Lipedema Landmines: How MCAS, hEDS, and POTS Show Up and Affect Lipedema Treatment - Karen Ashforth

  Рет қаралды 9,241

Lympha Press USA

Lympha Press USA

2 жыл бұрын

MCAS (#MastCellActivationSyndrome), hEDS (Hypermobile #EhlersDanlosSyndrome), and POTS (#PosturalOrthostaticTachycardiaSyndrome) are “landmines” that can show up and impact treatment for #lipedema patients.
In this webinar, Karen Ashforth focuses on increasing awareness of these three syndromes that can confound and complicate lipedema.
ABOUT OUR SPEAKER:
Karen Ashforth, MS, OTR/L, CLT-LANA, has practiced as an occupational therapist for over 40 years. Specializing as a board-certified hand therapist led to her interest and specialization of treating lymphedema and fibrosis 20 years ago.
Karen’s passions in lymphedema practice are equipment innovation and development, treatment of underlying fibrosis and inflammation, and assessment of complex and difficult cases. She is considered an expert in the clinical use of pneumatic compression and has participated in the development of numerous devices and appliances. She has outpatient lymphedema practices at St. Joseph’s Medical Center in Stockton, California, and Dominican Rehabilitation in Santa Cruz, California, as well as a private telehealth and consulting practice.
Karen speaks frequently at academic, clinical, and professional settings and performs clinical research that she presents and publishes nationally and internationally. She is also an adjunct faculty member with the University of the Pacific in the Doctoral Physical Therapy Program.
MORE INFORMATION
This webinar is presented by Lympha Press, makers of the Optimal Plus, as part of our Lympha Press Education Series. Learn more about Lympha Press and our advanced pneumatic compression therapy here: lymphapress.com/
Register for our upcoming webinars here: linktr.ee/LymphaPress

Пікірлер: 26
@lindsaynalley856
@lindsaynalley856 2 жыл бұрын
Thank you for researching the connections. I have been officially diagnosed with Lipedema, hEDS, and Pots but I also think I have Mast Cell. I wish so badly that there was a cure!
@_Julie_Bee
@_Julie_Bee Жыл бұрын
Wow, my mind is just blown away. I have lived with spider legs all my life. Even as I was a skinny teen , I started seeing blue spider veins. As I had kids my legs got bigger, even if I lost weight, I didn't have real ankles. I'm 46 now. I've gained regular weight since 2019. 60lbs. Most from the waist down. My legs are heavy and so painful. I've been diagnosed with tachycardia at 14, pots and dysothonomia last summer, have asthma, allergies (some that can kill me others not) ,I'm lactose intolerant, have crazy guy issues, am anemic, I'm hyper mobile, and yesterday got a diagnosis of idiopathic intracranial hypertension, following an eye dr appointment where she saw œdema on my optic nerves. My skin does not heal, especially on my legs, I can't even shave! I could go on and on, it's crazy , I have this whole list that I'm reading on your video. I even got a long covid diagnosis and I'm now considered fully disabled. I'm speaking with my family dr on the 30th and I'm gonna be sharing her your video. Thank you so much. (Oh btw I have C-ptsd. My stress level since 2018 has been way over a level that someone usually lives with. Also means that since childhood, my physical symptoms followed heavy stress. )
@Theresiliantnorwegian
@Theresiliantnorwegian 10 ай бұрын
This was probably one of the best videos yet.
@ijustchangedmyname7794
@ijustchangedmyname7794 6 күн бұрын
Damnit! I have two of these; it never ends with EDS and POTs
@sndygskylr
@sndygskylr Жыл бұрын
Every one of you are wonderful to give us the information to help us understand. 74, 149 lbs, spider veins cover entire legs, hurts to push on and I can feel bumps or knotted all over my legs. I don’t know what king of specialists to look for in the Charlotte NC area. I appreciate all of you for putting so much information out here. Bless you all!
@margaretworley1116
@margaretworley1116 2 жыл бұрын
So, the gene marker associated with Lipedema is also seen in other subtypes of EDS as well.
@sarahobaka8354
@sarahobaka8354 Жыл бұрын
Yes my sensitivity I’m stage one Lipedema - and have increased sensitivity for years now with no Lipedema but now all makes sense. I originally had exzena, asthma and hayfever so have been used to monitoring my use and consumption of anything - plus the reactions I get. I’ve realised my sensitivities have doubled since 2020. I’ve been managing my symptoms through my own research and also finding amazing resources like yours to help keep me in good health until more can be done to support. There are very few doctors in the Uk in the know. Although I found a clinician who is studying this at St George’s Hospital London. I’m hoping to reach out shortly!! Thank you for all that you are Donna for this very under researched and supported condition.
@IndigoFalls1212
@IndigoFalls1212 8 ай бұрын
Just watched this one--love it! Thanks to the awesome Karen Ashforth for this talk! 🙂I've sent this link to several of my doctors to remind them how everything is connected...
@janonthemtn
@janonthemtn 2 жыл бұрын
And medical insurance does NOT want to pay for treatment in NY and most states.
@Lympha_Press
@Lympha_Press 2 жыл бұрын
Thank you for the comment. We do find success obtaining coverage for Lympha Press and would be happy to work with you if you are interested.
@girllittlemorbid
@girllittlemorbid 10 ай бұрын
When I was in my 20s I had severe chronic, idiopathic hives, I have IBS & GERD, I'm wondering if I have lipedema & I'm being tested for POTS 🤔
@sndygskylr
@sndygskylr Жыл бұрын
Will you recommend someone in the Charlotte NC area for Lipedema? I really want to get checked out. Thank you Very much for your informative video!
@shoshanachavab
@shoshanachavab 2 жыл бұрын
Thank you sooo much for this. I have all of them including fibromyalgia. But what to do with this. Oh dear. I use Velcro stockings as my skin tears. I fall get giddy and have all the gut issues.
@Lympha_Press
@Lympha_Press 2 жыл бұрын
We are rooting for you, and if we can ever help with regard to Lympha Press, please reach out to us at marketing@lymphapress.com
@cindyneri579
@cindyneri579 Жыл бұрын
I’m looking for information on lipedema and CIRS. I’ve got both but neither has been diagnosed by my MD’s. None of my specialists seem familiar with either. I’m a chiropractor and have only been able to self diagnose after extensive research. But finding treatment to improve my quality of life has been elusive and unaffordable 😕
@shannongreenwell1278
@shannongreenwell1278 10 ай бұрын
I have cEDS and Dysautonomia and I have been having trouble with swelling in my legs and my feet ( lymphedema) and I have been told by my Neurologist to wear compression socks and drink water and to drink electrolytes in moderation. I also deal with MCAS. I’m Allergic to Heparin , and many other medications. I COULD have hEDS as a crossover because my dad was hyper mobile as a child and he shows MANY symptoms of hEDS as a Adult. I have a bad reaction to heavy solutions and perfumes and CT contrast solution.
@maryr7593
@maryr7593 2 ай бұрын
Listen to vids with Dr Lawrence Afrin....as he says that the majority of the ppl who claim medicine intolerance....it's not the medicine, it is usually always the fillers. You need to talk to pharmacist to get different fillers in the rx meds...try different rx meds with different fillers and see which ones you don't respond to...and then get a month's worth of rx. Make sure pharmacy will always create your pills with the fillers you do not react to. Dr Lawrence Afrin explains this in the Chemical Sensitivity Podcast.
@desiree3488
@desiree3488 Жыл бұрын
I have my first appointment for lipedema on the 9 th of November. Do you have any questions I should be asking when I see the doctor?
@vivianmeiers769
@vivianmeiers769 Жыл бұрын
Cryotoning - any research on this new technology
@bernadettec2681
@bernadettec2681 11 ай бұрын
Most of these issues are from mold exposure, heavy metals, parasites, Lyme and fungal infections.
@mgyulai1417
@mgyulai1417 Ай бұрын
Well there's a genetic component but all these will make the issue way more noticable. Anything inflammatory (such as all these toxins and pathogens) will cause flare ups and symptoms.
@sweetcharlemaigne2335
@sweetcharlemaigne2335 Ай бұрын
which is what is all behind POTS - makes complete sense
@maryr7593
@maryr7593 2 ай бұрын
Chlorine can be too strong for someone wit a chemical sensitivity....creating a reaction.
@lisaandrews919
@lisaandrews919 9 ай бұрын
….just don’t eat….it’s only thing that works and gives relief…
@simmiedavissimmiesings8185
@simmiedavissimmiesings8185 Ай бұрын
It actually is shown that fasting correctly helps dissolve lipomas, regulates hormonal management, and is a host of other incidences of relief
@lisaandrews919
@lisaandrews919 9 ай бұрын
No doctors have this kind of time…..neither does functional medicine. Good luck to all!
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