A Caregivers perspective Part 2
21:22
21 күн бұрын
A Care givers point of view.
22:44
Life Rewired UNFILTERED
3:39
Ай бұрын
life rewired Motivating yourself
10:04
Life Rewired: Jocelyn Cook
19:20
2 ай бұрын
Part 3 of Finding positivity.
20:26
Life Rewired Support Group
0:49
2 ай бұрын
Staying positive part 2
21:05
2 ай бұрын
Winning Wednesday's Rene Ready
6:53
The crash that reshaped our lives
21:10
Пікірлер
@DonnaFigurski
@DonnaFigurski 17 сағат бұрын
Rob, what a fun surprise to stumble on this video. It was beautiful. Thank you for sharing your song with the world. Donna O'Donnell Figurski, author of Prisoners Without Bars: a caregiver's tale
@liferewiredpodcast
@liferewiredpodcast 17 сағат бұрын
Thank you so much Donna. I did this as a favor to my Aunt. I’m glad you liked it. ❤
@Cooking_therapy_everyday
@Cooking_therapy_everyday 2 күн бұрын
The doctors office clock, drives me insane! Excellent job guys, very descriptive with the details.
@tomtbi
@tomtbi 3 күн бұрын
A lot of truth to this... TBI... You only know it if you live it...
@renepoggenpoel1711
@renepoggenpoel1711 4 күн бұрын
Awesome information. I read somewhere that anger’s other name is grief.
@renepoggenpoel1711
@renepoggenpoel1711 5 күн бұрын
My favorite “have you seen my bra😂😂😂”
@cathylithgow2342
@cathylithgow2342 6 күн бұрын
God bless encourager
@tomtbi
@tomtbi 8 күн бұрын
I have heard of EMDR...
@VulnerablyLalli
@VulnerablyLalli 7 күн бұрын
@@tomtbi i have several tbi survivor experience videos in a tbi playlist on my channel. I hope they can be helpful for you 🫂❤️‍🩹🧠🫂
@VulnerablyLalli
@VulnerablyLalli 7 күн бұрын
@@tomtbi emdr coupled with IFS is a beautiful recipe for healing trauma
@tomtbi
@tomtbi 8 күн бұрын
More model car building issues feeding my TBI anger.. UGH!!
@renepoggenpoel1711
@renepoggenpoel1711 12 күн бұрын
Love this podcast❤❤❤ You guys are full of wisdom about living with brain injury.
@paulwrobleski8072
@paulwrobleski8072 12 күн бұрын
I went from saying I don’t feel right to I don’t belong in this world anymore 🤟💚
@VulnerablyLalli
@VulnerablyLalli 10 күн бұрын
Ooooo do I hear that!! I am grateful you stayed. You do belong, we just live in a different dimension. They can live in their world, we can live in ours lol. 🫂❤️‍🩹🧠🫂
@tomtbi
@tomtbi 8 күн бұрын
I have been there... TBI... You only know it if you live it...
@sksimonds
@sksimonds 18 күн бұрын
Thank you for this conversation! I’m 2+ years out from my TBI and can relate so hard to all of this, especially the conversation about doctors not listening/prescribing meds that just double your symptoms. So frustrating, especially when you’re already low on energy and capacity! Looking forward to part 2!
@liferewiredpodcast
@liferewiredpodcast 18 күн бұрын
Thank you so much for saying this @sksimonds It is so wonderful to know that people relate to what we are talking about. It's so frustrating that most Doctors rush you in and out of an appointment and never take time to get to the root of the problem.
@VulnerablyLalli
@VulnerablyLalli 17 күн бұрын
Thanm you for the kind words. You can also see some of my TBI survivor experience videos on my channel in a TBI playlist I put together. I hope its helpful 🫂🧠❤️‍🩹🫂
@sksimonds
@sksimonds 17 күн бұрын
@@VulnerablyLalli I just subscribed and look forward to checking those out. Thank you for sharing your experience!
@VulnerablyLalli
@VulnerablyLalli 16 күн бұрын
@@sksimonds you are most welcome. Its my honor to help others through this. Its way to daunting and hopeless for many. 🫂🧠❤️‍🩹🫂
@tomtbi
@tomtbi 19 күн бұрын
Sometimes I am my own worst enemy as well....
@tomtbi
@tomtbi 19 күн бұрын
I have been accused of using my TBI as a crutch....
@liferewiredpodcast
@liferewiredpodcast 19 күн бұрын
I’m hoping you just keep improving. I’ve seen your channel and you do good work. I hope this video helps, even if in a small way.
@tomtbi
@tomtbi 19 күн бұрын
Thanks!!
@tomtbi
@tomtbi 19 күн бұрын
Trying to manage a model that was supposed to be easy to build but is proven to be otherwise... UGH!!.. so PERFECT TIMING!!
@HB-bj3fb
@HB-bj3fb 20 күн бұрын
found your content on facebook, your videos help me so much whenever I need a pick me up! my 3 TBIS were from drinking.. i'm an empath too.. and to become apathetic, yes that's something i've felt too.. loss of joy... wow you've gone to the other side.. I did too, with my first TBI.. I saw my body being taken away from a stretcher, it was if I was floating above.. a memory of mine that I know is from the beyond.. i'm sorry about your TBI experiences, however they have made you the person you are today, which is so motivating.. when you talk about dissociation and accountability on compassion, the rage, how it impacts your family.. i love how you surrendered.. you are resting.. i'm trying to do exactly the same with my current circumstances. i'm glad that you took the time off!
@liferewiredpodcast
@liferewiredpodcast 20 күн бұрын
Thank you for your comment. We are so glad that you are enjoying the content we are putting out. We are trying hard to be a voice for everyone, so letting us know that you appreciate this makes me so happy to know that our efforts are not in vain. Thank you so much :)
@Cooking_therapy_everyday
@Cooking_therapy_everyday 21 күн бұрын
This is a great video. This is why I asked to join the support group, which is awesome. But, I would change the name to something like "this is my new daily life" or something better worded. I've shared this with a few family and friends and they all say they understand better now what I go thru. Thank you.
@liferewiredpodcast
@liferewiredpodcast 21 күн бұрын
Thank you so much. My hopes in doing this video was more geared towards family who discount our symptoms or think we are faking it. I’m so glad this video helped
@karendebonis1563
@karendebonis1563 23 күн бұрын
Although my experience as a caregiver is very different, I can relate to so much of this, including my son receiving treatment from Boston Children's Hospital.
@tomtbi
@tomtbi 23 күн бұрын
TBI.... The invidible disability....
@tomtbi
@tomtbi 23 күн бұрын
I don't do well with crowds either....
@tomtbi
@tomtbi 23 күн бұрын
TBI.... You only know it if you live it....
@foodandcooking101
@foodandcooking101 Ай бұрын
I think there a few takeaways people can get from this. There are complexities. A lot of people assume brain injury means one thing, and that's "human vegetable". It's either that or it's not legit. It's probably not easy sharing personal details and challenges either because people judge. But I guess people judge everything, so who cares
@liferewiredpodcast
@liferewiredpodcast Ай бұрын
Nailed it on all accounts. Tv and movies do a big injustice to what a brain injury is. People only know what they hear and see, so we also can’t totally blame them for their lack of understanding.
@dawncorbelli
@dawncorbelli Ай бұрын
Great podcast. Congratulations on your daughters successes..and yours. I like when you talked about being human because I'm pretty hard on myself when I get it wrong. Thank you.
@tomtbi
@tomtbi Ай бұрын
First
@liferewiredpodcast
@liferewiredpodcast Ай бұрын
Sometimes we need to step back and take a break from what we love. It’s ok to step away. What isn’t working right now could very well be a chance to branch out and do greater things. Don’t give up your dreams though. Take a break and allow yourself to heal. Down the road dive back in slowly and see what happens.
@tomtbi
@tomtbi Ай бұрын
I am feeling it right now... I feel like I am not good at anything because I cannot build modek cars anymore... Sad😢...
@tomtbi
@tomtbi Ай бұрын
Well I finally gave up on building model cars because of my TBI and I don't enjoy it anymore...😢 Sad...
@nadinesearfoss8062
@nadinesearfoss8062 Ай бұрын
May god be with you honey .May god heal you.Prayers for you 🙏.
@VulnerablyLalli
@VulnerablyLalli Ай бұрын
Thank you brave warrior for sharing your story 🫂🧠❤️‍🩹🫂
@mdrifatkhan749
@mdrifatkhan749 Ай бұрын
Wow wonderful video. All the videos on your channel are fantastic. But your video views are lower. Because your optimization is very poor. Your optimization needs to improve as soon as possible.,................
@paulclarke1340
@paulclarke1340 Ай бұрын
I do suffer with bad balance really bad
@paulclarke1340
@paulclarke1340 Ай бұрын
Im so lucky i do not suffer head aches thank god i have an axinol diffused tbi
@karenvann9381
@karenvann9381 Ай бұрын
Hello. I am glad I found this channel. I too have an invisible TBI from Jan 13, 2022 when I fell on an icy work parking lot and bounced- so I hit my head twice. I understand the headaches....every...single....day. I have now been prescribed an injection once a month which seems to have helped a bit. Still very frequent, a little less sharp. Sick feeling head everyday anyway. Glad you shared. I will keep watching. Thanks.
@liferewiredpodcast
@liferewiredpodcast Ай бұрын
I’m thankful you survived, but so sorry you have to go through the struggles that comes along with a TBI. I started this channel in hopes that I can both educate and be a support to others who are going through this as well. Thank you for watching.
@2dogbull
@2dogbull Ай бұрын
Thank you for the opportunity to be a guest on your podcast, Rob. As you audience has any questions, please ask. You may do so in response to my comment. I look forward to hearing from you. Thank you. Craig
@tomtbi
@tomtbi Ай бұрын
Lots and lots of truth spoken here!!
@tomtbi
@tomtbi Ай бұрын
It took me 15 years,4 appeals and 3 attorneys to FINALLY get my SSDI!!
@tomtbi
@tomtbi Ай бұрын
My hobby of model car building,facilitating a TBI support group,and driving part time for a car dealership do help...
@foodandcooking101
@foodandcooking101 Ай бұрын
Always incude more and more of the cats for sure. I will never complain about seeing them in videos. I can imagine management of tasks, and goals is more complex with brain injuries. I also imagine it is unique with each individual. Shit, this stuff is hard enough without that part lol. Sometimes I am more motivated than other times for sure. Good stuff though, I look forward to seeing more and how these interviews evolve.
@liferewiredpodcast
@liferewiredpodcast Ай бұрын
Our cats seem to be wanting the spotlight more and more. lol. But yes, the sad thing is brain injuries are like snow flakes. No two are alike. It’s mind blowing (pardon the pun)
@dawncorbelli
@dawncorbelli 2 ай бұрын
Where do you find your guests even out of country?
@liferewiredpodcast
@liferewiredpodcast Ай бұрын
Most of them have reached out to me, believe it or not
@tomtbi
@tomtbi 2 ай бұрын
Sometimes I do easier kits to do to give my brain a rest and to work on my painting and building skills as well..
@tomtbi
@tomtbi 2 ай бұрын
Sometimes if I just walk away and let the paints cure for an hour or two more often than not I am successful...
@tomtbi
@tomtbi 2 ай бұрын
As it just so happens... The TBI support group I facilitate today meets... At a local Panera!!... Then off to the model shop for supplies so you can guess I have not given up the hobby!!... I believe the building is great for keeping my brain limber.. I actually picked up some kits at a show a week ago and actually are planning to start them today....
@liferewiredpodcast
@liferewiredpodcast 2 ай бұрын
I love this! Never give up
@sdkonlinestrokeawareness5990
@sdkonlinestrokeawareness5990 2 ай бұрын
kzfaq.info/get/bejne/qp6Yacehsqilcn0.htmlsi=PNo9czDUL0mjSiFs
@tomtbi
@tomtbi 2 ай бұрын
Just like the TBI support group I facilitate... We meet at Panera for breakfast once a month ..
@tomtbi
@tomtbi 2 ай бұрын
TBI.. You only know it if you live it... I can relate to the mood swings and suicidal thoughts... I also have a lot to live for.. Family,friends,employment,TBI advocacy and my model car building hobby...I would miss the great feeling when I finish one of my models and it comes out well...
@renepoggenpoel1711
@renepoggenpoel1711 2 ай бұрын
You look beautiful Jocelynn❤❤❤
@JocelynnCookiee
@JocelynnCookiee 2 ай бұрын
Thank you so much
@JocelynnCookiee
@JocelynnCookiee 2 ай бұрын
This turned out awesome
@Runningtorchbearer
@Runningtorchbearer 2 ай бұрын
My husband had a TBI on the 27th May 2022 whilst away on a break, he left the bedroom in the middle of the night to go to the toilet and instead of going to the onsite bathroom, he went out of the bedroom door and fell headlong down the steep stairs and hit his body and his head off the radiator, i rushed to his aid and found him hardly able to breath, knocked out, and bleeding all over the floor. He was taken to a hospital where they said he had multiple broken ribs, fractured skull, brain bleed, deflated lung etc and then was taken to a more local hospital to us, the ambulance crashed on the way. He then had a punctured lung as well, he was on life support with all the apparatus needed. They said he wouldn't live, he did, they said he would never be able to talk or walk, he does, his balance is not wonderful, he walks bent, he does talk but still gets his words mixed a little, he does read quite well but from the beginning i got him to read outload. Initially he was double incontinent and i couldn't have him home because of the stairs and the care he needed. He was in hospital for 6 months two different ones, then the next 18 months in care, now home in a bungalow. we had no help whatsoever from the UK NHS, refused brain rehabilitation 3 times. only i have really worked with him. . There is virtually nothing in the UK regarding Brain rehab, although recently are having talks with another survivor who is helping people now. I live in the far North East of England, and basically there is nothing here that i know of. I put a word out on facebook about setting up a support group but nothing so far, no one interested.
@liferewiredpodcast
@liferewiredpodcast 2 ай бұрын
Oh my goodness. He went through it big time. He will be in our prayers for sure. And you as well. Being a caregiver is no easy task either. I had no idea how bad it was to get care in the uk until we talked to a therapist there who told us all about that. So I definitely sympathize with your situation. He’s come a long way and I pray he continues to heal. God bless.
@tomtbi
@tomtbi 2 ай бұрын
I struggle with impulse control and my "filter" too...
@tomtbi
@tomtbi 2 ай бұрын
I struggle with the victim mentality sometimes...