??

@Dreamgirl-xd1sx 9 ай бұрын

Mine is from a tumor. Surgery is too dangerous. Gamma knife didnt work. It is getting worse. I am a caretaker for my elderly mother. I dont know how I can go on.

@leeeeonie 3 ай бұрын

I am so sorry, sending you strength and love ❤

@jamesdickson7515 Жыл бұрын

Nicole, my mom had it first and then I got it 😢 . You have had it a long time ,but Dr. Spencer from Australia can up with a capsaicin treatment. It is/was amazing . Please check out his procedure. It saved me. It breaks my heart seeing people in pain with tnm . Capsaicin oil

@neasenichols9758 6 ай бұрын

I've been struggling through this for 16 years and I need to find relief.

@shonna79 3 ай бұрын

My husband is not as understanding as yours. Matter of fact my health is ruining us. I feel like ive disappointed everyone 😔 I hope you are doing well now ❤

@user-ks9kp6ux2o 9 ай бұрын

Lamotrigine I’ve had cluster headaches for more than seven years now been on many medications that do not work But I’ve been using a medication called lamotrigine for few years now and has helped immensely please talk to your doctor to try it.

@jeantootell2670 Жыл бұрын

I live in the UK, I started off taking 40mg of amitriptyline then slowly tapered down and now have been taking 10mg for more than 10 years, it really might help xx

@jeantootell2670 7 ай бұрын

@user-cw5yr5ew8o Yes, very typical, but the amitriptyline works really well for me, I'm lucky

@jeantootell2670 7 ай бұрын

@user-cw5yr5ew8o Yes I take 1 10ml tablet every evening at 9pm, the trick is to take it at the same time every evening, don't take it 10 min late or early, keep it the same time it really helps

@RealmePad-wo3ul 10 күн бұрын

@@jeantootell2670but did you have neurovascular compression too ?? And was your symptoms same when it started like pain level and frequency??

@jeantootell2670 10 күн бұрын

@RealmePad-wo3ul No I didn't, but you still could try, but the pain was bad before they started working

@RealmePad-wo3ul 10 күн бұрын

@@jeantootell2670 ok but I read that compression case will not get benefited by medicine in long term .

@-growler-2810 Жыл бұрын

God bless you. I've had 2 attacks

@deborawyckoff3509 Жыл бұрын

I have TN since I was 26 I'm now 69 .I have had 2MVD,Ballon and numerous meds I been on. I believe it's hereditary as my 1st cousin had it along with MS. I thought I suffered but she did worse and now she past. Dr have no idea what we go through and our government would think twice if they suffered with it . How long would they go without pain med. Ipray for all of us with this tragic disease. God Bless.

@yaraviera4444 Жыл бұрын

My name is Yara i have occipital neuralgia an trigeminal neuralgia please tell me what's your best neurologist..to what hospital you went my eyesight is almost gone yes i can't stand no light or noise it's getting worse by time

@TheLISANICOLE 2 ай бұрын

Nicole ur video said Orlando park....... ur soooo close to me. I don't know how to leave my info for you but unfortunately I don't trust to leave it here

@edenfloraguerrerojacinto2331 Жыл бұрын

God heals

@user-bs1wg9dt1y 9 ай бұрын

Amen that’s right. I’ve been waiting for for 33 years dealing with this. Just waiting on God. It’s been absolute torment but there have been amazing things happen while I’ve dealt with walking through the darkness.

@ShahanazNoufa 10 ай бұрын

Try upper curvical chiropractic

@less4wireless Жыл бұрын

Has the Neurologist proposed decompression or other options.

@nicolefergusonU2 5 ай бұрын

Not a candidate--it's bilateral and combined with occipital and geniculate neuralgias.

@stephenzies8867 6 ай бұрын

Root Cause = Atlas C1 And Axis C2 Misalignment / Subluxation In The Cervical Spine. From Trama To The Head And Neck . Research : Blair Upper Cervical Correction , NUCCA , Advanced Orthogonal .

@user-zh2pq7tb9t Жыл бұрын

Гамма или кибер нож помогает а хирургический операция ещё лучше избавиться от этой болезни есть ещё РЧД лечение

@edenfloraguerrerojacinto2331 Жыл бұрын

There are medicines now

@charleneg9016 Жыл бұрын

None that I’ve found to work and I’ve tried quite a few

@donnapasquince7788 Жыл бұрын

Get the right Dr but then they don't believe you.....

@TheLISANICOLE 2 ай бұрын

Ok.... there's been medicine for this for over 20yrs. But anything for TN IS only TEMPORARY. There is NO cure... weather it's medication or surgeries. Both are limited. I've been down the path of medication and two micro surgery's .