I'm so shocked right now, I've been through all of this i thought i was the only one to have endometriosis and adenomyosis. I've googled gone on forums and never found anyone with a simulator story! Thank you for uploading this video, and kuddos to you on your journey!

THANK YOU!!! Just diagnosed Adenomyosis and have the exact symptoms!! It's frustrating to always feel overwhelmingly exhausted, bloated, and emotional from the fluctuating hormones. The pain you are describing is your uterus contracting, feel just like labor pains feel. I have two children and this is the exact pain I felt then as I do now with Adenomyosis, it's more pressure than stabbing. But it hurts! Love that my doc pin pointed this almost immediately, well as fast as he could by ruling out other disorders. The only way to truly diagnose and treat Adenomyosis is by hysterectomy. We are currently trying to find out what will work best for me to avoid that major surgery, on Prometrium right now. Estrogen is not good for this disease, actually causes it to flare up worse. Talk to your doctor about getting you off any birth control with estrogen in it ASAP!!!

Thank you for the video! I am a college student dealing with a new diagnosis of Adenomyosis. I have the fatigue and demotivation you are talking about, but I didn't relate it to the disease until this video.

I've been watching you for awhile. I had a pelvic MRI scan so my excision surgeon could find out where my endo is and he found adeno deep in the muscle of the uterus. My adeno is very progressive and I have a severe case. I also have a very large fibroid tumor inside my muscle of my uterus.

#HugAKZfaqr: I'm thrilled that you are feeling better. I feel your pain. For several years, I have been misdiagnosed with a number of conditions: asthma, irritable bowel syndrome and primary dysmenorrhea. Three years ago this month, I was finally given the proper diagnoses: adenomyosis, endometriosis, interstitial cystitis and retroverted uterus. I look forward to seeing more of your videos. Take care. *hugs*

I am having excision in March of '15 and a hyst in a year. In my pelvic MRI it also showed degenerative disease bone loss of my SI joints

I have a blog on Wordpress I don't update it often but I'm doing a well written one right now on my second part of my surgery and how the CEC, heather and Nancy's Nook on Facebook have enlighten me to excision. My it's Wordpress opinionateher . I have a lot of info that I will be posting soon on my story, which envolves a lot more than my endo/adeno journey , it also encompasses PTSD-childhood sexual abuse, rape and physical/emotional abuse.

I was diagnosed with adenymosis and i'm really sad because now i can't have anymore kid's atless on my own and i really wanting one more but i can't have anymore 😢

Thank you so much for sharing your story. I have both and now that I'm 11 months post-excision I'm wondering if the fatigue I'm feeling is the adenomyosis.

Thank you so much for this video, I have just been diagnosed at 23 and really struggling with it. I feel like I have the exact same symptoms as you so good to hear I am not alone! Is there a way I can contact you? You are the first young person who I have found who has this xx

Adenomyosis (ad-uh-no-my-O-sis) - the mayo clinic.

I'm using bcp to put my periods out of commission, with only four periods a month. I had a huge amount of clots w/ my period and i first started my bcp, like ones I've had when I had my three miscarriages. I can't wait to have excision, who did your surgery? How much relief did you get from the endo pain and how do you feel about a hyst for adeno ?