Olav’s 4-Year Battle with Post Finasteride Syndrome: A Severe Neurological Case

Рет қаралды 1,599

Күн бұрын

In this video, Olav opens up about his long battle with Post-Finasteride Syndrome (PFS). He shares the challenges he has faced over the years, detailing the persistent side effects he has endured even after discontinuing the popular hair loss medication.
Post-Finasteride Syndrome is the current term for a rare syndrome characterized by devastating physical, neurological, and sexual side effects that persist and progress even after stopping finasteride. This condition occurs primarily in younger men who have taken the drug to treat hair loss, and there is currently no effective treatment available.
PFS has a disastrous impact on patients, their families, and their friends. It often leads to disability, isolation, and even suicide. Every person is valuable, and everyone deserves to make a fully informed choice about their health.
More research into Post-Finasteride Syndrome is desperately needed. Learn more about and support the newest scientific initiative here: www.pfsnetwork.org/science
Donate to PFS Research here: www.pfsnetwork.org/donate
Your Story Matters! If you are a suffering patient experiencing post-androgen deprivation syndrome (PADS), triggered by Finasteride, Accutane (Isotretinoin), Antidepressants, or other anti-androgenic substances, please consider sharing your story with us.
You can email us at moralmedicine2023@gmail.com.

Пікірлер: 77

@Moral_Medicine 15 күн бұрын

Thank you so much for sharing your story, Olav. We know it’s not easy, but these types of actions will eventually lead us to full recognition of this disease and eventually a cure. We NEED to keep up this momentum and band together. If you’re a sufferer damaged by Finasteride, SSRIs, Accutane, etc., please consider sharing your story here. You can email us at moralmedicine2023@gmail.com

@BidchAssnikka-lu5lv 12 күн бұрын

What is your agenda? You only show PFS which was not clinicaly observed. Are you trying to sue the pharma? Lets turn it around : the life before balding was awesome and after going bald your confidence, your lipido and your quality of life generally goes down hill. That is real unlike your paid actors here fantasising sbout PFS

@dominictorrettoo 15 күн бұрын

Thank you for sharing your story, Olav. When I met Olav about five months ago, he had just discovered that he has Post-Finasteride Syndrome. This man spent 3.5 years checking all possible causes for his symptoms and only recently found out about PFS. He has been fighting for so long, and with this video, I am convinced he has saved a life by raising awareness with his testimony.

@PostFinasterideSyndromeNorway 15 күн бұрын

Thanks for everything, Dominic.

@salugi5986 14 күн бұрын

How long did he take the drug before getting sick?

@PostFinasterideSyndromeNorway 14 күн бұрын

@@salugi5986 not for long maybe a month max. cant remember.

@furu1704 15 күн бұрын

Hello Olav. I was chemically castrated from isotretinoin 10 years ago. I’m 31. I have a condition extremely similar to what you describe and I found out about PFS in 2019. I live on the westcoast of Norway (Sandnes). What part of the country are you in if you dont mind me asking? I can relate to most of the things you said in this video. No friends other than my family, living at home, no job since 2017, etc etc. Massive social anxiety (basically disabled socially), and cant even really walk normally. I can understand what you are going through. Sadly no one else (in my life) seem to be able to. And I am 100% with you on the doctor part. It’s just gaslighting and they saying it’s a psychiatric issue. Its not, and I’m not ever going down that route. Most things I’ve tried so far have failed making me better, but I’m still trying…. My mind’s going blank now so I’ll have to stop. I’m trying to stay of the internet/screens most of the time, and almost never comment, but I had to make this one. Take care man from a fellow norwegian.

@Airborne1238 15 күн бұрын

Why can’t you walk normally? Is it bone density loss?

@furu1704 15 күн бұрын

@@Airborne1238 no. It’s brain related, like in parkinson

@PostFinasterideSyndromeNorway 15 күн бұрын

sounds horrible man. im from Oslo, like 15 minutes from there. have u tried any remedies to recover yourself? really sad to hear man..

@James-zv4rc 14 күн бұрын

search for ryan russo he got cured

@furu1704 14 күн бұрын

@@PostFinasterideSyndromeNorwayyes, I’ve tried a lot, and most of it made me worse in every way (except I’m wiser now though lol).

@mortenskov1802 15 күн бұрын

Thank you for speaking up, Olav. 🙏 Morten from DK here.

@PostFinasterideSyndromeNorway 15 күн бұрын

Best regards from Norway Morten :)

@deathadone88 12 күн бұрын

your story was crushing to listen too, so hope you get better, same for everyone.

@PostFinasterideSyndromeNorway 12 күн бұрын

@@deathadone88 🫶🏼🫶🏼🙏🏼

@Qwertyy535 15 күн бұрын

Olav is a hero ❤

@backtothebarber 2 күн бұрын

Thanks for sharing this. Certain figures on YT and the internet act as if this is not truly a thing. I dont know anyone that would pretend and act like this is occurring. Its life changing. This is why I took the natty route and reversed my severe balding using simple tools and foods. I was able to restore over a decade of balding and now I help other men get their high school hair line back on my channel.

@minepolz320 15 күн бұрын

Thank you for speaking out

@PostFinasterideSyndromeNorway 15 күн бұрын

Thanks for sharing i truly apreciate it and lets keep bringing awareness to this horrible disease.

@sciexdeus8687 15 күн бұрын

courage my friend!!!

@millon-mathieusylviane7086 14 күн бұрын

Merci Olav, accrochez-vous !

@mpat100 15 күн бұрын

Blessings and healing for Olav

@ethanbaggoo1513 15 күн бұрын

Great strength Olav, thank you!

@DeeKay1301 15 күн бұрын

Olav, all the best to you. Your soul is eternal and very soon you'll be doing amazingly no matter what. I am very sure about that.

@LoveLiveBreatheShare 15 күн бұрын

The soul is eternal, 100%

@D37fit 15 күн бұрын

Thank you for coming forward about this condition

@neilazeez101 15 күн бұрын

Thanks for speaking out about this horrible drug

@P-V-H 3 күн бұрын

This is heartbreaking to hear. Is there really no hope for people with this syndrome?

@Krantz1 15 күн бұрын

In the video, he mentioned having difficulty with word retrieval and formulating his thoughts. I believe he might have aphasia, a disorder that affects language due to damage in specific brain regions. Common causes include stroke, drugs, and dementia. Although Olov's case is subtle, it still significantly impacts his life by making it hard to express his thoughts and find the right words. Unfortunately, most people and doctors may dismiss his condition, saying "you seem fine," because they fail to recognize language impairment.

@esthedon4863 15 күн бұрын

Hang in there brother, we’re making moves with research and awareness.

@maximilian8339 13 күн бұрын

Thank you for sharing your story and raising awereness for this terrible disease

@ssa65743 14 күн бұрын

Thanks for your bravery Olav. We will get out of this!

@PFSMatthew 12 күн бұрын

Keep going man

@mokilolo5907 5 күн бұрын

God bless you Olav

@seanbrown6655 8 күн бұрын

Man up? Seriously they said that? With so much medical research now you are mad not to believe it!

@Airborne1238 15 күн бұрын

Is penile shrinkage reversible?

@PostFinasterideSyndromeNorway 15 күн бұрын

possibly.

@Qwertyy535 15 күн бұрын

I had a window and it reversed

@LoveLiveBreatheShare 15 күн бұрын

Damn sht he went back on it what on earth. Dude you're recently dealing with this. 🙏🏻. Don't ever go back on it .

@PostFinasterideSyndromeNorway 15 күн бұрын

sadly i had no idea. it came on so slow.. and everywhere i kept reading about people having zero issues on the medication (more plates more dates, haircafe etc...) so.... RIP

@LoveLiveBreatheShare 15 күн бұрын

@@PostFinasterideSyndromeNorway sorry you're going through all of this as I have too. I though never would have gotten back on it because I felt the mental sides immediately and knew something was very off. More plates more dates pushes finasteride on young men he's a piece of dog crap and on so many drugs( legal and not legal ), and peptides etc. Hair Cafe is already showing mental health disturbances from finasteride he they are unavoidable. We're all in this together and all want to be repaired. The only thing I see that fixes us is gene editing and that is expensive and also dangerous but most of us like myself and yourself would take the risk because we want normalcy back. I have normalcy but not fully .

@fuchsfranz4541 12 күн бұрын

I am sit 14 Years in my House... all little work and i am a few Days totaly ill... the Pain in my Body is so heavy , Muscels Bones ,my Skin all over the Body Pain...burning... MCAS? Cortisol to low? Histamin??

@deathadone88 12 күн бұрын

these videos are saving lives, even for me, because of and older video, when I went to buy some mutivitamins from Holland&Barrett, I picked up the "male" mutivitamins, then I remembered that video and I checked the back and it had "saw parmetto powder" I took Finasteride in 2008. that could of crashed me.

@anonymuz7791 15 күн бұрын

Thanks for speaking up. Pfs is slow poision. We have to fund pfs network and spread awearnes

@TerrorDaemonum 14 күн бұрын

What is the chemical cascade mechanism of action of fin side effects that would cause so many symptoms?

@yaushaeomessias4837 13 күн бұрын

It blocks neurosteroids and also can change the epigenetics.

@mokilolo5907 5 күн бұрын

Downregulation of srd5a2 and PNMT and dysregulation of the androgen receptors (these are the main points of what has been discovered through studies). Downregulation of srd5a2 will result in decreased DHT and allopregnanolone (along all the other 5a reduced hormones) it's seems that androgens themselves have a positive feedback on srd5a1, so downregulated srd5a1 seems to be a product of the downregulated srd5a2. There may be more that we sont know yet, but these points seems to be the most central at the moment. God Bless you brother! In Jesus name

@kenpe1455 13 күн бұрын

Keep on fighting brother

@mattkolb3626 15 күн бұрын

Why did you go back on the drug in 23

@PostFinasterideSyndromeNorway 15 күн бұрын

severe stress caused me to lose clumps of hair in the shower. i was scared to go bald and everyone said finasteride was safe so i was like why not. :S also didnt know finasteride was the root cause.

@Sandy-Co-fax 14 күн бұрын

@@PostFinasterideSyndromeNorwaydon't be scared to lose your hair anymore. Mental health over everything is most important

@PostFinasterideSyndromeNorway 14 күн бұрын

@@Sandy-Co-fax 100%. i learned my lesson.......... fuck

@Sandy-Co-fax 14 күн бұрын

@@PostFinasterideSyndromeNorway unfortunately for everyone who has taken finasteride they were not properly warned about what it does to a person's mental health. I have yet to see one Dr who prescribes finasteride tell the patient about the mental health issues that will occur sooner or later . Just now work on getting well !

@BidchAssnikka-lu5lv 12 күн бұрын

So you took the drug and its effects persist after stop using it? That also means your hair is protected also or did only the negative symptoms persist? Get on TRT and everything will be fine

@Moral_Medicine 12 күн бұрын

Many people that have PFS have testosterone levels that are within the normal range, if not on the higher end. This has nothing to do with low testosterone levels. If it were that simple, no one would be here.

@user-zt2qy7nt1m 9 күн бұрын

Low testosterone is not the issue with PFS. I have PFS and have testosterone in the high range.

@laniakeas92 8 күн бұрын

Wow, if you have derealization - it seems like a f-ing SMART idea to take psychedelics. Bravo. This guy is a megamind.

@PostFinasterideSyndromeNorway 5 күн бұрын

i dont have that no. have not taken any psychs like shrooms lsd or anything since post PFS.

@Thenamesjackson753 11 күн бұрын

This is really poorly edited. Especially at the end he begins to talk about his family and then it just cuts?

@dominictorrettoo 10 күн бұрын

May I ask what you have done for this community? There is someone sharing their horrible experience with Finasteride, struggling to keep it together and speak clearly, and all you can focus on is the cut?

@Thenamesjackson753 10 күн бұрын

@@dominictorrettoo and why exactly do I have to have done something for this community to want to see a well polished finished product? This is KZfaq not a PPV site.

@Moral_Medicine 9 күн бұрын

I’m really not sure how this is poorly edited. This sufferer sent us this video and we consolidated it down to 15 minutes to hit the high points of what’s happening to him. Longer videos tend to get less views and it’s important that we get as many as possible to spread awareness, so there is strategy behind this. Also, keep in mind that we’re not professional editors. The two people running this channel are immensely sick themselves and struggling to get through each day, so we do our best to provide quality content despite battling our own suffering.