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Update on Mikko | Is she REGRESSING?

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The Gentle Life

The Gentle Life

Күн бұрын

Lately Mikko has been showing a much different behavior than what she normally displays. We're becoming more and more concerned because it's a constant, lingering feeling that we can't help her. But no matter what, we will never give up on Mikko whether she's regressing or not. We will continue to help her navigate her personal struggles the best way we can.
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Пікірлер: 368
@kachk.p1001
@kachk.p1001 9 ай бұрын
I've worked with Autistic children, personally and professionally, more than 30 years. The FIRST thing to do is have a schedule, preferably a picture schedule, and STICK to it no matter how hard or challenging it will be. Second, she appears to have light and/or touch sensitivity along with noise. In my home, along with classroom, I keep my overhead lights off, soft lamps and instrumental jazz music playing softly in the room. Usually this will center them, especially early in the morning I will keep them in close proximity while they're relaxing or I'm working. When they're calm, I will give them a directive or instruction something simple like in 2 minutes we're doing this or going here so they know changes are coming. When you do schedules for her show it to her and explain your expectations. Something simple like "Mikko after you're done with breakfast I want you to clean your table." Also I break up their activities, if we're working on alphabets I have them work for 2 minutes then 2 minutes break until I reach my goal of 5 minutes continuously working. Autistic kids love structure, changes can have them out of sorts all day so whatever you're doing let her know as soon as you know. I tell my students as soon as something in their schedule change like an assembly or recess has changed or lunch has changed, whatever changes that will affect her let her know. Whenever you're holding her and she pulls away gently let her go as long as she won't hurt herself and then just observe her asking her with your low tone alternately "calm down, it's alright, what's wrong". This has worked for me at home with my 28yo cousin who's severely Autistic, now she will put on soft instrumental Disney music and it calms her down. Yes professional therapy works but she also needs how to thrive each day at home or out in public when you go out.
@sdjames2580
@sdjames2580 8 ай бұрын
Thank You!
@NTH0921
@NTH0921 8 ай бұрын
All of this!! When I work with autistic kids I would break up their activities as well, and we would use these puzzle timers that kids would enjoy in between activities. Such great advice!!
@tracymiller8093
@tracymiller8093 8 ай бұрын
I'm sorry, but what did ppl do 30/ 40 years ago? I mean, there is an excuse for every single bad behavior these days. Do we never feel like we over do it to the point it gets really bad? Just curious
@NTH0921
@NTH0921 8 ай бұрын
@@tracymiller8093 do you honestly think that this information is new?
@autobotdiva9268
@autobotdiva9268 8 ай бұрын
but in earlier video Mikko was enjoying beats to rap music so soft jazz music can be incorporated also
@user-ny2fk9gm1k
@user-ny2fk9gm1k 9 ай бұрын
Every child hits bumps on the road, autistic and non-autistic. Time will show how she develops. I hope that she finds a good space in special Ed. You’re really wonderful to your daughter and it has been a healing experience watching you 💚
@user-fc2xk3uv8y
@user-fc2xk3uv8y 9 ай бұрын
for future reference the term for non-autistic is allistic
@NanaVicki1
@NanaVicki1 8 ай бұрын
I feel the same! Don't know them but I have mass respect even for her 2 brothers!
@chuckles1357
@chuckles1357 9 ай бұрын
You are wise to get little Mikko professional help! It has to be so frustrating for your darling little girl. My ASD son is now an adult and so many of the difficult and concerning behaviors have slowly left him, one by one. He was non-verbal for nearly five years, wasn't fully potty trained until after being in school, never had a friend all throughout his school years. He would throw horrible tantrums... Those years were so very hard. However, he is going to college now as a 30 year old man and doing great as a programmer! I hope for the best... But take heart, it does get better. Check out Temple Grandin, the autistic author who got a PhD and built a wonderful career for herself! One day at a time...
@jessicamontaperto810
@jessicamontaperto810 9 ай бұрын
I was like this little girl years ago. My father was remembering how worried about my feature years ago. Ur son & I have in common barely talking . There’s hope for her!. She ll talk when she’s ready!. She ll have bumps on the road.
@beautadlock6703
@beautadlock6703 9 ай бұрын
My 4 yr old daughter is also autistic. She goes to school daily for several hours a day. They really do help! She has blossomed into a very social butterfly. Get her in the classes and watch her thrive. Good luck and may God continue to bless your family.
@Growinggracefully843
@Growinggracefully843 9 ай бұрын
Same here
@oaklandbarbie8853
@oaklandbarbie8853 9 ай бұрын
My granddaughter is too ❤❤
@Trevell_InspiredTV
@Trevell_InspiredTV 9 ай бұрын
I agree same with my son! He’s done a 180.
@rosemary1704
@rosemary1704 9 ай бұрын
If she is on medication, check for the side effects, and try you tube vibrations for autism I pray that she gets better. I am an adult with autism and I use the vibrations a lot. I detox with the vibrations as well to get the toxins out of my body 😊
@oaklandbarbie8853
@oaklandbarbie8853 9 ай бұрын
@@rosemary1704 no meds at this time. Just school, ABA, and speech therapy 😊
@kmoliere504
@kmoliere504 9 ай бұрын
As Mikko gets more autonomy this will get better. Hang in there. My 22 yr old son (on the spectrum with anxiety and ADHD) had similar experiences when he was this age. It is a delicate balance trying to assist and keep them calm while also letting them grow and express themselves.
@autobotdiva9268
@autobotdiva9268 8 ай бұрын
got my son a micro nutrient bloodwork, doctors dont like to run and nor did i care. my 22 year old is on L-Theanine, vitamin D, B12. my 22 year old doesnt want the meds so this was the next best thing. #adhdadvocate #dysgraphiaadvocate
@Crocodile_by_kill
@Crocodile_by_kill 9 ай бұрын
Both of my boys went to school for 6 hours daily at a special education program and it worked wonders. It really does make a difference having them in some sort of class setting that caters to children with autism or special needs
@Morganw829
@Morganw829 9 ай бұрын
@jaymehurley1718 Hi!I had a question to ask you..what kind of special education program was it and how old were your boys when they went? was it considered Pre K? My son just turned 3 and has been diagnosed but is only going to a classroom through early intervention for one hour a day twice a week.. I have been trying to find him a school setting for more than an hour. The most they will give him is two hours but he has to reach certain requirements.
@Crocodile_by_kill
@Crocodile_by_kill 8 ай бұрын
@Morganw829 so sorry for the delayed response. Definitely like early my son had been diagnosed at 2 1/2 and had started his like daycare / school at 3. I live in Maine and we went through woodford's Family services. If your child has a diagnosis gay should have like special things to help them with early intervention.
@Crocodile_by_kill
@Crocodile_by_kill 8 ай бұрын
You definitely need to like have your primary put out referrals for specialist. Once your child sees specialist for speech even physical therapy motor skills everything cognitive stuff then they can put together a plan and make referrals so that they can be in a setting for 4 to 6 hours a day
@Crocodile_by_kill
@Crocodile_by_kill 8 ай бұрын
It definitely is a lot about like meeting certain requirements and that's where the specialist come in
@BabyMango
@BabyMango 9 ай бұрын
Could be anything! My son was “regressing” and had many meltdowns. We finally found out it was his teeth. He had an abscess that we overlooked. He had the tooth removed, and he’s back to his old self. A lot of children have undiagnosed allergies and sensitivities! Getting a hair or blood test would be great. Also anxiety starts to show up more prevalently at this age.. new phobias occur. Treating her anxiety with herbs and CBD, if not prescribed medications, will help her from developing OCD from her anxieties. Hope she does okay!
@Durnell5
@Durnell5 9 ай бұрын
I recommend getting her into a social preschool setting as soon as possible. My state has free half day special education preschool. It has been amazing for my son. Also get her into ABA therapy. The combination of both completely changed his communication. He went from squealing and crying to now using 3 word phrases to tell us what he needs. He is even starting to use 4-5 word sentences. He was diagnosed with gestalt language processing, but the progress in 1 year is amazing.
@Morganw829
@Morganw829 9 ай бұрын
Hi I had a question to ask you. Is the half day school through early intervention? My son just turned 3 and has been diagnosed but is only going to a classroom through early intervention for one hour a day twice a week.. I have been trying to find him a school setting for more than an hour. The most they will give him is two hours but he has to reach certain requirements. @Durnell5
@Durnell5
@Durnell5 9 ай бұрын
@@Morganw829 Yes it is an early intervention program called Child Find in my state, Virginia. He also gets 1 hr speech from them.
@pyao
@pyao 9 ай бұрын
I’m so happy it’s helping!! Before deciding do as much research about ABA as you can as a lot of autistic adults highly advise against it, there are some options that may work better but if everything aligns it can be very effective based on your child’s specific needs!
@Durnell5
@Durnell5 9 ай бұрын
@@pyaoMy son’s therapist was fantastic. He had her for 9 months and he completely stopped squealing and screaming and using words to communicate. He also got over his fear of touching certain textures. His sensitivity to sound improved. His ability to self soothe improved as well. They did the therapy right in our home so he was completely comfortable. She also had a sister that was autistic so she had real life experience. The owner of the agency also had her own autistic child so they were very helpful with teaching me as well.
@treasuretv1
@treasuretv1 8 ай бұрын
You have to first test the waters. Try school out just for a few hours at first. If the children are descent and nice then you can try a little more, however if they are rude bullies then homeschool. There is no sense in leaving a good child around children that are not raised right. It's common sense. God forbid bullying occurs. But if it does remove her out of that setting no matter what any and everybody says. Depression, suicide attempts, physical health problems, and reduced academic achievement-these are just a few of the negative effects bullying can have on children, according to many studies. Some schools are very accepting because the children are disciplined, and some children are very undisciplined, and the children will bully anyone that is different. Some of the people on this chat may have found a school with disciplined children but it's not like that everywhere, believe me. I have friends that are teachers, and I was told about the children in school how they carried on with one another. I have seen autistic children smarter than other children. Some of them have mastery skills in certain areas. Also, they learn and once they pick it up, they are far more advanced than others. This is all without being around a lot of children. One child was about 7 years old, but vocabulary was that of a 9th grader. Very intelligent. Speaks very proper and was homeschooled. They don't have to be around a lot of children that doesn't speak better than them. They just need to be taught.
@dasiaunique3959
@dasiaunique3959 9 ай бұрын
I’m a Autisum behavioral therapist , and it may seem like regression but it can also be her growing into what she’s comfortable with. I have clients who are non-verbal and communicate by point using pictures with word labels of preferred items. As far as social skills, you can try to initiate it using shareable items like a bucket of sand , bucket of water & toys. Sensory play is sometimes a big hit for those on the spectrum. Look into ABA therapy, they really focus on meeting the child where they’re at, creating individualized plans, and building those skills at her specific comfort level. it really is magical and early intervention is always best!!
@user-ux8nr2ej9e
@user-ux8nr2ej9e 8 ай бұрын
ABA seems to be a source of trauma for many on the spectrum . My son told me , when he got older , that the ABA made him feel dehumanized . We only did it for one summer program when he was 7 . As he grew we really pulled away from the " experts " . They were very heavy handed and full of dire predictions . Today my son is 18 . He has worked since he was 16 , drives , finished high-school at home while working . Makes his own doctor appointments , takes care of his own meds ( he's only on one ) . We were told by his speech pathologist when he was 7 that he probably would be highly medicated , angry and never have a normal life . Glad she was wrong . I think ABA can damage these kids and make them feel objectified . I worked in a preschool in a classroom for autistic boys . I never liked the way they were seen as a little less than valid humans by the staff .
@dasiaunique3959
@dasiaunique3959 8 ай бұрын
@@user-ux8nr2ej9e Trying ABA just for the summer is probably why it wasn’t enjoyable. Sometimes it takes time for kids to adjust , just like they would in any new environment. Not all ABA services serve the same quality of service so it takes support from the support coordinator and the school to find one that suits your child best. For instance some ABA clinics allow restrictions and putting clients in holds when engaging in behaviors while the clinic I’m currently working doesn’t allow that at all. In fact they do extensive trainings for their staff to learn how to de-escalate high risk behaviors. Therefore it’s not a sense of trauma and can be very beneficial if you allow it to help you and your child. The supervisors even meet with the parents to show them how to work on the same things at home. Sorry that was your experience but it’s not for a lot of families.
@nurseT.MVP2020
@nurseT.MVP2020 9 ай бұрын
School would be good for lil Mikko, mom and dad your doing a great job as well, God Bless
@corrissaneal9396
@corrissaneal9396 9 ай бұрын
My son is about the same age as Mikko and we experienced almost everything you talk about in this video. We pit him in speech and occupational therapy last year and started seeing gradual improvements with his behavior and his tolerance towards textures. It still wasn't enough on its own because he was not socializing well. He's also non-verbal so no words at all. Only some sounds. His speech therapist recommended we get him a talking device. He's had it since January and we've seen huge progress! He can now talk back amd forth with us about what he wants, what he sees on TV or in a book. It's great! Reduced the tantrums tremendously. And we took him out of daycare (it was a huge fail, they just weren't equipped to deal with an autistic child) and we put him a school that focuses on kids like him. He has thrived! It's been almost 4 months and now he wants hug people, wave at everyone, and play with other kids. I think you're definitely on track with wanting to get professional help. She will continue to blossom and you will be able to ask questions and get the answers you need. ❤
@beulahdukes
@beulahdukes 8 ай бұрын
You’re really doing great with her Momma. I applaud and appreciate all you do and share. 😊❤
@tanakamlambo1296
@tanakamlambo1296 9 ай бұрын
Since she is non verbal she starts to develop new ways to communicate that will be effective. So if acting out gives her the result she wants, she will do it more often. I’d advice you look into functions of behavior. This will help you figure out why she may be behaving in certain ways.
@rondas7772
@rondas7772 9 ай бұрын
Agreed
@ramtallen
@ramtallen 9 ай бұрын
I’m a retire SPED Director and would love to help you navigate the SPED journey. Holding the professionals accountable to collaboratively (with you and each other) in designing important and measurable goals, a good system of progress monitoring and using research based interventions with fidelity is key.
@orawright6305
@orawright6305 9 ай бұрын
How much do you charge for giving directions on teaching,.guidelines etc.?
@orawright6305
@orawright6305 9 ай бұрын
My grandson is two, very smart, but there are possible signs on the spectrum.
@autobotdiva9268
@autobotdiva9268 8 ай бұрын
most SPED teachers are gone. espeically in the texas school district. because many of the children are non-verbal, non SPED teachers are teaching
@kachk.p1001
@kachk.p1001 8 ай бұрын
@autobotdiva9268 SPED teachers in Texas are not gone, more kids are just receiving the services they need and the number of teachers available did not increase. It was after Texas lost in federal court denying students SPED services that the number of students increased. I went from a classroom of 7 students to 18 in two years, 26 students in 3 years and the principal hired more SPED teachers/assistant but this was only one campus.
@autobotdiva9268
@autobotdiva9268 8 ай бұрын
@@kachk.p1001 that doesnt make math sense. more kids are getting what they need with less teachers, lmaoooo. SPED much? schools are getting busted now for not having SPED techers in non verbal classrooms and thats facts
@sharonrozier4984
@sharonrozier4984 8 ай бұрын
Maybe she too is frustrated with what is happening to her. She is becoming more aware of the issues and how they are not allowing her to do what she may want to do. The two of you are amazing! Working with her and still not losing it. And she is also showing signs most kids show ( i dont want to go to bed is how most kids act). Im proud of you and your husband! Keep going and continue falling into each other for support. We will pray for you all!
@thesmileyeffect
@thesmileyeffect 9 ай бұрын
I highly recommend getting Mikko into as many therapies that you can. I cannot recall if you have private insurance or Medicaid, hut it might be worth it to apply for SSI for Mikko, because if approved she should receive Medicaid automatically. That is how my child is able to get all of his therapies. For background: I am no ASD expert by any means, but I have been raising an autistic child for 6 years. My son was diagnosed at 2 years old. We began ST right away and ALSO I began letting him watch educational TV. Specifically Sesame Street and Super Silly Simple Songs. We now watch a lot more like Miss Rachel, Miss Monica, and Gracie's Corner (all on KZfaq). Thankfully we were part of the Babies Can't Wait program from 1.5 years old until he tirned 3, and received OT and PT through that program. Later that year we started ABA 5x/week which was a lot and I struggled with it because of the valid criticism from #ActuallyAutistic adults. He now gets ABA therapy 1-2x/week. Last year he started Pre-K and has been doing PT and OT. We are still on a waiting list for ST and FT since his last therapist left the center, but his teachers at school are working with him at school as well. He also has oral feeding issues and is primarily consuming Pediasure as his primary source of nutrition. The progress that he has made in the past 2 years since stating Pre-ak, PT, and OT have been like night and day. The consistent routine, the social interaction with other kids, and Mom being able to have some personal tine have all contributed to his growth. I hope that you are able to find some great therapy centers to help her continue to progress.
@triciagiustra9911
@triciagiustra9911 9 ай бұрын
I think getting her in special ed and with orher kids will definitely be beneficial. You guys are doing a great job with her. Never get discouraged, you are wonderful with her.
@patriciaseldin4585
@patriciaseldin4585 9 ай бұрын
Stop! Don't try over thinking this. Neuro, Speech, Physical and ABA therapy will help. Get those services. She will start developing again. There are set backs. Progression and Positivity and sometimes textures will help soothe. Please reach our to those of who hVe been going through this and can give you guidance and brain storm as each child is different.
@pengers6714
@pengers6714 9 ай бұрын
Stay strong Mikko,growing up sucks. Don't let it get to you,your waaaay to awesome for that ❤❤
@CoachLadyD
@CoachLadyD 9 ай бұрын
Sounds similar to what I experienced with my daughter at age 3-4 (during covid). Very similar. School and services helped tremendously.
@nataliemartin8288
@nataliemartin8288 8 ай бұрын
By no means am I an expert in autism. However, I have been an elementary, a middle school educator and an administrator for over 30 years. I am also a mom (37 yo daughter) and NatNat (grandmom😊) to an 8 yo. I see her "regression" in a positive light. I think she is not only growing physically, but also mentally. I believe her little brain is taking in more than she can process and articulate. I really do think once she starts school, gets speech therapy and interacts with other children you will see a huge change. Just my "two cents."😘😊❤
@anjelrichardson3150
@anjelrichardson3150 9 ай бұрын
I work in the field of ABA and I believe deeply in the science. There's soo much hope for success
@chiquitaclark5370
@chiquitaclark5370 9 ай бұрын
Praying🙏🏽 for sweet Mikko. She will overcome this hurdle 💖💕💖
@ItsAllLove4Real
@ItsAllLove4Real 9 ай бұрын
She's going through changes and I completely get it, y'all are doing amazing and I pray she finds her center/happy place again.
@JT-ds8gh
@JT-ds8gh 9 ай бұрын
Glad for the special education ❤
@c.athompson9280
@c.athompson9280 9 ай бұрын
She is getting older and communicating for her is getting more complicated. The aggression is a symptom for some. She will adapt and become patient with her limitations. The discipline of school helps. For my nephew they taught him how to control his big emotions with breathing and counting his fingers. It's a process but she will improve. Try a night light in her room.
@Sarcasm1855
@Sarcasm1855 9 ай бұрын
She may also be trying to have overall CONTROL
@JC-vz9hz
@JC-vz9hz 9 ай бұрын
I was thinking this too. Definitely in a neurotypical child.
@BabyMango
@BabyMango 9 ай бұрын
😒 … smh wild that people think this. This is why autistic children generally develop OCD and depression cuz adults choose not to understand them
@mellissamercado7904
@mellissamercado7904 9 ай бұрын
​@@BabyMango that's not it at all clown....ocd is there already..smh to yourself. Smack
@mellissamercado7904
@mellissamercado7904 9 ай бұрын
Y'all are 100 right bc it doesn't matter if she's autistic, at her age she will still try to go through some or the regular progressions..
@JC-vz9hz
@JC-vz9hz 9 ай бұрын
@@BabyMango if you are talking to me, that is why I said specifically said neurotypical.
@peshivirginflower7
@peshivirginflower7 9 ай бұрын
I hope she continues to thrive, respect for trying everything you can think of. Again your info helps me with my 31/2 yo grandson. He goes to a center/school for Autistic kids and he's done awesome.
@MSR070
@MSR070 9 ай бұрын
You and your husband are great parents.God Bless you and your beautiful family 🙏🏾🫶🏾
@veronicajohnson4068
@veronicajohnson4068 9 ай бұрын
My prayer is that God leads you all to the best special needs program for Miko and family. Also, mom it will be a time for you to rejuvenate because taking care of a special needs person 24/7 is a lot to handle physically, emotionally, and spiritually. May God continue to order you all steps.
@JoraAustin
@JoraAustin 9 ай бұрын
It sounds like Mikko has a lot of misdirected energy she needs to get out in order to focus on her big tasks for the day and be tired by bedtime. Does she enjoy sports or dancing? Making sure I tire myself out by the end of the day has always been crucial for my sleep. Hope that helps!❤
@amazinggrace4959
@amazinggrace4959 9 ай бұрын
She should’ve been introduced to that setting once she was diagnosed with Autism bc it could be hard for her to adapt to something she’s not use to..My niece was medically diagnosed at 1 and and after all the evaluations she was able to start school 4 months after she turned 2…Before she started she had 2 different therapists come to the house to work with her and to watch her play as well help us communicate with her
@Basbhat
@Basbhat 9 ай бұрын
AGREED! Thank you for this!!! Same with my daughter. She was evaluated before she was three and started early intervention at home and at her daycare. And by the time school started for her, she already had therapists and they went to her school to work with her. Mikko should have been getting these services a long time ago.
@kokilajayasekera6092
@kokilajayasekera6092 9 ай бұрын
Yes I’m surprised they didn’t seek help earlier considering the therapy and learning the parents would try at home ended quickly after tantrums were thrown. Glad they are getting professional help now at least.
@amazinggrace4959
@amazinggrace4959 9 ай бұрын
@@Basbhat Wow her at home therapist went to school with her?? Both my niece’s therapist didn’t follow her to school she had 2 different teachers 😩 I wish they did so they could see how far she came ☺️❤️ They were so well and patient with her…She recently just moved up a class 👏🏾 🙌🏾 She was in a class with just 4-5 students now she’s in a fuller class..She met all goals 2-3 months after she 1st started school..She’s very very smart and she catches on quickly..You can ask her anything educational and she will tell you..She’s just not speaking in full sentences yet and she can’t really tell us what she wants and needs..She can say Up & Open tho if she wants us to pick her up or open a door 😄
@joybell995
@joybell995 8 ай бұрын
Kids always do better with others whether autistic or not. Glad to hear your getting her outside of the home to do speech therapy and getting her into daycare or a school setting! I’m sure it will help her do better.
@nataliefoxmartin9764
@nataliefoxmartin9764 9 ай бұрын
Trauma can spur “regression”. I’m sure she was affected by your family’s loss. Stay strong 💚💜
@_PAIGE94
@_PAIGE94 9 ай бұрын
I noticed a positive change in my daughter when I placed her in preschool back in April 🫶🏾 Sending you all love and hope!
@acucumbergrowingoutofthegr2223
@acucumbergrowingoutofthegr2223 9 ай бұрын
You seem to be taking really good care of her, I'm also autistic so its really nice to see you and your partner be so accommodating and kind towards her, and continuing to be so amazing even through the set backs and struggles, it reminds me a lot of me and my mum. I do want to point something out, but I really don't want to sound harsh or judgemental here because I'm genuinely not trying to be and I just think its important for me to point out. whilst I understand that your channel is great for educating people about gentle styles of parenting and also the struggles autistic people and their families face, I think that it would be a good idea to keep some things more personal, like the video you posted last week where Miko was crying. I can understand you wanting to share yours and Miko's struggle, but that is some very personal stuff and she cant consent to that being on the internet. in the future Miko might not want her struggles up on the internet, and its only a choice she can make when she's older and able to comprehend it fully. this could also effect her school life, because other students could find the videos and pick on her for it. it could also effect future employment opportunity's for Miko. I just want to clarify again that I am not blaming you for this because I think its really easy to fall into this trap nowadays and I do think you and your partner are wonderful parents. I'm also not saying to completely go offline, because you do really good work, maybe just blur Miko's face and try to cut out some of the more personal things for her, so she cant be identified and it doesn't effect her future. I hope this came across right and I wish the best for you and your family!
@TheCelestialVoice11
@TheCelestialVoice11 3 ай бұрын
This is beautifully stated and thoughtfully expressed, to the point that I’m in agreement, regarding the potential of future repercussions. Sometimes in the heat of the moment, people don’t consider this.
@zanettat1
@zanettat1 9 ай бұрын
Suggestion: Try adding a no slip bath mat to the tub, and add a shower head with adjustable settings that can be held. Let her stand on the mat, wet her with the shower head, soap her down, and spray her off. This may help in determining whether or not the texture of the tub has anything to do with it.
@autobotdiva9268
@autobotdiva9268 8 ай бұрын
thats what i did. got a adjustable shower head and no more fussy bathtime and compression bed sheet
@malachiharris1
@malachiharris1 9 ай бұрын
Thanks for the update you guys are amazing Mikko will be all right with your continued love and support may God continue to bless you and your family ❤️🙏
@JustFluffyQuiltingYarnCrafts
@JustFluffyQuiltingYarnCrafts 9 ай бұрын
Thank you for the update, Precious. I appreciate you sharing the things that you are doing to help Mikko. ❤
@robinlewis609
@robinlewis609 9 ай бұрын
Mikko will be fine, once she sees her interaction with other children who are like her that she can relate to in the Special Needs setting l believe you are going in the right spot, to wrong all and every aspect autistic children deserve the same respect and security as other children whether they are handicapped or not. Mom and Dad you have to let go once she starts classes🎉🎉🎉🎉🎉. Amen
@ladyl4147
@ladyl4147 9 ай бұрын
School gives YOU a support system as well as her. You all need a village. My granddaughter did not go to school until she was 4, but she blossomed like a rose! She touches, she hugs (everybody if you let her). She learned to communicate and, at 11, is a very mischievous delight. She certainly pulled all-nighters while I babysat when she was younger (exhausting) and still kind of freaks when I try to bathe her in my tub, so I just soap her up and rinse her in the tub with a cloth. But ABA, speech and language therapy, structure, and being around kids do wonders for all of you. The school keeps going through most of the summer to keep her in routine, and she loves it. It will pass!
@v.k.2320
@v.k.2320 9 ай бұрын
I had problems with showering also as kid more because the water running down or touching my head made me itch. My daughter is now the same. I have a hard time get her into bath and wash her hair. But I try to encourage her and praise her when she has done something that is uncomfortable for her. I never push her but she has to get clean so I make her a bath so she can sit and play with toys. Sometimes I only wach her with a cloth so she has not to put up with the shower head. My daughter is also getting to play around silly when she knows it is sleeping time. I try to give her more space so she can do things on her own and explore the world around her in a natural way. All the best for you guys. ❤
@IamChantaJones
@IamChantaJones 8 ай бұрын
My little brother got into school and he improved greatly! His speech improved and behavioral aspect on all sides he is 9 And does great in school and although he does not care to be around others he does very well socially than before he was in a structured school setting. Hoping all goes well 🫶🏾🫶🏾🫶🏾🫶🏾🫶🏾🫶🏾🫂 to add he entered school early at around 4/5 before that stayed home with mom.
@christjesusis1
@christjesusis1 9 ай бұрын
How does Mikko do with music? Maybe that can play some part in her schedule to help her relax. Whatever your decision, I am standing with you in prayer believing Gods good report for your family.
@pretoriaafro5074
@pretoriaafro5074 9 ай бұрын
I know Miko was learning from home. I wish I would have suggested services for her earlier than this video. Speech, physical therapy, occupational therapy and feeding all from professionals. They are picky eaters too (texture and maybe color). Wow, I really wonder what Miko is going through right now.
@ginaduncan5799
@ginaduncan5799 9 ай бұрын
She likes cheese n cornbread, Color control
@Basbhat
@Basbhat 9 ай бұрын
I’m shocked they haven’t done more for her on that front. I kept my ASD daughter home for the first couple years as well, but I did early intervention for her and they came to my house to work with her. I don’t know, this seems strange to me.
@trashmagics
@trashmagics 9 ай бұрын
​@@BasbhatI think they only just actually got the diagnosis pretty recently, maybe they were just waiting for that confirmation or something? Maybe even insurance related, like insurance wouldn't help with anything until getting officially diagnosed idk
@irenegonzalez201
@irenegonzalez201 8 ай бұрын
​@@BasbhatI'm not shocked. It's all about churning out new videos constantly and keeping up the channel.
@Basbhat
@Basbhat 8 ай бұрын
@@irenegonzalez201 So pathetic when making content is more important than your kids. Priorities all messed up.
@nicoleford7127
@nicoleford7127 9 ай бұрын
I think that it’s wonderful that you are going to get the help that she needs . I think that ABA therapy as well as occupational therapy and speech will help her immensely. Early intervention is the key . Also depending on her diagnosis she can also receive funds from social security, this could help your family with financial support for Mikko for maybe some extra curricular activities. Everything will come together it just takes time and patience and consistency 🙏🏼❤️🙏🏼.
@msdanyelle1
@msdanyelle1 9 ай бұрын
My 4 years started early headstart at 8 months she didnt get her diagnosis until she was 2 she started regular headstart at 3 and she had early intervention until 3 now get services at headstart.
@speakyapeace4702
@speakyapeace4702 9 ай бұрын
I used to work w/ autistic individuals & unfortunately some do develop aggressive behaviors physically. Pls pay close attention to triggers I’ve endured concussions & cuts punches & more. Praying for you & your family!
@Ladycrafty6
@Ladycrafty6 9 ай бұрын
As a Exceptional Ed teacher for over 25 years I have seen regression with children in the Spectrum. One student in my class had severe regression and after documenting her behavior in the classroom, mom took her to a Dr and the young girl had a bad case of candida. It did take time to get her back up to where her levels were prior to the candida. Good luck finding answers! ❤️
@user-hq6mv3tn8t
@user-hq6mv3tn8t 8 ай бұрын
My grandson is 4 he doesn't speak well he's in speech therapy and he is in rolled in school out of 5 days he'll go 3/4 he has major meltdowns of just screaming and there's no trying to talk count once he's ready then you can talk to him my daughter has 3 other children he's the youngest and he's also very aggressive and bites kicks pulls hair at other children he's been sent home numerous times and last week he had his first visit with a specialist on Autism and other problems he had a screaming fit went through their filing cabinets so he has another appointment in 2 weeks some days are good and other days he screams. Thank you your daughter is beautiful and a gift from God Bless you and your family ❤🙏🏻
@luvthslf79
@luvthslf79 9 ай бұрын
See if they have a Regional Center of Development out by where you are.❤
@GorlWorldEnthusiast
@GorlWorldEnthusiast 9 ай бұрын
She's going to do great in school. Remember when she was in daycare at the gym, she thrived! My daughter is 11 and has adhd and asd and loves school.
@Justme-qn3ps
@Justme-qn3ps 9 ай бұрын
It’s going to get better ❤️‍🩹 ❤
@kpkkatiepie2413
@kpkkatiepie2413 4 ай бұрын
Great Mom, wonderful family, can see what a caring and amazing Mom you are to her. I have a cousin who’s now in his early 20’s that autistic. Love and best wishes. ♥️
@Vegaswink702
@Vegaswink702 8 ай бұрын
My son is autistic all you said are factors of her situation. Regression happens in waves from what I'm noticing he's 10 and he the regression has improved and it will over time. I noticed regression at about 3 5 and 8. These are critical times for any child's development. They're not babies but they're not big enough. It's a process and you're going in the right direction. 🙏🏾
@Mr-id4os
@Mr-id4os 9 ай бұрын
....thank you for allowing us to learn and understand your beautiful baby and her growing experiences. I've always been a child advocate and as a foster mom, I fostered hard to place children and learned that they all are special in one way or the other. You're doing excellent mothering and Mikko will do well.
@bosse1092
@bosse1092 9 ай бұрын
I’m very happy to hear that you’re putting her in school. As your video began, that’s exactly what I said out loud to myself as if you could hear me.😊😊 but she needs more socialization
@ericaunuajefe9105
@ericaunuajefe9105 9 ай бұрын
My heart truly goes out to you. But I do want to encourage you that a lot of the things that you've mentioned in the video can also be contributed to her being a 3 year old. I have a freshly turned 5 year old and a 4 year old nephew and some of these behaviors can be seen in them at this age. Particularly, the antisocial behavior to an extent and most definitely the hyperactivity at bedtime. It does get better. You are a great mom and you are doing wonderfully by all three of your children.
@brendacarter4098
@brendacarter4098 9 ай бұрын
Please stop thinking. Get a doctor to advise you. I thought you were looking for a school months ago. You project project project. Could be Could be. Could be. Stop. Talk to a doctor and take notes. Section Miko's hair and detangle one section at a time. Keep something soft under her neck at all times.
@SHOP862
@SHOP862 9 ай бұрын
My baby like baths, shower may be sensory issues....ABA therapy has helped and been a Godsend for me with my daughter's autism.
@bowtoyoursensei554
@bowtoyoursensei554 3 ай бұрын
Based on my experiences with my autistic son, regressions seem to be part of the package...always two steps forward and one step backward. Keep working; she'll get there. Just not at the same pace, and not in the same manner, as neurotypical kiddos. I know you won't give up -- so don't. Lots of love.
@add7543
@add7543 7 ай бұрын
Thank you for sharing. It really shows our community that they are not alone. We are all going through the peaks and troughs of raising autistic children. We more than often have to dig so deep to remain motivated and creative in finding solutions to support our cherished ones. Thank you for consistently showing up with honestly and a realistic portrayal of living in an autistic home. Sending hugs 🤗 and peace 💛.
@afeminame
@afeminame 9 ай бұрын
Wonderful, mom. Very insightful observations.
@PhD_Author
@PhD_Author 9 ай бұрын
Wishing little Mikko all the best.
@darlaann1610
@darlaann1610 8 ай бұрын
I'm new to your story, but mom of a 23 year old awesome young man. We struggled early on. One thing that helped my son when he was feeling overwhelmed was a therapy swing. Some days he would be in it for hours. He had the kind that was kind of like sitting in a panty hose. It was tight but stretchy. After a session he would be able to cope much better.
@peachesd.3224
@peachesd.3224 9 ай бұрын
You mentioned that Mikko has trouble with low Melatonin. I don't know if you are treating her for that. But I took Melatonin for years and then it started causing nightmares for me. I do not have autism. I was surprised to learn that it caused this side effect.
@Suhumashha
@Suhumashha 9 ай бұрын
Ur not supposed to take it for over 3 months time
@keybaddieb5851
@keybaddieb5851 9 ай бұрын
Be encouraged 😘 ve. I'm going through the same situation with my youngest daughter. She is the same age as Mikko and she is nonverbal and has Atisun as well
@jessicamontaperto810
@jessicamontaperto810 9 ай бұрын
I was nonverbal years ago myself don’t lose hope! Definitely recommend book I am in here Elizabeth Bonker she graduated from college a year half ago! She gave her college graduation speech using her device & letter bored !
@t.t.5195
@t.t.5195 8 ай бұрын
It's all normal, and you're doing the right thing to get her assistance .
@lindawilliams141
@lindawilliams141 9 ай бұрын
I remember seeing a video of her mimicking your actions. I thought that maybe if she was in a school environment that she would do well. I hope that this works out for you and your family. ❤
@matildadavenport7387
@matildadavenport7387 9 ай бұрын
Praying that school will help her and also I feel that you all are such a beautiful family! May God bless your family!❤️❤️❤️🙏🏾🙏🏾🙏🏾
@notatheory4488
@notatheory4488 9 ай бұрын
It started right after the loss of the baby. Maybe she’s morning. Or she senses you mourning. People forget the spiritual care for their kiddos
@Growinggracefully843
@Growinggracefully843 9 ай бұрын
Try ABA therapy as well. My daughter is in school, speech and occupational therapy. I think this will be great for her.
@MelissaJackson-ry2er
@MelissaJackson-ry2er 8 ай бұрын
Sending lots of good energy and prayers. Miko is truly beautiful. I am so glad she has you and her family as support.
@Trinity25Apr
@Trinity25Apr 8 ай бұрын
Being wired on what we accept as'normal' parameters it's hard enough to understand and express what we're going through at any given time.Mikko is wired differently and we have no idea, really, what growing up looks and feels like for her. Mikko has an observant,knowledgeable and patient family, this will be an invaluable help to her but, in order to really gage her progress/regression she has to be observed amongst others outside the family. I wish them all the very best.
@Shesaid_what
@Shesaid_what 9 ай бұрын
When my son was this age, he regressed in some areas as well. Speech therapy is vital! It also helped him being around children his age. They seemed to help him stay on task. You are fantastic! I wish I had the knowledge and support 20 years ago.
@stefanienaranjo4477
@stefanienaranjo4477 9 ай бұрын
My son was the same way. I definitely think occupational and speech therapy with an actual therapist and/going to school will definitely help.
@legendarymayormarylikestur8874
@legendarymayormarylikestur8874 8 ай бұрын
My son still has yearly malabsorbtion testing and a full blood level panels to ensure he isnt lacking by way of diet. He has chronically low vit D levels, regardless of how much time in the sun and supplimentation. Fatty things lead to fatty liver for him (since adulthood). I just stay on top of his physical health appointments and make adjustments. I home schooled and was able to give him speech and language, occupational therapy, physical therapy, etc at home. I knew people in college and working in these areas. College kids will volunteer to assist you sometimes. Ask lots of questions as you implement professional interventipns. This will assiat you in learning as well, so you can suppliment in ways kiddo will be familiar with.
@leticiasmith226
@leticiasmith226 9 ай бұрын
You are a wonderful and great Mom
@b.j.dee2702
@b.j.dee2702 9 ай бұрын
My son is 3 and sleeps with us. Me and my husband don’t sleep in the same bed- he snores and I like a cold room… so yeah, we sleep in separate rooms. My son can pick whichever one he wants to sleep next to. He goes to bed between 9 and 11. I know that’s late- but it works for us and we have become accustomed to it. Water activated bath toys might work 🤷🏾‍♀️ I got a few off Amazon. I got some fish and turtles and they look pretty life like- Mikko might like that. My son isn’t around any children- he does have Speech Therapy that comes to our home twice a week. I don’t wanna make this post any longer- keep your hopes up. I’m in the same boat and I always appreciate you sharing your experiences- it has been a definite aid in my life and journey. God bless 🙏🏾
@BUY_YT_VIEWS_e0e94
@BUY_YT_VIEWS_e0e94 9 ай бұрын
when I saw that you uploaded a video I was so excited to watch it. Keep up the great work! ❤
@AllThingsGina
@AllThingsGina 9 ай бұрын
I appreciate your attention to Mikko and getting professional help. You have worked so hard to help her develop. I am hopeful to seeing how these new resources will help her and your family.
@ifynwamma
@ifynwamma 8 ай бұрын
My 5 year old boy twin is autistic and minimally verbal. He started kindergarten this fall, and it has been up and down but overall good. He has a lot of help at school.
@gwendolynnorton6329
@gwendolynnorton6329 8 ай бұрын
As a newly minted RBT thank you so much , for sharing!
@deniseweber1339
@deniseweber1339 8 ай бұрын
Hi mama. My son is autistic and I'm also a former sp lang pathologist and have worked with kids with developmental disabilities for many years. I eventually ran an autism room in an adult day service and vocational program. I've literally worked birth through older adult age along with living every day with my autistic son. I will share that every single time my son seemed to regress, there was a growth spurt, or maybe tooth loss or growth, or could have a developmental growth spurt in a different area. A couple of times, I found out he had put something in his ear or nose! I learned to check for a physical issue first, then if not, to watch and see if another developmental area was changing. Eventually, it would all even out and start going back to what it was. The one thing I would have been surprised to say years ago (my son is 26 now) but now encourage people who do a lot of therapies and school like we did....I'd have done less formal therapy and more bonding and relationship time. More to develop security and less anxiety. He made the biggest gains in every single area... reading, writing, and social skills AFTER 21 when school was over. Having very calm routines each night helped, but I never ever made sleep a battle. Just fyi, my son could not do any typically aged/grade level academic schoolwork. My son was very aggressive and needed 2 on one staffing for a lot of years in school. He was not allowed in programs even for special needs kids or was kicked out of programs most times. Anxiety and phobias were huge issues with well over half of the people I was blessed to work with. Anxiety and meltdowns can be very common in some people on the spectrum. I only saw true regressive autism in one child with a degenerative brain disorder. I know it can happen, I am just sharing that a more common scenario would be cognitive and physical growth, neurological changes, her world expanding and trying to make sense of things. The gap widens as they get bigger and it's harder to cope. Hoping it really doesn't necessarily mean regression. I know it's scary, but my mantra became.... monitor and adjust. My son became more and more anxious but gained skills in other ways. Anxiety is still his biggest challenge and he has full-blown OCD as well as panic/fight-flight responses. I've seen kids go through anxiety with ASD hand in hand for many, many years. You are doing great. Love how you follow her lead and what is good for her and your family system. That's the best anyone can do. Hugs.
@brandohmc8547
@brandohmc8547 9 ай бұрын
I don't have kids but I watch because I have a cousin with autism and I just personally watch because you never know. And I would like to have the right understanding and temperament but God bless y'all I think y'all are a great support for her.
@deborahfriedrich
@deborahfriedrich 9 ай бұрын
You mentioned ABA before. So how's it going?
@Mamajay228
@Mamajay228 9 ай бұрын
Is she in occupational therapy? My son is ASD age 2 and occupational has been really helpful for us and we do a behavioral therapy that’s actually parent based, I do the therapy via zoom and they help me navigate his behavior
@lvlzhealinghub
@lvlzhealinghub 9 ай бұрын
Does your state give in-home care assistance ? I work for a mother who has around the clock assistance from a care provider team (I’m an RN for an autistic nonverbal 2yo) who can help reinforce the skills needed to accomplish the family’s goals. It helps! Also so you can get some rest. Good luck! Your channel is an amazing resource, always rooting for Mikko. Would love to help support if you have questions
@Basbhat
@Basbhat 9 ай бұрын
Most states do. You just have to fight for it. Mikko should have been evaluated by speech, OT, PT, neuropsychiatric already. Most states and districts do it by age. I only know this because my daughter has level 2-3 ASD and have had to navigate it. Before school starts, they do early intervention. They will come to your house or daycare and work with your child. Once they start school, they will go to the school and work with her. I’m sorry, I get she’s trying to raise awareness, but maybe take the camera out of your kids face and actually work with her! I’ve been through where she’s at. Multiple regressions, nonverbal, all of that. And I still go through it. It never goes away, but it gets more manageable. This little girl should have been getting help years ago.
@ginabrown2016
@ginabrown2016 9 ай бұрын
JUST KEEP SHOWING HER UNCONDITIONAL LOVE ,
@stanleyglover5534
@stanleyglover5534 9 ай бұрын
Thanks for the update. All will be okay soon, it’s normal for children to go through the kind of changes. You’re in my thoughts always 👏🏾
@annette9409
@annette9409 8 ай бұрын
I think you are heading in the right direction! ❤
@SaucyWench88
@SaucyWench88 8 ай бұрын
There will be times of apparent regression throughout her journey. Don’t be discouraged. Just soldier on.
@Guerrerofam805
@Guerrerofam805 9 ай бұрын
She's going to LOVE school!!! 🏫 🎒 🤗💞
@ginabrown2016
@ginabrown2016 9 ай бұрын
ALSO PRAY WITH HER AND TEACH HER TO PRAY TO JESUS ,
@tboahine
@tboahine 8 ай бұрын
Omg your video literally just put tears to my eyes it’s like you just described some things about my own daughter, my daughter went through some of the same things. I noticed that she would regress on certain things like bathtime. It was always a hassle brushing her teeth,but wher I’m struggling the most is her feeding herself at one point my baby had learn how to pick up a spoon and feed herself although she would try from time to time I noticed that, it seems as though she’s forgotten her hand placement. I feel like whenever I see any type of regression I work towards that more or harder this way she doesn’t entirely forget and then eventually she’ll gets back to it because I do see a lot of improvement but definitely the feeding part is something that has been a bit of an issue for the past two months and you’re definitely lucky. My daughter has never slept on her own bed maybe when she was like a newborn to like six months after that forget it and she doesn’t like when the room is too dark and either she always has to be curled up next to someone I’ve got her a weighted blanket, and vest that doesn’t work. Trust me she’s just knows as soon as you get up, she gets up right after you and chases you down lol also, I noticed that once I started all of her therapy sessions in school she definitely seemed a lot better. She was less antisocial. I will take her to the park and she wasn’t so scared to do certain things before if she was on a swing and a kid was coming out towards her she would just stand there, that has changed now she gets up on and she’s like go go go she’s really has come so far so I do believe getting her in a program where she gets her speech her Ot,PT I mean everything trust me it does make a difference. I’m really happy that you’re moving in that direction i’m beast in New York and the school. My daughter goes to. It’s cold ABC Cassidy. I don’t know if that’s any help to you. Maybe check to see if they have an ABC Cassity in your area because from what I understood in the research I did before putting my daughter in the school I was told that 90% of the children that attend that school become verbal and that I must say it was the case for me I’m super grateful to her speech and really all her teachers, good luck and I would love your channel like it’s an eye-opener and I just love you guys praying for you❤
@silverdoe9477
@silverdoe9477 9 ай бұрын
School can be really beneficial in baby steps, let it take time. You & your family are absolutely amazing. 💜
@almondkissed3794
@almondkissed3794 9 ай бұрын
My son is three and has autism and it just amazes me how every child is different. For instance my son has absolutely no problem with getting him to take naps or sleep through the night
@marciafortson7992
@marciafortson7992 8 ай бұрын
A variety of professional therapies like Occupational, speech etc. would have helped early on. My grandson had services early on and has helped tremendously.. He is 7 and still has services but he's amazing with his indivuality... These children think different than we do and professional therapists and others are needed to inform the parents of what to do and help this little angel out...❤❤❤ Many blessings to you as the parents and to this little sweet angel.. It is truly a journey and learning process but you all got this ❤❤❤
@phyllisriley5509
@phyllisriley5509 9 ай бұрын
You’re very kind & gentle and that’s Awesome ❤
@shameldavid1284
@shameldavid1284 6 ай бұрын
That is the best thing for her. Early Intervention is key. When she is in school you will see the difference in her. God choice Mom and Dad
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