🏥 Hospital Trips and Challenges with My First IVIG Infusion 😓 (4/29/17)
Рет қаралды 27,093
7 жыл бұрынWell, this didn’t go quite as I had planned. Of course, I’m used to things becoming a bit crazy when it comes to my health! I seriously expected a smooth infusion. Nope. My pesky chronic illnesses had another plan. Don’t worry, I’m not giving up on IVIG just yet, we have some options to sort things out. I’m thankful for an amazing nurse and an incredible boyfriend. Judd being home for this really made a huge difference! Thank you everyone for all the kind words, love, prayers and support - It means SO much to us! Thank you for coming on our crazy chronic illness adventure!
YESTERDAY’S VLOG - • IVIG Q&A! (4/28/17)
MORE ANSWERS TO MY ANGIOEDEMA AND IMMUNODEFICIENCY - • More Answers to my Ang...
NEW TO CHRONICALLY JAQUIE? START HERE!
- Currently working on “Start Here” videos, such as a chronic illness video, a Harlow video, etc…
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--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
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--- This video is for people who are interested in the service dog (SD) process. It goes over laws regarding SDs, who can have a SD, how to get a SD, etc. All my advice regarding SD and SD training is in this video!
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@GlenHunt 7 жыл бұрын
Love the teaser in the beginning!
@95Amelia10 7 жыл бұрын
I am so sorry you ended up going to the hospital! Glad you got to go home with Judd. Praying for you guys! Take it easy today!
@AshleyMichele1996 7 жыл бұрын
The teaser at the beginning was a great idea! It's discouraging that this first time didn't go as planned, but we'll just keep trusting in God's plan! I'll be praying that you can find a combination that works for you! ❤
@CirillaFiona 7 жыл бұрын
I love watching day by day watching your Chanel grow slightly larger.
@elizabethw2602 7 жыл бұрын
took a break from studying for my nursing finals to watch your vlog! Im so glad you're not giving up on IVIG! i hope things start to take a positive turn for you soon! i have been watching your videos since the beginning of the year so ive been watching through all of the anaphylaxis attacks! i love watching what someone goes through on a daily basis with chronic illnesses and i really hope that it helps be a better nurse!
@GenreJordan 7 жыл бұрын
Does Judd remind anyone else of Chris Pratt or is it just me? Kind of how he looks but mostly his jokes and his confidence.
@rachelparish974 7 жыл бұрын
Jordan Pinkston I can totally see that.
@MultinationalFreak 7 жыл бұрын
Hey Jaquie, First off, I'm sorry your IVIG didn't go as planned, I'm crossing my fingers that you and your doctors find a solution to make it work for you! I stumbled on your channel just a few days ago, and have been pretty much binge watching your vlogs since then :) I find you incredibly inspiring, even with all of your health problems you still find the strength to stay positive and do things you love, as well as spread awareness. I can't imagine how hard it must be everyday, but seeing you push through is just uplifting. A ton of love to yourself and Judd, as well as a bunch of cuddles to Harlow who is just amazing! Keep it up, you guys are incredible
@GenreJordan 7 жыл бұрын
I love that you keep soldering on! I've been watching you a lot recently and you're absolutely interesting, courageous, and motivated. Keep up the great work!
@cardinnairn6345 7 жыл бұрын
I got the go from my doctor today to apply for a psychiatric SD! Now all we have to do is apply, Sorry. Just really excited. Get better soon.
@lucy714 7 жыл бұрын
I'm so sorry it didn't go well. I've been watching since your first vlog (and following on Instagram since before that) and I was so excited for you when you found out what's causing your attacks and finding a possible treatment for it. Hopefully next time will go better. Keep fighting, you can do it! I also just want to say that your nurse seems really awesome! It's great he let you film, and he seems really nice (and good at his job of course). Harlow sure seems to like him ;) Also loving the teaser at the beginning, before the intro, and the new info in the description. It's so great to see you get so much better at vlogging and editing and all that. I mean, it's great to see that you've found a new hobby in this and that you're getting so fantastic at it :D Proud of you!
@agirlisariot 7 жыл бұрын
it's so frustrating when treatments you're excited/hopeful for don't go as planned (especially when they end in an er visit) but good for you for staying optimistic and not giving up!!💕💪🏼
@amandamaronick5168 7 жыл бұрын
I am glad you got to go home.. and Judd was there to moral support you
@Shelbz92 7 жыл бұрын
I love your leggings. ☹️ sorry things didn't go as planned glad you got to go home though and didn't get admitted
@rachelsolano19 7 жыл бұрын
I'm so sorry you had to experience such a bad reaction Jaquie 😓 I had you in my thoughts & prayers all day today hoping with everything in me that the IVIG would go smoothly & successfully for you! I hope you are recovering from such a tough day 💗💗💗
@highladyjo 7 жыл бұрын
I have Adrenal Insufficiency and I'm completely steroid dependent. I used to use solu-cortef and it gave me very similar feelings, and many of my friends had similar experiences as well. Once I switched to other steroids I felt much better! They seem similar, but solu-cortef is a hit or miss for a lot of people! I prefer Dexamethasone personally!
@highladyjo 7 жыл бұрын
Cortisol/steroids are tricky and can be scary, so much love and I hope you figure it out!! ❤
@missmeowsby 7 жыл бұрын
Sorry this happened. I'm glad that you are able to try the IVIG again. I watched your live stream on Instagram and am happy that you are going okay. Sending love and prayers.
@sarac7278 7 жыл бұрын
So sorry things didn't go as planned :/ hopefully your doctor will be able to identify what triggered your allergic reaction so you can eventually continue with IVIG.
@GH-sk7vi 7 жыл бұрын
I absolutely love hippo😻💕 love jaquie and Harlow 💕💕
@erinnbrown9662 7 жыл бұрын
Hope all goes well next time! Glad you like you're nurse, maybe you can ask for the same one next time! I would ask and tell them he knows what to look for cause he was with you last time! You three are always in my prayers!
@cait_o_saurus 7 жыл бұрын
Hope you are feeling better and future IVIG treatment goes well - you deserve the benefits after how hard you push through your illnesses to be as awesome as you are! Hugs from the UK!
@Nightengale64 7 жыл бұрын
I remember you saying something about MCAD being part of your problems. If I get benadryl from a different source, I can react to the benadryl. If I get a vaccine which used eggs to incubate the virus then I can react to it. Some sources or preservatives can set me off too. MCAD is not fun, you can also no react to something and then all of the sudden for one time only react to it. You hang in there. I am sure you can figure out what works well for you. Another thing, if you take a cotton swab of your tongue when you start reacting you can train Harlow to signal you when it starts to happen. That is one the main reasons why I want a service dog.
@kathleenmorgan1215 7 жыл бұрын
I am so pleased that you had a remarkable support team there with you during the process. I know that must have been s scary and disappointing. Your remarkable optimistic spirit is going to carry you through! I hope today you are feeling better and you were able to rest from the ordeal....
@heethertrudell7550 7 жыл бұрын
Keeping you in my thoughts! Your an amazing person! I love seeing your posts they give me encouragement knowing you stay so positive
@jeanneewaseck3987 7 жыл бұрын
I'm so sorry this is how your Saturday turned out - hugs to you, Judd, and Harlow (and that poor nurse, who probably got a bit scared, too!)!!!
@GlenHunt 7 жыл бұрын
I would think you wouldn't be able to mix the IVIG solution with the saline because it would spoil too quickly at room-temp. Just thinking out loud. So glad the E-room didn't turn into an admit. Judd, you're a trooper (deputy trooper?) and I hope you eventually got your nap.
@kristenadolph1416 7 жыл бұрын
Don't get too down. My daughter gets ivig. Reactions (without any of your other conditions) are super super common. They may have to fun the rare super super slowly to avoid reactions. I'm pretty surprised they let you attempt your first ivig at home. Hang in there.
@ravenmun 7 жыл бұрын
New subscriber, thank you for sharing your life and how you cope with your illnesses. You are a really positive inspiration! So sorry your IVIG didn't go as planned, but I really hope you are able to make use of it soon, and that it helps. Will be praying for all good things for you, and many blessings.
@ThisBubblyJESUSFreak 7 жыл бұрын
Hi there! New subscriber! :-) My name is Sarah and I also have POTS, as well as chronic pain, hypermobility, IBS, heart arrhythmia, and undiagnosed issues. Nice to 'meet' you! So sorry your first IVIG infusion ended in an ER visit. :'( Praying the next infusion goes very smoothly!! I landed in the ER last week for heart issues and was also thankful that I wasn't admitted. Big hugs!
@Tracks777 7 жыл бұрын
Brilliant work! Keep it up!
@natalieramsey4727 7 жыл бұрын
I hope you can figure out something with the ivig so it does work out for you!!
@Lilee177 7 жыл бұрын
So sorry that IVIG didn't work yesterday - hopefully you can sort things out to make it work! You have such a good attitude :)
@BeverleyButterfly 7 жыл бұрын
Oh no I'm sorry it didn't work out this time but I'm glad you are not giving up honey sending lots of love xx
@elladevers4487 7 жыл бұрын
praying for you and your health!❤️
@sashamiller7420 7 жыл бұрын
Sorry things didn't go as planned!!
@2listening1 2 жыл бұрын
Love to you, Jaquie’s husband. I miss her so much!
@veravero5715 2 жыл бұрын
Oh no
@veravero5715 2 жыл бұрын
Oh no
@disrael5199 7 жыл бұрын
Sorry to hear that you had to go to the hospital. Hopefully you are feeling better today.
@megannbee_ 7 жыл бұрын
Wow. You are so brave and strong. I'm terribly sorry things didn't go as planned, and you did end up in the ER. Keep fighting, your videos are so inspiring and informational.
@aliciabonterre 7 жыл бұрын
meg b. |-/....….........................
@megannbee_ 7 жыл бұрын
alicia bonterre |-/ stay alive fren
@s.smithie686 7 жыл бұрын
awww Soo sad I hope everything turn out ok hoping it was a small change from medical. love you guys please keep us updated 💟💟💟
@analarson2920 7 жыл бұрын
So a few questions-what is your blood type and include if it is positive or negative, -does your primary doctor keep track of every medical procedure/medicine that you reacted to within hours to keep a running fact sheet on that-a really good allergist can help you ascertain with the meds and chemicals, have you had any success with that? Given that you were having issues the day before perhaps some valium the day before might help? just a thought. I hear you about the questions on the dog, I get people sabotaging our training all the time because she is a cute puppy and she is so smart she knows they are talking about her. Prayers and peace your way. Hang in there and go forward, but do give time to recover before retrying. I was told recently that chronically ill people should check their packages and even alcohol wipes for hidden chemicals in small amounts, like chlorhexidine and formaldehyde, sounds silly but people have almost died from that. Blessings!
@bethcruzan 7 жыл бұрын
I'm sorry that things didn't go as planned! 🙁❤️
@djlawlz4041 7 жыл бұрын
Sorry that you had those reactions to whatever caused it. Hopefully things are going smoothly now. Hope you're well.
@veravero5715 2 жыл бұрын
Thank you Hope you are well 🙏
@hilareeek 7 жыл бұрын
From my experience some patients need different brands of IVIG due to allergic reactions. IVIG is also one of those Transfusion products that have a high incidence of allergic transfusion reactions. Keep plugging along because the benefits are worth it, but definitely try different IVIG brands.
@louisayewman724 7 жыл бұрын
Hey, I love your videos xxx
@jasondeath7655 7 жыл бұрын
OH MY CHEEEESE PLEASE BE SAFE AND STAY SAFFFEE!!!! WE NEED YOOOOU
@Firebunny1996 7 жыл бұрын
Blood products are notorious for causing side effects the first time you have them. And it is quite common for the side effects to occur in the first 15min. The second time you do it it will quite possibly be better!
@desidinosaur 7 жыл бұрын
I had a feeling that something would go wrong with the infusion. The same thing happened with my first. I hope that it can help you in the long run!
@Tryinglittleleg 7 жыл бұрын
Do the infusions hurt a lot?
@ForFunXD 7 жыл бұрын
Stay hopeful! ❤️❤️❤️
@mosrabbi 7 жыл бұрын
I love your videos
@klynch7912 7 жыл бұрын
I have a different IVIG drug but it's at room temp so it's not cold going in and making me cold.
@lemueldc0104 7 жыл бұрын
hope things will get well
@shea5875 7 жыл бұрын
Your lucky your not allergic to Benadryl! I'm allergic to several other kinds medicines too 😂
@kimsouders 7 жыл бұрын
So glad you are ok. 😳👍
@annettesh75 7 жыл бұрын
Awe, I'm sorry....you must be very frustrated. Keep on with your positive thinking. Concentrate your thoughts on how its going to feel when that medical works, feel what it would be like in your life to be able to do more things. , I understand you can't do those things right now... But just feel what it would be like to do these things with your boyfriend you've always wanted to do.
@memyselfandmusic275 7 жыл бұрын
I take IVIG too!
@lilyhiller133 7 жыл бұрын
Hi love your videos ❤️❤️
@lilyhiller133 7 жыл бұрын
And your dog
@sarahbrennan545 5 жыл бұрын
I do soLu Cortef in case I go in a crisis but it’s a shot
@fungirlwinx 7 жыл бұрын
shame it didn't work out, keep with it Jaquie
@GamerGoop 7 жыл бұрын
Thats so weird, you get water before you take pills? I thought most people put the pill in then drank water. Its so weird to see it the other way around :P
@danielazita7327 7 жыл бұрын
👍
@AyyRalphy 7 жыл бұрын
It probably was a reaction from the steroid combined with the ivig. Try next time with no steroid! Bummer...I was really looking forward to you making through it. Or maybe even the phenergan with ivig caused the bad reaction....fingers crossed for next week heck yes. Dont give up Jaquie! Big hug to Hippo
@defnekahraman9042 7 жыл бұрын
sorry things didn't work out😕😥 also yay someone who takes pills like I do
@sloanduke6513 7 жыл бұрын
Hi!
@asiulana21 7 жыл бұрын
Do you follow The Frey Life?
@VulcanOnWheels 6 жыл бұрын
5:20 It kind of scared me when Harlow jumped.
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