What We Do When the Tears Flow 😢 (4/23/17)

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Chronically Jaquie

Chronically Jaquie

7 жыл бұрын

Today started off okay, but then the hard times continued on from yesterday. Frustration set in, and the tears began flowing. I keep up my positive outlook for the most part, but sometimes this happens, too. I don’t feel guilty for the frustration, I think it is a totally expected and healthy part of life - Especially life with multiple invisible disabilities. But I’ll do what I need to do in order to move past it, and for me a little cake and ice cream definitely helps! I’m showing the good and bad, because that is how I will spread genuine awareness for what it means to live life with a chronic illness. Thank you for joining us on our adventure!
Yesterday’s Vlog - • A Rough Day with POTS ...
Vlog References:
VogMask - www.vogmask.com/
Infusion Backpack (Use the Code “Chronically Jaquie” for 10% Off) - vibedration.com/
Janiece’s Channel for Raw Diet Info - / @therawlife1
Follow Us!
My Instagram - / chronically_jaquie
Harlow's Instagram - / helper_dog_harlow

Пікірлер: 212
@kelseylvorholzer6716
@kelseylvorholzer6716 7 жыл бұрын
Har was sooo cute and such a typical dog when she realized Judd wanted to bathe her. I love how she put her head on your blanket and gave you "Save me Mom!" eyes! :) I'm sorry you've been having a rough couple of days (and months). You are so strong even in your down moments. I think it takes an incredible amount of strength to know what you need and allow yourself to have it in those moments.
@andreiionita7526
@andreiionita7526 7 жыл бұрын
I want to tell you that you and your boyfriend saved a life , i am depressive and bipolar, i often have datk toughts, but since i started watching your vlogs i started be more positive, i own you my life
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
It means a lot to me to hear that, people like you are the reason I do this. I want to help others. Please know that no matter what, you are worthy and loved.
@StefanieRoyMusic
@StefanieRoyMusic 7 жыл бұрын
Dramatic Harlow during bath time was so cute and funny. lol
@1988eleonor
@1988eleonor 7 жыл бұрын
she was like "bath?! No Sir...not happening!" ...tooooooooooo cute
@MegBoucher
@MegBoucher 7 жыл бұрын
I am glad you chose to vlog your moments of frustration today. It's important to remember that we are all human, and while positivity should always be the goal, sometimes you have to let yourself be frustrated for a moment. You are such a strong and positive person that inspires me every day to be positive and strong too, but always remember that it's okay to be upset sometimes! :) Thank you for making your videos, I really enjoy watching them every day.
@paige_n_neri
@paige_n_neri 7 жыл бұрын
Hugs & prayers. You're right, some days chronic illness gets you down & you just have to cry, it's OK. Sometimes mine last for days, then I get up & put my game face on. 😆 Sending love from me & Nero, my SD in training.
@vikkibee7456
@vikkibee7456 7 жыл бұрын
I just want to give you a cuddle! You are such a strong and amazing woman! I'm so glad I found your videos! Keep doing what you're doing! 💪🏻
@Relle921
@Relle921 7 жыл бұрын
Thank you for sharing your tears. When I got my latest MRI (last October) for my MS I got some bad news and started crying. People just told me "don't concentrate on the negative". In reality they didn't realize I just needed them to listen to me. Talk with me. I needed to get my first reaction out so I could accept the results myself. Sure I stopped crying in front of people because I hate the comments like that but when I needed support the person I thought would be there for me....just wasn't. It's not like I was concentrating on the negative I got bad news I needed to get the feelings out so I could accept it. Sure I've accepted it now since I know I can't really do anything about it but not having the person there that I usually depend on for support....it really sucks. Although I do realize it probably scared the shit out of him too because I'm usually a very strong, positive, and upbeat pretend like This disease doesn't bother me kind of person.
@djlawlz4041
@djlawlz4041 7 жыл бұрын
Hey there . I have MS , but a very minor case of it . I can understand what you mean by people telling you those things and you getting frustrated. It really does suck to be told those things .
@sarahg2769
@sarahg2769 7 жыл бұрын
Sharelle Silveira I don't have an major illness but I understand sometimes u just need someone to shut da f up and listen that's wat animals r for tho they can't tell ya to shut up and have to listen 😂
@fungirlwinx
@fungirlwinx 7 жыл бұрын
Crying and being frustrated is heathy, if you don't it bottles up and then you are not helping anyone. Just take your time and think of it as a learning experience so that when you do get back to college and qualified you can help people more as you have been there and know what they are going though.
@darren892
@darren892 7 жыл бұрын
Aw Jaquie, it's understandable to get frustrated sometimes, it's human nature! You fight your battle with such grace and you should be so proud of yourself for doing what you do!xo
@crimsonrunnel
@crimsonrunnel 7 жыл бұрын
My doctor just ordered me infusions. I have different chronic illnesses. I am happy to come across your channel. I just picked up my puppy for service dog training. Keep up your awesomeness! I love to see people who suffer as we do, but remain a positive fighter.
@kimleahb6635
@kimleahb6635 7 жыл бұрын
Crimson Runnel I hope all goes well for you with your infusions and puppy! I really do hope the infusions help - and best wishes for the future, stay strong 😉
@RaeOfSam
@RaeOfSam 7 жыл бұрын
I'm so glad that you talked about how someone can look healthy but not be. I'm blessed to not have too many issues, but I did have epilepsy due to being born prematurely and I have chronic migraines. I would get talked about at school because I missed so much and everyone said that I didn't "look sick". I love your channel and your vlogs. I had surgery today and watching you has made me so happy. I hope you enjoyed your cake and ice cream. Remember that it's more than ok to get frustrated. Much love from Seattle
@jennifergreene7702
@jennifergreene7702 7 жыл бұрын
You are a woman of strength! This video touched home for me. It can be so difficult when your body works against you. Hoping today is symptom free.
@AyyRalphy
@AyyRalphy 7 жыл бұрын
Love watching your videos before school! I laughed so hard when you said "HÄAGEN DASZ BUY ONE GET ONE FREE!" No worries Jaquie I bet your IVIG treatment by Saturday will uplift you in no time. Can't wait for that. Happy Monday!
@margretdona
@margretdona 7 жыл бұрын
I get frustrated too! I have POTS and Orthostatic Hypotension plus other invisible illnesses and I get bummed when I can't do a normal person thing. I have had people say I'm lazy or that I'm just trying to get out of something. NO I AM NOT LAZY OR TRYING TO GET OUT OF SOMETHING! I get funny looks when I park in the wheelchair parking but don't have a wheelchair. Having an invisible illness is rough! You are amazing Jaquie! You are so lucky to have Judd and Harlow. Thank you for sharing your life with us.
@samanthasherwood9206
@samanthasherwood9206 7 жыл бұрын
M.D. I also have POTS and other invisible illness mental and physical
@djlawlz4041
@djlawlz4041 7 жыл бұрын
I have fibromyalgia and chronic fatigue syndrome , end it drives me crazy when people tell me I'm being lazy when I'm really not and I'm suffering .
@smileyprincess
@smileyprincess 7 жыл бұрын
Hi! I've just found your channel today by chance and haven't been able to stop watching since. I am 23 from New Zealand and I have four perforated discs in my lower lumbar spine. It first started when I was 15 and listening to you explain your frustrations and the concept of invisible illnesses really hit a cord with me. I have come so far in the last 8 years but I still have really bad days where I struggle to walk or move and it makes me so mad when people say 'oh but you looked fine yesterday'. You are such an inspiration and you've definitely gained a new subscriber in me!!! Also you're dog is amazing!!!!
@armywife4life78
@armywife4life78 7 жыл бұрын
I'm lucky if I can be vertical. I have to lay down or I fall out. No life with chronic illness is not always sunshine and roses! Stay strong sister! Oh I happen to have a large distended abdomen and when I stand up out of my wheelchair to reach stuff some people say oh look the whale can get up and stuff like that. I'm like you don't know me at all! Hugs!
@MicaylaRuby
@MicaylaRuby 7 жыл бұрын
Yes! I'm not the only one who pigs out when I'm having a bad day. I don't do it all the time, but ya know it helps. Science can back it up too! Sometimes eating good food releases seritonin :D
@wendyannh
@wendyannh 7 жыл бұрын
So true! Besides, chocolate is actually *good* for us! www.medicalnewstoday.com/articles/270272.php
@elizabethbulfer4530
@elizabethbulfer4530 7 жыл бұрын
I do the same thing when I get frustrated... Cry, a lot. It sucks. I'm glad you guys have figured out a remedy :-)
@vitasolano3272
@vitasolano3272 7 жыл бұрын
Hey Jaquie and Judd, hope you guys have a better day tomorrow. Love how Harlow not keen on being washed ! Sad to see you have tears ~ Love that you guys do something special though! Love the channel is growing heaps ! :) :)
@Confidentk9sCa
@Confidentk9sCa 6 жыл бұрын
Love that your energy went up a bit when you started talking about your ice cream and cake remedies. When you were in the store, you're happiness may have gotten as great as it is when watching Harlow and Judd playing at the beach.
@Suki7stars
@Suki7stars 7 жыл бұрын
I have several chronic illnesses and disabilities, I sometimes cry from frustration, too. It's so hard to feel like even though I try so hard to take care of my body, it won't do what I want it to. Sending hugs and prayers to you- I love Naked & Afraid, too!
@SaraRangel
@SaraRangel 7 жыл бұрын
I love how you thank Judd for all he does for you! I'm sure he appreciates it so much!! ❤️❤️❤️❤️❤️❤️❤️👍🏼👍🏼👍🏼
@LauraandJeremy
@LauraandJeremy 7 жыл бұрын
I don't have any (debilitating) chronic illnesses but I can imagine that one huge struggle would be the fact that you have to spend so much of your time taking care of your body to keep yourself functioning that you don't have a lot of time to live your life doing things not related to your illness. I love that you vlog, because the internet is a great tool to reach out to others and make an impact on the world when your body is limiting what you can do in the nonvirtual world. I would love to see more online of the lives of people with chronic illness for many reasons, but especially because those watching can learn so much about gratitude and empathy from people like you.
@violetb2667
@violetb2667 5 жыл бұрын
I recently had a breakdown because I couldn’t go through the dollar tree for a couple of minutes. It was definitely needed and it got my mom to see how hard it can be being me. Thank you so much for sharing your moment. It was so much needed right now. ♥️
@tabibimbap
@tabibimbap 7 жыл бұрын
Aw Jaq. It hurts to see you cry because of your frustrations. Thank you for sharing this very raw moment with us. We hope you feel better real soon.
@Shelbz92
@Shelbz92 7 жыл бұрын
She's like mom save me I don't want to get cleaned you don't feel good so I need to be by your side in case you need me
@nicolehagvik480
@nicolehagvik480 7 жыл бұрын
I know what you mean when you say you can't put on a smile all the time. I have couple of illnesses and sometimes I just want to give up on everything.
@emilyc8958
@emilyc8958 6 жыл бұрын
It is really important that people know that it is ok for people to be sad about bad things happening to them. So much shame and guilt has been put on me about being distressed by my situation with my health, but something I have come to determine is that it is ok to be sad and grieve about the health that is lost and the dreams that become uncertain with that. It is too much to be expected to be positive all the time.
@bmwpcr
@bmwpcr 7 жыл бұрын
Amen to the don't judge. I understand the frustrations. glad you have tools for dealing. I got your back Jaquie....
@djlawlz4041
@djlawlz4041 7 жыл бұрын
I Get the same thing pretty often . Sometimes I need a wheelchair and sometimes I don't . Sometimes I need to get up and other times I can't . I hate the looks people give me
@reesejohnson2958
@reesejohnson2958 7 жыл бұрын
I must say, your illnesses honestly show how stubborn and amazing you are. Many people cannot live like you do, and they find their selves feeling so alone. It's amazing that you can make it through this. We believe in you, always.
@anthonyc9967
@anthonyc9967 7 жыл бұрын
i hate when i go into stores with my chair, ( im only 14) and i stand up to get something on the top shelf (as my hips popped out of place) and people stare. like really? can you not
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
"Can you not" - love that, made me laugh. I totally know what you mean!
@ecologist_to_be
@ecologist_to_be 7 жыл бұрын
Around the World Cosplay I find it worse when I stand up from my powerchair as they think I'm paralysed from neck down lol
@wendyannh
@wendyannh 7 жыл бұрын
I'm right there with all of you! I like to educate people, though, and the fact of the matter is that about 65% of people who use wheelchairs *can* walk, to one extent or another, and use the chair to manage pain, fatigue, and/or balance issues. The funniest thing that ever happened to me (before the wheelchair) was one of the first times I took my service dog Sprite to the grocery store here, and some lady thought I was blind and kept trying to butt in to get things off the shelf for me. So many of the things she had said to me as we both wended our way through the store made no sense until she let it out that she thought I couldn't see anything - despite the fact that I was *obviously* taking things down off of shelves and reading them, and asking staff where things were and then heading to those aisles. People are really weird and don't get it. It can really be exhausting, but we have to be the ones to educate them. Next time someone stares at me with "that look", though, I swear I am going to just make weird faces at them.
@punky19761
@punky19761 6 жыл бұрын
Everyone who uses a wheelchair in public knows what you mean. Especially if we are young. We are really not that fascinating. Lol 🙄
@kristinwest7927
@kristinwest7927 7 жыл бұрын
Thank you for showing the good and the bad of chronic invisible illnesses. Sending you, Judd and Harlow so much love. I spend most of my time on bed rest due to pain, I also just fall apart some days. Treats and reality tv are great to help us feel better!
@mayabewsher6987
@mayabewsher6987 7 жыл бұрын
It is okay to be upset, it just shows your determination. I have been suffering from poor health and bad reactions over the past couple of years that have stopped me from going to college/university. I am hoping that this September I will be able to attend university but I am prepared for the possibility that it may not be viable. It is very frustrating knowing that you then have to wait for another year without certainty, but I believe that we can all get there. Keep fighting and I am sure you will achieve your dreams.
@GlenHunt
@GlenHunt 7 жыл бұрын
Healthy bodies don't make invisible illness easier; they all can be so overwhelming that we can neither maintain an honest nor a faked smile. I've been in a frustrating, dark place these past couple weeks myself. Ice cream is the best Rx. :)
@3doxies2love
@3doxies2love 7 жыл бұрын
I can relate to your invisible illness in a slightly different way. I'm hard of hearing and wear hearing aids. I don't look like I have a problem but I find myself reminding people not to cover their mouths when talking or not to turn away from me when talking to me. They can't see my hearing loss much like people can't see your chronic illnesses. We just have to do the best we can and educate others. I like how you show the good and bad times because that's your reality living with chronic illnesses. I have learned so much from watching your videos. Thanks so much for making them.
@EunFox
@EunFox 6 жыл бұрын
I need to teach my boy how to make gluten free cake for when my illnesses frustrate me. Seems like the perfect idea
@disrael5199
@disrael5199 7 жыл бұрын
Hope you had a better night. We all get frustrated. You are human. Just continue saying your prayers.
@wwestbrook3698
@wwestbrook3698 7 жыл бұрын
Thank you for this. I know I'm not alone. some days the tears don't stop and people don't always understand.
@Meridae-id1ki
@Meridae-id1ki 6 жыл бұрын
Dear Jacquie, I just found your vlog yesterday and have been pretty much binge watching and commenting randomly because I think you're amazing and interesting, What I want to say here is - even if you can't manage to go to college to be and occupational therapist, you are still helping people. These videos are helping people. I have a chronic mental illness and recently had to give up a job I loved (and my job was helping some of the most damaged people in society) and am now trying to find a new sense of self worth - and you are helping me. The fact that you live with so many chronic illnesses but STILL KEEP GOING is amazing. And I know some days reading stuff like that won't help but I hope, on the days you can hear it, you read comments like this and remember that you are helping people just by being you. Thank you for that. Thank you for showing the reality of a chronic illness. Thank you for being you.
@goldlick7138
@goldlick7138 7 жыл бұрын
this is where yt is king. giving alittle insight in the lives of people. thanks for sharing.
@ToshaRaeNailed
@ToshaRaeNailed 7 жыл бұрын
Best way to combat those types of blues. We do have to trust in Gods plan. Full of surprises! I'm so glad you have such a wonderful support system.
@josiesmith4711
@josiesmith4711 7 жыл бұрын
Your lucky they rarely will do regular infusions for POTs here. I only get them when I'm sick and of course then I have to deal with ER doctors and explaining autonomic nervous system dysfunction. and we all know Dr.s know everything. *epic eye roll here* lol love your videos they are encouraging and REAL ! :)
@ecologist_to_be
@ecologist_to_be 7 жыл бұрын
Josie Smile Same where I am. They pretty much never give infusions for just dystayomia (sp) alone at home
@staceymorris8890
@staceymorris8890 7 жыл бұрын
the frustration for me is worse then my symptoms. I can take meds to help with the symptoms but there is no help for the frustration. ice cream and cake sounds awesome for a pick me up x
@avac2570
@avac2570 6 жыл бұрын
I actually started following your channel when I started getting tested for POTS. We don’t have the diagnosis yet, but your videos are keeping me strong. ❤️
@adair4812
@adair4812 6 жыл бұрын
Thanks for sharing about your frustrating days. I have days where I can't turn the tears off. I was born with very mild Cerebral palsy. A few years a go I had to get a ostomy and that can be hard to adapt to, very life changing , had some award moment. I remember from the Frey Life do watcha gotta do.
@jesszombie9321
@jesszombie9321 7 жыл бұрын
this video was in my suggested videos. i haven't seen many of your videos but this one is great and will probably watch more. you are inspirational. Judd seems like a great guy cake and ice cream makes everything a little better!
@AprilSunshine
@AprilSunshine 7 жыл бұрын
Stay strong girl! I so appreciate how real you are while the cameras are rolling! Stairs still get to me sometimes too. I take them four at a time and hubby is always so patient with me but there are times I just want to stay sitting right in the middle of them and cry and cry and cry. You have a good point. The invisible illness aspect really sucks. Sometimes I wish I had a nice big scar across my face, something people can see , you know? it's hard enough without the judgmental strangers who think it's their job to judge others.
@titanicgirl774
@titanicgirl774 5 жыл бұрын
“It’s not what it sounds like it’s a show” XD I’m so you haha
@Nightengale64
@Nightengale64 7 жыл бұрын
Fellow POTSy and MCAD person. I have to drink at least 16oz of water before I can get out of bed. For MCAD heat and cold can be triggers as well as getting emotional. My infusion runs 24/7 and has benadryl in it. Hang in there. We all have bad days. I just pull up some chronically ill cat memes and laugh. Wish I could have ice cream. :)
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
Nightengale64 I'm glad you have a remedy. Cat memes, ice cream - It's important for each of us to have something! (:
@kcojco
@kcojco 7 жыл бұрын
Sometimes you just have to let it go. I love a good cry, very cleansing for the soul.
@calliemarcum5584
@calliemarcum5584 7 жыл бұрын
You are such a young and beautiful soul Jaquie! God is with you through these hard times and will lead the way for you. You Judd and Harlow are in my daily prayers. Dont give up on your dreams because anything is possible. "Just keep swimming".
@kathleenmorgan1215
@kathleenmorgan1215 7 жыл бұрын
Jaquie, Thanks for allowing us to be voyeurs into your life. You are experiencing the type of pain and frustration that would bring most of us to our knees. And you are remarkable how you stay informed and in tuned to your body and it's various illnesses. I am always amazed how you are so knowledgeable and can express the details of it all. I am glad you have such a strong support team. Stay strong!
@camrynjohnson5359
@camrynjohnson5359 6 жыл бұрын
I love how you share your frustrations and how you deal with it ❤️ you give all of us chronic illness warriors strength
@hillarygilbert1415
@hillarygilbert1415 7 жыл бұрын
I'm sorry you had an overwhelming weekend with symptoms. I know all too well how that can be. It's like we just want to be able to use our bodies like everyone else without an issue of getting too dizzy or being in pain or feeling as though we will pass out. I am proud of you for showing the true way chronic illness can be. Watching you cry made me cry because I know exactly how you were feeling in that moment. I'm so happy you have Judd and Harlow and your wonderful friends ❤️ Hoping this week is low symptomatic for you 🙏🏻
@syrenawebb2605
@syrenawebb2605 7 жыл бұрын
bless your heart. I just discovered your channel two days ago. I personally don't have any health issues. just weight and eye/headache stuff. but 3 of my best girlfriend's plus my cousin have either massively painful reproductive problems, or chronic illness/pain. one friend so far has been diagnosed with Endometriosis, PCOS, chronic migraine, sleep anea, and various allergies to food and environmental things, but most of her other more serious issues are still undiagnosed. she can no longer work due to chronic fatigue, immune system failure, fainting spells, pain, imbalance, and such. people keep saying it's all in her head, "she must be doing it for attention", etc. but she is one of the strongest women I know. she wouldn't ever fake anything. she has been struggling since childhood, and just in recent years came out about it to friends and extended family to explain why she can't do certain things. it hurts her heart that she can't work right now or be able to have biological kids. I'm glad that you are educating the world on the topic of invisible illnesses. just because someone is not in a wheel chair doesn't mean that they are not in pain.
@rachelparry4973
@rachelparry4973 7 жыл бұрын
Proud of you! Praying.
@briatecheira9269
@briatecheira9269 7 жыл бұрын
Awwww im sorry this is happening to you girl don't get sad be happy don't let your illness get to you be happy and ice cream makes me happy tomorrow is a new day that what a say all the time
@miss-megative2683
@miss-megative2683 7 жыл бұрын
We've all been there, Jaquie. It's so hard when you're advocating nonstop and you just want to do something simple! I really hope the IVIG is able to help mitigate some of your POTS issues and hopefully you can get back to school in the fall! Take it slow. One class at a time and you'll get there eventually!
@claireelizabethblake8911
@claireelizabethblake8911 7 жыл бұрын
Jaquie, it's okay to be stressed. You go through so much! God didn't give you this, but He will get you through it. Harlow is so cute and such a derp! Not having that bath!
@claireelizabethblake8911
@claireelizabethblake8911 7 жыл бұрын
It's okay to be doubtful. It's okay to freak a little. We love you!
@nummysmom
@nummysmom 7 жыл бұрын
I've been dealing with rheumatoid arthritis(and all the crap that goes with it) since I was 11 years old. I'm 56 now...so that's 45 years of being sick and in pain. The last couple of days have been really bad and I'm just so worn out after so many decades of this. It is hard....you have to let yourself mourn all the things you've lost in life. No you can't focus on them, but still...like Jack said you have to let yourself feel the bad feelings too. I'm just so tired.
@daisyhoward4181
@daisyhoward4181 7 жыл бұрын
You are so brave! It's okay to cry every once in awhile, you're so strong all the time! I couldn't even imagine being in your situation!
@sarahstuart3245
@sarahstuart3245 6 жыл бұрын
Thank you for sharing your frustration, it's so helpful to see another person's perspective :) My partner has a fix for when I have an unplanned hospital visit. Take away! Always makes me feel better :) even if I can't eat it that night.
@jeanneewaseck3987
@jeanneewaseck3987 7 жыл бұрын
I didn't realize, until i saw this video, that you guys are right on a body of water - how nice!
@beebop1402
@beebop1402 7 жыл бұрын
I just found your channel and I'm already in love. I have a chronic illness in my legs and I'm only 14. I've been getting worse and I'm looking into a service dog. (Infusions are the worse! I have only gotten them in the hospital but they stink)
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
I have a video called service dog 101, it is for people who are interested in getting a service dog. Maybe it can help you get started with the research! Also, welcome to the adventure, we are happy to have you!
@djlawlz4041
@djlawlz4041 7 жыл бұрын
I'm 15 and the person on my channel I vlog with is 17. We have a chronic illness as well . Well we actually have multiple each. We both often think about service dogs .
@beebop1402
@beebop1402 7 жыл бұрын
good to have someone who understands. i turn 15 this tuesday and still am no closer to finding ways to cope with my illnesses. my parents say a service dog wouldnt help me
@Unknown-gd5om
@Unknown-gd5om 6 жыл бұрын
I love your videos! Always puts a smile on my face when my chronic illnesses act up thanks for being awesome!
@HallyuHeavenUS
@HallyuHeavenUS 7 жыл бұрын
I new I am rather new to your channel. But I am here for you. I also had to medically withdraw from school but mine didn't go so well because my school messed up (USF) I am here for you. Really! If you ever feel like talking texting just message.
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
I go to USF as well... How did they mess up? I'm so sorry!
@HallyuHeavenUS
@HallyuHeavenUS 7 жыл бұрын
I was told that I had to w ait until the withdrawal due date to drop my classes ( I had episodes where my body would go completely numb, had to call an ambulance on myself on I 75 because I lost completely feeling in my body.Thereafter if I would sit down for eve 20 minutes my body would go numb) well come to find out I couldn't drop and I had an ER Doc that had left the hospital so he could't write a report now I am stuck with two F's. We just moved to Alaska and I am hoping that once my semester here begins I can get grade forgiveness or tell them about the situation so it won't count against me. It was a rough time. I had a 4.0 GPA at the time as well
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
Cotton Candy Fox Were you speaking to the disability coordinator? They can't make you wait for anything if it's medically related. It's one easy paper to fill out, and another for your doctor to fill out. Any doctor, I had my primary care do it.
@wendyannh
@wendyannh 7 жыл бұрын
That really stinks! I do hope you have been able to sort this out. Schools can be real stinkers about accommodations, and it can be a royal pain to fight them, but fight you must. BTDT, got the t-shirt...
@erikae6183
@erikae6183 7 жыл бұрын
love you jacquie!!! i admire you so much for your positive attitude but it's also so important to let yourself feel your frustrations
@sunnyfire46
@sunnyfire46 7 жыл бұрын
Stay strong, Jaquie!! Super proud of you! You can do this.
@savannahballard5786
@savannahballard5786 7 жыл бұрын
just cry it out, I know when I get frustrated with my health I feel the tears and can't fight them back. just cry it out and keep moving forward. :)
@avadruger7968
@avadruger7968 7 жыл бұрын
You're doing so great. I am so proud of you. Always inspirational. :)
@pattyal6337
@pattyal6337 7 жыл бұрын
is ok to be frustrated sometimes.. u are very strong.. I'm a wheelchair user since 4 years now. I can't walk at all and when I drop something it makes me cry everytime... I miss cooking ... I don't leave my bed.. I don't have the space to do it.. so now I spend the day watching your videos.. but is awful... I feel so much pain everyday that is making me go crazy, literally... thanks for your videos..
@christinafassett9846
@christinafassett9846 7 жыл бұрын
I've been binge watching your videos lately and I've noticed how beautiful your hair is!! It's so long and beautiful
@TheDinohunter100
@TheDinohunter100 7 жыл бұрын
even though I suffer from a really different disability it makes me feel really bad to see a lot of people suffer from a lot of disabilities I don't get. I suffer from autism and so does my brother. my sisters suffer from cerebral palsy and they've gone through a Lot of surgeries in their lifetime and it makes me feel bad for just watching them suffer a Lot everyone in my family has been in the hospital except for me and I'm sorry for anyone reading this I don't want to make anyone feel bad for me it makes me feel happy even though you're going through a lot of stuff just watching this is bringing up a lot of things in my past to anyone reading this I hope that it'll change your way of thinking about different disabilities it has for me
@Lylala95
@Lylala95 7 жыл бұрын
After my kneesurgery I was in a wheelchair sometimes, cause I wasn't able to walk longer distances. Then I noticed this hilarious look from people too, when I stood up and walked with my crutches.. 😅
@danellwampler7648
@danellwampler7648 7 жыл бұрын
Brave, so, so brave!
@Zalaneax
@Zalaneax 7 жыл бұрын
Same with my dog and one of my cats about the water! They both love to be in the water, but you dare PUT water on them? No, they act like they're dying lol
@servicedogdakota1494
@servicedogdakota1494 7 жыл бұрын
Haha, my service dog doesn't like his baths either!
@dixier4035
@dixier4035 7 жыл бұрын
Feel better soon. You've got this !
@vikkybeer5442
@vikkybeer5442 7 жыл бұрын
I just subscribed and have been binge watching you for the past hour! I love your vlogs and Harlow is gorgeous
@wendyannh
@wendyannh 7 жыл бұрын
So sorry you are suffering from all of these problems! I'd say you were too young, but as we both know, chronic illness knows no age limits, in either direction, although it certainly particularly sucks when someone your age and younger hasn't even had a chance for a normal life. You deal with them with great grace and humor, though - and I agree, it's important that "normies" understand that putting on a good face the way we so often do is just not how it is all the time. Your vlog is doing us all a wonderful service. Anyhoo, that infusion backpack is awesome! Some years ago, my brother had a feeding tube and was pretty much chained to his bed for most of the day while his infusions ran. Something like this would have really helped.
@SexyArmyStud
@SexyArmyStud 7 жыл бұрын
I understand your frustration I'm turning 28 and have lost alot of function in my hands and may have to have surgery on the my left one in the near future...I thought infusions at the hospital for 3hrs was long and you do yours for 8. my doctor told me break downs are good they are a helpful restart button so hopefully you feel refreshed
@EmilyCarriker1
@EmilyCarriker1 7 жыл бұрын
I started getting emotional with you . You're right God has a plan.
@selenas2014
@selenas2014 7 жыл бұрын
Your amazing Jaquie just remember that. Your battling chronic illness and are very positive so your allowed a day of frustration
@hannahbarrera6493
@hannahbarrera6493 7 жыл бұрын
I am so sorry, Jaquie :( I hope you have a better day soon! And those snacks sure looked yummy!
@monicarander4582
@monicarander4582 7 жыл бұрын
Hi my name is Monica and I'm from Pennsylvania. I've been watching your vlogs for a while now and love them ♥️♥️♥️♥️♥️ I found Harlows insta and I was so amazed that someone was training a dog to do so many things. Then I learn that the person who was training her had all these illnesses. I was really sad for you but when I saw you make a KZfaq channel I had to watch it. I was so surprised how happy you are in your vlogs. 😊 most people who talk about their illnesses say it sadly and complain when it gets to be too much. But the way you talk about your illnesses is amazing 🎉 I truly don't know how you stay so positive through all the symptoms and pain you go through. I have an English cream golden retriever and want to train her to do some of the tasks the Harlow does.
@ChronicallyJaquie
@ChronicallyJaquie 7 жыл бұрын
Thank you for the support!
@ThatDutchGurl
@ThatDutchGurl 7 жыл бұрын
I cried with you Jaquie! Sending lots of spoons your way!!
@Zoawesomeshowjumper
@Zoawesomeshowjumper 7 жыл бұрын
Might sound odd but really don't mean it to. Your voice is so relaxing and calming, I watch multiple videos a day and it really helps just to fade out of the world around me and I watch videos after therapy. It really does help
@sasunarufan1290
@sasunarufan1290 7 жыл бұрын
you are such an amazing woman you are so strong
@elizabethannegriffith
@elizabethannegriffith 7 жыл бұрын
hey , you are doing great and i know how it feels to be frustrated similarly, it's ok to be upset like you said it is justified and i am glad that you have coping strategies like ice cream and cake :)
@CourtneyRohrer
@CourtneyRohrer 7 жыл бұрын
Just came across your channel! You seem like a legit human being, and I'd kill to have more people like you and with your same mentality around me in my own life. New sub :) keep up the awesome vlogs!
@AprilSunshine
@AprilSunshine 7 жыл бұрын
He is such a great guy! They are too cute!
@sarinafrohn6751
@sarinafrohn6751 7 жыл бұрын
The dogs whit the Ball looks like siblings arguing
@LifesGood22
@LifesGood22 6 жыл бұрын
Don't forget to nurture Judd. You are very blessed to have such a wonderful & supportive Husband.
@Cassy1417
@Cassy1417 7 жыл бұрын
Your such an amazing personnn !!! Love ur channel and ur hair !!!! 🙌🏼💁🏼
@JoJohXD
@JoJohXD 6 жыл бұрын
Recently I find your channel, it's lovely, a perfect family whit a lot of love! Unfortunately live whit so many illnesses is very hard, where I live, we have only a few dogs (but for blind people, and you can count in your hand how many are in the COUNTRY!) So we don't have law's for that... Is frustrating have to tell people that I have "invisible" illness, even in work people think we are lazy and faking... I don't know if you will read this but I'm sending all my positives vibes from Uruguay and Brazil!!
@Automage45
@Automage45 7 жыл бұрын
Stoked I found your KZfaq... followed ya instagram. Love the finest vlogs... sorry about your illness :( keep up the videos when you can
@TwoCrazyCockers
@TwoCrazyCockers 7 жыл бұрын
(((((hugs))))) from the UK nothing beats cake and ice-cream except maybe more cake and ice-cream ☺☺ We missed your live stream because I mucked up on the time difference, hopefully next time I'll get it right. All the Best Dawn and Boris xx
@Lucian-zz9lb
@Lucian-zz9lb 6 жыл бұрын
I'm glad your feeling a little better
@maisybob4264
@maisybob4264 6 жыл бұрын
Jaquie, I know this video is several months old & you'll probably never see my comments, but I just saw it & had to share my similar situation . I so totally relate to how you're feeling...I cry every day about my chronic illnesses. I was diagnosed at age 48 with Crohn's Disease. I had already been diagnosed with fibromyalgia, degenerative disc disease, & severe osteoarthritis, chronic pain, & I'm a partial amputee; lost half my foot & first 3 toes at age 4 in a lawnmower accident. I had to have a bowel resection in 2012 because of strictures caused by Crohn's & afterward developed lymphedema in both legs from what doctors think was probably some severed lymph nodes during the bowel resection. I have to use a rollator to walk too, & I use the electric cart to shop. I've heard people say hurtful things about me using the cart -- saying I'm not handicapped, just fat & I shouldn't keep a truly handicapped person from using the cart. I just keep on driving, but cry the whole time. I'm very impressed with your positivity & your intelligence. I try to educate myself about every aspect of my health issues, too. Knowledge is power. I live alone with Rocky, my Chihuahua, & don't know what I'd do without him. Harlow is so smart & beautiful. Thanks again for speaking for the millions of people who have "invisible diseases"; I love your videos. Dana & Rocky in TX Thanks for speaking
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