Reassuring Post-Hospital Follow Up & My Port Deaccessed! (5/22/17)

Рет қаралды 14,974

7 жыл бұрын

MY PATREON PAGE - / chronicallyjaquie
NEW TO CHRONICALLY JAQUIE? START HERE!
- All About My Chronic Illnesses - • All About My Chronic I...
- All About Harlow - • All About Harlow! 🐶
- All About My Port - • All About My Port! ♌
- All About My POTS Infusions - • All About My POTS Infu...
- Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
YESTERDAY’S VLOG - • Concerning Medication ...
LIKE WHAT YOU SEE?
- VogMask - www.vogmask.com/
--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs. Learn more in my “All About My Chronic Illnesses” video!
- Infusion Backpack (Use the Code “Chronically Jaquie” for 10% Off) - vibedration.com/
- For More Info on Raw Diets - / @therawlife1
- My Camera (Canon G7 X Mark II) - shop.usa.canon.com/shop/en/ca...
- My Editing Software (Filmora and Movie Maker) - filmora.wondershare.com/
NEED SERVICE DOG INFO?
- Service Dog 101 - • 🐾 Service Dog 101 🐾
--- This video is for people who are interested in the service dog (SD) process. It goes over laws regarding SDs, who can have a SD, how to get a SD, etc. All my advice regarding SD and SD training are in this video!
- Flying With a Service Dog - • Flying with a Service ...
--- Harlow’s first airplane ride is documented in this video. It goes over what the process entailed, training tips and advice on how to prepare your service dog for their first plane ride!
- Training Tutorial Playlist - • Training Tutorials
--- All the training tutorials I’ve made can be found in this playlist. I will be adding to it whenever possible. There are tricks, tasks and useful skills for pets and service dogs alike!
CONTRIBUTE CLOSED CAPTIONING/TRANSLATIONS!
Help me make my videos more accessible by contributing closed captioning or translations! kzfaq.info_cs_p...
FOLLOW US!
- My Instagram - / chronically_jaquie
- Harlow's Instagram - / helper_dog_harlow

Пікірлер: 89

@jaydamclaren7257 7 жыл бұрын

bahahaha Daniel popping up when you were talking made me giggle

@GlenHunt 7 жыл бұрын

Love how Harlow often blinks one eye before the other. Alien dog!

@ChronicallyJaquie 7 жыл бұрын

It creeps me out!

@meganpeters840 7 жыл бұрын

So I know one of the biggest reasons why you are doing this vlog is to spread awareness of your chronic illnesses and help others to understand. Well I want you to know that you have definitely made me aware and helped me understand what someone with chronic illnesses goes through everyday. Today I was talking to a neighbor for the first time and of course we were walking our pups and she was telling me about how she is training her pup to be a service dog. Of course my immediate thought goes to you, so I asked what kind of task work was she hoping to have Annie do. Long story short she began to explain that she has repetitive joint dislocation that had lead to extreme pain. Again I thought of you and I said "oh like EDS?". I completely blew this woman's mind because that's exactly what she was diagnosed with several years ago. She was very surprised to hear that someone knew of the disease enough to understand her struggles and why training Annie to do specific work would be perfect for her. Of course I recommended she check out your tutorials as well as check out your vlog, so that she can see the message that you are spreading. I'm so happy that I started following Harlow on IG almost a year ago because it has opened up my mind and heart. Thank you Jaquie! 💕

@ForFunXD 7 жыл бұрын

I'm so glad that you have more answers and a solid plan, but your cousin is literally hilarious. First he photo bombs your shot and then he studies the rings of Saturn. 😂😂😂😂😂😂

@MapTheMissing 7 жыл бұрын

I read your comment & then scrolled up to the video just as he was photobombing lol

@Tsukshiro 7 жыл бұрын

Jax, if you're going to take erythromycen, ask your doc to write you a script for fluconazole. Trust me, DO NOT skip this step, oh my goodness.

@gidgetgetscrafty 7 жыл бұрын

Harlow is so stinkin' cute! And her diet looks so much healthier than most humans.

@RanShinichi4eva 7 жыл бұрын

You're looking so much better from when you were in the hospital. I wish you the best. Keep being your awesome self, Jaq-Jaq.

@ChronicallyJaquie 7 жыл бұрын

I feel better since then! Not great, but better and that is something to be thankful for!

@claireelizabethblake8911 7 жыл бұрын

Prayers for a working regiment, Jaquie. You got this!

@auntdave180 7 жыл бұрын

So glad you have a doctor who you can work with, and glad you have an action plan. 👍🏻

@niamhwatson9192 7 жыл бұрын

Harlow makes my heart melt!❤️❤️

@tabibimbap 7 жыл бұрын

Daniel was so cute, popping up to say hi like that =)))

@lizverde4309 7 жыл бұрын

So glad you had a positive MD appointment. Your medical folder is great. Let's hope it doesn't take insurance too long to get on board with what you need. Please send a shout out to your Mom and your cousin for stepping up and helping. Supportive family see the key to success. Not to mention amazing friends like Janice, Paul and the cutest little guy Orion. You are a warrior who is fortunate enough to have a Judd in your life. Everyone needs a Judd.

@noemielisep 7 жыл бұрын

Harlow's eyebrows whenyou asked her if she wanted to help 😂

@erinnbrown9662 7 жыл бұрын

Hope you feel better soon! Judd looked worried at bed time. You two are always in my family prayers! I hope you get the meds you need soon! You are so blessed to have your family!

@Potterhead34 7 жыл бұрын

I'm so glad that there is a plan in place. I really hope it has a positive effect on your health!

@phoebebrunt5971 7 жыл бұрын

So sorry to see your ongoing struggles with food and getting meds sorted :( But glad to hear that a plan is in place, and really hope that things get better from this point onwards. You are so strong and really inspire me x

@luzmari510 7 жыл бұрын

It makes me happy that Judd is like an angel to you Jaquie. It was disappointing that you couldn't keep all of your dinner down. But there is always hope that next time you will keep it down. I will be thinking of you and praying that the insurance solves everything as quick as possible so you get better soon. It's always good watching you, you are beautiful and I love your pretty big eyes.

@HallyuHeavenUS 7 жыл бұрын

I am so so glad you have an amazing doctor!!! Glad y'all have a plan in place and I am hoping that it will resolve your "flair up". Daniel Is awesome, also him popping up in the background was hilarious!

@Lilee177 7 жыл бұрын

So glad you have a good solid plan in place, and sorry that you lost your dinner. Hopefully everything works out and comes together quickly. We've got your back, and you're doing great - keep trying as hard as you so clearly are

@serenaalicea2759 7 жыл бұрын

Bless KZfaq for recommending your channel to me ❤️ I wish I known about you sooner. You're an extremely strong beautiful person, it hurts to see you have to go through so much trouble, but you always manage it and that's amazing to me 😄 lots of love for you and your family ❤️

@ChronicallyJaquie 7 жыл бұрын

We are so happy to have you join us on our adventures!

@juliehawkins5401 7 жыл бұрын

Hi Jaquie! Just wanted to let you know that I bought a bunch of cute leggings at Old Navy yesterday because you said that's where you get yours. They are so comfy! Thanks for the recommendation! I hope you work things out with your insurance company. I know what a pain that can be. Hope you feel better soon!

@ChronicallyJaquie 7 жыл бұрын

Yay for comfy leggings!

@defnekahraman9042 7 жыл бұрын

lol he just poped into the video hope that IV nofran will help 😦😥

@shelbijackson5829 7 жыл бұрын

😂 nofran

@mjreinhard8741 7 жыл бұрын

O my goodness Jaquie I can tell you how much I love watching your family and I am praying for you so that your health WILL get better

@jaydamclaren7257 7 жыл бұрын

glad you're doing better!

@123beaverlover 7 жыл бұрын

I love your cousin he seems like he loves you very much

@PaolaScissorhands 7 жыл бұрын

I laughed when Harlow came back with the keys!!

@suziephillips2320 7 жыл бұрын

I'm so glad you are feeling better!! I feel so badly for you! While I have Grave's disease, Multiple Sclerosis, and severe damage in every disc in my neck from 4 car wrecks, I am a lot older than you!!

@ICaughtTheSnitch26 7 жыл бұрын

I hate insurance. I have POTS and a myriad of other chronic illnesses and had to go through this nonsense with oral zofran. It took me three months to finally get everything sorted out with insurance, doctors, and the pharmacy. It amazes me that insurance is even ALLOWED to refuse to give you a medication that you need! As if they know anything about your situation... anyways... just had to vent.

@ChronicallyJaquie 7 жыл бұрын

I totally understand, a lot of us have to deal with very similar issues.

@vitasolano3272 7 жыл бұрын

Dear Jaquie, what a gem your cousin is ! Wishing him well for his future. It takes special people to be this way. I hope you will be okay and that you will get iv zofran and more iv fluids. It's urgent. take care both of you xxx

@bethwindows3509 7 жыл бұрын

Praying for you always

@jamesrichardson5602 7 жыл бұрын

I will pay for your next pair of theraspecs, I just don't know how to...?

@ChronicallyJaquie 7 жыл бұрын

Wow, I don't even know what to say! Honestly just made my heart melt, you are so kind. That is so incredibly generous of you, but you totally do not have to do that!

@yuyuflikesfud9735 7 жыл бұрын

You can donate at her Patreon, I'd say donate what you want maybe in intervals of maybe 50 for a few months or if you want to get it over with, you can pay the amount you want for one month then cancel.

@yuyuflikesfud9735 7 жыл бұрын

After the payment was made, anyway.

@jamesrichardson5602 7 жыл бұрын

Yuyuf Likes Fud Thank you for the info, it worked, I think! :) I have never used patreon before, wasn't really sure what it was. Thank you again!

@chit-chat007 6 жыл бұрын

James Richardson James, I’m super late watching these vids but, I wanted to say how thoughtful & compassionate was & is of you to be so generous!!! You must know how expensive it is when a family r dealing with a person whom is chronically ill. You will be blessed ten fold & I know you are not doing it for blessings & solely from your kind heart but, nonetheless, you’ll be blessed!!! Xoxoxo

@AyyRalphy 7 жыл бұрын

Dont forget to take probiotics as well Jaquie!! So happy you are doing great. I'm sure that erythromycin medication genuinely helped your stomach wooohoooo. Try to eat a lot of mushy foods so your intake can be good. But please dont push yourself. Hippo is so happy too

@phoenixmoon5580 7 жыл бұрын

I have several questions for you personally about your sunglasses that you explained were for migraines. I feel that since you have a sensory processing disorder that you might understand what I experience from what I call a side effect of my neurological condition. I find that even low level sunlight (like what us Brits' call the rare and fleeting thing known as 'summer'!), it feels like I am being stabbed in the eye with either one needle or a literal handful of them, and all the points have recently been sharpened! I prefer cooler temperatures as the hotter ones exacerbate all of my conditions, and to the point I am slowly developiing a phobia (or at least increasing the amount of associated negatives) to spring (I panic because spring is coming, then during spring I'm so anxious because summer's coming) and summer (I'm too unwell to do anything much, other than be unwell!). I prefer autumn and winter! Anyway, the questions: Do you find that the sunglasses help during your sensory processing disorder in regards to light? Do they wrap around so you can't see light peeking in from the bottom, top, side, or near the nose? Do they have UV protection and other relevant protections for the eye? Are they prescription lenses, non prescription/flat lenses, or can they have either option? Are they comfortable to wear for long periods? Are they heavy? What colour is the shade of the lenses (for example, the typical ones are brown, black, grey, and the newer ones are yellow, orange/red, pink, blue, green, purple etc)? Are they worth the money plus shipping that you pay, from your pov?

@ChronicallyJaquie 7 жыл бұрын

Sorry that was a lot of questions, I do not think I can answer them all. They do help with my SPD, I wear them when there is too much going on in regards to light but my issue is more so with noise and touch. I wear them for long periods of time with no issues, and they are definitely worth the money!

@GH-sk7vi 7 жыл бұрын

I'm so happy for you!💕💕

@TwoCrazyCockers 7 жыл бұрын

Good news you have a plan of action now, your cousin is so funny photo bombing you like that. Sorry you finished the day unsuccessfully and lost your Dinner, I do hope your appeal is successful. Dawn and Boris xxx

@kattieanderson5809 7 жыл бұрын

Thank God for family :) ... things are looking up...slowly but surely...its very obvious you are doing so much better in comparison to a week ago...I think your vision will improve as the medication leaves your system...the continuous fluids and the banana bag is a very good idea in my opinion (im a nurse lol)....you got this! :)

@maddieboucher5311 7 жыл бұрын

OH MY GOSH I'M SO PUMPED FOR YOUR NEW TREATMENT PLAN!! FINGERS AND TOES CROSSED THESE NEXT TWO WEEKS GO WELL!!

@AbandonTheFort 7 жыл бұрын

Glad you're mostly feeling better-ish. I hope your insurance cooperates soon.

@Jessica-ux1po 7 жыл бұрын

Harlow's so polite staying with Jaquie despite all the scary gesturing above her head. it's sure hard to be aware of your own gesturing.

@chit-chat007 6 жыл бұрын

Awww I love Daniel your cousin!!! He hugged you with such emphasis:) I love a handsome man with a brain!!! He should get a Yt channel on his journey of getting his masters & experiences in Oxford! ;)

@agirlisariot 7 жыл бұрын

sending you good luck and vibes with your insurance appeal. i know how frustrating and tedious it is 💕🥄

@rcelaya30 7 жыл бұрын

I love your cousin! He seems like such a kind guy

@randomthatsme1 7 жыл бұрын

Love my Banana bags! They're a life saver for bad POTS days!! 😭

@Saturndazed74 7 жыл бұрын

I am not up to walker status yet, but when my ankalosing spondylitis starts acting up, which is pretty frequently, my boyfriend always grabs a stool for me to sit at the stove top. I hope your anti nausea med appeal is quick. Much love 💜💜💜

@Shelbz92 7 жыл бұрын

That's the best Olive Garden soup ever.... with continuous iv fluids do you have to change your port more often

@ChronicallyJaquie 7 жыл бұрын

Nope (:

@Shelbz92 7 жыл бұрын

Chronically Jaquie that's good 😊

@howlintherain 7 жыл бұрын

You keep saying that a feeding tube could really help you, but also saying that you and your doctor want to avoid that. Are there a lot of cons to a feeding tube/what are the cons of a feeding tube?

@ChronicallyJaquie 7 жыл бұрын

I may not tolerate it, infection risks, it's invasive. It is better to eat and digest how to body naturally does it if at all possible. It has pros and cons just like any other treatment option.

@imfreetobeme8 7 жыл бұрын

You are one tough young lady. God bless you

@melissalevasseur6867 7 жыл бұрын

I feel that you put up a recipe for the chicken you cook. I've tried to find the video that you mention it in. Could you please link to the recipe?!

@F33NQW33N 7 жыл бұрын

Daniel is a cutie 🙄 I hope you get everything you need as soon as possible!!!

@clownko9773 7 жыл бұрын

Even your dog eats better than me wow

@Holly0808 7 жыл бұрын

Does your port needle go straight in, or does it go in at an angle?

@kk_gymnast_4life189 7 жыл бұрын

I have a question what is the writing on the cover of your port it looks like dates but what for ?

@PrismaticPixie 7 жыл бұрын

Hey can you post the recipe for the chicken?

@chrisswinerton8525 7 жыл бұрын

i was just wondering has there ever been discussion of gastric bybass or gastric sleeve. i dont know if its a possibility or not. stay strong

@ecologist_to_be 7 жыл бұрын

That's major surgery and from what I know isn't a common thing to do with gastroparesis as making the stomach even smaller can't be a good thing when it is already struggling to hold in food

@danielazita7327 7 жыл бұрын

👍

@peanutbutter5912 7 жыл бұрын

I have those same leggings!! ^~^

@smilepower1306 7 жыл бұрын

my chronic illness sometimes effects my mental health. #depressed my chronic illness is common variable immune deficiency

@FiMilton 7 жыл бұрын

Yes Daniel enjoy the Harry Potter-ness! :)

@analarson2920 7 жыл бұрын

Hi Daniel I saw your fotobomb JB's video, bless you for helping JB, you are a good cousin. Praying on the feeding tube, maybe contact Mary Frey, her husband is a pastor in Grafton, Mass, look him up Peter Frey, you 2 should compare notes, meds and find links and differences, it may shed light on why the mass vomitting, gastroparesis happens for many reasons and just maybe there is a link that may help your doctors? God bless Judd to not be so tired, good guy!Love your bark-Har! Have you every tried the sweet potato fries? What did the doctor say about pro-biotics? That actually helped my nausea and its cheap and available, Harlow's bone broth helps too.Lots of blessings

@VulcanOnWheels 6 жыл бұрын

1:57 I know your Roomba comes with an app. Couldn't you use that to activate the Roomba remotely? 4:26 Oh, hi! And thanks for the help! :-) 9:00 What does that text mean? 10:33 That was a good bark.

@ginathompson6845 7 жыл бұрын

you look awesome now. I am happy you are feeling a little better! so glad you don't sing about the needle in your chest!!!

@TheTandumbs 7 жыл бұрын

Gigi Smith haha

@ecologist_to_be 7 жыл бұрын

Gigi Smith If someone wants to sing about their needle then they can. We all have different ways of coping with being sick

@ginathompson6845 7 жыл бұрын

Sarah Smith I totally agree with you

@BabyHomeandBeyond 7 жыл бұрын

What area are you in in Florida?

@ecologist_to_be 7 жыл бұрын

BabyHomeandBeyond Tampa Bay I think although I may be making that up lol

@BabyHomeandBeyond 7 жыл бұрын

Haha, thanks. Just curious. :) I am from North Central Florida. :)

@Tsukshiro 7 жыл бұрын

Jax, if you're going to take erythromycen, ask your doc to write you a script for fluconazole. Trust me, DO NOT skip this step, oh my goodness that was a horrible time in my life. EDIT: Jaquie it might just be the lighting but at 12:36 honestly it looks like a Lupus rash on your face. Otherwise known as the "Butterfly rash". Have you considered Lupus?

@ChronicallyJaquie 7 жыл бұрын

Lupus has been totally ruled out, multiple times. I get rashes from my Mast Cell though.