Trying To Lay Flat With a Pleural Effusion - Emotional - Stage 4 Lung Cancer

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The Apples

The Apples

Жыл бұрын

Kyle’s Channel:
/ @kyleapple9702
P.O. Box
Jenny Appleford
7211 Haven Ave, Unit E-407
Rancho Cucamonga, CA 91701
INSTAGRAM: jenny_appleford
FACEBOOK: Our Brave Jenny
For business inquiries: veganapplefords@gmail.com
DIAGNOSIS:
March 19th, 2021 Stage IIIA Non Small Cell Lung Cancer (Non-Smoking)
February 2022 Stage IV Non Small Cell Lung Cancer (spreading to Brain, and other parts of lung and lymph nodes)
Gene Mutation EGFR with Exon 20 Insertion
TREATMENTS: Received or currently Receiving
2021: 8 Rounds of Chemotherapy (Carboplatin and Paclitaxel) with 30 concurrent radiation treatments to chest and lung
Failed Immunotherapy directly after Chemo and Radiation (Durvalumab, 1 round)
2022: Chemotherapy
10 rounds of Chemotherapy (Carboplatin, Alimta, and Avastin)
6 with Carboplatin, 4 without
Targeted Brain Radiation (Completed)
CURRENT TREATMENT:
I am on a clinical trial for my specific gene mutation
Our GoFundMe Link:
gofund.me/5edf81e5
The purpose of my channel is to document my cancer journey to look back on, and/or help anyone else going through anything similar. It is also to potentially help loved ones supporting those who are in this fight as well. This is also an easy way to update a lot of people at once. My main goal is to have footage of this journey for my husband and children to look back on. I originally created this channel as a sort of video diary for my
family.
Thank you so much for following along on this journey. Your love and support help me so much.

Пікірлер: 1 800
@julieconnell9921
@julieconnell9921 Жыл бұрын
Dear Jenny, i say this in the gentlest, kindest way with not an ounce of judgement. There is no reason for you to avoid taking anything that will help you do these MRI's. The pain, fear, effort, fact you have to practice and psych yourself up to try to do these MRI's w/o something you can have. It takes a toll on finite resources we all have limited resources- mental, emotional, physical. You have a great team at city of hope- and you and Kyle are the most important members of that team. You really aren't being a good team member by struggling through something and not asking for what you need. You wouldn't stand by and watch your kids or Kyle suffer through when you could take away that pain, calm their fears, help conserve energy that they could use to live and enjoy their family. It is brave to ask for what you need, it is not weak, it is honorable to accept what you wish you didn't need. Please work on changing your thinking - like the serenity prayer and give yourself ALL the breaks, ALL the things that will help. that is part of fighting, not trying to be strong in areas you do not need to be. Please tell your team how much you suffer over these things and i hope going forward every brain/lay flat MRI it is just a given it will be done under the deep sedation- there are so many reasons to do it that way, until you can sleep laying flat i don't see any reason to do it otherwise. Please, we love you and don't want to see you suffer. We want every moment of your life that can be to be joyfully, pain free, fear free, etc. Tell your team how incredibly hard this is. Be a momma bear for yourself. :) Hugs
@suesmith5033
@suesmith5033 Жыл бұрын
Well said!
@tanyawood275
@tanyawood275 Жыл бұрын
@@suesmith5033 I totally agree!! I just don't understand her wanting to get through something and suffering when she could be given medication. ??? I say this in the kindest way possible!
@joyce9523
@joyce9523 Жыл бұрын
THANK YOU YOUR SO RIGHT WE DO WANT WHAT IS BEST FOR OUR SWEET FRIEND 🙏❤️
@sdd123
@sdd123 Жыл бұрын
I totally agree ❤
@carrierogers2797
@carrierogers2797 Жыл бұрын
@@tanyawood275 I may of heard wrong but I think Jenny may be trying to avoid having a general anaesthetic for the procedure
@Gleek2336
@Gleek2336 Жыл бұрын
i just wanted to say that if you need sedation to be comfortable and for the procedure to go well there is absolutely nothing wrong with that. i know you mentioned feeling embarrassed or uncomfortable and trust me no one at the hospital will think differently. do whats best and easiest for you and your body, you are going through something incredibly hard and take the wins when you can get them and if sedation makes the process easier than thats a win
@donnabaardsen5372
@donnabaardsen5372 Жыл бұрын
Yes, Faye. I'm always put out for my MRIs.
@storii4172
@storii4172 Жыл бұрын
I agree
@ragdollmommy2
@ragdollmommy2 Жыл бұрын
Absolutely!
@luzsanabria2053
@luzsanabria2053 Жыл бұрын
❤❤❤❤❤
@EV-rc4jm
@EV-rc4jm Жыл бұрын
I agree with you Faye 100% there is nothing wrong with getting sedation, she needs to be comfortable, I pray to GOD that things will get easier in time.🙏🙏🙏
@Ave43able
@Ave43able 8 ай бұрын
Jenny, you are OKAY now. You will never have pain again, you will never have anxiety again, you will never be sad again and you will never be afraid again. You are an angel now and at peace.
@mariec4275
@mariec4275 Жыл бұрын
As a nurse, I can say that it is a fact: When you are in pain, your body is in distress. It is not good for you. I don’t know what would be wrong about allowing sedation. It’s ok for you to be comfortable. You are brave, but you do not have to suffer when there is a way to allow you comfort. 🙏💕
@DebraAlexander-br7io
@DebraAlexander-br7io Жыл бұрын
Follow the Nurse's suggestion sedation will help to relax and more comfortable!❤❤❤❤❤
@bobbyedavis6877
@bobbyedavis6877 Жыл бұрын
You have lung cancer. Be kind to yourself…you did great. I’m a breast cancer survivor, and we know how to just fight through it. You are doing it, girl! Give yourself grace…♥️
@leanneradoo
@leanneradoo Жыл бұрын
Bless you ❤
@ragdollmommy2
@ragdollmommy2 Жыл бұрын
Amen
@cq9882
@cq9882 Жыл бұрын
Such wise advice. Be kind to yourself. Cry if you want too, do, feel and show want you want to Jenny
@kimjones7153
@kimjones7153 Жыл бұрын
Well done Jenny your amazing ❤you done amazing xx
@missiris1234
@missiris1234 Жыл бұрын
Very well said. I wholeheartedly agree🙏❤️🙏
@lizz5235
@lizz5235 Жыл бұрын
Dear, dear Jenny do not worry about crying. Fear is a huge thing - and you deal with it with such strength. You NEVER need to apologise to us. Kyle and you are both such a great pair. Keep strong girl. We love you.
@donitatiller7214
@donitatiller7214 Жыл бұрын
Jenny don't be so hard on yourself. God is with you. I have non alcohol cerosiss of the liver and I have to have an mri every 6 months. In December they found a spot on my pancreas so I have a spot and a nodule the size of a pencil eraser on my liver. I have to take 2 atavin on the way to have my mri done. I crash when I get home. It takes 1 hour for them to do the mri. What I do is imagine myself holding God's hand. I know you have trouble laying flat so you are in alot of pain. Do not put yourself through unnecessary stress and pain. My liver specialist says I am at high risk for liver cancer. Like you I don't sleep the night before my doctor appointment. I am 65 years old and I still get scared of my appointments. Bloodwork 3 days before dr. Visit and the same with mri. But we have God on our side. We are his daughters and he will always take good care of us. God bless you and be with you all of the time. God is great. Love ya sister.
@maviewavie2326
@maviewavie2326 Жыл бұрын
As an RN and now someone battling breast cancer, I ask you PLEASE take whatever you feel will help you get through something. There are no medals for suffering! I have had a lot of the feelings you describe and have decided NOT to suffer if I don't have to. I have refused an MRI I need for some pre-existing back pain, so you are NOT the only one who feels like this. You are beautiful and brave and have been dealt a raw deal. Do whatever you need to in order to get through things and don't suffer with anxiety or pain. Prayers for you and your family.
@shannonscheffel7366
@shannonscheffel7366 Жыл бұрын
"There are no medals for suffering". Well said.
@bohochic2459
@bohochic2459 Жыл бұрын
Mavie Wavie, Thank you for your service as an RN. I hope you know how much you are admired and appreciated. It's now your time to be treated with the utmost compassion, concern, and care. I am holding you in my heart, thoughts, and prayers. Sending heartfelt healing hugs and loads of love your way. 💜🙏💜
@angelaarnold4255
@angelaarnold4255 Жыл бұрын
I’m just starting my Breast Cancer Journey. I’m going to remember these words. I know there will be hard things coming. I’m 65 and my 19 year old Grandson yelled at me after my diagnosis. He told me, “You are NOT gonna die!! You’re gonna fight this. You have Great -grandkids to meet still! So no talking about dying!” So I’m gonna remember what you said. There are no medals for suffering and to take whatever is offered to make things easier (something like that). Thank you!!
@melodioushaste
@melodioushaste Жыл бұрын
I know! I was going to leave a comment reminding her how relieved she was after the sedation last time.
@godschild3640
@godschild3640 Жыл бұрын
@@shannonscheffel7366. I have coronavirus pneumonia and stage four lung cancer. Do I lay on my side or do I set up or do I lay flat
@pamhelms291
@pamhelms291 8 ай бұрын
She was a beautiful woman Kyle. So sorry for your huge loss!
@8074sam
@8074sam Жыл бұрын
You are NOT pathetic! You are amazing, a hero, a champion, a role model, and we all love you!
@brilliantbutblue
@brilliantbutblue Жыл бұрын
Jenny, a gentle reminder that "it's OK to not be OK" 🙏
@barrbuff
@barrbuff Жыл бұрын
I'd like to mention that as a cancer patient for the second time, I'm not fond of this saying. When you have cancer, every single damn day you are not ok and are painfully aware of this. I don't need any validation or reminder that it's ok not to be ok. It's my REALITY.
@brilliantbutblue
@brilliantbutblue Жыл бұрын
@@barrbuff : : My daily reality is the same as yours.
@monicahyland8641
@monicahyland8641 7 ай бұрын
I can definitely tell what she is talking about how her left lung is not expanding as she was laying there, I can’t imagine what Jenny was going through. No matter what, Jenny had this beautiful smile and I miss that.
@jerzgirl6780
@jerzgirl6780 Жыл бұрын
You are not pathetic, you are COURAGEOUS!! ❤🙏
@carolwalker1450
@carolwalker1450 Жыл бұрын
Wish all of us who are reading your comments could give you a warm comforting hug and take all your pain and stress and worry away. Through it all you still manage a smile through your tears. Kyle is an amazingly supportive husband,you are so lucky to have him. Sending lots of love to you and your family.
@missiris1234
@missiris1234 Жыл бұрын
This is a great family. Almost too nice to be real😍
@djjazz1388
@djjazz1388 Жыл бұрын
Absolutely well said, my thoughts exactly, such a beautiful family ❤
@carolrifon6337
@carolrifon6337 Жыл бұрын
I sat here and cried with you... I am giving you a big HUGE HUG... Lord please hear all the prayers we are offer for Jenny..
@anjanamohan2333
@anjanamohan2333 Жыл бұрын
I agree with you. ADONAI please hear our prayers in Yeshua’s name❤
@wendyhaag2435
@wendyhaag2435 Жыл бұрын
Agree. So kind of you. Jen we love you. Prayers.
@pennysmason5134
@pennysmason5134 Жыл бұрын
Oh my Jenny, why put yourself through this torment? If you are more comfortable drugged than be sedated. You are going through enough. Be as comfortable as you can be now so that you can be healthier when as it comes!❤️🌞
@vanessaburckhard3081
@vanessaburckhard3081 10 ай бұрын
Jenny, I hate to see you in so much pain. If I were you I'd do the sedation. Just like you I hate MRIs. They freak me out and I usually have to have an anxiety drug and then I just close my eyes and wait for it to be over and usually there's music even though I can still hear the noise of the machine. Unlike you, I don't have to do a much just for certain I had kidney cancer in like 2011 or 2012. They did a biopsy and said I don't have cancer so I went I year thinking I didn't have cancer. Then they did another biopsy. This one they did not give me any sedation or pain medicine for it and I told them I wouldn't do another one without something for pain cuz it was excruciating. Then they found stage 1 basal cell carcinoma, a small tumor in my right this was before Christmas so I didn't tell anybody about it till after Christmas that year. I had went to the urologist but not to my real doctor yet and they told me I had a tumor in there and it had to come out right away. I hadn't talked to my real doctor yet. She was the one that told me I had cancer even though at that point I knew because of the urologist. I had surgery to remove the tumor, very painful. The hospital I was in pulled the curtains and it was dark in the room and I was in so much pain I could care less if I lived or died. My husband had to come in and feed me cuz they just left me the trays of food dietary and no one helped me eat. Thank God he was looking out for me, my husband. Anyway I didn't have to have any chemo after the after five years I was cured they said. I was lucky and I never took it for granted. And I am so sorry for what everyone else has to go through, all the pain and tears and fears. I pray for everyone that has this awful disease. I know you want to be brave but you don't have to supper with pain if they can help you. ❤❤❤🙏🙏🙏💔💪.
@Kristen10-22
@Kristen10-22 7 ай бұрын
As I watch back I take solace in knowing Jenny is a bright shining star in Heaven. No more anxiety, no more pain, just utter love surrounding her now. I can tell you as one who has had a PE the feeling of gasping for air that isn’t there is the scariest feeling I have ever felt in my life. Keep shining Jenny & I’ll keep fighting for all of us. ❤
@natatron
@natatron Жыл бұрын
It broke my heart at the end when you said, "was it pathetic?" Not a single person thinks that! You have cancer and there is nothing pathetic about any of what you're experiencing. We all look up to you for your bravery. You may not feel it but we can see it.
@cynthiaclick9381
@cynthiaclick9381 Жыл бұрын
Just another retired nurse here to say using the sedation is a good option to consider. Sending hugs ❤
@beverlymccarthy5981
@beverlymccarthy5981 Жыл бұрын
Oh Jenny, how could we ever stop loving you? Your courage in the face of this cancer demon gives us the strength to face our demons, whatever they may be. Please give yourself the grace that you deserve and use the sedation to make the brain scans tolerable. I'm sure you ate not the first cancer patient that has needed the help to get through the test. You are incredibly brave Jenny and l want to be just like you when l grow up! Sending you love and hugs. YOU GOT THIS!! 💕
@tiffanyparke3707
@tiffanyparke3707 7 ай бұрын
The part where you said I want to be just lik you when I grow up. I think I'm older than Jenny, and I agree, I want to be just like her when I grow up too ❤ So kind warm and gentle. Caring and brave. I could go on. Rip sweet jenny!!!
@darlenepietzak9847
@darlenepietzak9847 Жыл бұрын
Jenny, I have bronchitis and I can't lay flat because I can't take a deep breath. I can't imagine having fluid around my lungs. You are very brave to be doing this. I can't believe your doctor would let you go through this pain during an MRI.
@ladykaycey
@ladykaycey Жыл бұрын
Jenny, I used to be a nurse and you did so well. I'm so proud of you. You're amazing. I don't know many people who would have attempted what you did and it was a huge achievement. There's absolutely no shame in taking the sedation, you have to do what's right for you. I think you're a strong, brave woman and no-one could think anything else ❤
@djjazz1388
@djjazz1388 Жыл бұрын
Absolutely ❤
@bobbi-c
@bobbi-c Жыл бұрын
If it's too much, please let them sedate you. The pain, the claustrophobia, and the inability to breathe deeply are just too much at once. You are in my prayers.
@libertywest5835
@libertywest5835 Жыл бұрын
my mother passed from mesothelioma a few years ago - thank you for giving me insight to what she went through- i never understood.. when she was first diagnosed she said she just wanted to go - she’d been alive long enough - and i cried and i screamed at her - no she couldn’t - i often feel guilty for making her feel the need to do treatment and go through things like this .. was rather selfish of me not to just let her go .. towards the end she had some type of drain thing placed in her .. the whole time she never really talked about it or anything ..
@user-nj4sy6co5q
@user-nj4sy6co5q 4 ай бұрын
I'm still rewatching How brave Jenny was every day still crying missing her
@mariebaker8609
@mariebaker8609 Жыл бұрын
You must be so tired of it all, so physically and emotionally exhausted with the relentless pain and discomfort. You are so brave and just keep going out of love for your family. I wish you so much strength and love. What a lovely family you are. God bless you all. X
@oneseeker2
@oneseeker2 Жыл бұрын
Yes, everything, and being/feeling sick, all the Dr calls AND Appts, The Cancer, effusions, MRIs.
@wanya_telborn
@wanya_telborn Жыл бұрын
Everyone needs a hype person like Kyle! He’s Jenny’s hype man!!! He keeps her going always knows what to say
@juratepletzke7180
@juratepletzke7180 Жыл бұрын
Oh Jenny, everyone is so very proud of you! You are a cancer warrior and have such a fighting spirit. Remember please that sometimes you need to put yourself first, and if a little sedation will help make the scan more tolerable, then you should absolutely go for it. You will know on the day of the scan how well you are feeling and can decide then. In the meantime please know that you have an army of youtube prayer warriors as well as your home support system cheering you on every step of the way ❤
@wanya_telborn
@wanya_telborn Жыл бұрын
@@juratepletzke7180 amen!!! ❤️❤️❤️❤️
@lindanewton1142
@lindanewton1142 Жыл бұрын
You are so brave jenny, you did so well never feel you have to apologise to anyone sweetheart x
@wanya_telborn
@wanya_telborn Жыл бұрын
@@lindanewton1142 ☺️❤️
@deboraherstling7060
@deboraherstling7060 Жыл бұрын
There’s absolutely no reason why they cannot sedate you. Don’t stress about it anymore and put that fear out of your mind. ❤ 😊
@kelsonl6084
@kelsonl6084 8 ай бұрын
You are so, so missed… 😢
@julieharden2433
@julieharden2433 Жыл бұрын
Crying is good. It's a release of pent up emotion - positive and negative emotions. Crying is cleansing. You're doing great. Thank you for bringing us along.
@Fr0galicious
@Fr0galicious Жыл бұрын
You’re one of the bravest people I’ve ever seen in my life Jenny. It broke my heart when you referred to yourself as a wuss because you didn’t complete the 30 minutes. You are far from that. You’re only human and It’s perfectly okay to have limitations because of pain and not being able to breathe. It’s also okay to cry and be scared. Like your sweet hubby said, you guys will get it figured out like you always do. 😊💙
@coleensonnenfeld5519
@coleensonnenfeld5519 Жыл бұрын
Please jenny dont be hard on yourself you take good care of yourself your in my prayers from maine
@wendiezzes2281
@wendiezzes2281 Жыл бұрын
can you get an upright mri...there is such a thing
@debramac8589
@debramac8589 Жыл бұрын
I have cancer, and I am in hospice care. I can't lay flat, and have nerve pain and panic attacks. I have to take a lot of Zanax to get scans done, and sometimes that doesn't even help. You are not alone, and you are way more brave then you think !!!!! I just tried the Gabapentin, and it just made my nerve pain worse. Your videos make me feel less alone, so thank you so much for that.
@naomisgram1
@naomisgram1 Жыл бұрын
😢🙏
@teresawells9281
@teresawells9281 Жыл бұрын
It's difficult to watch you trying to do something that is so painful. Cancer is not for wimps. You have more inner strength than I will ever have. That being said, I want your team to do whatever it takes for you to be comfortable. AND....I want you to feel like you deserve to be given the most pain free and anxiety free experience on this planet. Because you do. Let your NP advocate for you. You and Kyle will be in my thoughts and prayers. You can do this and your team can help you be comfortable. It's what they do.
@kcatlady2018
@kcatlady2018 Жыл бұрын
Please remember there is no reason for suffering in pain! The bed is cushioned and the table is not. I’m sorry you are going through this. 💕💕💕💕
@karenlindstedt4361
@karenlindstedt4361 Жыл бұрын
Dear Jenny . I’m so proud of you you made it 28 minutes that’s a great accomplishment. Please don’t be so hard on yourself you truly gave it your all. Take some sedation none of us want you to be in pain during your procedure. I did enjoy watching it helps us understand more of what you are experiencing. Sending lots of healing prayers your way. We all love you and your wonderful family
@BelieverInChristJesus4ever
@BelieverInChristJesus4ever 8 ай бұрын
I miss you 😔
@repentantsoul4213
@repentantsoul4213 Жыл бұрын
Phillipians 4:13 “I can do all things through HIM who strengthens me” . You ‘are’ doing it Jenny. Even through the pain & trials, HE is with you. Thank you Kyle for standing by your wife always. I’m praying for you dear ones❣️
@moniquegomes3074
@moniquegomes3074 Жыл бұрын
🙏 AMEN 🙏 HE will give you strength and courage Jenny. Have faith!
@cindys6683
@cindys6683 Жыл бұрын
There is no shame in getting sedation for an mri. You are brave to even consider not getting it. I pray for you and your family daily. Know that you are loved and supported from afar.
@carrierogers2797
@carrierogers2797 Жыл бұрын
It would be great if Kyle could talk to you through headphones when you’re in the MRI I think his support would really help you through it ❤
@lorimcmahan5683
@lorimcmahan5683 Жыл бұрын
Great idea
@joanneantoniak7760
@joanneantoniak7760 Жыл бұрын
Oh my gosh Jenny I prayed and cried as I watched you suffer. It was hard to watch - I can't even imagine what it was like to endure. I could clearly see the right side of your chest taking in more air and being more relaxed. Please please take the sedation!! I know it's not what you had hoped - but it's not a fail. Your muscles and nerves and whole body relax under deep sedation; and that is a blessing for your body for the 30 minutes. Sending so much love and prayers. Please don't choose to suffer when there is an alternative. 🙏❤️🇨🇦
@jojoFranklin
@jojoFranklin Жыл бұрын
Please be gentle with yourself Jenny. Taking sedation is not a sign of failure. It’s a sensible choice. Your courage is truly astonishing and inspirational.
@sandrahunt4436
@sandrahunt4436 Жыл бұрын
Don’t fret about having sedation for MRI. You are not under very long. You’re comfort is much more important. Not just physically but emotionally as well. Still praying for you all. 🙏❤
@sylviawilson8769
@sylviawilson8769 Жыл бұрын
From the 71 year old lady in Portland, Maine. Jenny you are very brave. Something you said; about not being able to do things that used to be so simple, without discomfort, anymore is so hard. Oh, how true. Kyle is very strong and brave too. It isn't easy to watch someone, you love, be in pain and not be able to stop it and rescue you. Tears help. They really do, but they take breaks too. It's Okay.👑 🙏🏼🕊💖🎶🥰
@brandimcmillen4005
@brandimcmillen4005 Жыл бұрын
I am sobbing at the end of this. You are the most lovable, strong, incredible lady and no one would ever love you any less. You are a brave warrior, and it hurts my heart to see you suffering. I love you, Jenny, and I pray for you every day. ❤️❤️❤️
@keriwhite2521
@keriwhite2521 Жыл бұрын
What a beautiful soul. Sharing your life's journey with cancer is so brave and real. Praying for you and your family.
@beeintelligent3259
@beeintelligent3259 Жыл бұрын
There’s nothing wrong or weak by having sedation for a MRI. I have to have sedation for MRI’s. I have them frequently and I came to that choice because of pain and panic. It never use to be that way but later in life, it became almost impossible to not be sedated. Much love to you beautiful Jenny! Please don’t think that it’s a cancer thing not to be able to do the MRI procedure. Many people need to be sedated to lay pain free & no anxiety in that damn tube! ❤❤❤
@lindaviveiros1213
@lindaviveiros1213 Жыл бұрын
Jenny, your team is going to do what they need to do to make you more comfortable. Please don’t add more to your anxiety. Remind them of your pain so they can look deeper into it. Don’t beat yourself up. You’re brave, strong and You’ve Got This!!!
@marynamurray9385
@marynamurray9385 Жыл бұрын
Sweet Jenny, don't torture yourself and if you need sedation, use it! You are and have been going through a lot and deserve to be without pain. Sending you, Kyle and the family lots of strength!!
@anitaward2120
@anitaward2120 Жыл бұрын
Jenny. It’s ok. We all are sending positive thoughts to you and your family. Take the sedation if you need it. Please don’t pressure yourself.
@lmccauley7319
@lmccauley7319 Жыл бұрын
Your husband is a gem. You're lucky. A lot of women go through this alone. You are blessed.
@dawnieholland8368
@dawnieholland8368 Жыл бұрын
Wish you could some how stand or sit to have this mri.
@jacquiemouton9053
@jacquiemouton9053 Жыл бұрын
I understand your struggle as my sister went through it and she fought for 10 years. You just need to be a bit kinder towards yourself and never brush aside your attempts to take control of your body and pain. Your husband and children got a real gem in you young lady. You are extremely brave to show your vulnerabilities and document all your trials and tribulations. I for one salute your courage. Take care my girl. Love from Cape Town, South Africa. x
@msady2d19
@msady2d19 Жыл бұрын
😢 I try not to miss a video because I truly want to follow your progress. I'm not sure how you do it but know that you inspire me to deal with my liver disease. It's difficult living or trying to live with a disease that has no cure, mine is Autoimmune Hepatitis and other things. Liver cancer although slow growing (whatever that means) lol. I do think God chose us for a reason to battle thru this portion of our journey although you are way brave and strong beyond measure. Kyle is a true 😇😇😇 Enjoy each day and make many memories 💚💚💚 I have my liver w/dye May 5th and I'm dreading the 40+ minute lying flat too YOU DID AWESOME 🎉
@vp0617
@vp0617 Жыл бұрын
Hoping all goes well for you! Maybe if you can put some headphones on and listen to music or a podcast or something, it might make the time pass by faster, especially if you're not allowed to talk.
@hollybrabeau
@hollybrabeau Жыл бұрын
Watch Dr. Ken Berry and his RN wife. She suffered from an autoimmune disease and cured it completely by staying as close to zero as possible with carbohydrates and sugar. Amazing progress with ketones and cancer. I know the liver has the amazing ability to be regenerative.
@msady2d19
@msady2d19 Жыл бұрын
@@hollybrabeau thank you so much for the information!!! Will do
@kelicampbell1021
@kelicampbell1021 Жыл бұрын
You are so strong and awesome. I am so proud of you. Please allow yourself to be sedated. The pain is not worth it. Kyle is such a calming and sweet spirit. Hang in there Sweet Girl!
@pepsiyummie1
@pepsiyummie1 Жыл бұрын
Do not say things like “pathetic”. Never ever ever. You are anything but that. You are everything good. Much love to you honey.
@denisereynolds2399
@denisereynolds2399 Жыл бұрын
Dear Jenny there was nothing pathetic about this. It was really really brave of you to share this. My heart is aching for you, and seeing you in pain just breaks my heart. Like is so unfair ❤. You did so well lovely, and just showing us what your going through is so brave like I said. But to be in so much pain for the duration of the scan, if it was easier for you to have the sedative, well if it was me, I’d definitely go for the sedation. You go to sleep, then your awake in no time. You do what’s best for you Jenny, but do not feel embarrassed or ashamed because you can’t lay down flat. You do only what’s best for you and your pain management hunny. Always in my thoughts . Kyle you are such a sweet and caring husband 🙏🏻❤️🇬🇧xx
@rwilliamsmith1963
@rwilliamsmith1963 Жыл бұрын
Never pathetic and always always inspiring. Please try and give yourself some grace. Never ever feel that you disappoint any of us and we think any less of you for asking for the sedation. Your goal is to get the best images possible without agony. We love you Jenny with tears, pain, anxiety, honesty and gentle spirit!! Thank you ❤
@doglover8204
@doglover8204 Жыл бұрын
If it is painful, take the sedation. It is not a bad thing. It is a tool to help you through a necessary procedure. Use every tool, Jenny. Those tools are there for a reason. ❤️🙏🙏🙏✝️
@Bundydream
@Bundydream Жыл бұрын
Jenny you are so brave, you shouldn’t put yourself through unnecessary pain. Take any pain relief you can get to make this more comfortable. Kyle is such a beautiful husband, so supportive and kind. Love to you all from Australia 🇦🇺 ❤
@libertycan6959
@libertycan6959 Жыл бұрын
Angels on earth... Jenny is one of them. 🙏🏼
@lisasharf1442
@lisasharf1442 Жыл бұрын
Jenny, there’s absolutely no shame in asking for sedation if you’re in pain. It’s important that you lie still so the scan is optimal. You know that. Don’t put yourself through that pain if you don’t have to. Keep us posted. ❤
@SusanMillard
@SusanMillard Жыл бұрын
Oh Jenny, if only you could see how strong you are! Kyle is right there with you and what a support he is. *I was just thinking perhaps it would be instructive for your team to see this video... it may be instructive for them to note what you are feeling and where so they can figure out how best to help you with these lay flat scans.* You are so brave to try this experiment on your own at home and film it and thankfully Kyle was there to help pull you up into a sitting position. I am so glad you asked him to be there and be part of this. I agree with the other people commenting, give yourself grace and realize that you are a cancer warrior who faces this battle for your life with such strength of character and grace. You smile through your tears and try to see the best of everything. Praying for you and your wonderful family and watching your videos in awe of all you do. Thank you for sharing your life with us.
@lindaraezer3013
@lindaraezer3013 Жыл бұрын
Oh my, Jenny, that was super brave! I've had cancer, and I know how painful it is. 8 years after my cancer diagnosis, the radiation had blocked my left carotid artery. (I have a rare situation where my blood doesn't pass over between both sides of my brain.) I never knew that when half of your brain dries up, it is beyond excruciating. It was the worst pain I've ever had. My doctor ordered a brain MRI, and I thought I was going to pass out and couldn't even hold my head still, which made it take longer. The next time, they ran an IV with fentanyl and versed, which helped tremendously. And I didn't have to recover from being put completely out. Oh, my oncologist told me that many people have to be put completely under every time for an MRI just for anxiety. So, there's no shame for experiencing anxiety or pain. Be as comfortable as you can possibly be because there is no sense in suffering. Love and hugs to you, Jenny 🙏💕
@sandyanderson789
@sandyanderson789 Жыл бұрын
Pathetic you kidding me, I was rooting every minute for you , that was rough Jenny but your a legend and Kyle I love you more with each vlog your truely a blessing, you can only do what your body tolerates Jenny, and what works for you mentally, emotionally and physically, but you got this , we your utube family will be with you every second your not alone, love from Sydney Australia 🦘 x
@Sunnyday98717
@Sunnyday98717 Жыл бұрын
My heart breaks for you Jenny. Stay strong, you can do this ❤❤
@MarilynMayaMendoza
@MarilynMayaMendoza Жыл бұрын
Hi Jenny, don’t put yourself through any more suffering because of embarrassment or trying to be strong. You are strong.Sedatives are there to help. I know that losing one’s abilities is hard. I’m losing them through age and severe arthritis. At first when I used a cane and people would treat me differently, I thought I could do without it but it hurt and I fell. Kyle is a wonderful husband and you have wonderful support and wonderful children. You are a wonderful mother. Pain sucks! Never feel embarrassed about anything. We love you!❤ Aloha
@00clgordon
@00clgordon 4 ай бұрын
Jenny was so brave!!!! She is missed.
@Dotocon311
@Dotocon311 Жыл бұрын
Praying for you to get through your MRI with a bearable pain level ❤
@donnabaardsen5372
@donnabaardsen5372 Жыл бұрын
She has strong pain meds for that. What she's scared of and struggling with is not being able to breathe.
@ven0006
@ven0006 Жыл бұрын
Having sedation is perfectly fine to use every time you need it. Don’t put yourself through pressure and stress. You may not have control over everything to do with your cancer but this part you do. Be kind to yourself Jenny, biggest hugs xo
@shannonscheffel7366
@shannonscheffel7366 Жыл бұрын
Yes, please, Jenny🙏
@2boysmom943
@2boysmom943 Жыл бұрын
You. Are. A. Badass! My son was/is sedated for EVERY SINGLE SCAN he has had for the last 3 years(ish). He is 10 now and I fully believe he could do it if he tried but he has no desire to do them awake. I think its the trauma of cancer like you were saying. His team has been so great about letting him do what he is comfortable with. It does make for much much longer scan days but to us its so worth it! I am so crazy thankful that it's an option for him. It's truly a mercy from God that we live in a time and location where it is possiable if and when needed. I am so dang proud of you Jenny. You are truly a hero to many of us.
@elainecarozzi
@elainecarozzi Жыл бұрын
You are so sweet, Jenny. No matter what, you are building a legacy to show people, including your children, that no cancer patient loses any battle. You are a winner, and always will be a winner.
@BS-nn8jk
@BS-nn8jk Жыл бұрын
You are definitely NOT pathetic. You are a brave warrior. I hope you accept any comfort you can get and don't reject it because of the mental idea of it. You guys are awesome and such inspiration.
@deborahandrade3453
@deborahandrade3453 Жыл бұрын
Jenny, you are a remarkably brave woman! I’ll continue to pray for a healing of your cancer. ❤️🙏🏻
@suemoo22
@suemoo22 Жыл бұрын
If you need to be sedated, don’t feel bad about asking for it. I’m sure you’re not the only one. You’re such a brave girl and fantastic Momma! Hugs to you all! ❤️
@cerorchid
@cerorchid Жыл бұрын
Jenny, I don't understand why you are trying so hard to lay flat. As a nurse, I can promise we don't care (judge) if you need sedation. I don't mean to sound harsh, but we love the chance to do our job. The only one who is judging you is you. 💝 I worked as a sedation nurse for many years, and it means you are enabling us to do our job. 😁 I suspect you want to be able to have control of your body, and the cancer is not allowing you to have that. I am so sorry. I pray you can learn to be at peace with what your body is able to do and not do at this time. Love you. ❤
@Connie.Grellner
@Connie.Grellner Жыл бұрын
You did wonderfully! I wouldn't have even tried. Try not to be so hard on yourself. So proud of you.
@brendapeterson4637
@brendapeterson4637 Жыл бұрын
It's really hard to watch you cry Jenny. I am so sorry for all these things you have to go through. I hope this treatment helps you very soon. You need a very long cancer vacation !!!! Your a great wife and an awesome Mom !!! Love to you and your family
@welshwitch2126
@welshwitch2126 Жыл бұрын
Oh Jenny! There is not one thing that’s pathetic about doing what you need to do to stay comfortable during tests and treatments that are necessary to fight this battle. You are NOT weak, you are human, and you are a beautiful, beautiful person, inside and out. Do what you need to do to get through this comfortably, without the anxiety and pain. We’re Team Jenny❤❤
@lil6806
@lil6806 Жыл бұрын
Jenny you are so loved and watching your videos gives me the strength and courage to face my own health issues and you make me feel like I’m not alone. I hope you feel the warmth and love and support from your community here on KZfaq!
@MermaidQueen64
@MermaidQueen64 Жыл бұрын
You did amazing! As a RN I can tell you the anesthesia medication they give you is so safe and leaves your system so fast. I’m so proud that you were able to lie flat for your test but the pain you were experiencing was so hard to watch. I pray that you will go with the sedation so you can have the mri without suffering. Also, remember the mri table is hard so that will also inhibit your lungs to expand. I am amazed by your bravery and strength every time I watch your videos! Be kind to yourself and know we are praying fervently for you! You are not fighting this alone!! ❤️
@mizuza12
@mizuza12 Жыл бұрын
I just want to send you big hugs. As someone who has a neurological disability that causes pain amongst other things and other health conditions. I know how frustrating and upsetting it is when the body just doesn't play ball. I've been hard on myself too, trying to manage without pain relief. But I've learned. Life is hard enough why suffer more than you have to? Making something a bit easier means the day is a bit brighter. Please take the sedation and be kind to yourself. I imagine that the change is scary but being as comfortable as you can be on this journey is good for you and those around you. Sending love ,hugs and prayers from North Scotland
@lynnloehr1566
@lynnloehr1566 Жыл бұрын
The most important thing is that you have the MRI,, how you do it is really based on what is comfortable for you. If you need the meds, just take them, look at it like this,, every day is precious and in the days leading up to these tests you are sad, and anxious. Why do that? Just know that you can be medicated and you will be comfortable then you can relax and enjoy every day right up to the test. There is no harm in knowing what your limits are and respecting that. It's all about quality of life every single day. Wish I could give you a hug and let you know it's going to be ok.
@mariatoth2649
@mariatoth2649 Жыл бұрын
Dear Jenny, you're such an incredibly brave woman ! what a trial you're going through,! (as my daughter who also is fighting cancer with a lot of pain.) While I was watching you, I kept praying that God gives you strength, which we can see every day you have plenty of . Don't ever feel ashamed of crying , what you're going through is traumatic in every way.. You're like a bright star shinning through your tears. Stay strong and positive, most of all keep that radiant HOPE !!! God is listening. Many prayers for you and your beautiful family. Hugs and lots of love every day !❤🙏
@robinjanz2243
@robinjanz2243 Жыл бұрын
Dear Jenny - thank you for sharing your vulnerable moments and struggles. You are helping so many others not feel alone in the things they are facing. I am continually so thankful for you that you have such an empathetic partner in Kyle - what a tremendous blessing. Please don't equate needing sedation or pain meds with failure - they are simply tools to help you through. Use the tools without guilt. I'm praying for your ultimate healing and recovery, and sending my love.
@wendlit
@wendlit Жыл бұрын
Jenny , there’s a nerve that runs up from your diaphragm to the shoulder. My partner was diagnosed with CML (40). We found out when his spleen filled with white blood cells, which pressed against his diaphragm which affected the nerve in/near his left shoulder! He had other typical symptoms but the doctor didn’t spot the enlarged spleen and it was the consultant who told us about this nerve. Maybe, it’s worth asking them about this long nerve? ❤️
@alisontravers5477
@alisontravers5477 Жыл бұрын
Jenny, I really get why you would want to try to lie flat without sedation. I think you are incredibly strong and brave and you have every right to be super proud of yourself for doing so well in your experiment. I would just like to make another point to add strength to the other comments. I suffer from a chronic condition that is both disabling and painful. I see many similarities between my condition and the types of pain and the emotional battles you describe so eloquently. A practitioner at the pain clinic I attend once said to me that we all have limited resources with which we battle life’s challenges, whether we are disabled or not. Why waste your precious resources on something you can get help with? Chose your battles wisely in order that you can have as fulfilling and happy life as possible. Why struggle to do something so solitary and resource hungry that will leave you too exhausted and full of pain to enjoy activities that you truly love and make wonderful memories with your loved ones? Nobody is going to say, “isn’t she clever (or brave), she did this one thing by herself”, but your family will say, “isn’t she wonderful fun to be around” when you have the energy to join in…. I think you are an incredible woman Jenny, put yourself first and accept all the help you can get. It is not a weakness to get help but it is a strength to ask for it! ❤
@bohochic2459
@bohochic2459 Жыл бұрын
So tenderly expressed. Bless you.💜🙏💜
@paulascruton8229
@paulascruton8229 Жыл бұрын
You did great hun so proud of you xxx
@Tawny2.0
@Tawny2.0 Жыл бұрын
I'm at work crying with you. You are so strong and brave. You tried your best that's all you can do. I'll be praying for you for your MRI.♥
@mariannehenke3103
@mariannehenke3103 Жыл бұрын
Dear Jenny, I cry watching you. It is so hard and you are so brave, I pray that you be strengthened by God. With caring thoughts from Australia WA
@marty3711
@marty3711 Жыл бұрын
What sbout finding a upright MRI machine?
@patriciahallstrom9384
@patriciahallstrom9384 Жыл бұрын
We love you Jenny and we are proud of you !!
@albalopez2885
@albalopez2885 Жыл бұрын
I’m praying for you and please don’t be sorry about crying you’re going through alot so we understand ❤🙏🏽
@threeqtrtime
@threeqtrtime Жыл бұрын
Jenny we are all so proud of you.. no one thinks any less of you.. are you kidding you are a champ for sure. Such a fighter all while being the best mom, wife, sister, daughter. I think you did an amazing job today, and I’ll bet bf the trial you wouldn’t have been able to lay that long.. that tells me it’s working.praying that before long you can lay on your back anytime you want and won’t even have to worry about it being for scans. I think you look healthy and beautiful. You are such an inspiration Jenny, never forget that. Hugs n love to you and your whole family ❤❤
@ashleynickles3785
@ashleynickles3785 Жыл бұрын
You are amazing and soooo strong, Jenny! I'm praying for you EVERY day!! ❤
@ktlovesyou17
@ktlovesyou17 Жыл бұрын
You are so brave and you did amazing!
@BC-lo7lj
@BC-lo7lj Жыл бұрын
I don't have cancer but deal with lots of medical issues. I have to get sedation with MRI's as well (spinal ones). You are doing fantastic!!! Give yourself grace and feel good about even attempting this. Do what you need to do to get through it. You inspire me to keep going and fighting and being positive. ❤
@hilarysanderson6002
@hilarysanderson6002 Жыл бұрын
Hi pretty lady, I’m from the UK & stumbled across your Chanel a couple of weeks ago. Wow, this video made me cry too seeing you so upset. You are amazing, so very brave & you just keep going for your family. I have 2 terminal illnesses & I’m no way as brave as you, you give me strength. Don’t get upset, you did so well, 2 minutes short, amazing. Lots of love & big hugs from me in England. xxx
@robyngaffney4822
@robyngaffney4822 8 ай бұрын
Jenny you are your own worst Critic. Please be kind to yourself, you are a beautiful Warrior. I am going through your Journey. I know it was important for you to share this. For others who may be going through the same thing as you. We love you Jenny and that will never change. You are very strong person and you are very much loved.❤
@1200janie
@1200janie Жыл бұрын
You are so brave!! God bless you all!!
@kalliebass3334
@kalliebass3334 Жыл бұрын
You are an amazing human being and so brave. ❤
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