@@Danieltspencer NO. Eventually I will go to a eye doctor we are blind with LHON it is probable I will see a eye doctor in the future lol sitting back about 3 ft from the computer monitor being able to navigate to anything I want without leaning in is all the confirmation I need! When I did this in 2011 my vision did get better and the next time I went to my eye doctor we did the test and the VFT and all the different things and he said that my vision looks like it's worse lol so I personally do not need approval or confirmation from a eye doctor that my vision has improved in so many ways I can just see better! I feel I can read three lines on the eye chart which is a improvement from early February when I was at the Bascom Palmer eye institute for the LHON follow up gene therapy study to continue gathering information about our disease I read two and a half lines but my distance vision is improving a lot so maybe I could read four lines now idk but going through all the hassle of getting to the doctor for me impacting everybody else's schedule all the crap I have to go through it's totally possible it just is an inconvenience and to confirm for other people that my vision has improved still just based on my word because do I give every single person access to my medical records? How do I confirm. Watch the playlist vision quest 2.0 and just follow all of the videos along the way and I point out continuously on camera how my vision has been improving that to me is a lot better than a stupid VFT or looking at how pale your optic nerve is. I don't care about those things I want to see better if I think I can see better because I can't see better That's all the confirmation I need brother :-) but I get that everyone in our community I mean literally everyone is all about what the doctor says I'm not.

@@TheGeneticHouse I understand that. I am also affected. I appreciate that you are trying different things. Unfortunately there are not enough human studies but there seems to be a lot of positive anecdotal feedback on methylene Blue. I appreciate that you have been posting videos for so long I started following you many years ago. I just think it would be interesting if after sometime you see substantial improvement and went for an eye check up and could say that you had an objective improvement from 20/X to 20/Y. Also, I don't know that this is actionable but you may want to look into cnm-au8. Seems very promising. You have been able to get into trials before. They are focusing on MS and ALS I think LHON could be a great candidate for that drug.