Splenectomy: Jackie's story

Рет қаралды 15,098

6 жыл бұрын

In this video, Jackie, diagnosed with splenic marginal zone lymphoma (SMZL) in 2008, talks about her experience of having a splenectomy. Jackie talks about how it felt being told she would have to have the operation, and how she feels looking back on the experience 10 years later.
For more information visit www.lymphoma-action.org.uk

Пікірлер: 37

@joyceseiferth5183 Жыл бұрын

I have a very massive spleen (25cm). I am having it removed in January 2022. Your video is very calming for me. Thank you.

@LymphomaAction Жыл бұрын

Hello Joyce, thank you for sharing. We're sorry to hear you have an enlarged spleen, and needing to have surgery in January, we send our very best wishes to you at this time. If you are in the UK, please do remember we can offer information and support via our helpline services, if you feel you'd like to chat at any point. lymphoma-action.org.uk/support-you/helpline-services We're here for you.

@maryshaw2004 11 ай бұрын

I had my spleen removed in 1987. I don't have to take any med. for it, although I am sensitive to dirty environments and colds. I try to eat healthier. That is the most important thing.

@maribelmuniz2123 3 жыл бұрын

So happy for you I hope I am ok

@takethat1takethat1 3 жыл бұрын

I've just completed 6 months of chemotherapy after having been diagnosed with SMZL. I have to wait for a PET scan and possible bone marrow biopsy before meeting with my consultant to let me know whether I'm in remission or not. Loved listening to your story and would love to be able to chat to you properly as feel so alone sometimes because ours is not one of the more common types of lymphoma :(

@LymphomaAction 3 жыл бұрын

Hi Dina. If you are in the UK and would like to talk to us, you would be really welcome to contact our helpline. You can find more details here: lymphoma-action.org.uk/support-you/contact-us-support Best wishes.

@thenorseofnassau8250 9 ай бұрын

Great courage

@ARTWV 4 ай бұрын

I had mine removed at 27. I don’t take any antibiotics daily. My daughter had hers out at age 5 and she took penicillin daily til 18. I live a normal life and rarely get sick.

@chakravritgogoi3471 3 жыл бұрын

Give some suggestions how to safe from Coronavirus?

@divyachandrashekar3098 2 жыл бұрын

Madam my friend had splenectomy surgery. But he has lots of variations in blood. But he is fine.. Can u suggest wat is good for him. Can they have long life span

@LymphomaAction 2 жыл бұрын

Hello, we're sorry to hear your friend has had a splenectomy, however pleased to hear he is fine. Generally, people recover well following a spenectomy, however their immune system will not work as well as it used to, and they may be more prone to infection. Your friends medical team will be able to offer more individual advice, however if you would like to read our information about splenectomy, you can find this here lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/splenectomy-having-your-spleen-removed We send our best wishes to you and your friend.

@rachelcampbell9733 3 жыл бұрын

My spleen was removed and I was good for about 10 years. That was the easiest surgery I have ever been through honestly.

@ronaldkrikorian4712 2 жыл бұрын

How are you doing now?

@rachelcampbell9733 2 жыл бұрын

@@ronaldkrikorian4712 good. No side effects from the spleen being removed 😉

@ronaldkrikorian4712 2 жыл бұрын

@@rachelcampbell9733 Do you have to get vaccinations & can you eat whatever you want? Greetings from Australia 🇦🇺

@rachelcampbell9733 2 жыл бұрын

@@ronaldkrikorian4712 Hi Ronald, I do not get vaccinations except the 3 every 10 years. (Decade flu, decade pneumonia and then tetanus) my doctor then said only those 3 and I have stuck to it. I eat whatever I want now. I am more aware of eating fiber but that is more.from my gallbladder being removed not my spleen.

@ronaldkrikorian4712 2 жыл бұрын

@@rachelcampbell9733 wow! I’m having surgery on August 8 to remove large masses by my pancreas & spleen! The surgeon said the spleen will have to come out! I have a mass the size of an orange and also a solid mass! They’re both growing!!!!!!!

@urmi8170 3 жыл бұрын

I m a patient with spleenectomy I m very nervous j need help

@LymphomaAction 3 жыл бұрын

Its understandable that you will be nervous, we have some information on splenectomy's here that may be helpful: lymphoma-action.org.uk/types-lymphoma/non-hodgkin-lymphoma

@roxannestrickland704 2 ай бұрын

How are you doing now