He would be great in the medical field also. He's an amazing guy and his wife will be lucky in the future.

❤❤yes ❤❤

I subbed

Maybe she would love to have Clay in her hands. I once broke my wrist therapy had the best clay to work with

😊😊😊😊

I was thinking exactly the same thing.

💯

I think the education system would break him. Gentle and attentive people who cares are, sadly, often taken advantage of in today's systems.

@@hyeboi it’s not just being negative to be negative. They are articulating what so many of us see is CLEARLY wrong with our current paradigm

The education system destroys people like him, unfortunately

I see my younger brother in these words ❤

He must be a programmer 😆😆

What does that mean?

​@@Catlily5it means she is so loved that her family want to do their job as a parent and provide these sensors and a big brother who does not see her as disabled butas a normal person. Hope that he.ped.

@@Catlily5 A bug in a program is something that does not work as intended, but a feature is something built in to improve the program or provide a certain functionality.

For every 100 poisonous families there's always one that keeps the hope alive.

Summed up very well

​@@zatoichiMiyamotoindeed

Wow, thats so cool!

Genuinely seems like such a wonderful man. You’re lucky to know him.

One of my first thoughts were he seems like he might be a Christian. Bless him!❤

You don’t have to be religious to be a good person..

@@LakenBrittany I never said that you did

was going to write the exact same thing! He's a treasure.

My daughter has an oldest brother just like him!❤

I wish my brother was like that 😭😭😭

My twin and I have a brother like this. It is and will forever be something we are grateful for❤

Everyone thinks that I'm the older sibling because of the way I care for my older brother 😅

I think it's bc they kind of have to be. Because they have to learn things at a young age that most people come to learn as adults or never learn at all unfortunately. For example, children would naturally make fun of or be scared of someone different, whereas if it's your sibling or family member, you learn very young that some people are different and there's nothing to be afraid of or make fun of. You learn that they are no different and have feelings like anyone else. You learn compassion, empathy, etc. At least that was my experience in my family. And that's what I've observed with other people in a similar family setting. Just my 2 cents. If you don't have anyone close to you with disabilities you won't grow up being understanding.

Reminds me of my daughter with our non-verbal autistic little boy!

Read about glass sibling phenomena, it explains somewhat the reasons...

@@JohnDoe-cd6ro Agreed, just small things like I'm not exactly solitary by nature but doing things by myself for myself is just how I had to grow up. Cooking is also a big thing I just taught myself, if I wanted a nice breakfast or to have lunch asking for it was not an option. Dinner was the only thing as everyone ate together. When I wanted to eat I had to make it, so going to university was a surprise when I saw no one knew how to do anything other than turn on an oven. I'm on holiday and heard one young adult say that that his mum had food frozen for him because she wouldn't be around when he got back???!

I just assumed the head movements were because she thought the “sproinginess” was pleasant against the sides of her face. When I grow my curls out, I’ve been known to bounce it.

I thought the same! She has such GORGEOUS hair 😍

She has a beautiful hair

@@davidshaner9713 thats what i thought too. honestly it could be part of it!

Jealous AF for that beautiful hair!

thought the same - same features.

"She doesn't want to be this way." I don't agree with this statement, and here's why: She doesn't know any different. She's never had a choice. Being the way she is is all she knows. Saying she doesn't want to be this way is like saying she's experienced being "normal" but then reverted back to her disabilities. It's a non-statement.

@@sassykitty292 The point is she's not trying to upset anyone, she simply doesn't know any better. No need to complicate things.

Exactly! This story touched me so much! My son deals with this with the outside world! People constantly judging him, and making he feel like he doesn't belong. And it's like he is a regular little boy just like everyone else. I won't lie and say it's not hard sometimes; the most difficlt thing really is keeping him inside because he elopes. This prob brings us the most stress more than anything and many people do not understand this. But in no way we blame our non-verbal autistic son for this! I pray interviews like this open the eyes of others, so they may become more compassionate towards those who are different than them. 🙏🏽💞

​@@sassykitty292 Actually ppl can feel like they want to be a different way. My son was born with some disabilities and he observes his peers around his age and sometimes thinks he doesn't want to be the kid with disabilities, to be different and struggle, he wants things to be easier for him like it is for his peers. And he was born that way, that's all he knows. So you really just assume you know what a person can or cannot feel, what they do or do not want to be when you dont know anything about them or spent anytime with that person. Kids and young adults with certain disabilities are not dumb, they can and do observe what's going on around them and see how others are and what they have the abilities to do.

except perhaps kids with ODD. But they can't help it, so I guess the saying still applies.

Christie Britton how amazing you had the pleasure to have mireya in your class for a number of years..youre right..that laugh is absolutely endearing and i think one of the cutest sounds ive ever heard lol gotta ask has she always had that gorgeous hair? Those curls are incredible lol😊

Takes a special person to do this work and Love it …. Thank you

Her personality shines to me as well! Even before she started verbalizing in the video, I could tell she had a lot she wanted to say. When she said “I’m not having it” and seemed eager to talk to Chris but not have her brother do so, I couldn’t stop chuckling. Such a character ❤ so sweet to have my thoughts confirmed by your first hand experience

This was so profound.

lol he's not a child, he's 23 so makes sense that he's wise

He has a black momma 😁

💯

@@sagittarius420cheefieso you have to have a black mom to be wise at 23?

@@SavageKittty yes I am kidding lol. Just seemed like a fun answer to a “controversial” question.

*if he wants to

I worked in the Special education field from 1981-1988 & Timmy would definitely be an assett in this field, if he chooses that route. With his personal experiences with his beautiful sister, he has the pure Love,compassion, sympathy & empathy for other's like her. Personally, I can see him working in a Special Education classroom as a teacher &/or as a Licensed Social worker in a Psychiatric Hospital working with children, teens & even adults with Special needs.

​@@lindaalvarez8855*if he wants to

That brother, omg. What a saint. I am a grown man and i was getting choked up by the beauty of it and his genuine god given role. Just incredible.

@@Goodhello369 same! He is one in a million!

There are many families like this, that choose to stay off social media. Source: ME. I work with these families. If you genuinely care/want to take genuine action, there are resources to help special needs families. Every state is different - contact your local DCFS/DHS for resources.

Agreed!!

23 is an adult, I would hope that he knows how to speak and is emotionally intelligent…

@@rachel1729nfortunately some adults in this generation still act like children. That’s why they have that mentality of being a “kid”. How sad

@@LilXancheX very true but it also shows what low standards we have for each other. Being a normal functioning human being shouldn’t be impressive, it should be the norm

@@rachel1729as this series shows so beautifully the expectations we have for people physically or psychologically is not always accurate. Emotional intelligence is something many people regardless of age don’t necessarily have. Everyone deserves recognition for their unique gifts in my opinion.

I hope he's encouraged to take care of his own needs, too. Chances are she'll ultimately need him to take care of her.

@@lulumoon6942......

i mean he's not a child, he's an adult

@@dorna2325 She said "how MATURE...this 24 year old man is. Maturity and legal adult age are not the same thing.

@@MyChannel-ct6gr most people are mature at that age though. he's not a teenager

Fr, you can see it on his face, he loves tf outta her

It also made mi tear fr joy abt da brother

Thank you for putting into words what I didn't think I could. I want to learn from them.

@LL Francis you said exactly what I came to say. It’s so evident that even though the dad has regrets about spending time away and continuing to seek higher levels within his profession, that he has now put his family time first. I do believe he was putting his family first by being a good provider, but the cost he paid was too high for him. They seem to have a wonderful balance and understanding of what each of them needs, and they seem to know how to help each other. It’s a beautiful thing to have seen.

I agree. Lovely family.

I agree and I kept thinking how patient they are with her!!!

100%

I was incredibly moved by Timmy as well!!!!! ❤

100% agreed ... lovely brother and family ❤❤❤❤

He is

Isn't he just so lovely.

Heavenly father doesn't make mistakes . And families are forever and are Eternal. They were chosen for each other before this mortal life began.

Well that's just being blind to the many kids that are abused, killed, or given up because of their disabilities.

yea the fact she was born already is unique most parents would just have aborted the moment they knew what was going on with the baby.

You must have never seen abused kids and abused disabled kids? They are plethora of them. Just check charities, foster care and testimonials on YT even. Honestly there is no justice sometimes they even get killed.

@@Painted_Panther You don't have to be rude. By the way, I hope you realize that people with disabilities are at a higher risk of being abused in ALL nations.

I was scrolling through looking for this comment. She's got some great hair, that's for sure.

I am amazed at how beautiful they are. On the inside. It’s so awesome to see. I love it. Thank goodness for this girl that she was born w this wonderful family. Who didn’t want to give up on her. Even when they were told that she was going to have issues, when she was still in womb .

💕🙏 and hug

Maybe you can be a Timmy for someone else❤

You posted what I was thinking.

@@pattydobrowski7432 right!? He understands and has compassion. I’m sure families in this situation or similar, would love to have in a doctor or nurse or Health care professional of some sort, working w people w conditions like this. He is a great big brother for sure

Well it's different for different kids. I think he knows his sister very well, but doesn't mean he automatically knows how to interact with everyone. I've made that mistake before because I know my own sister who has special needs very well. But when you interact with other people, even with similar conditions it's not necessarily the same. But it's nice to have that special empathy and ability and willingness to understand those who are different so I see what you're saying in a way.

Along with the head nodding tick, later on I developed other ticks due to, what I believe to be, OCD. These ticks do include the punching of the palm that you can see at 0:14 but there are many others that have come and gone throughout the years. With the very small number of cases of Rhombencephalosynapsis, the amount of medical literature and other media available on it is so limited, it's brilliant to see that this channel is able to educate people on a topic that I've never really had the capacity to explain to anyone properly before .

The beautiful care they obviously take of her hare is such a wonderful expression of how deeply the care for her and respect her as a person which is something that unfortunately, so many disabled high support needs adults don't get.

I'm also struck about thinking how, with her sensory reality, they clearly must be so gentle and patient when helping her with her hair. That's such an immense act of love.

I agree. This is a lovely family. I don't know much about Sweden, but I've heard that nearby countries like Iceland, Norway, and Denmark have nearly halved or eliminated the birth of babies with down syndrome. I assume there would also be higher rates of killing babies with differences like this young lady. Does Sweden have a similar rate of aborting children with physical or mental differences? I'm really interested in learning more about these things because I wonder if our collective empathy is diminished by eliminating people with these types of different from our societies. Please do not be offended by these questions. I'm honestly interested about the impact of these trends on our humanity. What are your thoughts?

@@jop4112 That is a great question, actually. And I don't find it offensive at all, just interesting. We do have screenings for Down's syndrome, and there's an increase in people who choose not to carry the baby full term once they find out. We're not nearly as far gone as for example Denmark, but we have a fairly new law that makes it hard to get statistics on things like that, medical stuff etc. Using what statistic there is, there would be 300 children born each year with Down's Syndrome here, but in reality the number is about 100. I had to Google it, I had no idea! It's sad in one way, on the other hand, people like that shouldn't be parents of a special needs child. There's often the pro choice discussion but aside from that, without offending anyone I hope, I think that those who terminate the pregnancy because of special needs maybe should do just that. Instead of a child being born unwanted and unloved. It's a hard question, I'm not one to judge, it's not my body or life, but personally I don't feel like they could care for the child enough.

I bet hair treatment is too sensory and causes a melt down

​@@toker6664 'get that hair care' is a compliment lol

@@toker6664 possibly. If that’s all natural then she’s even luckier 😂

They do change your life, for the better. God bless you.

May God grant the highest rank in heaven for you.

A true gentleman. ❤

I thought the same thing! Sweet and handsome ❤!!

Freya of Freya’s Lucky Arm (Cornelia de Lange Syndrome or CdLS) does her calming with a pan filled with dried beans. Mireya prefers rice. Both girls and their families are amazing.