#55: Answering (and asking for) your Parkinson's questions!

Рет қаралды 2,922

Жыл бұрын

The Secret Life of Parkinson's: Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we can address when we have Dr. Patel on again.

Пікірлер: 18

@auroramatera7555 Жыл бұрын

Any recommendations for my sleeping disorders? I wake up at 2:00 in the morning and have difficulty to fall asleep.

@thesecretlifeofparkinsons Жыл бұрын

My MDS told me to take melatonin at night and take it again if I wake up. Unfortunately, it's very common and a lot of people I know at the gym just have to deal with it because melatonin may not always work. When I have that issue, and I do a lot, I just make sure I have time during the day that I can take a nap.

@tr3vorb438 Жыл бұрын

Thanks for the update! Can you discuss taking Rasagiline as a companion medication to Carbidopa/Levodopa with the guest doctor? It is supposed to improve your dopamine production. Also, regarding Rasagiline side-effects, they recommend avoiding foods that contain Tyramine. Question is, what is the guideline (limit) for Tyramine intake and how do we find out exactly how much Tyramine is in our foods?

@thesecretlifeofparkinsons Жыл бұрын

Great suggestion!

@Zerobar78. Жыл бұрын

I’m glad you mentioned adding in new medication to the mix. I’m only six months in for my diagnosis but my doctor recently tried to add Mirapex to my regimen of levodopa and I had a very very strong negative reaction to it. So now we’re back to trying amantadine I believe, but I have not taken it yet. Going to introduce this one much more slowly as Mirapex landed me in the hospital. Maybe some information on introducing new medication‘s to the mix? Especially for us rookies that are more recently diagnosed.

@thesecretlifeofparkinsons Жыл бұрын

Hi Ben! Yes, we have a podcast on introducing new medications! Check it out here: kzfaq.info/get/bejne/p9Fig7hm2sCaZIk.html

@Ogunquit99 Жыл бұрын

I am curious how you came to your decision about starting meds right away. I am almost three years in, and I am not taking anything (other than participating in a couple of drug trials.) are people's symptoms so bad that they immediately start on meds, or is it just a doctor's recommendation? Thank you!

@ChrisC-zi6sq Жыл бұрын

Hiyas Ben! 6 months or maybe a year after my diagnosis my Dr put me on Selegiline with my Carpedopa Levedopa... Worked well for me 2+years.. Just something to think about😊 I tried Amantatine afterwards and it didn't do much for me... Since we're all different thought I'd throw it out there. I've tried numerous routes.. Good luck

@Ogunquit99 Жыл бұрын

@@ChrisC-zi6sq So Chris, what symptoms made you want to start drugs quickly after diagnosis. Mine are reasonably mild tremors in my right hand and arm, but that is it. I appreciate that everyone is different, but I wonder if people just "automatically" go on a drug regimen at the time of diagnosis. Thanks

@ChrisC-zi6sq Жыл бұрын

@@Ogunquit99 for me it was the rigidity/ stiffness that seemed to be alleviated when I tried the medication is not like it was horrible, but was definitely noticeable... But I think you're right, I just did what the Neurologist ordered, being new to All of it. I could of held out longer from taking any meds knowing what I know now. He was like take one of these every 4-5 hours and when we meet back up we'll discuss how it working etc... In my mind 3 pills a day doable and I was moving more fluid.

@margueritefoley711 Жыл бұрын

Love your podcast, thank you for doing it..any suggestions for an alternative treatment to medication for leg and foot cramps?

@thesecretlifeofparkinsons Жыл бұрын

Botox or exercise

@janstie1 6 ай бұрын

Does anyone get snapping or cracking in the joints? From my neck to my feet I get it.

@auroramatera7555 Жыл бұрын

Thank you for your podcast. I truly appreciate your support. I’m taking Apo-Levocarb 1 1/2 4XDAY instead of 2 2 2 3XDay Is this a good dose? My neurologist also added Pramipexole for restless legs and clonozapam. Any recommendations?? Should I be followed by a movement disorder specialist instead?

@thesecretlifeofparkinsons Жыл бұрын

If you have a movement disorder specialist in your area, I highly recommend going to see one. Because I'm not a medical professional, I can't comment on dosage or medications - sorry! I can really only share what I do and what I've experienced. Everyone's body is different.