My functional chiropractors did red laser light therapy on my head to help. One of my symptoms was headaches, and that was one of the first symptoms to fully resolve.

Hey, can I kindly ask how you were able to recover from this? I've had long covid and covid induced pots for almost 3 years now with no sign of it going away. I would love to know how you were able to improve you're symptoms. Thanks 😊

@@zahramohamad1643 I’m so sorry to hear of your long battle with this. I know how it feels to deal with these symptoms :( I did a whole lot of research and tried almost everything, you could say I “threw everything and the kitchen sink at it”, because it was so debilitating, and I wanted to get better. I also looked into several inexpensive brain retraining programs, (DNRS, the Gupta Program, and ANS Rewire) early on in my illness. These help a lot of people recover from long-term illness, but there aren’t as many examples of recovery from POTS. I tried DNRS, and it didn’t help a lot for me, but a few aspects of it did help, such as the guided visualizations, and some simple suggestions, such as to spend time every day, doing things that make you smile and laugh. Talk to friends or family on the phone. If you can’t see them in person, spend time with them in person, if you can, or just watch, funny videos of babies, laughing or animals doing funny things - even a fake kind of laugh is helpful, if that’s all you can do, and often quickly turns into real laughing. Search for laughter yoga on KZfaq. Because POTS and disautonomia our a malfunction in the neural circuitry of the brain and autonomic nervous system, where it’s unable to appropriately, move back-and-forth between sympathetic and parasympathetic states. So in order to retrain and reset the nervous system, it’s very helpful to spend a lot of time doing things that encourage the parasympathetic state. So I decided to raise money on GiveSendGo and get therapy from a functional chiropractor center that specializes in these kinds of problems. There are several of these around the country, but not everywhere. The neurological wellness Institute is a good example. It depends on where you live. And it can be quite expensive. My eight week treatment cost about $9000, including 45 minutes of therapy twice a week, 90 minutes of hyperbaric oxygen therapy. Once a week, and some supplements they prescribed. For me, it was very helpful to have these doctors who understood my condition and have experience treating it. But I don’t think it’s absolutely necessary. I didn’t recover fully in the eight weeks, so I continued to go, but less often afterward. I did improve enough to fly back to my parents house for Christmas. One of the most impactful things I did, and I’m still doing, is sleep A LOT - I try to sleep 8-nine hours every day, and for about a month when I was visiting my parents (after the 8-week treatment), I slept 10 to 12 hours every day. In that month, I had the most improvement. Another thing I did was to follow the FLCCC protocol here: covid19criticalcare.com/wp-content/uploads/2023/02/I-RECOVER-Post-Vaccine-2023-07-24.pdf although it says post vaccine, it’s also the same protocol they recommend for long Covid. And I had neither vaccine injury, nor long Covid, but I have the same neurological symptoms as both of those groups. So I found the supplements that they recommend for my symptoms, and started taking several of those. I highly recommend to read through this and see if you could try some of the supplements that match your symptoms as well. Make sure to look at the contra indications and drug interactions in case they would apply to you. My functional doctors confirmed that those supplements can be very helpful for POTS and dysautonomia. One other thing - I avoided all pharmaceutical medications, since my condition was caused by a pharmaceutical. And last, but not least it’s really important to reduce stress as MUCH as possible. I went on partial disability leave from my job for about three months, and gave myself full permission to not work when I wasn’t feeling well. Then I was mostly unemployed for the next four months. I didn’t cook, and ordered healthy meals by delivery for 6-7 months, gradually shifting to picking up the meals when I had a friend to drive me somewhere in order to save money. My friends and family members helped me out a lot with DoorDash and GrubHub gift certificates during that time. My recovery has been gradual. Every month I get a little better, and some months I get a lot better. After one year, I am almost back to normal. In some ways I’m better than what I thought was normal. The main symptom that still affects me - mostly when I’m tired - is dizziness/balance problems. These are related to the POTS symptoms, and sometimes my heart rate does go up when I am standing still for longer periods of time, but it usually comes back down pretty quickly. I hope this is helpful for you. I wish you a full recovery soon. Don’t give up hope - you can recover, and I will pray for you.

I, also would like to know if & how you may have been able to get out of bed in the morning…

I couldn’t get out of bed much at all that in the first few months - only to go to the bathroom or pick up meals delivered to my door. I focused on other things during that time, and I didn’t really have a Summer in 2022, except once a week or every other week I would feel well enough to go out for a couple if hours - mostly sitting down, very minimal standing or walking. Once I started getting treatment I think the red light therapy helped my headaches go away. I still get up late compared to most people, so for me getting sunlight in the morning usually means getting sunlight in early afternoon. @@Aetherfield

What are the FLCCC protocol supplements? Is this how you healed?

Hi! I got POTS from long covid, I'm not cured yet but a lot better. One of the thing that has helped me has been visiting an osteopathic doctor. Are there any you could try visiting in your area? Also eating nicotinic acid 500 mg (flusch B3) + TMG betain 1g for 2 weeks, that took all my body pain away in a couple of days. There are other things that are less conventional I've done that has helped, aswell. What kind of food do you eat? Do you also have troubles with your stomach? What have your tried so far? How long have you been sick?

If you ask your regular doctor "I am wondering if I might have ortostatic intolerans/POTS?" they should be able to check you out with a simple blood pressure monitor and then refer you to a cardiologist or neurologist who can officially diagnose. You can buy a blood pressure monitor for about 100$ and do a POTS test yourself at home. Lie down still for 10 min, take your pulse and blood pressure and have someone write it down, then stand up for 8 min and take your pulse/blood pressure repeatedly and write it down. If your pulse keeps rising with atleast 30 more bpm when you stand and your blood pressure goes wonky you probably have POTS.

I found functional chiropractors with additional neurology training to be very knowledgeable and experienced with POTS/dysautonomia. You can start by looking for docs who treat concussion injuries, as they have some commonalities with things like POTS.

P.s. Diagnosing isn't as important as treating. POTS is just a set of symptoms, not a root cause. most medical doctors try to treat the symptoms with medications which are not very effective. Good chiropractic/functional neurologists (like Dr. Keiser) look for and treat the root causes, which is why their patients have much better chances of recovery.

Yes. My chiropractic neurologist did red laser light on my head when I was having bad headaches from my dysautonomia. They later got a full-body red light therapy chair for patients but that was after I was mostly better. I also sat in front of the wood stove in the winter and that gives similar benefits.