Understanding Hairy Cell Leukaemia (HCL) WEBINAR
Рет қаралды 1,650
11 ай бұрынWhat is Hairy Cell Leukaemia? How is the disease diagnosed, managed and treated today? What can a patient expect along their life pathway with the disease and what support and care is available to help you and your family manage challenges to live well and as near a normal life as is possible?
We are joined by:
Dr Dima El - Sharkawi, Consultant Haematologist and Donna Picton-Owen CNS from The Royal Marsden NHS Foundation Trust.
Audience: those affected by a diagnosis of HCL, patients, friends and family.
@MediaMaverick_ 8 ай бұрын
Excellent overview.
@create-hx7pe 6 ай бұрын
My husband was diagnosed with HCL just a couple of hours ago. Completely lost at this point.
@zackay8818 4 ай бұрын
hi my daughter is 27 and after 15 months she still suffers so badly with bone pain that she spends days and weeks in agony crying and in bed , the pain team after waiting 3 moths to see them have now discharged her saying nothing they can do has the opiates ,pregabilin and katemine dont work for her , they stopped the katemine and now reducing the opiates and the pregabilin its heart breaking watching her cry all day every day . also her mental health has been effected and wishes she never got through the initial treatment has she believes her life is over . help please someone must have ideas. treatment wise or surgery. Reply
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