Wow, your words mean so much to me! It's not always easy to keep pushing forward, but it's messages like yours that light up the tougher days. The determination? Sometimes I wonder too, but I guess it's just believing that as long as we keep trying, there is a chance. The moment you give up, you know for sure it's gone forever. I had a lovely time camping, it was only one night, but it was all I needed. I ended up not filming anything. I just needed a break from everything. Thanks for being such an amazing part of my journey. Your support is everything! 😊

Thank you so much for your empathy and for sharing your own journey with foot pain, it truly helps to know I'm not alone in navigating these challenges. I have also been diagnosed with plantar fasciitis. Your advice on managing the pain with insoles is great. I have just ordered some. Let's both continue to listen to our bodies, seek out the methods that bring us relief, and hold onto the hope for better days. Wishing you all the best in your journey to healing and less pain. And who knows? Maybe the 4th time really will be the charm for that trip. Take care and let's keep supporting each other.

With your positivity only four years in, I think you are incredibly strong. Therapy, learning how to cope during those flares, living with pain, shows your resilience and resilience is vital to continue to seek and to learn from others. I have found a good quality vitamin D is essential for individuals with fibromyalgia as well as magnesium. I agree with you about the wonderful community that Daniella has built. Cheers from Australia

@@user-dr6xn8fo9q honestly we have two options: learn to live dispite the pain or give up on life. I don't accept the last one. I agree with you about the magnesium and vitamin D! Specially the vitamin D part, since mine is chronically low. I've changed doctor and treatment last year, now I'm taking CBD, magnesium and vitamin D daily and I feel like a new person!!! The pain is waaaaay more manageable.

@@user-dr6xn8fo9q one thing I realized right in the beginning: i have the option of living dispite the pain and the option of giving up on life. The last one isn't attractive to me, honestly. We need to learn how to cope and not to blame ourselves because fibromyalgia is NOT our fault. We need the learn how to read our bodies and respect our boundaries... isn't easy, but those this are up to us. I agree with you about the magnesium and vitamin D. I feel like another person since I started taking it!!!

The journey to self-compassion can be tough, especially when dealing with chronic pain that impacts so many aspects of life. But your worth and your dreams are not defined by fibromyalgia. You are so much more than your pain, and your dreams are still valid, even if the path to them looks different than you expected. By the way, are you from Brazil too? It's a beautiful thing to find connections that remind us of home and shared experiences. Let's keep supporting each other, sharing our stories, and reminding one another of the strength we have within. Much love ❤.

@x3danimatos I agree 100 percent with everything you said. Thank you for saying it!♥️

Thank you so much for caring! 💖 It's definitely a tough pill to swallow, having to cancel the trip. Life's full of unexpected turns, and it's all about how we navigate them, right? Sometimes we just need to give up control a bit and let things unfold how they are supposed to unfold. We just need to keep believing that it is possible and as long as we keep trying, there is hope. The moment you give up, you know for sure it's gone forever. Your support means a lot to me, and I can't thank you enough for being so kind.

@@tt_looking_glass can’t wait to see how your camping turned out.

It was just for one night, and I made a conscious decision not to pick up my camera or touch my phone. It was a complete disconnection from the world. The weather was beautiful, and I found myself sitting on the beach, gazing out at the lake while letting the sand slip through my fingers. So, unfortunately, no video about this trip.

@@tt_looking_glass that’s awesome

I have just been told it's Plantar Fasciitis. Mine is starting to get better and now knowing what it was makes it a bit easier to try to avoid it in the future.

Thank you so much for the encouragement! 🚐 It definitely stings a bit when plans have to be shuffled around, but staying hopeful about future adventures keeps the spirit alive. It helps boost my mood when I start getting the van ready and hitting the road. Thanks again for the encouragement. You’ve got this too! Let’s keep cheering each other on! 💖✨

You went camping by only yourself? ( no others accompanied you at the night? )

Yes, I go camping by myself all the time when it’s not cold. I camp out of my van so I just lock the doors at night. I feel super safe and I’m in a provincial park with lots of other people camping near me. The driving by myself part is usually the hardest because my back and foot hurt a lot when I sit for a prolonged period of time.

What was the feeling of being along with nature by Lake Huron that night ( especially not touching smart phone and camera)?

@@jimmyching7293 it was amazing. The weather was great and I went for a walk at the beach. Then I just sat there listening to the waves. I love sleeping in the van. It’s so cozy and I always sleep so well. Then in the morning when it was a bit chilly I made a fire and drank my coffee by the fire. I didn’t even have cell reception there. I brought my camera and my drone but I had no desire to capture anything so I just went with this feeling.

Thank you. The key is to keep the dream alive. ♥️

Ellen, your message is incredibly touching and filled with such warmth and understanding. It’s comforting to know we’re not alone in facing these ups and downs. Your experience in Vienna and the eventual trip to Thailand give me so much hope. It’s a beautiful reminder that sometimes, even when things don’t go as planned, there are still adventures waiting for us, just on a different timeline. I’m really sorry to hear about the challenges you’ve been facing with your health. The journey you're on with your medical treatments is a testament to your determination. I'm sending all my best wishes for your infusions and the procedures ahead. I don't know if you know but I also do Ketamine and Lidocane infusions. May you find the relief and healing you so deserve. Your plans for Tasmania sound amazing, and I hope you both will be well enough to make that journey soon. Your support and kindness mean so much to me, and your story gives me hope and courage. Thank you for sharing it with me and for being a part of this community.

@@tt_looking_glass you are a beautiful person who gets it. I wish you didn’t understand pain. You encourage everyone with everything you do. I’d love to hear about infusions - maybe some tips, advice. How to stay sane. My ability to concentrate is crap lol. I’ve had ketamine infusion before. I lost 7 kgs in a week and my blood pressure was sky high. I’m sure others in this community would benefit from your experiences with infusions as it’s a go to treatment for many chronic pain issues. My hubby had a lidocaine infusion trying to get the GBS pain under control. This meant I could be an informed advocate and ask for the infusion rather than them getting around to it. Simple things like what to take to hospital with you. I can see others in the earlier stages learning to seek treatment early. We also just confirmed my vertigo is due to the brain injury not my inner ear etc. my poor hubby is trying to do more and he has very little feeling in his fingers and feet so that’s problematic. We do manage to grow our own food. That grounding is so essential for my sanity. I think your trips into nature are about getting back to basics, grounding yourself and settling the CNS etc. Probably like me there was no real or reasonable treatments or early intervention but today there is hope for those in the early stages. But many of your followers seem to have dealt with this for years. I support you because you genuinely care. Also having a stationary bicycle is useful. We have to keep moving. Yes we need rest. I found a reiki sleep hypnosis for deep muscle relaxation. I’ll put her name in a comment later for you. You could do a video for those in pain ASMR lol with words of reassurance and wisdom. You have the skills to do that. For people to play over and over. Just some thoughts. xoxo I’m at exhaustion and babbling. I’d love to see you reach more more people.

I'm truly moved to hear about your own experiences and I appreciate you opening up about the challenges and the impact it has had on you and your family. Sharing this kind of information is invaluable, not just for me but for our entire community. The idea of exchanging tips, advice, and just knowing what to expect can significantly ease the journey for many. Your approach to seeking treatment early, advocating for the best possible care, and finding solace in nature resonates deeply with me. The grounding effect of growing your own food, and the therapeutic benefits of connecting with the earth, are experiences I share and value immensely. I want to start growing a garden this spring. I'm intrigued by your suggestion to explore ASMR content for pain. I will definitely explore this idea. I'm honoured to have you as part of this community and grateful for the connection we've formed.

@@tt_looking_glass ditto. I care and am grateful to you for your support always.

Have you seen my video on my Ketamine infusion?

Thank you so much. It's certainly disappointing to have to cancel plans due to chronic illness. I only went camping for one night but it was a beautiful day and I sat at the beach and stared at the lake for a long time. It offered a different kind of adventure and connection with nature that was both refreshing and healing in its own way. I ended up not filming anything and had that moment just for myself. I'm sure my supporters will understand.

Most definitely! Time spent slowing down in nature and appreciating the little things can be healing. 🌷💗