The GBM Experience

Рет қаралды 6,902

Күн бұрын

Care partners Art Krueger and Kathy Savits join neuro-oncologist Akanksha Sharma, MD, to shine a light on the realities of living with glioblastoma to show patients and care partners that they are not alone in their experience.

Пікірлер: 15

@graceotoole2467 7 ай бұрын

Praying for a cure

@barbararogers197 9 ай бұрын

Thank you for all that you have done to help. My husband was diagnosed 2 months ago and went through surgery 1 month ago and is ow going though radiation, and chemo, and I am so lost and afraid. He has been my life for almost 40 years and I don't know how I am going to deal with this horrible trajedy.

@NationalBrainTumorSociety 9 ай бұрын

Thank you for reaching out, we are sorry to hear about your husband and are here to support you and your family. If you have not had a chance yet, please visit our website for a list of resources and support services that you may find helpful: braintumor.org/support-services/toolkit/patient-and-care-partner-resources/ Additionally, we also offer a Patient Navigator team, which can be reached via email at patientnavigator@braintumor.org. You can also learn more about our Patient Navigator team on our website here: braintumor.org/support-services/personalized-support/ If you have any questions about the resources that we shared above or if we can be of additional assistance, please do not hesitate to reach out and we will be more than happy to help and connect you with our team.

@Sharpbevel 7 ай бұрын

Sorry you’re going through all this. My thoughts are with you & your husband.

@cinnamoslut 6 ай бұрын

What a cruel disease. I feel for the loved ones and the patients who suffer. The doctor in the video seems really excellent, I love her passion and compassion for patients and their loved ones. I hope treatment for this disease improves soon.

@elhamjafari6158 5 ай бұрын

I lost my brother 8 days ago because of glioblastoma, I can feel them all. He was 37😞

@catangnat1 5 ай бұрын

Fiancé was diagnosed on 3/24/24. Surgery was 4/6/23. Had recurrence 12/19/23. Second craniotomy 1/24/24. This disease takes your security , your patience, your future, and your soul. He’s still alive and fighting. But how much longer can we fight?

@deborahwalker422 6 ай бұрын

My husband passed from a GBM. He survived for 10 months, it was a 4.

@soubhikmama5204 7 ай бұрын

My mother is a GBM grade -4 patient...she has identified in june,2023...she had done with the surgery and also completed her radiation...now she is continuing Temozolomide as her chemo medication.... please if there are some other treatments except these please please please help me

@railwa 6 ай бұрын

How's your mother health...my mother also suffering from gbm... from 2023..plz reply

@JBVIDEOSCHANNEL 6 ай бұрын

Same here

@takagi4118 6 ай бұрын

same here😢my husband got an operation last year April 13 2023 and diagnosed GBM.Treatment was radiation ang chemo…For the last 9months his tumor cameback this year Feb 10 2024😢doc said my husband need to admit 3days to the hospital for another drug…Im fear to death everyday im not ready and i dont want to lose him i love him and my children is 7 10 14yrs old..Hope god give mercy on us and give more years to live to those have diagnosed GBM and other cancer patients.🙏🙏

@elhamjafari6158 5 ай бұрын

There's a device named Optune, you may ask her doctor...

@kathyr1516 26 күн бұрын

I have just started trying to find out about Voresidenib… I was recently diagnosed with Grade 4 GBM unmethylated. Just started radiotherapy and Temozolomide. Praying for all seeking help. 😰🙏🏼❤️ Also heard about something called GBM Agile, but I don’t know much…