DIFFERENT does not mean DIFFICULT

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Jessica Kellgren-Fozard

Jessica Kellgren-Fozard

2 жыл бұрын

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Пікірлер: 716
@jennifers5560
@jennifers5560 2 жыл бұрын
There are a lot of people that need accommodations, but don’t say anything to their employers because of fear. Several years ago we had 14 employees. After working for us for about a year a younger employee came up to me and asked if she can have a larger computer screen because of an eye problem that she had. I had no idea she had an issue, I got her the larger screen. No problem. But it made me think that maybe other employees had needs too. I went around and asked. Turned out I had 9 employees that needed better chairs for their backs, a vertical mouse for a wrist issue or larger screens. (One even had a placard to park in the disabled parking spot, but he said he felt embarrassed using it.) I felt so bad that no one said anything and that I never thought to ask. Now when we interview people, I tell that story to let them know they can let me know what they need. Education and awareness is the key to make people understand .
@Sammysam44
@Sammysam44 2 жыл бұрын
Thank you for being a good person. It's a shame that you are an anomaly in the realm of employers.
@jennifers5560
@jennifers5560 2 жыл бұрын
@@Sammysam44 Aww thanks. Awareness is key. I like to think that most people are good people and just don’t realize how hurtful they act sometimes. But if they are made aware then next time they won’t act in that same way. Doesn’t always happen, but I’m hopeful.
@jennifers5560
@jennifers5560 2 жыл бұрын
@@hannahgarrow28 ❤️ sorry it took so long!
@padminimayur4049
@padminimayur4049 2 жыл бұрын
I'd ask that question during an interview, *to* the employer, and see what their answer is
@Kaalokalawaia
@Kaalokalawaia 2 жыл бұрын
I wish there were more employers like you. Thank you
@Taylor-tut
@Taylor-tut 2 жыл бұрын
This!! But also!! Dave doesn’t have to be the best coder in the world! Dave deserves to be able to work even if he’s as average as they come!
@1015SaturdayNight
@1015SaturdayNight 2 жыл бұрын
***APPLAUSE***
@lyrablack8621
@lyrablack8621 2 жыл бұрын
Or Dave could just not work at all if he doesn't want to; he could be a coder if he wants still obviously, but his (or anyone's) basic necessities shouldn't be held hostage behind a paywall
@LilDinoGuy
@LilDinoGuy 2 жыл бұрын
Yes! Plus, since productivity is the highest value to an employer (whether or not it should be), even by that measure it's super important to give Dave that chair because then he'll be able to do his best work, whereas otherwise he'll be hampered by his pain.
@linabiryukov9851
@linabiryukov9851 2 жыл бұрын
Also very true, and it’s a thought I had while watching!
@findingbeautyinthepain8965
@findingbeautyinthepain8965 2 жыл бұрын
True, but the reason Jessica said Dave is the best coder in the world is because she was giving an example of how it helps companies to give employees accommodations. Unfortunately, if Dave could be replaced so easily, it doesn’t really benefit them to accommodate him. They obviously still should. Everyone deserves to get what they need to live the best life (whatever that may look like) they can! But sadly, a lot of companies still only care about what’s in it for them.
@elleclegg2886
@elleclegg2886 2 жыл бұрын
Mollycoddling. Jesus. I WISH I could mollycoddle my disabled students. They deserve a bit of TLC after everything they put up with.
@silentlyjudgingyou
@silentlyjudgingyou 2 жыл бұрын
Thank you for being a teacher who gives a crap. It's to bad there aren't more of you
@jessicaoutofthecloset
@jessicaoutofthecloset 2 жыл бұрын
Thank you for saying this, and for being an advocate for the children you teach! ❤️
@thistley_42
@thistley_42 2 жыл бұрын
100% certain that this person’s attitude to what being a “good team player” means makes them a nightmare to work with for non-disabled colleagues too.
@HarryLovesRuth
@HarryLovesRuth 2 жыл бұрын
That's often true. If your manager is a jerk to your disabled colleague, it's only a matter of time before they're going to be a jerk to you.
@silentlyjudgingyou
@silentlyjudgingyou 2 жыл бұрын
God yes. I wonder how often everyone else just works around them and excludes them because it's faster than trying to get them to do there share
@elspethfougere9683
@elspethfougere9683 2 жыл бұрын
I'm pretty sure this person would be a nightmare to work with full stop. There is so much research on productive management, and nothing quoted matches good business practice
@C-SD
@C-SD 2 жыл бұрын
Also being part of a team means looking out for/ covering for one another. Ffs its a chair. It seems like such a tiny thing, but this happened to a friend of mine a couple months ago. Needed a better chair, found one that would work ok, and had it taken. I think they threw it in the dumpster to keep him from using it. Now they're trying to fill his position. No one wants to work for them.
@OuchingTigerLimpingDragon
@OuchingTigerLimpingDragon Жыл бұрын
@@C-SD The amount of wtf-ery in your anecdote is hurting my soul.
@peacefulleopard8016
@peacefulleopard8016 2 жыл бұрын
Equality isn’t always needed. Equity is what is needed. Different people will need different amounts of assistance to get to the same level.
@ailsadixon408
@ailsadixon408 2 жыл бұрын
THIS!! It really seems as though so many people don't know the difference.
@lyn3325
@lyn3325 2 жыл бұрын
True. Also, people often don't even get equity and what is equitable is sadly often determined by the person in power making the decisions. They call it equity, but it is sadly not equity.
@WolfmanHowlz
@WolfmanHowlz 2 жыл бұрын
My grandmother has chronic pancreatitis and addison's disease. She's been struggling literally her entire life - she wasn't even supposed to live past 18. But here she is, 67 years old, making her own food because she can't eat anything with fat or sugar (and I mean anything) and in spite of the fact that some days she literally can't even stand, dealing with a pain that I couldn't even begin to imagine. Calling disabled people "weak" is the *real* sign of weakness. Weakness of basic empathy for your fellow man and weakness of metaphorical backbone.
@annieinwonderland
@annieinwonderland 2 жыл бұрын
Also there is a line in a show that I love that says," I don't think that they realise what we have to do to just get through the day." It's a fantasy show but it's easy to find the parallels to disability.
@HasabeMizurukara
@HasabeMizurukara 2 жыл бұрын
Hi. Wow. I don't often get to run into other people who know someone with chronic pancreatitis. My partner was diagnosed last year and was told he wouldn't live past 50 at best. Which is scary since we are 30ish now. He also can't eat a lot of any foods and I think is basically starving to stay out of the hospital. I'm also disabled but it's very different for me because while most of my conditions have no cure they are easily managed. My partner is in a very different situation and I am still learning how to support him.
@OuchingTigerLimpingDragon
@OuchingTigerLimpingDragon Жыл бұрын
Oh god. I had pancreatitis, brought on by a new lupus medication I was trying, and they were afraid it would become a chronic issue. It lasted about 6 months and that was PLENTY! I already have Addison's, and live in extreme pain from many other health problems, but if I had chronic pancreatitis I would legitimately unalive myself. It's such an awful experience that's totally unlike any other kind of chronic pain I've come across. Your grandmother is a BOSS, and you can tell her that this cripple is in absolute awe of her and her determination. Just... wow.
@lailarainbow8941
@lailarainbow8941 2 жыл бұрын
As a Special Education teacher, students are absolutely not “mollycoddled”!! I have to fight for their educational equality constantly, and if anything, students with disabilities are held to a higher standard than gen ed students. Ugh🙄 Love you Jessica, thank you for advocating for those who can’t💖💘💝
@findingbeautyinthepain8965
@findingbeautyinthepain8965 2 жыл бұрын
Thank you for fighting for your students!
@jessicaoutofthecloset
@jessicaoutofthecloset 2 жыл бұрын
Thank you so much for this comment, it means a lot! ❤️
@RambleJar669
@RambleJar669 Жыл бұрын
I wish you were my special education teacher. Today I requested captions be added to video lessons as I am very hard of hearing, and was told I was being unreasonable.
@juliam221
@juliam221 2 жыл бұрын
What makes me really angry about people saying accommodations are unreasonable is that they are basically saying it’s not worth it to put in effort for someone who is disabled to be comfortable or have the opportunity to live a full life. To me it indicates a fundamental lack of empathy and acknowledgement of our humanity as disabled people. In the disability conversation I’ve seen a lot activists talk about the fact that accommodations make people more productive, that’s not wrong and it’s not a bad thing but it sometimes frustrates me because even with accommodations I am not as productive as I was when I was in good health. No matter how much or how fast someone manages to work they should not be deprived of the opportunity to have a career. On a more positive note I felt really really happy when you talked about the people who want you to speak at their company😊💕
@claireecarroll691
@claireecarroll691 2 жыл бұрын
Thank you for this brilliant insight: " it’s not worth it to put in effort for someone who is disabled to be comfortable or have the opportunity to live a full life" - that is EXACTLY what they are saying!
@rachelross1046
@rachelross1046 2 жыл бұрын
The tea example got me right away because while it’s ridiculous to think taking sugar in your tea is difficult. I often get made to feel like I’m being difficult when I ask for decaf tea due to a health condition, it’s just so silly and very annoying. This is basically just an addition to the dietary requirements thing. It’s crazy how many people assume that I should just eat things to be polite. I’m all for politeness, I will politely ask for what I need not to be in pain.
@mommys-lil-tortlet
@mommys-lil-tortlet 2 жыл бұрын
Like why do people think it's lesser than to not have caffeine??? Like they think they're so much better than everyone else because they can drink so much coffee, like the ability to digest coffee is somehow a flex??
@HeidiSholl
@HeidiSholl 2 жыл бұрын
I worked in food prep for a cafe and I have a nut allergy, and I was absolutely baffled by the lack of respect for allergies and intolerances! Just dietary requirements generally were glossed over. Every time anyone required pesto, I took everything we used to be washed because otherwise it would be a pesto nut party back there! Never mind the fact that the gluten free fryer constantly had gluten in it for one reason or another! Cross contamination generally was awful. All of this, and one of the people I worked with said "well if your allergy/ intolerance is that bad, you shouldn't eat out". The attitude to anyone with a dietary requirement is "ugh, you're making my life harder, but I won't bother actually taking the steps to keep you safe anyway". It frustrates me to no end!
@dianapovero7319
@dianapovero7319 2 жыл бұрын
I have literally been poisoned byfamilly members as a youngster because in my father's familly refusing ANY kind of food is completely unacceptable. seriosly passed out on the ground & they just lied to get me to eat something again at the next gathering. I don't regret not knowing them now that I'm an adult who never has to see them again.
@alyssapinon9670
@alyssapinon9670 2 жыл бұрын
@@HeidiSholl yess! This is why I was a picky eater for so many years. Now that I’m more adventurous I have to be extra careful. And thankfully my mom tells me that she doesn’t care if people treat her like a Karen when she tells waiters about my food allergies.
@alisakumm9165
@alisakumm9165 2 жыл бұрын
@@HeidiSholl What's more: It is expected in many situations to go out to eat or have coffee with groups of people. If you happen to have an allergy, what do they expect you to do? Never meet people? Never go out to celebrate with colleagues, friends, and family? Or just sit there awkwardly, have a glass of water and watch the others eat? My boyfriend has a rather restrictive diet due to health reasons and is invited to restaurants that offer nothing for him all the time. He always has to plan his meals around that and be careful not to make anyone aware of him not eating at that restaurant in order to protect *their feelings*. (That includes not ordering anything he might be able to eat that's not on the menu.) It's honestly ridiculous.
@CatTheEpicRamenNinja
@CatTheEpicRamenNinja 2 жыл бұрын
In high school when I couldn't see small print or read the board anymore, my physics teacher outright refused to give accommodations and recommended that I switch to the lower class so I could "keep up". It got to the point where I was sitting in a room - sobbing - with 8 of my teachers, my school counselor, and the AP corrdinator, while my mom was telling off said physics teacher. And I only got those accommodations for about a week, if that. We need that "special treatment" to even be on the same playing field as able bodied people. And even then, it's not really an equal standing. Honestly, thank you Jess for making the content that you do, it's so so helpful and important to hear
@ragnkja
@ragnkja Жыл бұрын
As if you’d be able to see better in the other class /s
@dwentlandt1022
@dwentlandt1022 2 жыл бұрын
Amazon hired my 75 year old disabled mom with the knowledge she put her disabled status on her application and verbally told the person that interviewed her. She worked 6 shifts and she asked where her stool was that she was told would be provided. She hasn’t worked since nor has she been fired. What they have done though is told her she can’t work until the “request” has been seen, approved by the “support team”. That was more than 2 months ago and she still hasn’t been given any information or answers. I believe they are hopping if they drag this out she will give up and seek a job somewhere else. I’ve told her to keep pushing for answers. Because they are trying to get rid of a disabled person they hired knowing she is disabled. They want her to quit because they have no grounds for termination. They are afraid she will go to the ADA if they fire her. Oh, and she will because I will ensure she does. As I’m disabled and would love a job over having to live on disability of less than $1100 dollars a month. Try paying bills and having a roof over your head for that money. As a nurse for 12 years I made roughly $29,000 a year. Now I get $12,000.
@cloudquest8006
@cloudquest8006 2 жыл бұрын
I'm not a lawyer or particularly well-informed about ADA compliance, so take this with a hefty amount of salt. But in many US states, elimination of an employee off the schedule for an extended period of time can make them potentially eligible to collect unemployment, and may count as a form of termination or being laid off. It could be worth looking into. The ADA Information Line might be able to give you an idea of how to proceed, or at worst maybe an employment-focused law firm if you can find one willing to offer some brief advice for free. I'm so sorry they're doing this to your mom.
@sunscreenhoarder6558
@sunscreenhoarder6558 2 жыл бұрын
Just going to add (on top of the previous commenter's points) that a lot of universities offer free "law clinics" in the UK (where you can book an appointment with a law student), so maybe there's schools offering similar counsel in your area? Worth a look!
@chuchu9649
@chuchu9649 2 жыл бұрын
Amazon are crooks, so sorry
@claireecarroll691
@claireecarroll691 2 жыл бұрын
I think that meets the definition of the term 'constructive dismissal' at least that is what it is refferred to here in Ireland. Your own legal system probably has a similar term. The employer makes it so difficult for you to carry out the work you were hired to do that you get frustrated and disheartened and quit.
@C-SD
@C-SD 2 жыл бұрын
Idk where you are, but in PA in the US here is also partial unemployment. Idk all of the rules, but if they will only give you fewer hours than you had been hired for I think you're eligible. Idk if its a universal thing, though. I'm pretty sure there is a legal req'd turn around time on that sort of paperwork, too.
@MorganVsTheInternet
@MorganVsTheInternet 2 жыл бұрын
This reminds me of the man in Kentucky who won a lawsuit against his ex-employer after they fired him for having a panic attack at the surprise party they threw. Their reasoning for firing him was that he wasn't a team player. Even though he asked them not to throw him a surprise birthday party b because it would trigger him.
@leslieyancey5084
@leslieyancey5084 2 жыл бұрын
Omg, I just read about that story! I’m glad he won, but the company should’ve been made to pay punitive damages!
@lyn3325
@lyn3325 2 жыл бұрын
I feel like with things like that, the best thing to do is to somehow change something to help everyone with disabilities. I am proud of the person who fought it in court. Unfortunately, I foresee other employers say "this is why we shouldn't hire people with disabilities." I'm glad the discriminayed person fought it in court. I don't think this will change the behavior of people though. We have to solve the root of the problem: Empathy and education. It should probably start in elementary school, honestly.
@crazydragy4233
@crazydragy4233 2 жыл бұрын
@@lyn3325 The lack of respect to people everyday baffles me. It's not even about who says it, but the fact that you ignore, brush off and violate people's wishes, request and even needs, that you go against their word and act like you know better than those speaking about themselves. I imagine for people with life altering conditions is so so much worse... I hope we keep learning and practising empathy for all of us
@nanamiharuka3269
@nanamiharuka3269 2 жыл бұрын
This is angriest I've ever seen Jessica! And rightfully so! I can't believe they not only DO that but ADMITTED it too AND to a person with disabilities!!
@alyssapinon9670
@alyssapinon9670 2 жыл бұрын
I was raging right along with her. Ableism really is a byproduct of our productivity focused world
@KMMHealy
@KMMHealy 2 жыл бұрын
I’m disabled (legal blindness) and not surprised at all, but it still makes me as mad as Jessica.
@kimapts
@kimapts 2 жыл бұрын
“But if we let ourselves be crushed now, who are we letting be crushed later?” 👏👏👏
@stargirl7646
@stargirl7646 2 жыл бұрын
I still remember when I was volunteering at a Christian camp one summer in the kitchens. One day I had to scoop hundreds of cookies onto trays from a huge bowl of batter. Sounds good. But it was going to take a while, and I knew my feet would start hurting. So to keep them from hurting for the rest of the day and impeding me, I brought over a little stool and sat on it. I was later TAKEN ASIDE and scolded because the other volunteers (mostly retired people) hadn’t gotten chairs, so why should I get one? Forget the fact that they were doing completely different jobs that required moving around, me PREVENTING PAIN and inconveniencing NO ONE was seen as selfish. Ah, martyrdom culture
@andream4452
@andream4452 2 жыл бұрын
Makes me think of when I worked at the university dining room. We had one older.lady who was the cashier (scanning student meal cards) and she had a stool to sit on. Well sometimes she would be out or she didn't work on weekends so student workers (me) would take the shift. She was able to sit on a chair but when I did I was looked down at for being lazy. I guess I was just supposed to stand on hard floor with uncomfortable non slip shoes on for 4 hours after waking up at 6am working my internship for 3 hours classes for 4 and staying up until 1 am trying to complete my senior thesis paper
@crazydragy4233
@crazydragy4233 2 жыл бұрын
@@andream4452 Fr, and you can tell people who are pissy about that only stay quiet with the old lady because it's socialy accepted that old people have no legs, not because they care 😒 It's really not that fricking hard to not be dicks to others. You don't put anyone down by uplifting others but some will fight you tooth and nail, so that you don't have a better life instead of fighting together for improvement to their own. 🥲
@stargirl7646
@stargirl7646 Жыл бұрын
@@andream4452 oh man yeah that sounds very similar!
@edcrichton9457
@edcrichton9457 Жыл бұрын
Nevermind that if you are in the US OSHA regulations require them to give you a pad to stand on. Of course management doesn't think the pads fit the vibe of the place and remove them.
@gabeangel8104
@gabeangel8104 2 жыл бұрын
I will never forget the time my mum got fired from somewhere when her mobility got bad enough for her to need crutches because apparently, according to the office manager, she was a fire hazard by having crutches in the office! It’s not like she left them laying around in the way or anything but they said unless she could walk around the office without them then she couldn’t be there. They knew she had a disability when they hired her but it was fine so long as she could still function like an able bodied person. She wasn’t even asking them for actual accommodations as such, just ‘please can I bring my mobility aids with me’. It seems such a stupid thing that you wouldn’t even think you had to ask it!
@jennifers5560
@jennifers5560 2 жыл бұрын
That is so sad that someone actually told her she was a fire hazard. The person that said that is not a nice person.
@SarahAndTheRedGuitar
@SarahAndTheRedGuitar 2 жыл бұрын
I had a slightly similar issue in school with my wheelchair. I have a congenital heart condition and would become very tired and out of breath. My wheelchair would sometimes have to be left in the corridor outside the classroom, and in a school things would sometimes be stolen from it like gloves and I was always worried that the chair itself would go.
@juliam221
@juliam221 2 жыл бұрын
That’s so horrible😖😖
@andream4452
@andream4452 2 жыл бұрын
@@SarahAndTheRedGuitarmyself and my mom worked at a call center and her BOSS would take her cane and play around with it, leaving her stranded at her desk because she couldn't get up or walk without it. Like literally walk by when she was on a call and take the cane and play with it pretending it was a gun or he was fishing or whatever. Something a little kid would.do.with a found stick. He was very supportive (compared to the other bosses we had) but he was an Effing immature.
@bibiblocksberg5932
@bibiblocksberg5932 2 жыл бұрын
WTF 🤯
@michelletackett9489
@michelletackett9489 2 жыл бұрын
I get that a lot because of my autism. That I can't take places with lots of noises, or how I can't take lots of people talking to me at once. I get confused easily.
@mxnjones
@mxnjones 2 жыл бұрын
Same. As an autistic person, I find it easier to be given a written list of tasks than to be told those tasks…it’s not that hard to write things down, is it?
@michelletackett9489
@michelletackett9489 2 жыл бұрын
@@mxnjones Yes. That helps so much.
@edcrichton9457
@edcrichton9457 Жыл бұрын
I'm so glad to be working from home. Though that is because I'm an introvert and dealing with cross conversations in the background is aggravating.
@EmileeetheBeesKnees
@EmileeetheBeesKnees 2 жыл бұрын
Bit of good news here! My husband and I were in M&S doing our shopping and we then went to the checkout to pay for our groceries. When we got our bags ready, we looked up and realised that the young lady at the checkout has an interpreter as she is hard of hearing. It was such a lovely surprise and I felt really proud that my local M&S actually hired a young lady and her interpreter. A company actually hiring someone who is ‘different’ and made accommodations for her? What a concept! *sarcasm. Honestly, makes me angry when people/companies are blatantly breaking the law or are blatantly and unapologetically biased.
@kaipie9872
@kaipie9872 2 жыл бұрын
I’ve been at my job just about 6 months now, and two months in we got a new manager and he is WONDERFUL! He cares about us all and our mental and physical health needs! I work in a leisure centre so it’s wild that they care about us disabled employees, but he really does he’s put me on shorter but more frequent shifts (ie 2 shifts of 4 hours rather than 1 of 8) and he’s frequently checking up on me and he fought for me to keep my job after I had a month I had to ring in sick about 4 times. I’m 23 and this is the first time a job has ever accommodated me, and it’s changed my whole outlook on work in the future. I enjoy?? Work?? What!!!
@saraxadam3659
@saraxadam3659 2 жыл бұрын
oh that makes me so happy & hopeful
@OuchingTigerLimpingDragon
@OuchingTigerLimpingDragon Жыл бұрын
Awww! That's wonderful. The attitude of the boss really can make work heaven or hell... and I've been through the hell. I'm really happy for you. Hopefully you can get him to put some documentation into your file that states that giving you accommodations is in no way difficult for the company and has resulted in a better work environment for everyone. That way, if he gets promoted out, you'll have some protections.
@mikejggilli
@mikejggilli 2 жыл бұрын
When I was younger I was definitely mollycoddled in school my Head of Year (And GCSE History teacher) did absolutely nothing when I was being bullied.... And when I asked for extra assistance for dyslexia, he said I was lazy and wouldn't amount to anything..... I now have a masters in Heritage and studying a PGCE..... at 23 I was diagnosed with an ASC..... I still struggle because I "Dont look Autistic" or I'm "too smart to be Dyslexic"..... I also tend to point out that the conditions that "didn't used to exist" meant that people often went into industrial jobs that didn't require the ability to read or write, lead to people dying early, or had people institutionalised.... Sorry for ranting Jessica.... You aren't the only one that gets wound up about these. Try to relax during your time off
@simongaudin2506
@simongaudin2506 2 жыл бұрын
Same here I am also dyslexic and of an age to have been a child when it was widely believed not to exist. That made school and exams jolly fun I recall
@KatjeKat86
@KatjeKat86 2 жыл бұрын
I'm in my 30s and I remember when I was in 6th grade one of my teachers told my mom I was the only real dyslexic that she'd ever run across. Because I could give a verbal answer that was incredibly detailed about question but I couldn't write it to save my life. 🙄
@crazydragy4233
@crazydragy4233 2 жыл бұрын
@@KatjeKat86 Ah yes the good old "all PEOPLE with x are identical, if not, they're WRONG" I can feel my eyes rolling back too
@Piti_Pingu
@Piti_Pingu 2 жыл бұрын
Wow, the restaurant thing just hit home as I was recently on a trip so my partner and I went to eat in new unknown places, we did our research for what would be gluten free so that I could eat without being in excruciating joint pain for the rest of the trip. So I ordered and specifically ordered gluten free food. I remember reading something that a lady with a similar issue did in those cases so I thought I'd try just in case. So when my order came I casually asked "oh did I remember to ask for it to be gluten free? I'll be in so much pain if it does. Haha" the waitress took my plate back saying "uhm Just let me take this back to the kitchen." I got an entirely different plate with very different looking food. So clearly the first one wasn't gluten free. -.-'
@jadziajan
@jadziajan 2 жыл бұрын
That's genuinely awful. If they actually advertised these dishes as gluten free, it might be downright illegal. I'm glad to hear you were given something safer for you still, though!
@RedXiongmao
@RedXiongmao 2 жыл бұрын
@@jadziajan Every place I've ever been to aside from dedicated gluten free places advertises their items as "gluten friendly" and has a cross contamination disclaimer, this is in the US
@simongaudin2506
@simongaudin2506 2 жыл бұрын
My father is Coeliac and has had this experience, mostly its a genuine accident as gluten is in strange places you would not expect if you didn't know but occasionally you get some one who decides he is a faddy eater and there is no such thing he would suffer in silence but for my mother who is more than happy to cause a tremendous scene on his behalf.
@simongaudin2506
@simongaudin2506 2 жыл бұрын
@@jadziajan it is and a restaurant owner has gone to prison for negligent manslaughter in the UK because he fed some one with a peanut allergy food cooked in peanut oil after being told by the victim in advance that they had a severe allergy to peanuts.
@Piti_Pingu
@Piti_Pingu 2 жыл бұрын
@@simongaudin2506 my boyfriend is the same as your mom, especially since he is a professional cook. He is happy to make a scene for me and make sure to let the kitchen chefs know how to do it properly. He actually had to explain how to do it in the restaurant he was working at cause they did it all wrong. He told me that he never would have even thought about that if he hadn't been in a relationship with me but since that was the case he could at least educate the places he worked at so that they would do better :3
@seekercalnnes7255
@seekercalnnes7255 2 жыл бұрын
I stopped saying that i have chronic pain and fatigue on application forms and its amazing how many more interviews I got after I stopped. I'm now lucky enough to be in a job with a supportive manager who looked for things like a more supportive chair and a better keyboard and mouse, to help me out without me asking. It makes such a difference.
@lisam5744
@lisam5744 2 жыл бұрын
I have PTSD and a hearing disability and I've kept both to myself (mostly) with jobs. I work for a university and even though they have very strict rules about accommodations, disability rights, etc., you can still have a supervisor that's an a-hole (like mine) and think they don't have to follow the rules/the rules are stupid/etc. I did tell my supervisor about my hearing disability. Not for accommodation, but to let her know to get my attention before speaking to me. It was so much fun watching her make fun of me in front of my coworkers. Unfortunately I needed the job and didn't want to make waves and possibly lose it. Sometimes we're in a no-win situation.
@maryeckel9682
@maryeckel9682 2 жыл бұрын
I have had employers act as if I somehow tricked them into hiring me, whether I mentioned disability or not. The worst, ironically, was a thrift shop for a nonprofit that helps people with disabilities. "We're fine with raising money for 'them' and having 'them' do really basic work, but we don't want one of 'them' in a management position. And if you dare ask for accommodations, we will demand all sorts of explicit documentation from all your doctors to prove that you need them." The degree of ableism and othering was appalling. But they love to whine about how they can't hire and keep "good people."
@maryeckel9682
@maryeckel9682 2 жыл бұрын
@@lisam5744 it's terrible how people still get away with that.
@ronjaj.addams-ramstedt1023
@ronjaj.addams-ramstedt1023 2 жыл бұрын
@@maryeckel9682 please name that place, I want to avoid supporting them in any shape or form.
@maryeckel9682
@maryeckel9682 2 жыл бұрын
@@ronjaj.addams-ramstedt1023 it's now called AbleLight.
@jadziajan
@jadziajan 2 жыл бұрын
People like to make very small accommodations sound like they're the end of the world. Unsurprisingly, the ones I encounter the most often are food related - every time my mom visits her parents, my grandmother makes a *huge* deal of "oh my god, what are you going to eat?" because she's a vegetarian, even though she... has been one for 30 years, doesn't eat a lot anyway, and is happy to make her own food if need be. My most common personal experience is people making a big deal out of me wanting to drink just water. Whether it's because they wanted me to drink alcohol at the table, or because they wanted me to drink a soda, I sometimes have to insist for multiple minutes at a time that I do! want! water! specifically! and I'm thirsty! It's a tame example, and definitely not as annoying as the actual food accommodations I need, but even just in this situation I'm made to feel like I'm being annoying by wanting water specifically, when water is clearly available. Just because they don't expect someone to actually prefer water, I guess.
@achaoticfaerie
@achaoticfaerie 2 жыл бұрын
the water thing!! yes!! I'm too young to drink (and have no interest anyways), and I can't really drink carbonated things because of my sensory issues. I always get asked 'are you *sure* you don't want anything else?' Yeah!! I am very sure!
@achaoticfaerie
@achaoticfaerie 2 жыл бұрын
@@KitchenWitchery omg i think I'm going to steal that 😂 absolutely amazing
@aliciafree4246
@aliciafree4246 2 жыл бұрын
I was literally thanking my boss in our last meeting that they actually acknowledge my mental health condition as a reason for provisions being made at work, and understanding that I need the context of a phone call given before they call and that I'm able to take days off if needed. They told me that they are just like me and they need those things too so it wasn't a bad thing at all. It was that moment I felt so healed from the workplace trauma of everyother place I've worked out using my condition as a weapon against me
@AmericanBaker
@AmericanBaker 2 жыл бұрын
That story about the Administrator stepping over your prone body is just classic public school system. My daughter has several common issues children in school have (dyslexia, ADHD, anxiety) and it's amazing how many people don't take basic accommodations seriously. I mean, all I want is for her to get extra time to complete work and her not to be required to present in front of the class. And it sometimes feels like I'm asking for first class treatment. Nope. Just trying to level the playing field.
@andream4452
@andream4452 2 жыл бұрын
Jeg yes! I had some minor learning disabilities in school and needed some accommodations. Nothing much just someone to read the tests to me and for the teacher to explain assignments to me in specific details. Well my 7th grade English teacher failed me on a book report I worked really hard on. I was so proud of myself. Well Parent teacher comfy comes and the teacher starts yelling at my mom because 'if that's the type of work she thinks she can suit in my class she has another thing coming!" My mom got very quiet (deadly) and stated did you explain the assignment to her like it's written in her IEP (individual education plan). The stupid teacher didn't know I had an IEP which she is legally required to know. Also this was a very small school so there were less than 100 students all together and maybe only 10 of us in my grade that had accommodations. So there was no excuse except she was lazy and didn't do her job. My mom made the teacher regrade the report
@OuchingTigerLimpingDragon
@OuchingTigerLimpingDragon Жыл бұрын
@@andream4452 Your mom is awesome!
@seriouslywhatever1031
@seriouslywhatever1031 2 жыл бұрын
It really annoys me when the govt says "get back to work!" meaning go back to physical offices when working remotely will not only help save our dying planet but also help people with disabilities find employment. Let's be real, the govt will never give people a decent amount for their disability allowance. Pick one, Boris!
@raeadkins5214
@raeadkins5214 2 жыл бұрын
Thank you for speaking on this!!! I have "invisible" disabilities but have only asked for an accommodation from an employer once, and was denied bc it was "not reasonable." I asked to work from home, which, as we all know, is EXTREMELY REASONABLE in these times. Anyway, I never feel safe disclosing disability to an employer bc I assume they will be like the person you mentioned in your story and deny my application for "a different reason." It's so unfair that there is a massive loophole for employers to discriminate against disabled applicants. (Side note, loved the heavy metal in the beginning of the video 🤘🏻🎸)
@saraxadam3659
@saraxadam3659 2 жыл бұрын
this happened to me TODAY! I just quit my job today because I have invisible disabilities and asked to work at least hybrid and was denied
@saraxadam3659
@saraxadam3659 2 жыл бұрын
this video and this comment, this is all so cathartic wow
@BlizzardSiya16
@BlizzardSiya16 2 жыл бұрын
When I started my current job, I was recovering from iron-deficiency anemia, and went from occasional moderate exercise (at my own pace so that I didn't get into the "I'm-about-to-faint" stage) to standing in place, switching to throw/stack 20-lb weights every 15 minutes, and back every 15 minutes or so. I was about ready to quit after the first two weeks, which were also in the middle of a sweltering summer, with no AC (factory) and in the middle of a large contract for this company which meant a fair bit of overtime. I talked to the foreman after nearly passing out on the job (not for the first time, which was also a reason this was my only role while most people cycled through roles here) and asked if I could sit while I worked. The response I got was "you can do whatever you want as long as you do the job." Admittedly, after that I sat on a ladder for a long time because no chairs in the building were high enough (my own choice, that), but that was good enough for me to be able to continue working. Long story short, I feel that's the attitude most employers should have; "yes, you can have whatever you need as long as you can do the job."
@kellybell6442
@kellybell6442 2 жыл бұрын
I have several health problems/disabilities. I was denied (a couple of minor) adjustments at work because my manager said it would *'positive discrimination'*!! She eventually put me through occupational health & I explained the situation to them. They were absolutely flabbergasted & immediately emailed my manager a copy of the Disability Discrimination Act with 'reasonable adjustments' highlighted, along with a detailed report of what I have to deal with every day, saying my requests were 'more than reasonable'. How is supporting someone with additional difficulties discriminating against healthy people I ask you?! This is just one example I could give you of the madness endured during my career.
@jennifers5560
@jennifers5560 2 жыл бұрын
❤️
@crazydragy4233
@crazydragy4233 2 жыл бұрын
I don't understand that logic without a frame that lacks empathy. At worst they'd have to support other people more too... Oh THE HORROR, the slaves might even feel dignified! we can't have that! 😡
@itisdevonly
@itisdevonly 2 жыл бұрын
Thank you for that. As someone who suffers from complex PTSD, it is incredibly frustrating how so many people seem think it's "weak" to be experiencing anxiety. Dude, if you had to experience the levels of anxiety I experience on a daily basis, you would be overwhelmed and incapacitated. The fact that I get out of bed every day and continue to function is testament to my strength. I am BRAVE for how much fear I face. You're not stronger or braver than me just because you never had any fear to face in the first place.
@crazydragy4233
@crazydragy4233 2 жыл бұрын
For real, people like these will be the first ones to go on about how others can't be coddled because struggle is what makes you strong and worthy!, then see someone struggling and go about weakness??
@GutterBallEZ
@GutterBallEZ 2 жыл бұрын
As someone who's been desperately clawing her way out of a deep depression and, thus, had a lot of trouble getting up this morning, thank you. I am so tired. I have never once been mollycoddled, either in school or in work, and the insinuation is revolting. Ugh.
@juliecipolla6732
@juliecipolla6732 2 жыл бұрын
Just try getting a doctor to recognize your hypothyroidism (low thyroid) when 9 out of 10 doctors mistakenly read my thyroid tests as "normal". It is known fact that there are at least 3 MAJOR reasons why doctors misread, or misinterpret thyroid test restults and REFUSE TO TREAT THE PATIENT EVEN WHEN THAT PATIENT IS SUFFERING MASSIVELY. As long as the tests "look good" then their "behinds" are covered. It wasn't until I got a doctor who had hypothyroidism himself and knew to "treat the patient" (i.e., go by how the patient is feeling/their symptoms) and not purely the blood tests. I filled out a questionnaire and based on that he spotted it immediately. He confirmed it with the blood tests and he was one of those rare good doctors who knows HOW to properly read thyroid tests. He started me on Armour Thyroid, and for the first time in my life, I was no longer cold all the time; ALOT of my aches and pains went away: I lost 8 pounds in a few weeks; AND Best of all -- ALOT of my depression lifted straight away, and I NO LONGER struggle to get out of bed anymore!!!!! Now this doctor has become unavailable (I.e. I can no longer afford him AND medicare and medicaid do not reimburse so I had to pay out of pocket for the full fees and I'm on a Disability income). My problem is that almost any other doctor I go to will probably TAKE AWAY the medicine that has been helping me so well these last 7 years, just because they say that the blood test for the TSH (Thyroid Stimulating Hormone) is too low. Yet I feel WELL, better than in all my life WITH the medication. (I have numerous other disabilities, including Complex-PTSD due to childhood torture by my caregivers) and I assure you that I concur with others on this thread and with Jessica, that it certainly isn't mollycoddling to make things a little easier for those of us whose lives are SO VERY MUCH HARDER, even WITH the help. There is no substitute for human respect, love and consideration. These heal the Hearts of ALL of us, disabled and those considered "temporarily able-bodied." Thank you.
@jazminhudson-stanfield4536
@jazminhudson-stanfield4536 2 жыл бұрын
OMG this is so true. I applied for a job this week and got turned down because I was brave enough to say I am disabled and need accommodations. When you know you know.
@LilDinoGuy
@LilDinoGuy 2 жыл бұрын
That's so messed up. >.< I really suggest reporting them if you have the energy to spare, because they shouldn't be able to get away with discrimination.
@crazydragy4233
@crazydragy4233 2 жыл бұрын
It's such a stupid and obvious loophole... idek. It kinda feels like worker rights are a myth 😭 Certainly for the 21st century
@v78981
@v78981 2 жыл бұрын
Friendly reminder to my fellow spoonies that you're not obligated to disclose your disability status on applications or during the hiring process (at least in the us, not sure about other places)
@annieinwonderland
@annieinwonderland 2 жыл бұрын
In Australia Ndis can make it easier for people with disabilities but it depends on the industry.
@terryenby2304
@terryenby2304 2 жыл бұрын
Wow. Grrr. I had a very successful job interview years ago, and it was great, I completed the task and everything, and suddenly they no longer wanted to follow up as soon as I was asked about my disability status…. Weirdly I have never gone back to shop there. Utter 🍆. Disabled people both deserve and have a legal right to an equal life to people without disabilities. And there is still a LONG way to go to support every disabled person to access education, work, community services and healthcare!!
@SevCaswell
@SevCaswell 2 жыл бұрын
whenever I an unfortunatane enough to meet people with these views in the wild, I am always struck with an intense desire to ensure that they have a personal and intimate relationship with disability for the rest of their lives...
@leslieyancey5084
@leslieyancey5084 2 жыл бұрын
@@SevCaswell it’s tempting, isn’t it? I feel the same way!
@micheledeetlefs6041
@micheledeetlefs6041 2 жыл бұрын
I work for one of the largest healthcare companies in the world. For the past several years, our company has been dedicated to being an employer of choice for the disabled. In fact, I'm on a team that is dedicated to finding disability adaptations and support for disabled employees such as myself, mentor programs, so that new employees with disability do not have the difficulties some of the legacy employees faced, and building programs that will help to break down and eliminate ableism. In our experience, hiring disabled employees and making the tiny effort to accommodate them grants us more dedicated employees. I can't imagine where that guy's head was. Perhaps I should speak to my employer and ask whether or not they would like to have you come speak to our team? You are the reason that I joined this team, the reason I started advocating for myself at the age of 48. I genuinely believe people who see you and hear you learn from you. So please don't let this guy get you down. He's just a jerk.
@austensg9596
@austensg9596 2 жыл бұрын
THIS is why I answer “no” when they ask the disability question most of the time until after I’m hired (it’s easier to be protected under the ADA that way). I do disclose after, but I need a job that fits my skill set first.
@andream4452
@andream4452 2 жыл бұрын
I've always been afraid that if I mark no and then later reveal that I need something that they could fire me right away because I lied on the application.
@austensg9596
@austensg9596 2 жыл бұрын
@@andream4452 If you’re in the United States, you should be in the clear because of the ADA. You’re allowed to disclose whenever you want.
@nataliatheweirdo
@nataliatheweirdo 2 жыл бұрын
Im autistic so getting a job for me is ✨anxiety✨ but the amount of times everyones come to me and been like ‘oh yeah, everyones anxious when they get a job, but just do it anyway’ or ‘well i was anxious and i did it! so…..do it’ doesnt work that way, jan 🥰 Also i took a class on how to make workplaces more diverse and they kept on promoting how great it was on having diverse people and theres all this leglaslation to protect disabled people and then theres me like ‘…but it happens anyway so whats the point-‘ ur litteral first example!!
@ichinisa2583
@ichinisa2583 2 жыл бұрын
I'm watching this in bed after finally, after experiencing pain and fatigue for as long as I can remember, I was discovered to have cervical hernias and had surgery at 31 years of age, all my life I was told I expected to be coddled just for having some stress pain, and everyone lived with pain and just dealt with it, why couldn't I? Anyway I'm in tears with how validated Jessica's videos make me feel. Thank you.
@svitrai
@svitrai 2 жыл бұрын
I'm so sorry, that sounds really painful and difficult to deal with.
@crazydragy4233
@crazydragy4233 2 жыл бұрын
It's so sad how toxic the world can be. "If I can't have it then neither can you!" Some folk will really have others suffer more, not less, if it's not for themselves...
@CreativaArtly
@CreativaArtly 2 жыл бұрын
Yes! Having disabilities doesn’t mean we are difficult! It means we are different! Have different needs! Need different accommodations sometimes!!! I have disabilities myself (epilepsy and autism) and I’ve gotten judged for them before. Because my memory isn’t up to par with my peers, all through public school I got those testing accommodations. The only one that people tend to ignore is that I absolutely can’t be near strobe lights and I’m like do you want me in a seizure? I mean for real. People need to be made more aware and it sucks when they aren’t.
@celticphoenix2579
@celticphoenix2579 2 жыл бұрын
I absolutely get the lights thing. I don't have epilepsy, for me it's migraines and dizziness. I hate videos on KZfaq that have welding where the camera person films the welding arc and the editor thought no warning was necessary. Any bright or flashing light will eventually trigger my migraines and they suck.
@ronjaj.addams-ramstedt1023
@ronjaj.addams-ramstedt1023 2 жыл бұрын
OMNGs! Are they never going to start teaching about photosensitivity and SUDEP to teens in actual schools? Call it "How to not get dragged into court for accidental manslaughter" if they need to make it _interesting_ enough... * grumbles *
@imtherealnsa
@imtherealnsa 2 жыл бұрын
I am very blatant when going for a job interview to say "I AM DISABLED! I HAVE AUTISM!" Paying special attention to the reaction of the interviewer is so important in that moment. If they don't automatically respond positively with assurance, acceptance, and understanding as well as willingness to learn and accommodate then I know to look elsewhere.
@LilDinoGuy
@LilDinoGuy 2 жыл бұрын
As someone who recently got fired for requesting the accommodation of regular days off to attend therapy, medication management, and doctor appointments (which my job- a large hotel in a massive chain with a bunch of employees- said was an unreasonable accomodation... which. okay.) this came at a good time. It's really frustrating to have employers treat you like you're being entitled and unreasonable when you ask for a small adjustment that has minimal impact on any other individual employee.
@jennifers5560
@jennifers5560 2 жыл бұрын
❤️
@crazydragy4233
@crazydragy4233 2 жыл бұрын
So many employers are just shitty, if they can't squeeze you dry they'll toss you... No dignity insight with them sadly
@mouseluva
@mouseluva 2 жыл бұрын
I disclose my disability as soon as possible in the job hunt process. If someone's going to discriminate against me for it, I'd rather they do it before I ever meet than later on and bully me out of the workplace.
@emmajanereads
@emmajanereads 2 жыл бұрын
Same here, Rebecca
@PonderingStudent
@PonderingStudent 2 жыл бұрын
When it comes to mental health, the invisible problem, sometimes all you ask for is some understanding and compassion, but you don't necessarily even get that. I remember listening to a conversation my husband had with his boss, explaining that he couldn't work today because he was in the depths a major depressive episode so bad he was suicidal, hadn't slept for over 72 hours and was mentally incapable of doing even the simplest task. The boss in question was the manager of a store that employs hundreds of people, but my husband being unable to come in for his part-time, entry level job was apparently a personal affront. The sheer inquisition over how exactly he felt and why he couldn't come in was terrifying. I wanted to snatch the phone off my husband and just scream down the line "have you ANY idea what major depression is like? Have you NO human empathy or compassion? Because your responses to my husband could easily be used as a training tool for how NOT to speak to someone who's mentally ill." In the end I didn't, just signaled to my husband to hang up ASAP. Unsurprisingly, he never went back to that job. Fortunately his current employer is amazingly helpful and supportive and, as Jessica says, they understand that in return for this they get an employee who cares and is good at his job.
@aisadal2521
@aisadal2521 2 жыл бұрын
Louder for the people in the back!
@christinakyleloves
@christinakyleloves 2 жыл бұрын
I really needed to hear this today!! I don't work outside of the home, but my chronic health issues cause me daily struggles. As I get older, these issues become more difficult to push through on the daily. I am quite hard on myself about it. Luckily I have a partner and kids who empathize and help me when I need it. Even if I don't ask.
@jessicaoutofthecloset
@jessicaoutofthecloset 2 жыл бұрын
I'm so glad this video helped you and that you have people around you who care ❤️
@margakat
@margakat 2 жыл бұрын
I'm part of that boomer generation. Difference is not difficult. It is also not deviance. Accessibility helps all of us. Not to take away from what it means to live life as a disabled person, being able bodied is a temporary condition.
@elspethfougere9683
@elspethfougere9683 2 жыл бұрын
I really like that.. Being able bodied is a temporary condition!
@crazydragy4233
@crazydragy4233 2 жыл бұрын
Uplifting others doesn't put you down, yet it's sad how many people act like it does. Glad to see empathy and human dignity against the stereotype!
@philurbaniak1811
@philurbaniak1811 2 жыл бұрын
I love the scenario framing of "suppose you're thinking about tea" 👍😆 But seriously, yes, absolutely illegal to choose not to discuss the accommodation of a disability as an employer! 👍
@cherylcarlson3315
@cherylcarlson3315 2 жыл бұрын
Became disabled after 58 and struggling to say what I need. Healthcare interface in US assumes you are able bodied despite diagnosis because it can't be that bad.. after all you live on your own. Things that have been spoken to me make no sense and clearly are isolated from other issues. am exhausted on Friday still from Tuesday contact. house is a mess and I really need a shower.
@philippapascoe6189
@philippapascoe6189 2 жыл бұрын
I needed this. I'm writing my dissertation at the moment on disability and the classical music sector, and there are times where ileverything looks so bleak but this really helped me remind myself that me doing this could help bring awareness to the issues being faced right now and demonstrate some level of best practice going for2ard x
@jennifers5560
@jennifers5560 2 жыл бұрын
❤️
@9_in_the_afternoon
@9_in_the_afternoon 2 жыл бұрын
Hello fellow disability diss writer! I know exactly how you feel, I'm in the throes of writing mine, too (though mine's specifically on autism/neurodivergence), and it's getting TOUGH. Mostly because my university is really terrible at making accommodations for my disabilities. Ah, irony. But you're so right, remembering that we might actually be doing something useful/with a positive impact on the world, however small, is an EXCELLENT motivating force. Wishing you all the best with getting it done - one way or another, we'll both make it through! 🍀
@emilynightingale7758
@emilynightingale7758 2 жыл бұрын
Wow, I was just writing a paper on disability in classical music, if you had any good resources or articles you used I'd love to read them. Good luck with your dissertation!
@ronjaj.addams-ramstedt1023
@ronjaj.addams-ramstedt1023 2 жыл бұрын
Hey check out my channel info if you need a professional thesis proofreader. I am disabled myself and have experience of both classical music (school specialization for ten years) and of working as a teaching and research assistant at university for eight years. (I am hoping to one day restart my own Master's thesis that the pandemic torpedoed)
@OuchingTigerLimpingDragon
@OuchingTigerLimpingDragon Жыл бұрын
That sounds like a very interesting, and VERY IMPORTANT, dissertation topic. As I understand it, the classical music sector is pretty exclusive and resistant to change. I can see how trying to get accommodations in an environment like that, especially in such a "small world", would be incredibly difficult and potentially career threatening. I wish I could read it when you're done. You can do it!
@chuchu9649
@chuchu9649 2 жыл бұрын
The anecdote at the beginning is a great example of how discrimination happens even when it’s illegal. We minorities understand that but not everyone grasps the concept. Good on you, Jessica for calling her out! And im really sorry to hear about your painful experience during school I share digestive issues too, I’m not able to have milk. And while it’s become incredibly easy to accommodate myself (a brief look at a new label is all the time I need to check whether i can eat it or not) I find that other people who are used to eating everything have a hard time accommodating me. I’m learning that the right people will care about your needs and not treat you like a burden. You already know this but I’m so glad i’m not alone!
@katwitanruna
@katwitanruna 2 жыл бұрын
And then we have the fact that depression and pain run on the same nerve endings so when you’re depressed your pain levels go up. Wheee! - chronic myofascial pain, chronic fatigue, chronic migraines, fibromyalgia, bipolar disorder, CPTSD, anxiety Physical and mental health are both important and need to be talked about! Yay Jessica!
@tsyu4333
@tsyu4333 2 жыл бұрын
disability is a hot topic in S.Korea where I live right now. i personally am not fond of the combination of "disability" with "hot topic" but unfortunately diversity is not a thing here. :( disabled people of korea recently started a protest demanding more accessibility to subways, which is a vital means of transport to citizens of Seoul. however, because the protest would delay the train and people couldn't go to their places like work in time, voices of complaint and discomfort to say the least from able-bodied people is readily seen to be pointed to the protesters. what i'm trying to say here is that i'm so glad i have been following your channel because i am more aware of the depth of the situation and how exclusive the public infrastructure is. i hope i can contribute to a productive and meaningful discourse here in korea, even in the smallest bit. i'm still learning about it but i really want to thank you Jessica for what you're doing here in KZfaq! :) (i hope i haven't used any languages that are offensive to others. sorry and please educate me if i have, english is very difficult)
@ileanaprofeanu7626
@ileanaprofeanu7626 2 жыл бұрын
Wow, you didn't put up a rant in forever, and I noticed, because I love your rants, they are so insightful and as a straight able bodied white woman with little contact with disabled people, there are so many things I didn't think about before starting to watch your videos. Thank you!
@LaurenAnne6
@LaurenAnne6 2 жыл бұрын
I am so happy you created this video. I'm about to graduate from an extremely supportive and accommodating university. I'm nervous that my chosen field, tech, will not be as supportive and accommodating. This video is empowering me to ask for what I need and encouraging me to find the companies that will want to hire me and support me. Thank you so much!!!
@juliamartinez3775
@juliamartinez3775 2 жыл бұрын
Seeing (and hearing) your frustration makes me want to come over there and beat the snot out of whomever triggered this rant 😡. Some humans are just awful, no matter what you do. Appreciate your rants and advocacy for us. Sending good vibes from across the pond 🌺🌸🌼❤️
@HumanCatfoodDispenser
@HumanCatfoodDispenser 2 жыл бұрын
Hard same.
@imafine1
@imafine1 2 жыл бұрын
Thanks for sharing your views. You’re expressing the experience of so many of us. I haven’t told my coworkers that i have chronic fatigue. I just let them think I’m forgetful and not too swift. That way they let it pass without a thought. When people know you have a disability then, as you say, you become difficult, even condemned. For me, it’s better this way, and I can still be happy.
@jennifers5560
@jennifers5560 2 жыл бұрын
❤️
@claudiel4660
@claudiel4660 2 жыл бұрын
Reminds me of when they said people with disabilities would take less holidays as they'd be more grateful to just be given a job at all
@yesterdaydream
@yesterdaydream 2 жыл бұрын
Different is not equal to difficult; different is not equal to bad. But different can definitely be equal to clever, strong, and valuable!
@issyangelprice
@issyangelprice 2 жыл бұрын
Well this video just made me cry. Thank you so much for talking about this Jessica, as someone with multiple mental illnesses and who's been mentally ill since I was 13, I really needed to hear this and have some things I've been thinking about for a while articulated 💙
@annahomeabout4435
@annahomeabout4435 2 жыл бұрын
This video needs to be compulsory in school. Everyone needs to hear this message! Amazing as always ❤️
@FellowDayer96
@FellowDayer96 2 жыл бұрын
OMG, i was just on a training meeting for my work discussing this topic with a panel of experts. I'm lucky to work in a pretty inclusive place (be it with the LGBTQ+ community, VIH community, disability community, etc) and some of the questions where of how to approach the questions about possible disability's while on the interview process with the intend of knowing if certain accommodations would be needed and if asking that could be considered as discriminatory and it was a pretty great training even if i'm not in the HR department I think it reflects that there are for sure places looking to give everyone a chance at a job regardless of any "difference", this whole topic sadly blows my mind of how narrow minded some people still are...
@KMMHealy
@KMMHealy 2 жыл бұрын
Any thoughts on how people with disabilities can spot work places like yours?
@FellowDayer96
@FellowDayer96 2 жыл бұрын
@@KMMHealy i honestly dont know any other way than looking for some big company that is open about their support of the inclusion. For example the company that i work for is pretty big medical/pharmaceutical place that has a great global pressence and advocates for human rights in a pretty open and vissible way
@Hiddasan
@Hiddasan 2 жыл бұрын
1. your croissant tangent was so relatable. My limited diet has become more and more limited and I'm so mad about it haha! 2. This video is so good for my soul. I lost my last job at a ... very large global tech and retail company ... after taking a medical leave and requesting accommodations. Again, illegal?? Yes! 3. thank you for all that validation and encouragement! ❤️
@_TheRoseCrow
@_TheRoseCrow 2 жыл бұрын
It is ok to not be positive all the time. No one would expect a person to be happy all the time, even more so when that person has to work so much harder to be accepted than the average person. You help a lot of people, thank you.
@helenm1085
@helenm1085 2 жыл бұрын
At the arts organisation I work for occasionally, they've started asking people what their accessibility needs for meeting days are at the same time they ask about dietary requirements for the free lunch
@jaybuchan4893
@jaybuchan4893 2 жыл бұрын
Oh I feel yah! 4 discs out and an additional spinal injury years before. also now HOH and ears of a 70-year-old thankfully a BSL user of 26 years. Everyone looks at me and thinks fit and able-bodied when i spend 1-2 days a week in bed so i can work as the job is too demanding(GP told me ). In reality, working freelance as Photographer or CSW would be a dream. Already on way to being an FT photographer. Workplaces give few accommodations sadly. seen this type of discrimination all my working life
@Cloudy4Days
@Cloudy4Days 2 жыл бұрын
Yes!! I'm still trying to navigate working and finding a tolerable job while having ADHD. It shouldn't be a nightmare, but it is. I feel like I can't tell employers either because they'll be judgemental about it. "Oh, you're forgetful and lazy? Go elsewhere"
@SweetAsCookiePie
@SweetAsCookiePie 2 жыл бұрын
I love your rants My work seems to have done a weird thing where my boss has gone the opposite way... I was diagnosed with ADHD and autism last week, and since then the CEO has been more inclined to give me days off and make sure I'm not working too many hours in one day, even if that is something I've been doing for the past 3 years... and while I appreciate it, to a degree, it just confuses me a little because I haven't changed, I'm not suddenly a different person, I just now have a diagnosis... but at least she, and the rest of my work, is trying to be understanding so that's good
@Vestianvon
@Vestianvon 2 жыл бұрын
Thank you mum! You help me so much with living with mental illness. You're right. I'm strong daring to LIVE with this and not to just be alive.
@leslieyancey5084
@leslieyancey5084 2 жыл бұрын
This frustrates me to no end!!! They should close up the loopholes that employers can use to discriminate! Is there some place that you can file a complaint against this person?
@imchuckiewannacrochet
@imchuckiewannacrochet 2 жыл бұрын
that second date story had me almost tearing up!!!! all I have ever wanted is to go on a date and have the person notice how awful people are to me for being disabled or having needs.... SUCH A GREAT WIFE YOU HAVE
@jenniferdenton2773
@jenniferdenton2773 2 жыл бұрын
I hope this person was reported for the very illegal behaviour! People think they don't have to listen to disabled people and letting this kind of thing go on just reinforces that
@nssmdo
@nssmdo 2 жыл бұрын
I'm not sure what the process is everywhere else, but in the US (west coast) when you apply for a job they have you answer and sign a document asking if you have any of the disabilities on the list. There have been plenty of times where I have filled out an application and stated I have one or more disabilities on the list. Literally within seconds of filling out and submitting applications I would receive an email saying, sorry but we have found other candidates better suited for the job. It's as if they have a bot that is programmed to say no to anyone that marks, yes i have a disability.
@HarryLovesRuth
@HarryLovesRuth 2 жыл бұрын
That's not legal. From the EEOC website: "an employer cannot ask you if you are disabled or ask about the nature or severity of your disability."
@nssmdo
@nssmdo 2 жыл бұрын
@@HarryLovesRuth its a voluntary self-identification of disability. Not all employers give you this form but ive found it to be more common in some states. It basically makes it so you can ask for accommodations.
@HarryLovesRuth
@HarryLovesRuth 2 жыл бұрын
@@nssmdo They cannot deny accomodations based on whether you "volunteer" to fill out a form. In your place, I would decline to fill it out.
@nssmdo
@nssmdo 2 жыл бұрын
@@HarryLovesRuth well they do deny and everyone is different. Whether its legal or not it happens
@_maia_m
@_maia_m 2 жыл бұрын
That is awful. In my country (Norway) they're not allowed to ask about disabilities and illnesses, neither about if you plan to have children or are pregnant. I'm sure some find ways to sneak around that, but it really shouldn't be allowed.
@PhoebeFayRuthLouise
@PhoebeFayRuthLouise 2 жыл бұрын
Yes! Yes! Every. Word. Of. This. ThiIs is tremendous encouragement to me as a disabled person and should be mandatory viewing for all employers! And this is why I’m proud to support Jessica monthly!
@treblemaker33
@treblemaker33 2 жыл бұрын
Definitely started crying when you were talking about how strong people with disabilities are. I tend to be in denial about my disabilities because they’re invisible, but you’re absolutely right. (Boo capitalist worker drones, boo hiss.)
@crazydragy4233
@crazydragy4233 2 жыл бұрын
We deserve rights, and dignity and to live our best life darn it!
@iriskowalsky7436
@iriskowalsky7436 2 жыл бұрын
Thanks for this video. I've been struggling with homelessness, PTSD, anxiety and depression throughout my A Levels and university studies, and it's taking me twice as long as my cohort to finish my Bachelor's degree. I've been called lazy and incompetent by my ex as a result, and it really did grind down my self esteem. So I really needed to hear your words today.
@testosteronic
@testosteronic 2 жыл бұрын
THE WORKPLACE IS AS HARD AS THE PEOPLE MANAGING IT MAKE IT!! AAAAAAAHH!
@libraryoflilylol199
@libraryoflilylol199 2 жыл бұрын
I had an employer once try to convince me it was illegal for me to not disclose my disability in interview and then request accommodations AFTER getting hired. Uh no. They tried to get me to quit. I did not. (I did eventually get laid off because COVID gave them the perfect excuse.) Pretty sure I'm blacklisted from this industry in my county now but that's not any different from them not hiring me in the first place because of my disability so it's basically the same result except that for a whole year I actually had a job. Also the accommodation I needed was permission to bring in my own better high tech equipment that I purchased for myself so I can do my job and they were like "we don't like that you're bringing in equipment that we didn't provide but also we won't buy new equipment that you can actually use" so.... that was fun. I brought it in anyway and my on-site managers were like "yeah that's fine we won't tell on you because that's a reasonable accommodation"
@missytyrrell1
@missytyrrell1 2 жыл бұрын
Best question I've ever been asked in a job interview: 'So, what is it? Is it polio?' 😐
@kaitlinannwright24
@kaitlinannwright24 2 жыл бұрын
I have orthostatic issues (yay fainting!) and I'm a teacher. We were counted off on our evaluations by the state department for sitting down while teaching. I have a stool at the front of the room and I often need to sit or lean on it. I got scared after getting a bad evaluation, so I quit using the stool. My orthostatic issues became the worst they've ever been in my life. I started developing new symptoms I had never had before, like edema. The school nursing teacher noticed the edema and that led to me finally admiting I have those problems. I told my administration and they said to stand "as much as I can." Well, that means different things on different days, and I would stand for as long as I could without getting lightheaded which was still bad. I took me passing out in the hallway of the school and having to be found by students on the floor (which I really hope wasn't traumatic for them) before the administration actually took me seriously. It's sad that I had to show "proof" by fainting, but at least now I have a tall chair with a back (much better than a stool) so I'm still supported AND visible to the class. Moral of the story? Don't hide your disability from your employers because you think it makes you difficult. Also, if your employer needs "proof" that includes you having an episode, maybe avoid that workplace (despite my new chair, I'm looking for another school bc the way they treated me doesn't sit right with me)
@ember1713
@ember1713 2 жыл бұрын
Unfortunately this is not a shock for those of us who are in this world.My teenage daughter has those that are supposed to be supporting her and her challenges that come with her disability, not talk to her but me, I say nothing and wait for her to reply, they also tell her what she needs and don't listen to what she says she needs, she is currently studying hoping to get into law or peadiatric medicine so she can make a difference like you do for everyone Jessica, thanks for your insightfulness and sharing with the world.
@Lady_Eleven
@Lady_Eleven 2 жыл бұрын
"If we let ourselves be crushed now, who are we letting be crushed later?" ... Well damn now I have to stand up for myself. I wasn't really feeling it before.
@rosiehoy4736
@rosiehoy4736 2 жыл бұрын
I had to go into school to stand up for my dyslexic son because he was being kept in to finish work. the work was copying text, one of the hardest things for a dyslexic. I explained to the teacher why it's so hard and that he wasn't just daydreaming. I have lived experience but she is a trained professional, I would have thought she would understand.
@lynnbrooklyn1332
@lynnbrooklyn1332 2 жыл бұрын
Thank you for posting this. I got into a two week long argument with a coworker about this issue; she wanted accommodations for her disability but said I didn’t deserve one for mine.
@jennifers5560
@jennifers5560 2 жыл бұрын
Well she is not a Very good coworker! That is a garbage thing to think let alone say.
@AvaNightingale
@AvaNightingale 2 жыл бұрын
We don't have to be positive about inherently negative things! You shouldn't have to silver lining a cloud of shit... That being said I know both the coping mechanism and the social advantages conferred by positivity-at-any-cost culture is very useful and especially in the public eye it's likely the best way to get information to the people who control the majority of our culture and institutions. Sadly, positivity often is used as a way to beat down the voices of the suffering and marginalized, so it shouldn't be something you or anyone feel they have no choice but to wholly entertain. The truth is often not particularly positive 💜 so glad to hear your truth!
@spencersaunders1990
@spencersaunders1990 2 жыл бұрын
i had to leave my last job because my disability flared up to the point i was having a hard time leaving my home... they didnt want to have people working from home, so it just became completely inaccessible to me. i loved that job. and it wasnt my team leaders fault, she had advocated for me to be allowed to work from home, but the higher ups didn't want to hear it. so i left so i could focus on getting my health managed better
@rairoberts117
@rairoberts117 2 жыл бұрын
I had a meeting for a scholarship on Wednesday, and as soon as they found out I would need accommodations to meet with them, they started brushing me off. Toward the end of our meeting, the woman looked at me, a wheelchair user who has been disabled since birth, and asked me "Can you have an operation that will fix you?" I've never felt so disrespected, and seen as though I'm broken in my life. So this video? This message? I needed it.
@jennifers5560
@jennifers5560 2 жыл бұрын
❤️
@niencat
@niencat 2 жыл бұрын
I am so sorry that you had to go through this!!!
@stifledbabsie
@stifledbabsie 2 жыл бұрын
Two of my main disabilities that affect my work are my hearing impairment and my kyphoscoliosis. One of my previous employers let me keep a nasty old chair that we still had while all of the rest of the employers had the new mesh-backed chairs that are popular now. Those hurt my back, so I couldn't use them. My chair stuck out pretty horribly, but I was comfortable while working my desk job. My current employer, a call center, set me up with an amplifier and a giant headset so my hearing aids would stop squealing in my ears. They even bought me what looks like a fancy gamer-style headset for online meetings. They have adjustable desks and a lot of other accommodations for disabled employees. Hooray for not making a big deal about accommodations for employees!
@anyawillowfan
@anyawillowfan 2 жыл бұрын
I remember an image I once saw with everyone facing the same wall, but some are shorter than others. The easiest answer would be to break down the wall, but we all know that won't happen, so an alternative answer is to give the shorter people a ladder to stand on. This is what making accommodations is. It's so frustrating that the media and government like to paint every disabled person on benefits are lazy and not trying hard enough to get a job. Yes, some of us legitimately can't work due to disability, but for the majority of disabled people they can (with a few simple adjustments such as working from home, which we all know is 'too expensive' to allow disabled people to do) and want to work, but when nowhere will employ them they are blamed for having different needs from abled people. And while I agree with your end thought that we need to break down the barriers for the next generation, but many of us just want to live their lives, and even those of us who want to make change, the lack of resources such as available jobs can unfortunately prevent us from doing so as we try not to starve to death (okay, perhaps that's an extreme example, but it has happened in the UK in the past few years when disabled people have had support taken from them). I love your positivity and I've learned so much from you, but I just wish the hard work could be done by the non-oppressed for a change. Just as Black people shouldn't have to fight for basic rights, neither should disabled people. Of course, I understand we don't live in that world, but constantly feeling we're not doing enough to teach others about our disabilities is exhausting and destroys our mental health. I truly hope you're reporting the information for the company you talk about at the beginning (you know, the whole 'I do illegal stuff but pretend I'm not') with Citizens Advice Bureau - unfortunately it likely won't make a difference, people don't outwardly state they're breaking the law if they believe those laws won't be enforced - but I guess we have to keep trying. Unfortunately it is even easier for companies now to auto-reject people with certain words on their C.V as it's done electronically, which affects all minorities (there is a reason that many people of colour moving to the UK give their children 'white' names to prevent this), but unfortunately especially disabled people.
@The12Yo12
@The12Yo12 2 жыл бұрын
Thank you for addressing this! This made me smile and cry and smile. I have been going through a lot mental health issues that are very new to me the past few months. Anxiety, depression... And today I had to send emails and come to terms yet again that I have had to request several months extensions for my uni examinations. And although it's been really difficult to admit to myself that I cannot keep up right now despite my desperate hopes, I am just so grateful that my uni can make these accommodations for me in the first place.. Sometimes I do sort of sit back and realize that, yeah it's 2022, and things aren't perfect in any way, but there is progress in people's open-mindedness and understanding towards those with disabilities.
@aliencat11
@aliencat11 2 жыл бұрын
A friend if mine recommended your channel, and I must say I'm very happy with his recommendation. Its so nice to hear common sense!! Take care, and thank you for sharing
@dees3179
@dees3179 2 жыл бұрын
I absolutely love the comment about how hard it is to get out of bed be standing in front of this person. I get out of bed every day, have a wash, get dressed. Sometimes that’s as far as it gets. The Nextep has to be eat meal and take medication. Today that took till 1 o’clock. To give you some context, I’m getting dressed phase was completed at 7:30. The only thing I managed to achieve the entire morning was to put out two baskets of washing on the line. I’m incredibly fortunate at the moment but I have probably the best boss in the whole world. She’s not quite so concerned about how things are done, or when they’re done. She trusts me to figure out the things that need to be done, when they need to be done by, and to deliver. What happens in between doesn’t matter. It’s an incredible relief. For some reason the missing piece of information that the ubiquitous human resources drone (I’m sure there are nice human resources people but not at my workplace) can’t seem to integrate into their thinking is that many of the customs which come along with a job role actually not necessary for the delivery of the work to be done, they are however, massively detrimental to some of the people who would otherwise be capable of delivering that work. Thanks for a good video Jessica. It’s a good one to be able to share with people .
@emilyk3825
@emilyk3825 2 жыл бұрын
I actually raised hell at a previous job because they refused a reasonable accommodation for me. They fired the District Manager and created a new training module for management on reasonable accommodation and the ADA. I actually made a difference in the place I worked! Stand up for yourself always. Hold people to the laws no matter if they say you’re not being a “team player”, or whatever. Everyone matters and deserves rights.
@HeyBrosephify
@HeyBrosephify 2 жыл бұрын
Thank you so, so much for this video. I actually have a job interview today or a role in a museum that is part of a scheme specifically aiming to improve disabled access to arts and heritage careers! This was exactly the pep talk I needed to remember that not only am I enough, I am an asset!!!!!!!!!!!!!!!!! We, as disabled people, are fantastic!!!!!!!!
@tris5602
@tris5602 2 жыл бұрын
The most important accommodation I have for work is being allowed to keep my bullet journal at my work station. I really struggle with standard or digital calendars, and I have a special setup I use that helps me avoid making errors. Keeping it at my station means I won't forget it at the end of the day (out of sight out of mind is literal for me), and means I can immediately answer questions about my availability and ability to pickup extra hours or shifts. Just having it with me significantly decreases my anxiety and it doesn't cost my company anything. The "special treatment" we ask for usual boils down to being allowed to make adjustments so we can help ourselves.
@Willow_moon364
@Willow_moon364 2 жыл бұрын
This video really puts into words what I felt at my last job, I actually only asked for regular breaks ( as in the minimum required ones/not having a 4+ hour gap between breaks) and to be able to use the toilet without waiting 15 minutes for someone to come to cover for me and was seen as difficult. Also, any time I was feeling anxious or needed anything I got shouted at. During covid they tried to force me back to work even though I was shielding due to vulnerable immune system. Now I look back and it has made my health so much worse long term that I went through that and felt like I was being difficult for being disabled
@cynhanrahan4012
@cynhanrahan4012 2 жыл бұрын
Jessica is annoyed. She has my full attention. Jessica, I am so proud of your rant. Thank you, you described my life.
@judebrown4103
@judebrown4103 2 жыл бұрын
Great rant Jessica. I'm exhausted at the moment so no further comment, just thank you for being you. 👍 🙏 💐🌈
@bassrocks9
@bassrocks9 2 жыл бұрын
I am so here for ranting Jessica. 👏👏👏
@padminimayur4049
@padminimayur4049 2 жыл бұрын
EXACTLY! WELL SAID JESSICA!!
@createdcreative1061
@createdcreative1061 2 жыл бұрын
Just under two mins into this and I'm already heated.... I get so vex when companies do stuff like this, because it just proves that the 'diversity and inclusion' they list on their websites and application forms is not genuine and never has been.
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