I’ve experienced off balance/wooziness for 3 years. It was debilitating and out of nowhere when it started and sent me into a health anxiety crisis. I had every test done you can think of. I stopped letting it control me and did the things that made me uncomfortable like going to the store and going to class and my clinicals. I felt off the entire time but I would just power through. Over the past 3 years it comes and goes but never completely goes. Last week I was at work and out of nowhere got so off balance and woozy if felt as though I was about to pass out. I sat down for a while and get better but since then the wooziness is back full fledge. The more visually stimulated I am, the worse it gets. I’ll feel dropping sensations and off balance and just like I’m drunk. It’s the weirdest sensation. And then my anxiety tells me it’s something serious. But it’s most likely related to stress. And then the anxiety exacerbates it. Even if you don’t feel stressed or anxious, your subconscious can be. And even the smallest bit of stress can throw you overboard. You’re not alone. It’s been 3 years for me. Get checked out by your doctor to ease your mind. But, it’s most likely anxiety, stress in a form of PPPD. Doing vestibular exercises helps me. The less active I am for a longer period of time, the worse it gets. So I’ll force myself to go for a walk or do my exercises. Take your vitamins, stay well hydrated, and try to decompress.

The dizziness your explaining is exactly what I get, it comes completely out of the blue and after its happened I fear going out or doing my daily activities incase it happens again. I can never pin point whats caused it because sometimes it comes on when I think I’m doing much better with my anxiety its so frustrating 😩

I know that feeling, it feels like titling towards one side, being pulled / dragged, and sometimes it also feels like walking down or up a hill, even when you’re not on a hill.

I'm no doctor bro but I can almost 100% guarantee it's just pure anxiety. The body has these strange one off sensations they happen from time to time but we are so sensitive to everything in our bodies that we pickup on them and freak out. Normal people don't think anything about these harmless sensations but we go into overdrive and obsesse over them. It's happened to me countless times and it really can get me down. When I've been feeling better it makes me question and doubt everything. I don't know what's worse, the sensation or the feeling like your life and freedom are being stripped from you again. That kind of back to square one feeling. I try to use it as a building tool and don't let it take hold. It's definitely not easy but sometimes these are the times I push back the hardest. The last thing I want to do is go into the grocery store feeling like this but I make myself because I'm not letting anxiety take back anymore of my life. That's the theory and in all honesty, sometimes I push back hard and sometimes I can't make myself and feel down for a while. Either way we've both come so far and we're not going to stop moving forward. Nothing but respect bro! God Bless!👍

It’s vestibular issues. Most likely pppd. I have it. Mine was really bad for about 8 months. Now I’m about 98% better. Some days I get that dizzy still and pulling feeling. It sucks. You gotta let it not scare you. If you let it it will keep you dizzy. It’s weird. I also have anxiety symptoms even when I’m not anxious and it scares me. The trip may have like subconsciously overwhelmed your brain. I even get nauseous from it sometimes. I also have that fuzzy floaty feeling a lot of days. It is SO frustrating. I’m so sorry you deal with this too. Healing isn’t linear. We’ve got this!!! Mine started last August.

Can't belive that I'm so happy to hear someone else's health issues. Every single word you said described me to a tee 100% sad it say but it made me smile to finally hear someone describe my story. Your definitely not alone in this I have had this feeling on and of for over 15 years but this time it just seem more intense than ever. I'm pretty much convinced it's pppd and anxiety working in a continuous spiral to mess me up. I think the older we get the likely it could be something serious plays a bigger role in the way we think about the symptoms. Love your ink in water explanation its a easy way to describe it to others. Your clearly a anxious person you can tell that by the way you worry about people getting into cars next to you and I'm guessing you worried there going to think your wierd for talking to your phone. I would be exactly the same. Good luck on your journey mate. Cbt therapy seems to be helping me to stop thinking the same way that I have always done.

If seeking medical assistance will put your mind at ease. It’s worth it! I went to the ER when mine first started three different times. They couldn’t find anything wrong with me and told me it was probably from my anxiety. It’s frustrating. And so many people deal with this. I’m in a pppd group on Facebook. You should join! It’s nice knowing you aren’t alone. I’m in the one called chronic subjective dizziness.

Right there with you. People like us are more prone to fall into bad habits again when things like this happen. Head up, you know you will make it through just like all the other times. It just takes time

Thank you for sharing this experience. I experience random dizzy spells and any time it happens it sends me in a downward spiral and I am trying to not let it control me and it's hard. This video, and everyone comments definatly help me feel less alone.

Thank you for making this video, I feel the same daily. Sometimes I have a good day and then it all comes screaming back, I hope we can all recover from this, it’s hard to describe yet it impacts daily life!

Wow. You are describing my life for the last 2 years. Just knowing I’m not alone in this adds some comfort. I had no idea what was going on and found it very scary. I have always suffered with some form of anxiety throughout my life. Now it appears to have shifted to add dizziness into the mix, which I find the most difficult to deal with. It started during first lockdown. I had been furloughed and became very inactive for 7 weeks up to that point. And had already been working from home in a new job since April 2019. First time it happened I woke up with it. Scared the shit out of me. I thought I was having a stroke. When it happened again 8 weeks later, again when I woke up with it, doctor said it was bppv. But I wasn’t so sure. Between these 2 episodes I had had other various different dizziness going on on unbalanced/lightheaded and this was happening all the time not just lying in bed. I thought maybe it was worse because I was lying down. They have refused on 2 occasions to send me to ENT. Presuming that I didn’t present other symptoms. Which I think Vestibular problem’s would, but not sure. I should perhaps think, well maybe it’s stress related, but it didn’t seem like that at the time, very out of the blue. It has never got any worse, and come and gone. I have had migraines in the past but never that made me dizzy, so vestibular migraine could be it, but I’ve no other symptoms at all. I thought maybe something neck related, as it happened lying down at first, a blood flow thing, or a nerve issue in my neck. But again, would I have noticed other symptoms like pain or obvious stiff neck? I do have neck tension, but would it cause this? It’s frustrating as I will probably never know:( I was thinking all sorts, but I think this is normal if doc doesn’t give answers. I was trying to diagnose myself, convinced docs were wrong. Didn’t know what was going on at the time and asked the doc could it be bppv, anxiety or both, so one causing the other, and they just said maybe, possibly, they didn’t have a clue. When it first happened I didn’t feel stressed as I had just been watching tv playing games at home. But looking back, I had changed jobs after 20 years the previous year which was actually a total nightmare. I then ended up furloughed during lockdown. So it was eat sleep repeat and I never went out at all for fear of covid, even for walks. I had this on and off for 6 months, it was at its worst starting work again in Oct 20, but eased off over the following month. Some incidents seemed stress related others not, but the dizziness varied too, in type/time/severity, it was never the same. And I couldn’t really relate it an ear to be Bppv. Like you, I try to be positive in that it hasn’t got worse or more persistent, which it would if more serious. I had a massive Panic Attack out shopping, I went really dizzy before it and this was after the doc told me bppv, so I hadn’t been anxious about it happening when I wasn’t lying down, So I wasn’t even sure this was connected to that and again thought it was a stroke. All docs did was offer medication! Living with a constant fear of going dizzy is so horrible:( I try not to let it control me, but it’s difficult. It seemed to go away and then last summer returned and went away again and then returned again 6 months later. I always think that the doc had missed something as they never really did any tests on me from the neck up. I worry that this is going to be with me forever and not go away, the fear of bppv is still there because I don’t know for sure. I had no idea that you could just go dizzy from anxiety without hyperventilating. I still struggle to exercise as I know this is recommended. People don’t understand that having anxiety isn’t something you can always control. If it is down to your genetics, as I do think that with me, as it happens when I don’t feel stressed too. Just like my migraines used to do and I used to get panic attacks in the night too, out if the blue, so now is it dizziness instead? We probably have more cortisol in our systems which needs to be burned through exercise. I feel your pain, I get on with life, it happens again and then boom! Back to square one with negative thoughts about what is wrong. It’s like we have to learn to say, yeah anxiety bring it on… long time no see…. Know you’re not alone in this. Anxietycentre.com is great website. There are soooo many symptoms listed one being dizziness. Shows how much it varies. It says on here that anxiety dizziness can be misdiagnosed for Bppv. The more I looked into it though, the more I found out about a connection between people with anxiety it can make them more prone to Bppv. Anxiety dizziness only mimics Bppv with different things going on in the body affecting vestibular rather than it being to do with crystals in your ear. I found doctors to have very little info about anything and they were most unhelpful! Offerings meds as a solution! I ended up having to google to find things out which is something the docs say not to do! Because I don’t have all the answers, I still go to bed every night, trying not to lie too flat, which I find uncomfortable. I wouldn’t have to do this if it wasn’t for the doc telling me about bppv. If it’s anxiety I doubt it will make much difference how I lie, but I am too scared to try it. So, not only do I go to bed every night thinking I am going to wake up dizzy I also don’t know if any bppv is occurring and if it’s there forever…I left a very stressful job in 2019, I am not sure if it’s just the events of that and the last 2 years that have brought this on. But mine hasn’t been as bad as it was during 2020. I was hoping to be free of anxiety leaving that job, but it got worse. I have been left with a bad health anxiety. I think I should stop looking to diagnose myself and perhaps have trust in the doctors….even though the first one appeared to misdiagnosed me. I’m telling them my symptoms so if they thought it was vestibular migraine, a vestibular ear issue or neck issue they would have got that from my description of what was happening. Although I have tinnitus….this didn’t sway them. You are right in what you say, if it’s only dizziness and it comes and goes it is unlikely to be serious. Sorry for this long comment. I have felt very alone with this and feel like no one understands, or realise how debilitating it can be.

Been feeling this way for 2,5 years it never goes away. Sometimes it's really intense and sometimes it's not. lt's exhausting..

I’ve had a MRI,hearing tests etc.. nothing nasty found. my ENT suggested Ménière’s disease or migraines or both (diagnoses is almost impossible), and recommended I have a low salt diet (to reduce fluid build up in my inner ear) seems to help enormously, your symptoms sound exactly the same as mine, I mostly got dizzy when I woke up,have to lay there till it settles.

Yes I've had this issue and daily off balance still.....Don't let the setback take you back brotha!! Ez said than done

Thanks for making this video! It's so hard when people don't understand. I have had this for 10 months. Had every test, blood work, checked vitamin/mineral deficiency and everything has checked out. I have struggled with anxiety for years, but this pppd is terrible. I live in Alaska and people have mentioned high humidity and barometric pressure changes can cause vestibular imbalances. At this point I am trying to live life the best I can and when the dizziness/wooziness/u steadiness flares up, I rest and take it easy.

I get exactly the same thing. The feeling, the questions the fear. I have suffering with this for 6 years and tried anything. Some days are good some days are not so good but the only thing that helped me was reading Dr Claire Weeks books. It’s about accepting the fear. Please take your time and read them or watch videos about it. It really helped me. Vacate Fear is the channel that explains her methods. It’s brilliant. I hate dizziness because it’s so damn debilitating. I have kids so I need to go out, shop, drive everywhere. Wish you all the best.

I’ve experienced this I know exactly what you’re feeling. I’ve traced it down to higher stress for me, I get that wooziness when I am stressed. I feel you man, very frustrating. I have good days and bad days. Good luck man hope the best for you.

I always imagine a life free from anxiety. I know it is possible, but it seems so far away. You're getting there my friend.

I feel your pain Billy. This sensation is crap and dangerous for me as I am an epileptic. My advice to you, or anyone who experiences this level of dizziness is to force your way into getting medical attention.

Stress, eye strain, tension, tiredness, it all contributes. But we are over sensitive and question everything so much. I have stopped myself googling things and decided I will only see a real doctor about my issues. If they are bad enough, obviously I’ll be seen. I’m watching you over analyse everything and you have to try and catch and stop yourself. It’s OKAY to feel off and not good. Our bodies are noisy, complex and sensitive. What are you doing on a DAILY basis to manage your stress?

I’m going through everything you’ve explain in this video bro, you aren’t alone, like word for word this is how I feel, I quit vaping and I’ve always smoked cigarettes and in the morning I’ll feel so off until I smoke a cigarette, I just feel so conscious in my own body I almost freak myself out every morning and everyday, I feel like no one else in the world is as conscious as me

I have that feeling frequently - I just call it disequilibrium. I've been checked from stem to stern and there is no diagnosable medical issue. Mine came on after the onset of acute anxiety disorder. It's exactly as you describe here. So: I just put one foot in front of the other and know that it will pass, which it does.

I’ve had this rocking dizziness 24/7 for the last 5 months since having covid vaccine and my first panic attack. Been diagnosed with PPPD

Got rid of mine entirely. I had not been taking vitamin D3 for 4 months. It took me a month of suffering this to realize that vitamin D3 is precisely what the crystals in your ear needs to not fall apart and cause this vertigo. I'm 2 weeks in and taking 2 d3 tablets a day and i have not even had a single attack.

Mine is muscle pain shoulder collerbone and heal pain everfay

I got up this morning feeling like crap I could not go to the shop I still have panic attacks and I still feel dizzy and my legs are like jelly all this is getting me down I strat to cry with it I just I would go away

Yes, I have this happen to me also. Take one day at a time . I’m in the middle of a dizzy/constant motion sick type feeling for the last few months. Hang in there.

That's me most days I asked same question. Heart pumping light headed pins n needles twitching body feel like I going to fall over jelly legs feel crap no one understands or cares

I get that like every 6 months, just happened this morning. What happens for me is I’ll wake up really dizzy, and I sit up fast and after a few seconds the world stops spinning. The rest of the day I feel like shit. If it happens in the middle of the night, every time I go back to sleep it keeps happening. I always thought it was because I was dehydrated but I really don’t know

Exactly how I feel most of the time ,sucks.people think I'm nuts

I've been having the same waking up being super lightheaded and dizzy. My doctor thinks it's vestibular migraine. I know how you feel man.

Hey billy I had this back end of July came on super suddenly for no reason 😧 rushed to the docs just anxiety… made me ? Everything again !!! And I was asking all the ?s you are…. ( even reached out to the Facebook group) but you know that your not back at the beginning you’ve learnt too much ,you will get past this and quicker than before ( doc was a waste of time for me they were useless) Always here mate if you need a chat x

Ok my friend, I think I have the life changing answer for you! Please read - there is another neurological syndrome called MdDS Mal de Debarquement Syndrome. I have all the symptoms that are you talking about and I was first diagnosed with chronic Vestibular Migraines - THEN a new neurologist, Dr. Shin Beh, finally diagnosed me with BOTH vestibular migraine AND MdDS (spontaneous onset.) MdDS feels like it comes and goes or can be constant 24-7 with a sense of gravity pulling, pushing, rocking on a boat or bobbing swaying feeling. If you get in a car and drive you feel better. If you get out of the car then you feel rocking again. There are treatments to give you life back! I hope this helps.

I get really bad dizziness vertigo if it’s about to rain or snow any change in air pressure I also get horrible vertigo during bad migraines where I literally fall into the walls .I recently found out my vitamin d and b12 are low which can cause dizziness as well mayb have those vitamin levels checked as well .Hope you have gotten relief🙏🏼

As a physical therapist the wooziness or foggy head feeling is something I hear a lot after treating someone for BPPV. And as someone who suffered from anxiety/panic attacks in college I can tell you that anything that makes you feel off will make you worry and feel those symptoms more intensely. I went to the ER twice thinking I was having heart attacks but everything was fine. If you've had everything checked it's certainly possible you have some form of crystallization or BPPV forming that is resolving itself in your sleep or when you turn to get up making you feel that light-headedness/foggy head feeling. There are maintenance exercises for BPPV which you can try a few times a day to see if it helps your symptoms and habituate you to the feeling Edit to point out that although BPPV can be treated and resolved the long-term effects on the nervous system and vestibular system can still linger resulting in certain head movements causing the sensation if it's not properly therapized

Best one in UK mate nice & flat plenty to do.... Enjoy mate....

Hi Billy I have the exact same 24/7 headache dizziness all the frigging time I'm so scared docs say anxiety, they say that every frigging time sick of it, you been back to centre parcs again yet..... Paul from Sheffield 👍👍

You sound like you have vestibular migraine, I have similar problems, mine started as Vestibular Neuritis, and I believe it’s manifested into Vestibular Migraine. Read the book “Rock Steady” but Joey Remenyi it’s about rewiring the brain through neuroplasticity. I’m currently in a flare up and came across your video

Been having the same dizziness, off balance, head pressure on and off for the last 2 months 😔 When I think I am getting better one day it comes back with a vengeance the next!

Glad i came across your video it happens to me i suffer with bad anxiety so bad i cant even work as i cant leave my home it happenend this morning and i can not do anything but worry

Hi just watched your 2022 video today is May 2024 and this just happened to me 2 days in a row and I was wondering how are you feeling now - did you have to do anything special what did doctors say it was - I loved your video am from Florida and love your accent

Yes get it a lot

Totally know how you feel...its bloody frustrating

I have many times during each day where I feel I am about to lose consciousness. I had a seizure about a week ago walking down the street and smashed my head into the concrete. I am ALWAYS scared I am going to have another one. I hope the medicine they gave me will stop them.

I've had this on and off for around three years. My neck is shot and I have accupuncture booked, but whatever this is is terrible. I feel depersoned and not like I am in reality. I get terrible tinitus too. I am convinced its neck issues for me

You’re not alone. There are clearly a lot of people who have the same issues. In the research I’ve been doing it seems that if you have medical clearance and all is well that Neuroplasticity may be the path to resolution. Look up Rock Steady by Joey Reminyi.

I've been 2years on April of my anxiety dizzy experience off balance ,neck palpate head,worries but I never give up is just anxiety

I'm 26 and have been diagnosed with pppd and vestibular migraines anyone else? 😪

It happens to me quite often, I had Vestibular neuritis which started over 2years ago and my doctor said recently that it's quite normal to still have dizzy spells, I feel like I'm on a boat, really scary.

I cried after hours of waking up dizzy. In drank water took my meds. Been taking my BP and it's been 110/70 to 128/75... idk. It's scary.

Yes I had it this morning just dizzy verging on vertigo spin, so I have to get up very slowly I hate it. Even worse in dark it can get a better hold.

Everday

I just woke up with extremely sore eyes, every time I look side to side with just my eyes they strain, I had a pretty massive headache and my whole body felt weird and fuzzy In a sense

I really feel like if I’m going to fall & pass out but of course it does not happen.. it sucks because I think I have to go emergency room every time but I know I just have to keep watching my symptoms 🤦‍♂️

My neurologist is one of the best in the world - Dr. Shin Beh. He can see you via telemedicine for diagnosis and management of meds. He is based in Dallas, TX. Effexor 75mg and Lamotrigine 300mg daily (this medication has been the life saver) as a preventative for both VM and MdDS. Please note that most doctors, specialists, ENTs, and neurologist DO NOT know about these dizzy disorders especially the neurological origin ones. I literally have lived the same hell that you are discussing in your video. Please see Dr. Beh or if not find a good neurologist at a research university hospital or medical institute in the UK that will prescribe the medications you need to manage your life. Also Valium or clonzapam and a triptan medication during attacks is essential. Wishing you the best! Also, I promise things will get better! Stay strong

I have been feeling dizzy and off balance and anxious with several anxiety symptoms for over a year now. Its so annoying. I got several blood tests done so I know my organs are fine and I don't have any diseases. But still no Damm reason for the dizziness and off balance feeling. Got an appointment at the ent next month lets see what comes with that. If nothing shows up there I will go see psychological doctors. I want to feel normal again. I hate this condition. It impact my life in a negative way. Its so frustrating

This just happened to me 2 days in a row

I dont know what's wrong with me but I do know one thing for certain I miss 2010 a decade ago I didnt even know anxiety existed

Hello Im from sri lanka. My english is not that much good. I had covid and recovered. But i cant feel good as before . During night time panic attack comes regularly.. here is lockdown and hospital facilities are low... My ecg,xray, echocardiogram all are normal. But i have discomfort feeling ( not pain) Panic for everything.. Even sudden sounds make me panic..( i cant talk fluent in english ) please doctor give me solution.. whenever i go for nearby hospital they said everything is ok,normal. But i cant sleep , fear of everything. It changed me bad.... I didnt feel any pain but i feel something cant express on my head and chest.... I had 9 panic attacks during covid .. My cousin passed away because of covid.. So when i had covid i was in full of fear and lost hope in survival. Though i have mild cough and slight fever for only 2 days... Beacuse of panic i feel like short breathness...but during that time i though im going to die..but i never admited to hospital i recover myself in home...but it has been 2 months since i had covid. The fear following me even now.my head and chest cry for help.( No pain but fear sensation in head and chest).everyday night time is challenging..please help me

How are you now

I’m having the same thing every morning.

Vertigo sucks !! Now I'm afraid to sleep cos I'm dead ass scared I might get Vertigo again... 😭😭😭 But what you have at the moment sounds like Vestibular Migraine from prolonged periods / severe Anxiety. I had the same shit and was bed-ridden for 8 months straight ! A trip to visit my family and Clonazapam got me back on my feet. Speaking of mini stroke... I've got my Dr to get me an Angiogram since this shit runs in my family. 💩

I get this! I go through periods of time where I’m doing pretty good and then boom out of nowhere the dizziness will come back and I’ll feel off balance and every time I stand up or move my head I feel like I’m swaying and it is so scary! I genuinely think of the worst every single time. It’s so hard to cope with, only thing that keeps me somewhat calm is remembering I’ve had it before. If I get a sensation that I haven’t had before or don’t remember having then it’s a lot harder to cope with, I have to check my vital signs etc to make sure I’m all good. I think like you , I think we can all relate actually when your questioning if it’s a mini stroke or stress or vitamin deficiencies, lack of sleep, this, that etc. The list is endless for us with health anxiety. So thankful for safe spaces online like here, where I can vent and relate to others, thank you so much! I really hope this dizziness cycle ends for you soon ❤️

i have it

Same right now brother

I had this symptoms for the last 3weeks and doctor just keep giving me medicine for anxiety and ENT want to do physical therapy. I NEED HELP folks... Any doctor who can help and cure this please share i need to go in my normal life. Thank you

Tissue cell salts helped me (bioplasma) pretty cheap online

You look like Bill Burr

My dizziness is a result of my underlying anxiety. Feel free to reach out to me. Peace.

I get it all the time docs say b v.v p & anxiety I frigging hate it Billy it's shite

See an audiologist

Maybe this guy should consult KZfaq posts to find the answer. Dizziness upon waking up. Science is controlling here, not his thought-free anxiety.