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Vlog 12/23/2013: The Ugly Side of Endometriosis

  Рет қаралды 1,771

drhikaru

drhikaru

Күн бұрын

Hey everyone! Just a reminder I'm not a doctor, it's just my nickname. Today's topic is the ugly side of endo, the side that we really don't want to talk about. This topic was inspired by my Instagram photo: / inhyf1gil1 Endometriosis is such an ugly disease, there's so much that we don't want to talk about. And when we do talk about it, it's not because we want pity, it's because we want to educate others about this horrible disease. Thanks again for watching and as always, thank you for your support.

Пікірлер: 30
@emilyhunt4694
@emilyhunt4694 10 жыл бұрын
Thank you. Yes, it's hard to talk about, but without people like you brave enough to do so, people will continue to say "Endometri-what?". My family gets upset with me because when I speak to doctors (and everyone), I try to be cheerful and my "peppy" self, and they tell me that I will not be taken seriously. This disease DOES cause so much depression and anxiety, in otherwise happy people. I don't want to show everyone how weak it makes me and so I hide it behind a smile and the occasional giggle or two. I am VERY fortunate to have an amazing team of Endo Specialists that have been caring for me for years now and they are used to this behavior- we are VERY strong women- we have not been given a choice in this- and so we should be allowed to smile through our tears and discuss what we experience without embarrassment. This is exactly what I see you doing in this video. Thank you. Thank you thank you thank you.
@drhikaru
@drhikaru 10 жыл бұрын
Thank you for your kind words! And thank you for sharing your story. There are some days I feel rather silly doing these videos, like I wonder, what good am I doing talking to the world about this? But whenever I hear positive feedback from my fellow endosisters, it is the world to me. I'm so glad you have a team of specialists behind you, know that you have your family of endosisters as well!
@julissadeleon1609
@julissadeleon1609 10 жыл бұрын
Hearings you and your thoughts is like hearing my life and the way I feel day by day. I am also thinking of doing a channel of my own but I haven't have the courage to go for it. But at the same time I want people to know this condition is not a joke it's not in our head and is real. Thank you for putting your story out there.
@infinityawaitsus
@infinityawaitsus 10 жыл бұрын
YES GIRL. you preach. I retain water like no other and that and my periods and all the other fun endo stuff makes me feel so unfeminine. I'm not comfortable with being sexual or happy in my body and that's so sad. but by talking about the things that we go through every day but make people go "ewwww!" we will get their attention and we will get a damn cure!
@drhikaru
@drhikaru 10 жыл бұрын
Always fighting for a cure! And even though endometriosis is ugly, please know that you are one of the most beautiful people I have er. . ."met" as we haven't in person yet. Stay strong sister!
@Chickie07xo
@Chickie07xo 10 жыл бұрын
I know how you feel. I was in the hospital at the age of 13 with a near death experience bc I bled so much! I wasn't diagnosed with anything until I was 17 (diagnosed with PCOS). I went on having severely painful periods & both my primary physician & OBGYN blew it off & said it was normal to have "cramps". I hate that people don't realize that it's more than just cramps. Fortunately my new GYN agreed to do a lap & found endometriosis. I've tried every from of birth control plus the Lupron treatment without success. I'm now trying a new diet, supplements for not only the endo but for the PMDD that comes along with it. Also trying acupuncture next month hoping it all comes together to help treat it. I know the struggle! I'll be making videos soon also to document my progress with my new techniques :)
@drhikaru
@drhikaru 10 жыл бұрын
Thanks so much for sharing your story with me! I'm amazed at what my endosisters have to endure in order to find relief. And yes! Please make videos to document your process! I have heard a few stories where women find relief through alternative medicine. Best of luck to you my dear endosister!
@newbeginnings1018
@newbeginnings1018 10 жыл бұрын
Thank you so much for posting this video I have just been diagnosed with Endo and I have the Endo belly.(thought I was going Crazy at first) My husband and I have been trying for a while now for our first child and after seeing my belly I couldn't believe it I thought I was expecting only to be told by the doc that there is nothing in there and the pain was all in my head "its more likely just gas build up seeing as i didn't miss a period and everything look normal on all the scans" So i believed her.. (dumb mistake).. I have now seen 3 doc and my 3rd doc was very concerned and has now properly diagnosed me with Endo. As I have had this for years and not know I have just learned to deal with the pain.i am shocked that they never picked it up earlier. In a way I am relieved to know what is causing all this pain (and my belly) and I know this may sound harsh But in a way I am glade that I am not alone. So thank you once agin for making this horrible disease more public and you are so right there should be more awareness for this as I am in Australia we women don't talk about this stuff out of the doc surgery. So thank you :)
@Stephknauff
@Stephknauff 9 жыл бұрын
Hello, I am slowly catching up on your endo videos....If the questionaire is still valid, I'd love to participate! I have been diagnosed with endometriosis for a little over 8 months, and I will be doing my first lap in the beginning of February for a true diagnosis. For me, it's hereditary and my mom had a very early hysterectomy as a result (not that it exactly helped, she has adhesions so bad) Enjoying the video, and I will comment on any newer videos as I watch them! Thank you so so so much for getting the word out about endo
@alanafantasmapants
@alanafantasmapants 10 жыл бұрын
this happens to me too. i don't think i realized it until watching your video. i've been in denial about it, but i've forfieted all my regular pants for elastic waist bands.
@drhikaru
@drhikaru 10 жыл бұрын
A lot of times we think it's all in our heads. It's not. We are so used to our body doing all sorts of funky things, normal becomes. . .well, what is normal? You aren't the only one who lives in elastic waist bands or multiple size pants. Hang in there!
@brandie961
@brandie961 10 жыл бұрын
Thank you I agree I have the same feeling my FAM does,not understand what am going through my husband told me he wish he could take my pain everything hurt,s so flip flop made my Dr have,not giving me anything for pain so I lay on my heating pad but it does,nt help much. God bless doll my end sister.
@drhikaru
@drhikaru 10 жыл бұрын
God bless you as well my endosister. It is not an easy disease by any way shape or form. I'm glad that your husband is trying to understand and be there for you.
@newbeginnings1018
@newbeginnings1018 10 жыл бұрын
Hay there Brandie my docs never gave me any pain relief as well (as they through there was nothing wrong with me) I found that if you can sit in a luke warm bath for 5 to 10 min with a gel heat pack it can take some of the pain away. keep your chin up darling :) I hope this helps
@brandie961
@brandie961 10 жыл бұрын
Thank you for posting I have endo I have had it for 3 year,s it suck butt .
@drhikaru
@drhikaru 10 жыл бұрын
You are quite welcome! It really does suck donkey butt.
@brandie961
@brandie961 10 жыл бұрын
Thank you for geting back with me . I have been watching ever video u put up . My dr want do anything abouf the endo and pain am in and i dont know what to do anymore. Any advise.
@drhikaru
@drhikaru 10 жыл бұрын
Brandie Hall Do you have the option of seeing another doctor? Are you limited by insurance? Are you able to travel to see different doctor?
@brandie961
@brandie961 10 жыл бұрын
I can see another dr if they take my insurance. I think i need to see a endometriosis dr couse my gyn does,nt know that much about endo the reason i say that couse i ask her questions and she can,t if give me a answer. She wait,s me on lupron but my insurance want pay for it . The cost of lupron is 3048 dollars. I just want to cry becouse am 31 and i hate being in pain. Endo taking over my body it effect everthing i do.
@brandie961
@brandie961 10 жыл бұрын
The one endo dr i find is in Atlanta Georgia that 7 hour,s drive from me.
@brandie961
@brandie961 10 жыл бұрын
Are u still on facebook i can,t find you. I would like to be ur friend on facebook.
@drhikaru
@drhikaru 10 жыл бұрын
Brandie, I am! Come find me at facebook.com/drhikaru.desu!
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