My only beautiful daughter died from complications of cystic fibrosis at 23 years old in 2012. May she Rest In Peace and Love. 🌸💕

My bff has CF. Two years ago, she was in the hospital whole summer, but now she's doing great. Sometimes i think how lucky i am to be healthy and fine. For all of you with CF, i wish you the best and peaceful life.

I just turned 13 years old and have had CF since I was born. It is hard since I'm the only person In my whole entire school who has it. When I take my enzyme tablets , and my nebulisers, people look at me weird and ask alot of questions which make me uncomfortable. I've been watching alot of vidoes about how people deal with CF. It makes me cry all the time, and it has given me depression. I'm always praying to God that I don't die so young. It's scary to say and think, "That's how i may die." Because no one wants to know how they're gonna die. But thankyou for making the video, (Its very late but oh well)! It has made me feel alot better about it. Although It is still in my life, I hope it will make me feel less insecure about a disorder I should be proud of for fighting.

Adorable young man, wishing him the best with a healthy long life.

Excellent video Charles.... well done! I know a 57 year old with CF. She still has same lungs (although not perfect) and she's doing fine. "Life does not have to be perfect to be wonderful..."

Great video. Well done to the lad who presented.

I have CF am young but i never give up

Brave young man, great video.

Wonderful presentation, I hope that the presenter is doing well! 🙏 I'm sending love to anyone living with Cystic Fibrosis, you're all warriors!!!

My Father had CF and got a double lung transplant while coping with 30% lung capacity, sadly he died around 2 years ago at the age of 47 from Covid , I have finally accepted help from the people who care about me and I’m on the road to recovery.

Will be showing this to my class tomorrow.

I can see a remarkably sad eyes in you, but on the other hand,you are strong enough to face and stall against the crisis. Well done and God bless you

I love the fact that you are able to come out here and educate us about your problems I mean we all have dark days but am so proud of how you are using yours to create an impact 😩❤️

Just wanna say well done to the presenter. He was remarkably well spoken, learnt the lines very well and his energy was up lifting. I'm not remotely suffering from CF, but I wanna say that the strength in this comment section is unreal. Well done, guys. Just amazing.

Im 15 y/o bron with cystic fibrosis and have to live with it….that’s my life and i love ❤

To all sufferers of CF , friends and family of sufferers, love you all . I was diagnosed in 1964 and just turned 60 last month.

Fantastic presentation. Thank you and well done.

Thank you for that. I wish you all the best in life

Awww so SO sorry to hear that. God bless you sir. ❤️🙏🏻

I loved your video. On point and very well explained. Greetings from Toronto Canada

Well done good and informative video Charles.

I have CF to and watching this video has helped me so much thank you

wow How good you are for presenting this. Well done

My beautiful son Kalyan 15/03/1997#07/03/2024 at the age of 27 years old died from cystic fibrosis complications of post Lungs transplantation operation at yashoda hospital secunderabad May he rest in peace and Love ❤️🙏 my son Kalyan

My cousin has CF and he is currently at the hospital. I really hope he can get better 😥

Excellent video that explained things simply & very well presented.

Great video Charles!

Great Video. I love it!

Thank you for a wonderful video, it is a great explanation.

Brilliantly made - and presented - video 👏

thank you so much this is going to help me with my biology homework 😊😉

God speed to you buddy!

Believe Almighty Allah I am also cf patient facing problems in daily life but I trust Almighty Allah any desease is not the reason of any death.How many persons they even take a tablet in his life time but suddenly they died Why because death keeps no calendar.May Allah protect us all and give healthy life to all people..Nice video.....

love your energy

informational and inspiring! Lovely video, Charles💓thanks

Really nice video.....wish you the very best

This was an amazing video

I'm a medical student. I would love to work on day helping people with CF.

Well explained !

My only beautiful son Kalyan died cystic fibrosis and after that both Lungs transplantation operation may he rest in peace at age of 27 years old boy

🤲⚘🙏 love and prayer for all those suffering with CF.....😔

you are a hero bro👍❤️❤️

Stay strong my friend

What a sterling young man

great video sir hope your all ok

Great video. Till this day i have never heard of this condition. But i went on a birthday and donate money for people with this condition...

What a wonderful vedio 👍

He has the same problems as you. Loneliness and fears. Wishing to do what he loves. Piled on top, several complicated life-threatening problems, including a precious loved one could sacrifice themself to give him lungs............. 😔 God bless you friend my heart breaks for you very deeply... I saw the ghost of my dead best friend run down the hallway and my cat Tobius saw it with me it was 4am. She did it to make me stop fearing the afterlife. I miss her so bad I don't have the ability to sing... I wish you to Heaven someday... but it kills me inside that you live underneath this hovering condition... may you and others form a strong bond and may you get what you deserve in this great experience we call life. I'm greatly sorry the way you go through some of these things.

Thankyou

I started crying watching this guy.

my best friend has CF and her little sister does aswell, they meet face to face (well they live together) and they don't get really unwell, why Is this

I am grateful for whatever I am. 👍

It’s very sad cause my Aunt has CF and I have CF so we can only see each other 1 every 2 years

well done, this is going to help with my science hw ;)

الله يشفيك 💕

If you carry the gene and your mate does can you transmit or activate infection to each other? Can you get it in later life? If triggered by mating?

I wanted to learn more about this because my best friends sibblings have cf her younger brother and sister :(

godbless to everyone that has cystic fibrosis or other sickness😁😁

i have 3 of 5 genetic markers for cf, does this mean i have a chance of catching a disease

I have been told to do this for school work in biology

I have cf too

i have this

I have Cystic Fibrosis and this video is relly good. Thankyou for that. I eat not to mutch,but I know I must eat but it is for me so hard. I have for 1 year lung problems and I dont like it.

The advancement of CF treatment reminds me of HIV. Just as most people with HIV have a near-normal lifespan, hopefully the same will happen with CF!

So it makes your mucus thicker. Specifically it effects a gene that encodes an ion channel used in mucus membranes as well as sweat glands and the creation of some digestive fluids. The effect, as he discussed, is thicker mucus, and a deficiency in digestive enzymes. (This is from a quick google search, not a thorough investigation).

I have been struggling with my condition Primary Ciliary Dyskinesia. Is there anything that can help thin down the abnormally sticky thick mucus which is causing me breathing difficulties. Living in the UK with this rare condition is tough, as there is limited support and knowledge. I have tryed out hypertonic saline, Ventolin nebs, and take daily carbocisteine to thin mucus down. If any one can recommend something i can try, i would highly appreciate it. Thank you.

Is it a problem if I’ve a collapsed lung?

I’m super scared just found out we’re carrying the gene

Idk if I have it bc Ive blown my nose about 15 times a day and not been able to breathe easy since I was very young. Not sure if that is a symptom is CF but I want figure out what it is I have.

Is it contagious?

no, i search about CF because of my biology class 🥺

Where did you get treatment .. our 6 months baby has it .. can you share on treatment for young children

I hope to you good health and You should be Muslim

Which test is used to detect cystic fibrosis?

So like I came here bc I know nothing about my own disease and I’m 15 😂

No have relationship. 😑😑 I know that feeling

💙

Anyone else from their teacher? Lmao

I had to watch this for homework. Hi classmates.

I am 11 and i have cf

pino's son

I’m the healthiest kid in the world with it

I like five feet apart i like haley lu richardson cole spourse💖

Did you hear about Trikafta ?

Once you get a lung transplant, then how do you still suffer from it?

I have cf

I don't want to sound patronising but have you tried raw grass fed milk? It's meant to be health promoting especially with the lungs.

اعوذ بالله من الشيطان الرجيم الله الذي خلقكم من ضعف ثم جعل من بعد ضعف قوة ثم جعل من بعد قوة ضعفا وشيبة يخلق ما يشاء

I just have one question Is it possible to get cystic fibrosis if non of you're parents has it

Is it possible to develop CF in an adult age after 40?

Hi! I hope you are doing well. I am a student interested in researching CF, and there are some questions I have: 1) I have read that the mutation in the CFTR receptor causes secretions without water which causes mucous to build up and the secretions to be thick. Apparently this can result in an immune response as well, even in the absence of infections with neutrophils being the key player. In the absence of an infection, what role do neutrophils have in exacerbating CF? 2) I notice that CF patients in general have lower airway/pulmonary obstruction as well as upper airway obstruction. Are there any specific characteristics to upper airway mucous secretions that make it different from lower airway? Any guidance would be appreciated

I have cystic fibrosis:( i dont want do die

You looks cute

thanks 2 god my daughter is cured from cystic fibrosis thanks 2 god

🧚🏻‍♂️🌌🌹

As we can infect each other's more worse...lol

I lost a friend to it 😭😥😥

That means I will never be able to meet you bcoze I have cf too lol

1 Corinthians 15:3-4 KJV 3 For what I received I passed on to you as of first importance that Christ died for our sins according to the Scriptures, that he was buried, that he was raised on the third day according to the Scriptures John 3:16 16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life Ephesians 2:8-9 8 For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: 9 Not of works, lest any man should boast ROMANS 10:13 For “whosoever shall call upon the name of the Lord shall be saved.” 
Acts 2:38 - Then Peter said unto them, Repent, and be baptized every one of you in the name of Jesus Christ for the remission of sins, and ye shall receive the gift of the Holy Ghost