It took 7 years from referral to diagnosis for my son. He was referred when he was 11 and diagnosed by 18! Most parents would be glad if it only took a year!

We seem to be obsessed with children with autism when in reality most services stop after someone reaches adulthood.there is serious issue in terms of how we neglect autism.

My sister has two autistic children, both diagnosed, one more severe than the other. Her third child is on the waiting list to be diagnosed with autism. He’s been on that list for well over a year, there is no end in sight for him having a diagnosis. When she’s rung them up on it, they’ve said they don’t know when it would be, but he’s on the list. As he’s going to turn 16 and can refuse medical help within the next year, my sister has decided to go private. She’s lucky that she can afford to pay the fees it’s over £4000 for private assessment. A lot of people don’t have this type of money. But she feels like she’s been left with no choice. I myself have two autistic children, one diagnosed with autism, one diagnosed with Asperger’s. My older daughter had lots of problems as a child, but nobody suggested it was autism. She went off to university, thinking she could do it, and it nearly ended her. So she took two years out and tried to go back to university again, with in six weeks of being back at university. She was there, trying to end her own life. The psychiatrist decided that she had autism, but they’re not allowed to give an official diagnosis cause they’re not trained within autism. It then took five years! for my daughter to finally get a diagnosis. Her GP put on the medication that she would need if she was diagnosed with autism or what was wrong with her mental health. But the problem is with her mental health come about because she didn’t know who she was. She didn’t know why she was so different and why she couldn’t cope when everyone else around her could. I nearly lost my daughter. At one point of her life was held by a thread. All because the system from the very start to let her down. She was under the hospital as a little girl, because when she was in school, she would pretend she was in pain, but she was doing her subjects. She didn’t like to scare her teachers because I’d be very worried about her. She’s a very quiet child. So she was investigated by the paediatrician find out what a medical problem was all they could conclude was constipation. But that wasn’t the problem. The problem was autism. She always complains. She had no friends, but the other girls didn’t want to play with her. It’s hard to hear this when your child is beautiful and comes across as Friendly and has a sweet, kind personality. The flags were over for autism. I didn’t have a clue myself about autism. She couldn’t put her shoes on until she was nearly 11 to me, it made no sense she would destroy a pair of shoes every four weeks. She had to wear glasses, but she would break her glasses within days of half of them or simply lose them. When she was six years old, her test results showed up that she was blind, but clearly she can see. So she had to be tested within three months of that appointment. She was then diagnosed with severe eyesight problems, but she would not wear her glasses. She preferred to be in a own world, where everybody else has blocked out because she simply couldn’t see them. I didn’t realise this was what was going on when she was a child. I only realised that she potentially had autism when she was 18 after doing lots of research on the Internet. When I first told us, she said absolutely no way. After the first suicide attempt, I’m feeling desperate. She started to look at autism and the symptoms and recognised a lot of them within herself. At the same time, the psychiatrist she saw the very first psychiatrist suggested she might have autism. this is why an autism diagnosis is so important. It literally can save lives, would anybody be denied life-saving treatment? You would think not, but in the situation with autism, if they do not get the diagnosis, then it can be a death sentence. Because autism doesn’t go away. You do not grow out of it in my experience with my daughter, the symptoms and the problems associated with autism with the sensory issues become worse. The older she got. Nobody should have to go through this.

Even when the families get the diagnosis then the struggle really begins to get help in the seriously underfunded education system

There seems to be quite a lot of rich people and celebrities who have recently found out that they have autism/aspergers/adhd etc. These rich people need to club together and raise funds so that they can help the kids that are in desperate need as the state does not seem able or capable (or willing) to do this. Funds could be put to training specialists, educators, diagnosticians, schools, clinics, research etc. Rich people with these conditions in this country could totally do this if they wanted to.

Was told i had autism by a psychiatrist, then after waiting for annassessment was told no I dont. Think half the time the doctors dont even know themselves

I had to wait 2 years for my assessment which took place last October and I was assessed positive as autistic. I'm 57 , took them long enough to work it out after going back and forth to the doctor my entire life with numerous issues! I had to pursue it off my own back as my doctor kept fobbing me off!

One of many reasons why self-diagnosis is VALID and EMBRACED by Autistics regardless of their own diagnostic status/story. I was only able to get diagnosed by paying thousands out of pocket. Only possible with wealthy parents. End of story.

No change there, my kid is 22 now, I fought for a diagnosis..got very little help, she had speech therapy but there was zero help for autism..groups, specialists..it is just awful. I worked in the USA in the 90's with children and adults with autism and other special needs and they were way ahead of us back then. Why do we pay tax for this? i want an opt out to pay for private health insurance pls. This lady did not state the obvious, you need a diagnosis so if you need care as an adult you can get it..ie my child got help when attended college, a quiet area etc etc..now as an adult was on the housing list and is in her own flat with a worker that checks on her well being from time to time..we do that too so all is fine, but we are not here forever.

We desperately need a new curriculum for autism and ADHD and other conditions

The government are failing vulnerable children. A diagnosis is so important for autistic children to get the right support and thrive. It is so important for the child's mental health. Professionals need to take it serious. These children deserve a fulfilling life . There should be the right support. If an autistic child get the support they can go on to live a happy and positive life. We need to stop locking up autistic children and seeing them as different

well all the signs were ignored for decades, so now we're just at the point where society just suddenly collapses in ways we don't expect

My granddaughter has autism she was diagnosed 2 years ago, she was 17. 2 years ago there was a waiting list of about 1 year with the NHS so the family paid for her to go private for a diagnosis which was done in a month. Sadly she found it hard to make friends at school as she was different to other pupils in the class and didn't fit in especially when she got a bit older. She hated school/college and the strange girl sitting alone (my special granddaughter) received no help from the teachers. Once diagnosed things became much easier help and compassion was given to her by the teachers and extra time was allowed when sitting exams. When her schooling came to an end she was offered a job by her local council, as big concerns of this nature, have to employ people that have a condition in life. Today she is a confident young woman but tends to make friends with men and women that are about 10 years older than herself. In 2022 it cost about £2,000 to go to a private clinic for her diagnosis, money well spent.

I got diagnosed when I was 18 explained years of outrageous anxiety and feeling weird

My son school refused at 9 already with a diagnosis of Autism and we still had a fight to get him a special school placement. Once he had his new special school place things got significantly better for him and he had access to appropriate therapy’s for his severe sensory issues and the lower stimulation environment helped him progress and understand his own strengths and differences. I feel great empathy for people without diagnosis and it’s often so obvious that they have Autism. It is traumatic to leave children in negative environments and also causes issues for the other children witnessing autistic children in distress. The sensory struggles are often overlooked and from my experience most behaviour of concern is triggered by sensory issues. Good luck and hope you get a diagnosis soon and I would look to special school by secondary before to much PTSD builds up and a move is then in crisis instead of proactive to specialist support. Autism does not go away and a child can’t become neurotypical by being with others, so best to accept the Autism and access the special environment.

My son has been waiting for a diagnosis since he was 4 years old he is now 14. He was diagnosed with learning difficulties with complex needs in 2019 a year after the doctor put it down just to learning problems after speaking to a teacher that explained he hadn’t even dealt with my son. My son has been permanently excluded from two mainstream schools. Was left out of school for 2 and half years was being privately tutored at home. He finally got a special needs placement and the school doesn’t believe he has been diagnosed properly. My son does not sleep well never has needs medication so we currently have to go back from through the system. They also have said my son suffers with anxiety and depression and has had no help with it. We are in the east of England. It’s such a horrible situation and impacts the entire family. I’ve had to give work up I now suffer with depression anxiety stress and an eating disorder. It’s a absolute disgrace and against their human rights.

A family member of mine has been waiting 2.5 years for an adult assessment - still no closer to getting it.

Yes it's taking a lot longer than a year, told up to a 5 year waiting list.

I knew at between 6-12months old that my son was I have a letter from the cdc saying exactly that..they said he was to young so fast forward he's now 7 the school has asked to have the referral put through as we have been waiting a long time then the person dealing with us was sacked so had to wait to be see by someone else, when we got there they had miss placed the forms and letters from the school, so had to do it all again we are now back waiting they said two months but it's been longer than that now . My some has been given one to one in the class room ,has movement breaks and a weighed leg blanket..the system need fixing its not fair on our children and for us that cannot afford to go private

I've been waiting 2 years for adhd assessment, I'm 52 so assume I'm at the back of the que. Starting to think I'm also a bit on the spectrum as well, I've been through the mental health system for 20 years and it was never even suggested, trouble is you don't ever have the personnel insight to even realise you have it.

I think my granddaughter is autistic, but we just accept her as she is and love her. A diagnosis would make no difference.

Nothing new here at all some people wait years schools don't need this extra stress, school referrals don't mean a thing too slow too little too late

I know a lady with 2 sons with this problem n her new partner also but they have been waiting for YEARS to get assessed!! My son was put off for years n was 28 when he went n sorted it himself . The system is broken n many suffer with mental health now. I even know a lady in her 70's who has never been diagnosed n suffers greatly!!

I was diagnosed at 27 after doing my own research and asking to be referred. I believe it took about a year to get diagnosed.

I’m in Canada and my granddaughter is waiting to be assessed we have been told it will be three years before we get to see a specialist.

We waited 5 years for our son’s diagnosis. Even after diagnosis they still reject our application for healthcare plan to support.

I was meant to be diagnosed at 5, but they lost the referral. I put my name down again in 2020, they lost the referral again. I’m 39 so I’ve been waiting 34 years.

I was not diagnosed with adhd until I was 36 and I went to state school had not help and struggled and was always labelled a bad child and was made to feel that it was my fault I was this way It’s important to diagnose someone as early as possible which was why I fought so hard for my son to be diagnosed

A diagnosis is only provided to individuals whose life is severely impacted. Social anxiety and difficulty making friends should not be a reason for diagnosis. It’s now labelled SAD Those with autism and other mental health needs need support to understand themselves and feel understood by others but full individual plans are not helping the child or school systems. Sensory issues can be supported without removing individual from the social environment. I worked with individuals for years and I don’t recall a single person who feels better having a diagnosis. Tony Atwood was the world’s leading authority until he admitted that the spectrum will cover around 25% of human beings. SPS sensory perception sensitivity needs to be understood and talked about more. This is often confused with autism but is actually different. Yes you can have both. Once you understand yourself as a unique individual who can grow, evolve and overcome, a diagnosis of any kind can restrict this.

I have autism I live in Australia we have the same problem there is such a wait to get a diagnosis I was lucky but it is important cos you then understand why you do the things you do made sence

Been waiting since october 2022, completely in the dark no support offered.

Sue the education authority with child law and human rights laws,they soon comply and a appointment .its like doing to hospital with a broken arm and them not telling you ,you have a broken arm..

2 and half years in wales and still waiting for the assessment

As a Autistic adult, good morning britain needs to understand that this interview is very derogatory. Please include more autistic people in this conversation. Chris peckham is exemplary as usual.

Me: years 😐 Others kids: 2 weeks 🙂

The mother...very intelligent/caring mum

2 yrs we have waited for the autism assessment

Took about 5 years to get my son diagnosed.

My son was diagnosed until he was 13 and we know from the age of 3 and he has high functioning asd and it effected his scolding as he was not put in the right placement once he was diagnosed and they sure how badly it was effecting him after two school placements were not right I sat down kcc he was lucky he got home tutoring as he could not be around other children even though he was at play groups and around kids all his life My son has no friends the only friend he has is his tutor and struggles socially going to the shops alone paying for a train ticket and paying for things at the shop He is 20 this year It’s sad cause he passed his English and maths and is now doing a computer hardware courses of he is this way I’m worried this will affect his career as a young person trying to live a normal life in society My son can’t handle crowded places loud noise bright lights and certain smells effect him and can cause a melt down which is why we are careful when he does come out with us

In 2018, I only had to wait a few weeks and the interviews were in quick succession.

Chris, do you know any excellent Solicitors who deal with the Court of Protection and Judicial Re Judicial Reviews? Fighting for freedom for my Autistic Relative, with Autism myself … a challenge but I’m not giving up ✨⚖ All ideas welcome. And brilliant that you keep pushing forward regardless ⭐

Richard kids need diagnoses so they can get the help and support. Schools can provide loads support so helps to get the diagnoses

We had to wait over 7 years from assessment to diagnosis of autism with our son.

Adult autism diagnosis can be multiple years.

I had to wait over two years for mine, only got my results a week ago

This must be why he ripped up a friend's child's painting pinned on there fridge.

I am not diagnosed but highly suspected of adhd and autism i am trying to go down the private root due to how long the waitng is i also suspect something is wrong with my disks the health care is dismismisive i had the head of the practice have ago at me due to struggling to fill paper work and i needed help also have dyslexia and was asking for an adhd refural i also informed my therapist has diagnosed me with cptsd i spoke carmly and pointing out she was raising her voice at me and continuing and then said i cant wave a magic wand i then put in a formal complaint and i got no reply no apology it made me fearful of the nhs and i am also not being supported by my work place dispite i have flares of three month chronic pain at a time make it impossible to stand they have refused a chair basically i dont have an official diagnosis, i have been over worked expressed going into burn out i am told to wait till ir convenient for them my therapist says my body will chose to give up if i dont sign of but i also have responsibility so i am trapped not having any official diagnosis despite i am affected daily

4 years my child was on the waiting list and 11 years trying to get professionals and school to take us seriously.

It's always bern bad my nephew took 5 yrs yo be assessed this was 3 yrs ago,lockdiwns made no difference the tories have bern strangling this service for over 10 yrs

i was assessed and diagnosed twice!

A year, here in norfolk its a 6 year wait .

They literally can't keep up with anything anymore in health even me getting my anti psychotic changed or upped or downed can take much longer then it should depending on medication. They are having med shortages right left and not enough doctors people have to set up appointments months ahead just to get seen.

Several years in some places.

money grabbing parents. There are genuine diagnosis then there are the ones jumping on the bandwagon. I personally know one. Her teacher says i should report mother to child services.

Im 38 ive struggled with this all my life and will never be diagnosed as i dont trust the doctors especially after the covid scam

The big question we should be asking is why this massive rise in ADHD in recent times??? Are "modern" foods we give our kids the cause?? Seed oils?? Confectionary?? Grains?? Sugar?? Those chemical "E's" on a list as long as your arm on packaging of processed foods??

Mum seems a bit touched by ADHD.

Too many opportunities I believe. Science and recognition of issues has outpaced the system. In the 60s we were just classed as thick or different. Some were able to pay for assistance, some schools offered help. Some of us survived and some did not. But the country does not owe us help, we must seek it for ourselves. Any help is a bonus. Remember a true friend stays with you in good times and bad. The country cannot afford to help everyone. I think this also opens other issues when one sees so much money being wasted on illegal immigration.

I dont belive that number at all. Iv met people who arent autistic who claim to be because they think its some sort of quirk😂

These parents have decided befoe the professionals that rhe child is autistic 😆 this country needs a shake up. She wants a diagnosis cause she wants the benefits.

What is the relationship between childhood vaccines and autism? Why don't you speak the truth on it?

Well done ❤❤❤❤❤❤❤❤❤❤🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏 good clip. 😊😊😊

I'm waiting to find out if I have cancer. Wasting money on autism and trans and depression hits different when the cancer waiting lists increase

172000 people could find out they dont have it .. that would be relieving..

There's lots of excuses for bad behaviour these days...

How about fibdi g the cause of the Autism and fixing that

In a country where the plebs are on the breadline, sadly a diagnosis is the only way of increasing your income. P.S It took me 63 years to get a diagnosis.

I was told it will be years until we are seen

Corona damage. Crown damage.

It took us 9 months from start to finish for My 3 year old to get diagnosed. Never had an issue. The thing is there are so many adults who all 'think' they are autistic because they don't fit or watched tik tok videos clogging up the waiting list for genuine cases Same with some parents also who won't stop until they get a diagnosis on paper even AFTER their child has been assessed and not met the criteria. A diagnosis isn't even a guarantee you get support, an ehcp is more valuable in that sense but now everyone wants one of those aswell. Sorry but its obviously going to take ages when everyone thinks they have it. But do they really?

Well it hasn't held Chris back as it, he found out in his 40s, tuck him long enough never saw the thing sooner..

Everyone is a victim and like being a victim...

Growing up in the 70’s/80’s I never heard of Autism and being Autistic. There are now so many who have it and have either waited years and diagnosed or still waiting I have no family who has this but have the medical profession explained why young people get this 🫤🫤🙏🙏❤️❤️

MI5 CALL TO MARK SEXTON 10.25AM WEDNESDAY 20TH OF MARCH 2024 .BITCHUTE . Responsibly Liberty .